Re: Post Surgery and Pain

[Guest guest]

You are not a wuss. I'm 52, had several surgeries and I'm not working at regular

job at all. I couldn't, no way. I go to school, take care of my mom and my dogs,

and I'm worn out. If I had to go to work, forget it. My energy dissolved long

ago, after suffering for years in pain before having the surgeries. Being in

pain ages you physically as well as mentally, emotionally. If you don't find a

way to get the rest you need you'll only get worse, believe me. I've been there.

________________________________

From: beckybugkins <beckybugkins@...>

Scoliosis Treatment

Sent: Thu, October 15, 2009 8:28:25 PM

Subject: Post Surgery and Pain

 

I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length of

my spine fused except a couple on the bottom. I just had Stenosis surgery in mid

July. I am in pain working 8 hour shifts. The doctor is willing to write me a

note saying I can only work 4 hours. The boss is going to be real mad. They have

me working all different shifts never giving me a chance to rest nightly. I feel

guilty and like a wuss. Has anyone else had this happen? My upperback is also

hurting and I am super tired sleeping for about12 - 14 hours after working 8.

__________________________________________________

[Guest guest]

Hi Becky,

I, too, had scoliosis surgery right around the same time - in 1977.

Unfortunately, for many of us, there are a host of problems that can arise as a

result of the surgery we had so many years ago. Here is a link to a research

paper that details what some post scoliosis surgical patients are experiencing.

You may also want to contact a couple other that focus on these

same issues. I currently have minor complications from my initial surgery, so I

cannot offer you much advice. But if you share your story with the groups

below, and research the files they have posted on their sites, you will find a

wealth of information that might help you figure out your current situation.

Try this one or

both groups deal with complications that can

arise after scoliosis surgery.

There are a few flatback references on the SRS site. First, there is a white

paper

(http://www.srs.org/professionals/resources/sagittal_plane_white_paper.pdf) on

sagittal imbalance. Another article of interest is

http://www.scoliosismd.com/articles/flatback.htm

Bless you and best of luck,

Jeanne

Post Surgery and Pain

I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length

of my spine fused except a couple on the bottom. I just had Stenosis surgery in

mid July. I am in pain working 8 hour shifts. The doctor is willing to write me

a note saying I can only work 4 hours. The boss is going to be real mad. They

have me working all different shifts never giving me a chance to rest nightly. I

feel guilty and like a wuss. Has anyone else had this happen? My upperback is

also hurting and I am super tired sleeping for about12 - 14 hours after working

8.

[Guest guest]

Is it ever considered the fault of our surgeon if we have surgery and then

something goes wrong? In my case, I went in 2 years ago for what I thought would

be a difficult yet basic revision. One surgery, just to fix where I hadn't fused

and replace broken rods. I'd had an MRI so my surgeon could check my last disk

and after looking he told me I would not need to be fused to my sacrum, which I

was relieved about because my other surgeon, the one who had done the surgery in

the first place, was pretty much against doing the L5-S1 surgery unless

absolutely necessary. The reason I wasn't going back to him for the revision is

because I live across the country from where I first had surgery.

Anyway, I had to fly to Phoenix for my revision surgery, as there is no surgeon

in my immediate area that is able to perform this type of surgery. So I got

there 2 days ahead of time. I'm in his office for the final consultation and he

brings in the MRI and says he's sorry, he should've taken a better look at the

films because now he's decided I should get fused to S1, and it will involve a 2

part surgery. I'm all ready underweight at this point, since I'd been on pain

meds and in pain since the rods had broken several months prior. So, I don't

question his decision, I'm really too flustered to think at this point, just

that OMG I have to stay so much longer and I wish I'd had warning, but what can

you do?

So I had the 2 surgeries. I lost 10 more lbs, so I'm 5'11 and 120 lbs. I can

barely walk without passing out. I'm in the hospital 10 days and I went to rehab

for 5 days (they wanted me to stay longer but I needed to get home since I had

my son staying with my mom and my dogs for a short period of time). I had to

have 2 pints of blood before I left because I was anemic due to the fact the my

surgeon never gave me blood, but that's only part of this. They also had the

wrong size rods in the operating room, which, in his words, caused him a great

deal of trouble when it came to connecting them to the old ones. He told me he

also had trouble finding a place for my iliac screw because I'm so thin, and he

had to place it several times before it didn't protrude.

After a couple weeks being home, I started having pain in my left buttock area.

Within a couple days of the pain starting, I couldn't even so much as put my

foot on the ground. I called my surgeons office but I was told that they had

turned all my records over to a dr. in El Paso, about 50 miles from me, no one I

knew, and I'd have to speak with them. When I did they told me to keep off my

feet. Well, the pain never went away. And I couldn't get anyone to help me find

out why it hurt so bad. Finally I went to San Francisco by referrel from Baylor

Institute in Houston, and there I finally had a CT scan that showed the screw to

be in my joint. Bone had been worn off because of the rubbing of the screw for

almost 2 years. He had me in surgery within 3 days and the screw is out. I'm

still aching, but I can tell the difference from when the screw was there. I

could literally feel the screw. Before I even knew there was a screw there, I

said if felt like a

foreign object in my hip.

My question and anger is about this: why, in all that time did neither my

surgeon, nor the dr I was " turned over to " , or even my first surgeon-because I

went to see him this summer, and he did say the screw was in a strange place but

" Dr. s must have had his reasons for putting it there " , but didn't ever

suggest I have a CT scan to see if I'd fused and if I could get the screw out.

