Re: Progression after anterior/posterior revision surgery?

[Guest guest]

Hi,

My son's curves 'settled' after surgery - he was fused T11 - L2 - his upper

curve, which was not fused, went from 42 before surgery to 22 after surgery -

over the first year it 'settled' back to 33 where it remained for a year - now

it has progressed another 5 degrees and is 38 degrees. He had the surgery

at age 16 and is now 19.

Bracing may do it for your daughter - a friend of mine has a son with

scoliosis - when his curves went into the 20 degree + range he was braced full

time -

as it stabilized he went to nighttime bracing. This all started when he was

13 and now he is 15. Girls reach skeletal maturity, as you know, much younger

than boys so I would think your daughter may have a very good chance of

avoiding surgery.

Best to you both,

[Guest guest]

Kathy and ,

Dr. Lipson saw me and did tell me that there can be rotation after

instrumentation. I am rotating to the left and can pretty much sense it. He

confirmed

it some time ago. He is no longer in practice. He has awful MS.

Carole M. (the elder)

[Guest guest]

Hi Kathy...

Some people report that their rib humps seem to reappear after scoliosis

surgery. Although I've never heard any doctor discuss this, I suspect that

some amount of rotation can return as the fusion settles. I'll be anxious

to hear what Dr. Boachie tells you.

Regards,

[Guest guest]

I had scoliosis surgery in 1976 at age 22. My daughter was diagnosed at age

8. She wore a brace full time for a while and then just at night until she

was about 19. She turned 20 in November. Was seen by our ortho in December

2003. He said her growth plates were completely fused and that her curve had

not progressed in over a year. She does not have to wear her brace now. (Her

initial curve, thoracic, was about 20). Hopefully, bracing will work for

your daughter, too.

Janet

South Carolina-USA

----Original Message Follows----

From: KnightonND@...

Reply-Scoliosis Treatment

Scoliosis Treatment

Subject: Re: Progression after anterior/posterior

revision surgery?

Date: Tue, 20 Jan 2004 10:13:29 EST

Hi,

My son's curves 'settled' after surgery - he was fused T11 - L2 - his upper

curve, which was not fused, went from 42 before surgery to 22 after surgery

-

over the first year it 'settled' back to 33 where it remained for a year -

now

it has progressed another 5 degrees and is 38 degrees. He had the surgery

at age 16 and is now 19.

Bracing may do it for your daughter - a friend of mine has a son with

scoliosis - when his curves went into the 20 degree + range he was braced

full time -

as it stabilized he went to nighttime bracing. This all started when he was

13 and now he is 15. Girls reach skeletal maturity, as you know, much

younger

than boys so I would think your daughter may have a very good chance of

avoiding surgery.

Best to you both,

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[Guest guest]

Hi ,

Dr. Boachie and his staff are very thorough when discussing the surgery. He

had me see the Internist and the Pulmonary doctor at HSS before surgery.

Unfortunately when it comes to some questions you might have, it seems all

doctors become reluctant in giving a difinitive answer. I truly believe it is

because they really don't know. Until they found out the exact cause of this

disease, I think it becomes hard to treat it and every individual case is

different. To me surgery (and I have had 3) and bracing is like putting a

bandaid on a

sore that keeps coming back. Until they figure out why, they can only fix

the problems. I don't know if this makes sense to you.

As far as Dr. Boachie goes, he is the best and I wouldn't have anybody else

touch my back. Good luck with your surgery. Lindy the nurse there is always

willing to listen and answer any questions. She's a doll.

Kathy