Maybe I could've had the screw out a year ago! I didn't know they could tell if

I was fused from a scan. I thought I had to just wait and suffer, which I did. I

thought of killing myself almost daily. I had visions of cutting myself open and

pulling the screw out. I have no energy. I'm still underweight. I'm depressed

almost all the time. I hope I'll recover now that it's out. But I wasted 2 years

of my life and maybe more if this doesn't heal properly, all because of this

surgeon who didn't give a crap about what was going on with me, his patient. He

was done with me.

I'd like to sue him. Because I feel like he didn't have to put the screw there.

He could've let it protrude. I know people have screws that protrude. I wouldn't

care if it didn't hurt. This pain was awful. And relentless. Do the surgeons get

to do whatever they want and we just have to pay the price when they do it

wrong?

________________________________

From: Slinker <slinkers5@...>

Scoliosis Treatment

Sent: Tue, October 20, 2009 1:11:49 PM

Subject: Re: Post Surgery and Pain

 

Hi Becky,

I, too, had scoliosis surgery right around the same time - in 1977.

Unfortunately, for many of us, there are a host of problems that can arise as a

result of the surgery we had so many years ago. Here is a link to a research

paper that details what some post scoliosis surgical patients are experiencing.

You may also want to contact a couple other that focus on these

same issues. I currently have minor complications from my initial surgery, so I

cannot offer you much advice. But if you share your story with the groups below,

and research the files they have posted on their sites, you will find a wealth

of information that might help you figure out your current situation.

Try this one http://health. groups.. com/group/ FeistyScolioFlat backers or

both groups deal with complications that can

arise after scoliosis surgery.

There are a few flatback references on the SRS site. First, there is a white

paper (http://www.srs. org/professional s/resources/ sagittal_ plane_white_

paper.pdf) on sagittal imbalance. Another article of interest is

http://www.scoliosi smd.com/articles /flatback. htm

Bless you and best of luck,

Jeanne

Post Surgery and Pain

I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length of

my spine fused except a couple on the bottom. I just had Stenosis surgery in mid

July. I am in pain working 8 hour shifts. The doctor is willing to write me a

note saying I can only work 4 hours. The boss is going to be real mad. They have

me working all different shifts never giving me a chance to rest nightly. I feel

guilty and like a wuss. Has anyone else had this happen? My upperback is also

hurting and I am super tired sleeping for about12 - 14 hours after working 8.

[Guest guest]

Hi Becky,

My son has to have a spinal fusion in the near future. He's almost 13 years

old. He might have to have a full spinal fusion. How is your mobility? Can

you do the same activities as you could before, or are you limited? Can you

bend over, etc. Please let me know. I'm sorry that your still hurting and an

extremely tired. I hope this gets better for you. Was post surgery really

painful? Thanks for your help Becky.

>

> I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length

of my spine fused except a couple on the bottom. I just had Stenosis surgery in

mid July. I am in pain working 8 hour shifts. The doctor is willing to write

me a note saying I can only work 4 hours. The boss is going to be real mad.

They have me working all different shifts never giving me a chance to rest

nightly. I feel guilty and like a wuss. Has anyone else had this happen? My

upperback is also hurting and I am super tired sleeping for about12 - 14 hours

after working 8.

>

[Guest guest]

Becky,

I saw your post regarding your son needing a spinal fusion and thought I would

chime in with my experience. I was fused in 1977 from T4-L3 when I was 17 years

old. I am now just turned 50. I was operated on in Chicago and while the

surgery is very painful, I know that they do a much better job managing pain now

than they did back then. They get you up and moving right away, whereas I was

in a special bed for 10 days before they put be in a full body cast from hip to

neck. It hurt quite a bit right after surgery, but I do recall the pain

subsiding about 3-4 days post op. Again, they are very good now at making sure

they keep the pain under control. I was in a cast for 7 months afterwards but

was fine and in no real pain during that time other than my right hip where they

took bone material from to use in the spinal fusion.

I am unfused at the top of my spine and neck, and at the very end of my spine.

I have good flexibility at L3/L4, L4/L5, and L5/S1. I have been able to do just

about anything I wanted - although I did have to give up on gymnastics in high

school. I would also say that contact sports, water skiing, things where your

body takes a big hit are things your son will want to avoid. But overall, I

never felt that I was missing out on anything. Although being a teenage girl in

a body cast that made me look like a line backer was not great for my

confidence, but it wasn't so bad.

If I may ask, where is your son having surgery? Are they making sure to take

into account his saggital balance so that they maintain his normal lordotic

back/waist curve? This is very important as people like me who were operated on

all those years ago are now having trouble later in life because they did not

think about the necessity of that curve back. Many people have had to have

revision surgeries to try and correct this problem. If your son's doctor has

not discussed this with you, then you need to ask as it is vital to getting the

best long term results for him.

I understand how frightening this is and I wish you and your son much luck in

the future. Just know that this is not the end and that he will have a terrific

and active life post surgery.

Take care,

Jeanne

Re: Post Surgery and Pain

Hi Becky,

My son has to have a spinal fusion in the near future. He's almost 13 years

old. He might have to have a full spinal fusion. How is your mobility? Can you

do the same activities as you could before, or are you limited? Can you bend

over, etc. Please let me know. I'm sorry that your still hurting and an

extremely tired. I hope this gets better for you. Was post surgery really

painful? Thanks for your help Becky.

>

> I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length

of my spine fused except a couple on the bottom. I just had Stenosis surgery in

mid July. I am in pain working 8 hour shifts. The doctor is willing to write me

a note saying I can only work 4 hours. The boss is going to be real mad. They

have me working all different shifts never giving me a chance to rest nightly. I

feel guilty and like a wuss. Has anyone else had this happen? My upperback is

also hurting and I am super tired sleeping for about12 - 14 hours after working

8.

>

[Guest guest]

finally someone like me.  I had mine in 1967 in Toronto and had the special

strykker bed and thwe full body cast and then the brace.  Wow another person

not having problems

Please stay in touch--I am in Florida right now -we just bought here in March

and will be here until April 2010 then back home to Canada

From: Slinker <slinkers5@...>

Subject: Re: Re: Post Surgery and Pain

Scoliosis Treatment

Received: Thursday, November 26, 2009, 2:05 AM

 

Becky,

I saw your post regarding your son needing a spinal fusion and thought I would

chime in with my experience. I was fused in 1977 from T4-L3 when I was 17 years

old. I am now just turned 50. I was operated on in Chicago and while the surgery

is very painful, I know that they do a much better job managing pain now than

they did back then. They get you up and moving right away, whereas I was in a

special bed for 10 days before they put be in a full body cast from hip to neck.

It hurt quite a bit right after surgery, but I do recall the pain subsiding

about 3-4 days post op. Again, they are very good now at making sure they keep

the pain under control. I was in a cast for 7 months afterwards but was fine and

in no real pain during that time other than my right hip where they took bone

material from to use in the spinal fusion.

I am unfused at the top of my spine and neck, and at the very end of my spine. I

have good flexibility at L3/L4, L4/L5, and L5/S1. I have been able to do just

about anything I wanted - although I did have to give up on gymnastics in high

school. I would also say that contact sports, water skiing, things where your

body takes a big hit are things your son will want to avoid. But overall, I

never felt that I was missing out on anything. Although being a teenage girl in

a body cast that made me look like a line backer was not great for my

confidence, but it wasn't so bad.

If I may ask, where is your son having surgery? Are they making sure to take

into account his saggital balance so that they maintain his normal lordotic

back/waist curve? This is very important as people like me who were operated on

all those years ago are now having trouble later in life because they did not

think about the necessity of that curve back. Many people have had to have

revision surgeries to try and correct this problem. If your son's doctor has not

discussed this with you, then you need to ask as it is vital to getting the best

long term results for him.

I understand how frightening this is and I wish you and your son much luck in

the future. Just know that this is not the end and that he will have a terrific

and active life post surgery.

Take care,

Jeanne

Re: Post Surgery and Pain

Hi Becky,

My son has to have a spinal fusion in the near future. He's almost 13 years old.

He might have to have a full spinal fusion. How is your mobility? Can you do the

same activities as you could before, or are you limited? Can you bend over, etc.

Please let me know. I'm sorry that your still hurting and an extremely tired. I

hope this gets better for you. Was post surgery really painful? Thanks for your

help Becky.

>

> I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length of

my spine fused except a couple on the bottom. I just had Stenosis surgery in mid

July. I am in pain working 8 hour shifts. The doctor is willing to write me a

note saying I can only work 4 hours. The boss is going to be real mad. They have

me working all different shifts never giving me a chance to rest nightly. I feel

guilty and like a wuss. Has anyone else had this happen? My upperback is also

hurting and I am super tired sleeping for about12 - 14 hours after working 8.

>

[Guest guest]

Hi ,

I'm glad to hear that you have had such a successful surgery so long ago. I've

read some of your other posts and have been curious about your situation. Just

to be clear, it's not that I don't have some problems, I just don't have the

level of trouble that many others have. Up until just a couple years ago (about

30 years post op) I was fine with minimal stiffness in my lower back. I did

what I wanted, even water skied and rode horses, although I wish now that I had

not done those things as they probably accelerated my problems. As a matter of

fact, on one of our trips where I went skiing, I had my first severe back

problem and had to make the long drive home in incredible pain. I started

having chronic episodes of pretty bad lower back pain about two years ago which

continued until this past April when it was discovered I had a very large

synovial cyst between my L4/L5 levels that was pressing right into the spinal

column. Long story short, I found a wonderful doctor that was able to rupture

the cyst using needle radiology tools. The procedure has been a success so far,

but there is potential for the cyst to return. It's caused by abnormal movement

of the facet joints and with my lowest three vertebrae being unfused below a

long fusion, they certainly get their fair share of abnormal movement or stress.

The good news is I only have mild arthritic changes in my lower spine with a

couple mild bulging discs. I have gone on a regime of core strengthening

exercises to try and keep those problems from getting much worse. Right now I

still get a lot of stiffness and soreness in my lower back and I have some pain

in my right hip (where the bone material was harvested from) as well as mild

pain and numbness down the right leg. These are truly minor in comparison to

the pain from the cyst and so I consider myself fortunate. I do not lean

forward (unless I've been on my feet all day) and I don't lean to the side. At

the age of 50, I feel like my abilities have diminished a lot during the past 5

years, but I am doing everything I can to get back into shape as I know that is

key to protecting my spine. I feel very fortunate that I don't have worse

problems and I am hoping that I can avoid a future revision surgery. I am

thrilled that you are doing so well as you give me great hope for the future.

Please stay in touch,

Jeanne

Re: Post Surgery and Pain

Hi Becky,

My son has to have a spinal fusion in the near future. He's almost 13 years

old. He might have to have a full spinal fusion. How is your mobility? Can you

do the same activities as you could before, or are you limited? Can you bend

over, etc. Please let me know. I'm sorry that your still hurting and an

extremely tired. I hope this gets better for you. Was post surgery really

painful? Thanks for your help Becky.

>

> I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length

of my spine fused except a couple on the bottom. I just had Stenosis surgery in

mid July. I am in pain working 8 hour shifts. The doctor is willing to write me

a note saying I can only work 4 hours. The boss is going to be real mad. They

have me working all different shifts never giving me a chance to rest nightly. I

feel guilty and like a wuss. Has anyone else had this happen? My upperback is

also hurting and I am super tired sleeping for about12 - 14 hours after working

8.

>

[Guest guest]

I just retired from my office job but for 27 years I worked in a bookstore doing

sales, stocking shelves, shipping/receiving and was on my feet most of the

day.  I love to wear high heeled shoes and I do everything I want. My husband

and I rode motorcycles for years. Many years ago I hernated the lower disc in my

back but they gave me a cortosone shot and I have not stopped since then.  I

just last week turned 58 and I dont see actually retiring anytime in the near

future.

From: Slinker <slinkers5@sbcglobal .net>

Subject: Re: Re: Post Surgery and Pain

Scoliosis Treatment

Received: Thursday, November 26, 2009, 2:05 AM

Becky,

I saw your post regarding your son needing a spinal fusion and thought I would

chime in with my experience. I was fused in 1977 from T4-L3 when I was 17 years

old. I am now just turned 50. I was operated on in Chicago and while the surgery

is very painful, I know that they do a much better job managing pain now than

they did back then. They get you up and moving right away, whereas I was in a

special bed for 10 days before they put be in a full body cast from hip to neck.

It hurt quite a bit right after surgery, but I do recall the pain subsiding

about 3-4 days post op. Again, they are very good now at making sure they keep

the pain under control. I was in a cast for 7 months afterwards but was fine and

in no real pain during that time other than my right hip where they took bone

material from to use in the spinal fusion.

I am unfused at the top of my spine and neck, and at the very end of my spine. I

have good flexibility at L3/L4, L4/L5, and L5/S1. I have been able to do just

about anything I wanted - although I did have to give up on gymnastics in high

school. I would also say that contact sports, water skiing, things where your

body takes a big hit are things your son will want to avoid. But overall, I

never felt that I was missing out on anything. Although being a teenage girl in

a body cast that made me look like a line backer was not great for my

confidence, but it wasn't so bad.

If I may ask, where is your son having surgery? Are they making sure to take

into account his saggital balance so that they maintain his normal lordotic

back/waist curve? This is very important as people like me who were operated on

all those years ago are now having trouble later in life because they did not

think about the necessity of that curve back. Many people have had to have

revision surgeries to try and correct this problem. If your son's doctor has not

discussed this with you, then you need to ask as it is vital to getting the best

long term results for him.

I understand how frightening this is and I wish you and your son much luck in

the future. Just know that this is not the end and that he will have a terrific

and active life post surgery.

Take care,

Jeanne

Re: Post Surgery and Pain

Hi Becky,

My son has to have a spinal fusion in the near future. He's almost 13 years old.

He might have to have a full spinal fusion. How is your mobility? Can you do the

same activities as you could before, or are you limited? Can you bend over, etc.

Please let me know. I'm sorry that your still hurting and an extremely tired. I

hope this gets better for you. Was post surgery really painful? Thanks for your

help Becky.

>

> I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length of

my spine fused except a couple on the bottom. I just had Stenosis surgery in mid

July. I am in pain working 8 hour shifts. The doctor is willing to write me a

note saying I can only work 4 hours. The boss is going to be real mad. They have

me working all different shifts never giving me a chance to rest nightly. I feel

guilty and like a wuss. Has anyone else had this happen? My upperback is also

hurting and I am super tired sleeping for about12 - 14 hours after working 8.

>

[Guest guest]

my harvest site was in my rear end and that bone piece was put in my shoulder

blade to make them both the same size

From: Lida Kraz <lidakraz@...>

Subject: Post Surgery and Pain

Scoliosis Treatment

Received: Saturday, November 28, 2009, 12:18 AM

 

Hi,

I am interested in your comment about the harvest site. I've read time and

time again that the site from which bone was taken remains painful for years

& years after. In some cases, the pain is more intense than from the spine.

If the hip is known to remain so sensitive years after the operation, why do

surgeons continue to harvest from it? There are options now in the form of

artificial bone, rather than donor.

Lida in London

Re: Re: Post Surgery and Pain

Hi ,

Right now I still get a lot of stiffness and soreness in my lower back and I

have some pain in my right hip (where the bone material was harvested from)

as well as mild pain and numbness down the right leg. These are truly minor

in comparison to the pain from the cyst and so I consider myself fortunate.

I do not lean forward (unless I've been on my feet all day) and I don't lean

to the side. At the age of 50, I feel like my abilities have diminished a

lot during the past 5 years, but I am doing everything I can to get back

into shape as I know that is

Please stay in touch,

Jeanne

..

<http://geo.. com/serv? s=97359714/ grpId=2075894/ grpspId=17050947

09/msgId

=10181/stime= 1259352266/ nc1=5191952/ nc2=5898812/ nc3=5741398>

[Guest guest]

Lida,

My mother has told me that for a long time after my surgery I complained about

pain in the harvest hip. It did subside and for quite a long time I don't

recall having significant discomfort in that area. However, in the past

several years I have had fairly constant pain in the upper hip area, I believe

it's called the iliac crest(?) I do have arthritis in this hip, as I mentioned

before. What's odd is that my left hip is the one that I get a lot of

" clunking " from when I do certain exercises, but no pain. I have some numbness

and mild pain that is on and off in the right leg as well.

I have also read where many people have trouble with the hip that the bone is

harvested from, but some doctors still seem to use this practice. I don't think

they believe that we might suffer some problems from this procedure. I know I

commented about the pain I'm having to a doctor I saw recently and she just

shrugged it off. She tried to tell me it was from my spine, but when I asked

her why was the pain only in that one hip and not the other, she had no answer.

I have had hip x-rays from the front, the " frog leg " position, and they tell me

my hips look just fine other than the arthritis in the right one. But they

don't look at the area where the bone was taken from and they don't seem to want

to even discuss it.

So, I don't know what the answer to this is. I hope that one day someone can

tell me why it hurts all the time.

Jeanne

Re: Re: Post Surgery and Pain

Hi ,

Right now I still get a lot of stiffness and soreness in my lower back and I

have some pain in my right hip (where the bone material was harvested from)

as well as mild pain and numbness down the right leg. These are truly minor

in comparison to the pain from the cyst and so I consider myself fortunate.

I do not lean forward (unless I've been on my feet all day) and I don't lean

to the side. At the age of 50, I feel like my abilities have diminished a

lot during the past 5 years, but I am doing everything I can to get back

into shape as I know that is

Please stay in touch,

Jeanne

.

<http://geo./serv?s=97359714/grpId=2075894/grpspId=1705094709/msgId

=10181/stime=1259352266/nc1=5191952/nc2=5898812/nc3=5741398>

[Guest guest]

You go girl! I am very happy to hear how well you are doing.

Jeanne

Re: Post Surgery and Pain

Hi Becky,

My son has to have a spinal fusion in the near future. He's almost 13 years

old. He might have to have a full spinal fusion. How is your mobility? Can you

do the same activities as you could before, or are you limited? Can you bend

over, etc. Please let me know. I'm sorry that your still hurting and an

extremely tired. I hope this gets better for you. Was post surgery really

painful? Thanks for your help Becky.

>

> I am 51 in November, had Scoli Fusion and 2 rods in 1980. I the full length

of my spine fused except a couple on the bottom. I just had Stenosis surgery in

mid July. I am in pain working 8 hour shifts. The doctor is willing to write me

a note saying I can only work 4 hours. The boss is going to be real mad. They

have me working all different shifts never giving me a chance to rest nightly. I

feel guilty and like a wuss. Has anyone else had this happen? My upperback is

also hurting and I am super tired sleeping for about12 - 14 hours after working

8.

>

[Guest guest]

My son has had no pain from the hip bone harvest site.

[Guest guest]

This is why it is a good practice to get copies of your records and to keeps

diary of your activities, weather and pain level. Then the doctors have a better

idea of what is going on plus you know your body the best. Llweyn

Sent from my BlackBerry device on the Wireless Network

Re: Post Surgery and Pain

Lida,

My mother has told me that for a long time after my surgery I complained

about pain in the harvest hip. It did subside and for quite a long time I

don't recall having significant discomfort in that area. However, in the

past several years I have had fairly constant pain in the upper hip area, I

believe it's called the iliac crest(?) I do have arthritis in this hip, as I

mentioned before. What's odd is that my left hip is the one that I get a lot

of " clunking " from when I do certain exercises, but no pain. I have some

numbness and mild pain that is on and off in the right leg as well.

I have also read where many people have trouble with the hip that the bone

is harvested from, but some doctors still seem to use this practice. I don't

think they believe that we might suffer some problems from this procedure. I

know I commented about the pain I'm having to a doctor I saw recently and

she just shrugged it off. She tried to tell me it was from my spine, but

when I asked her why was the pain only in that one hip and not the other,

she had no answer.

I have had hip x-rays from the front, the " frog leg " position, and they tell

me my hips look just fine other than the arthritis in the right one. But

they don't look at the area where the bone was taken from and they don't

seem to want to even discuss it.

So, I don't know what the answer to this is. I hope that one day someone can

tell me why it hurts all the time.

Jeanne

---

[Guest guest]

Yes, now that we KNOW she has scoliosis, we are very very tedious and meticulous

with her care, progress, record keeping, xrays, etc.

Good advice...another piece to that is to question everything and trust nothing

blindly....even docs.

Best wishes,

Kathe

<><

Re: Post Surgery and Pain

Lida,

My mother has told me that for a long time after my surgery I complained

about pain in the harvest hip. It did subside and for quite a long time I

don't recall having significant discomfort in that area. However, in the

past several years I have had fairly constant pain in the upper hip area, I

believe it's called the iliac crest(?) I do have arthritis in this hip, as I

mentioned before. What's odd is that my left hip is the one that I get a lot

of " clunking " from when I do certain exercises, but no pain. I have some

numbness and mild pain that is on and off in the right leg as well.

I have also read where many people have trouble with the hip that the bone

is harvested from, but some doctors still seem to use this practice. I don't

think they believe that we might suffer some problems from this procedure. I

know I commented about the pain I'm having to a doctor I saw recently and

she just shrugged it off. She tried to tell me it was from my spine, but

when I asked her why was the pain only in that one hip and not the other,

she had no answer.

I have had hip x-rays from the front, the " frog leg " position, and they tell

me my hips look just fine other than the arthritis in the right one. But

they don't look at the area where the bone was taken from and they don't

seem to want to even discuss it.

So, I don't know what the answer to this is. I hope that one day someone can

tell me why it hurts all the time.

Jeanne

---

[Guest guest]

Lida, they harvest your own bone because it it less likely to become infected

because it is your own and it matches perfect and will fuse much better. The

same is for giving your own blood which is stored up for the month before

surgery. Yes, my harvest site was very painful for a long time. I keep praying

for a cure or some way to wipe scoliosis out.

>

> Hi,

>

> I am interested in your comment about the harvest site. I've read time and

> time again that the site from which bone was taken remains painful for years

> & years after. In some cases, the pain is more intense than from the spine.

>

> If the hip is known to remain so sensitive years after the operation, why do

> surgeons continue to harvest from it? There are options now in the form of

> artificial bone, rather than donor.

>

> Lida in London

>

>

> Re: Re: Post Surgery and Pain

>

>

>

>

> Hi ,

> Right now I still get a lot of stiffness and soreness in my lower back and I

> have some pain in my right hip (where the bone material was harvested from)

> as well as mild pain and numbness down the right leg. These are truly minor

> in comparison to the pain from the cyst and so I consider myself fortunate.

> I do not lean forward (unless I've been on my feet all day) and I don't lean

> to the side. At the age of 50, I feel like my abilities have diminished a

> lot during the past 5 years, but I am doing everything I can to get back

> into shape as I know that is

> Please stay in touch,

> Jeanne

>

>

> .

>

> <http://geo./serv?s=97359714/grpId=2075894/grpspId=1705094709/msgId

> =10181/stime=1259352266/nc1=5191952/nc2=5898812/nc3=5741398>

>

>

>

>

>

>

[Guest guest]

In Canada, we can request copies, under the Freedom of Information Act, plus

the medical system is allowed to destroy records after 7 years, which is why

I advise anyone with a chronic condition to have their own copies. Yes, some

still meet these requests with suspicion, but I just let them know that this

is a chronic condition for life plus I want to understand the situation

myself so that I can work with them better to achieve a better quality of

life. When they understand that I am not question them but want to work with

them, then they are more willing. If they are still acting suspicious, then

it make me wonder what they are hiding.

Llweyn

_____

From: Scoliosis Treatment

[mailto:Scoliosis Treatment ] On Behalf Of Lida Kraz

Sent: November-29-09 5:09 PM

Scoliosis Treatment

Subject: Post Surgery and Pain

In the UK we are not allowed to keep copies of our GP records. You can

request them, but the request is met with suspicion.

Lida in London

Re: Post Surgery and Pain

Lida,

My mother has told me that for a long time after my surgery I complained

about pain in the harvest hip. It did subside and for quite a long time I

don't recall having significant discomfort in that area. However, in the

past several years I have had fairly constant pain in the upper hip area, I

believe it's called the iliac crest(?) I do have arthritis in this hip, as I

mentioned before. What's odd is that my left hip is the one that I get a lot

of " clunking " from when I do certain exercises, but no pain. I have some

numbness and mild pain that is on and off in the right leg as well.

I have also read where many people have trouble with the hip that the bone

is harvested from, but some doctors still seem to use this practice. I don't

think they believe that we might suffer some problems from this procedure. I

know I commented about the pain I'm having to a doctor I saw recently and

she just shrugged it off. She tried to tell me it was from my spine, but

when I asked her why was the pain only in that one hip and not the other,

she had no answer.

I have had hip x-rays from the front, the " frog leg " position, and they tell

me my hips look just fine other than the arthritis in the right one. But

they don't look at the area where the bone was taken from and they don't

seem to want to even discuss it.

So, I don't know what the answer to this is. I hope that one day someone can

tell me why it hurts all the time.

Jeanne

---

[Guest guest]

CAN ANY 1 SEND ME SOME DIAGRAMS OF EXERCISES I CAN DO WITH OR WITH OUT DUMBELLS

I HAVE SCOLIOSIS ALSO I AM A PERSON WHO IS INTO LIVING A HEALTHY LIFESTYLE TAI

CHI IS GOOD JUST LACKING THE DISCIPLINE WILL RESTART SOON I WAS TOLD RUNNING IS

BAD WALKING IS GOOD

________________________________

From: Lida Kraz <lidakraz@...>

Scoliosis Treatment

Sent: Sun, November 29, 2009 9:09:05 PM

Subject: Post Surgery and Pain

In the UK we are not allowed to keep copies of our GP records. You can

request them, but the request is met with suspicion.

Lida in London

Re: Post Surgery and Pain

Lida,

My mother has told me that for a long time after my surgery I complained

about pain in the harvest hip. It did subside and for quite a long time I

don't recall having significant discomfort in that area. However, in the

past several years I have had fairly constant pain in the upper hip area, I

believe it's called the iliac crest(?) I do have arthritis in this hip, as I

mentioned before. What's odd is that my left hip is the one that I get a lot

of " clunking " from when I do certain exercises, but no pain. I have some

numbness and mild pain that is on and off in the right leg as well.

I have also read where many people have trouble with the hip that the bone

is harvested from, but some doctors still seem to use this practice. I don't

think they believe that we might suffer some problems from this procedure. I

know I commented about the pain I'm having to a doctor I saw recently and

she just shrugged it off. She tried to tell me it was from my spine, but

when I asked her why was the pain only in that one hip and not the other,

she had no answer.

I have had hip x-rays from the front, the " frog leg " position, and they tell

me my hips look just fine other than the arthritis in the right one. But

they don't look at the area where the bone was taken from and they don't

seem to want to even discuss it.

So, I don't know what the answer to this is. I hope that one day someone can

tell me why it hurts all the time.

Jeanne

---

[Guest guest]

the following story has inspired me to share my story .ITS SAD 2 HEAR OF THIS

HAPPENING I ALSO HAVE SCOLIOSIS this is my story . My sister of a different

mother had it first I was informed by her to check my mom advised me not 2

little did i know it came from my fathers side of the family. One day I

experienced sever chest & back pains while at work I am still working there as a

Janitor. I checked out a doctor she advised me 2 take an x ray believing it to

be scoliosis i was in denial. When the results came i was distraught i thought i

had AIDS there went down the tubes of living a normal life. I was a vegetable in

a spit of an eye . Intense pain followed me after that pains while bathing chest

pains while working u name it. I went 2 therapy in the hospital then stopped as

i found the same work out in a book i never let another doctor examine me there

again. I stopped eating meat prayed more exercised at home i have now stopped

jogging will be taking

up walking & tai chi . I take no tablets for pain will be sleeping on the

ground more often than usual. I encourage persons / co workers 2 bend their

knees & check out a doctor when any sign of back problems occur if my

nurses/doctors had diagnosed me properly when i was yet a baby it would have

been treated in time. I also suffer from bronchitis coughs so when normal

persons get the flu mine can go into bronchitis instantly the cough rocks my

chest i dont eat meat only from the sea no milk products on cheese to limit

Alas i live with this its my cross only prayers and perseverance keeps me afloat

i live my dream as a HUMANITARIAN every hour in thought and action.

________________________________

From: Llweyn Friars <mad.monk@...>

Scoliosis Treatment

Sent: Mon, November 30, 2009 4:04:43 AM

Subject: RE: Post Surgery and Pain

In Canada, we can request copies, under the Freedom of Information Act, plus

the medical system is allowed to destroy records after 7 years, which is why

I advise anyone with a chronic condition to have their own copies. Yes, some

still meet these requests with suspicion, but I just let them know that this

is a chronic condition for life plus I want to understand the situation

myself so that I can work with them better to achieve a better quality of

life. When they understand that I am not question them but want to work with

them, then they are more willing. If they are still acting suspicious, then

it make me wonder what they are hiding.

Llweyn

_____

From: Scoliosis Treatment

[mailto:Scoliosis Treatment] On Behalf Of Lida Kraz

Sent: November-29- 09 5:09 PM

Scoliosis Treatment

Subject: Post Surgery and Pain

In the UK we are not allowed to keep copies of our GP records. You can

request them, but the request is met with suspicion.

Lida in London

Re: Post Surgery and Pain

Lida,

My mother has told me that for a long time after my surgery I complained

about pain in the harvest hip. It did subside and for quite a long time I

don't recall having significant discomfort in that area. However, in the

past several years I have had fairly constant pain in the upper hip area, I

believe it's called the iliac crest(?) I do have arthritis in this hip, as I

mentioned before. What's odd is that my left hip is the one that I get a lot

of " clunking " from when I do certain exercises, but no pain. I have some

numbness and mild pain that is on and off in the right leg as well.

I have also read where many people have trouble with the hip that the bone

is harvested from, but some doctors still seem to use this practice. I don't

think they believe that we might suffer some problems from this procedure. I

know I commented about the pain I'm having to a doctor I saw recently and

she just shrugged it off. She tried to tell me it was from my spine, but

when I asked her why was the pain only in that one hip and not the other,

she had no answer.

I have had hip x-rays from the front, the " frog leg " position, and they tell

me my hips look just fine other than the arthritis in the right one. But

they don't look at the area where the bone was taken from and they don't

seem to want to even discuss it.

So, I don't know what the answer to this is. I hope that one day someone can

tell me why it hurts all the time.

Jeanne

---

[Guest guest]

DONT do dumbells without an opinion from an orthopaedist. Although the arms

lift the bells, it is nevertheless your spine that takes the strain.

Lida in London

Re: Post Surgery and Pain

CAN ANY 1 SEND ME SOME DIAGRAMS OF EXERCISES I CAN DO WITH OR WITH OUT

DUMBELLS I HAVE SCOLIOSIS ALSO I AM A PERSON WHO IS INTO LIVING A HEALTHY

LIFESTYLE TAI CHI IS GOOD JUST LACKING THE DISCIPLINE WILL RESTART SOON I

WAS TOLD RUNNING IS BAD WALKING IS GOOD

[Guest guest]

what I did is talk to the head person of the gym and set up a routine for your

back.  I have one that I do which includes weights, pull bars and leg

crunches.  I dont do situps but5 most other stuff I do but in different ways

then others. Start out small and graduate

From: Lida Kraz <lidakraz@...>

Subject: RE: Post Surgery and Pain

Scoliosis Treatment

Received: Tuesday, December 1, 2009, 8:40 AM

 

DONT do dumbells without an opinion from an orthopaedist. Although the arms

lift the bells, it is nevertheless your spine that takes the strain.

Lida in London

Re: Post Surgery and Pain

CAN ANY 1 SEND ME SOME DIAGRAMS OF EXERCISES I CAN DO WITH OR WITH OUT

DUMBELLS I HAVE SCOLIOSIS ALSO I AM A PERSON WHO IS INTO LIVING A HEALTHY

LIFESTYLE TAI CHI IS GOOD JUST LACKING THE DISCIPLINE WILL RESTART SOON I

WAS TOLD RUNNING IS BAD WALKING IS GOOD

[Guest guest]

ok this confirms what i found on a website i will send it 2 u later during this

week keep contacting me thanks again tai chi is very good also check it out

________________________________

From: Durand <d.durand56@...>

Scoliosis Treatment

Sent: Tue, December 1, 2009 8:07:20 PM

Subject: RE: Post Surgery and Pain

what I did is talk to the head person of the gym and set up a routine for your

back. I have one that I do which includes weights, pull bars and leg crunches.

I dont do situps but5 most other stuff I do but in different ways then others.

Start out small and graduate

From: Lida Kraz <lidakraz@elkaycorpo ration.com>

Subject: RE: Post Surgery and Pain

Scoliosis Treatment

Received: Tuesday, December 1, 2009, 8:40 AM

DONT do dumbells without an opinion from an orthopaedist. Although the arms

lift the bells, it is nevertheless your spine that takes the strain.

Lida in London

Re: Post Surgery and Pain

CAN ANY 1 SEND ME SOME DIAGRAMS OF EXERCISES I CAN DO WITH OR WITH OUT

DUMBELLS I HAVE SCOLIOSIS ALSO I AM A PERSON WHO IS INTO LIVING A HEALTHY

LIFESTYLE TAI CHI IS GOOD JUST LACKING THE DISCIPLINE WILL RESTART SOON I

WAS TOLD RUNNING IS BAD WALKING IS GOOD

[Guest guest]

Have you looked for an orthopedic surgeon that may be able to offer some help?

People with scoliosis have more options than prayer and exercise!

________________________________

From: carson alexander <crsnalexander@...>

Scoliosis Treatment

Sent: Mon, November 30, 2009 7:19:04 PM

Subject: Re: Post Surgery and Pain

 

the following story has inspired me to share my story .ITS SAD 2 HEAR OF THIS

HAPPENING I ALSO HAVE SCOLIOSIS this is my story . My sister of a different

mother had it first I was informed by her to check my mom advised me not 2

little did i know it came from my fathers side of the family. One day I

experienced sever chest & back pains while at work I am still working there as a

Janitor. I checked out a doctor she advised me 2 take an x ray believing it to

be scoliosis i was in denial. When the results came i was distraught i thought i

had AIDS there went down the tubes of living a normal life. I was a vegetable in

a spit of an eye . Intense pain followed me after that pains while bathing chest

pains while working u name it. I went 2 therapy in the hospital then stopped as

i found the same work out in a book i never let another doctor examine me there

again. I stopped eating meat prayed more exercised at home i have now stopped

jogging will be taking

up walking & tai chi . I take no tablets for pain will be sleeping on the ground

more often than usual. I encourage persons / co workers 2 bend their knees &

check out a doctor when any sign of back problems occur if my nurses/doctors had

diagnosed me properly when i was yet a baby it would have been treated in time.

I also suffer from bronchitis coughs so when normal persons get the flu mine can

go into bronchitis instantly the cough rocks my chest i dont eat meat only from

the sea no milk products on cheese to limit

Alas i live with this its my cross only prayers and perseverance keeps me afloat

i live my dream as a HUMANITARIAN every hour in thought and action.

____________ _________ _________ __

From: Llweyn Friars <mad.monkshaw (DOT) ca>

Scoliosis Treatment

Sent: Mon, November 30, 2009 4:04:43 AM

Subject: RE: Post Surgery and Pain

In Canada, we can request copies, under the Freedom of Information Act, plus

the medical system is allowed to destroy records after 7 years, which is why

I advise anyone with a chronic condition to have their own copies. Yes, some

still meet these requests with suspicion, but I just let them know that this

is a chronic condition for life plus I want to understand the situation

myself so that I can work with them better to achieve a better quality of

life. When they understand that I am not question them but want to work with

them, then they are more willing. If they are still acting suspicious, then

it make me wonder what they are hiding.

Llweyn

_____

From: Scoliosis Treatment

[mailto:Scoliosis- Medical] On Behalf Of Lida Kraz

Sent: November-29- 09 5:09 PM

Scoliosis Treatment

Subject: Post Surgery and Pain

In the UK we are not allowed to keep copies of our GP records. You can

request them, but the request is met with suspicion.

Lida in London

Re: Post Surgery and Pain

Lida,

My mother has told me that for a long time after my surgery I complained

about pain in the harvest hip. It did subside and for quite a long time I

don't recall having significant discomfort in that area. However, in the

past several years I have had fairly constant pain in the upper hip area, I

believe it's called the iliac crest(?) I do have arthritis in this hip, as I

mentioned before. What's odd is that my left hip is the one that I get a lot

of " clunking " from when I do certain exercises, but no pain. I have some

numbness and mild pain that is on and off in the right leg as well.

I have also read where many people have trouble with the hip that the bone

is harvested from, but some doctors still seem to use this practice. I don't

think they believe that we might suffer some problems from this procedure. I

know I commented about the pain I'm having to a doctor I saw recently and

she just shrugged it off. She tried to tell me it was from my spine, but

when I asked her why was the pain only in that one hip and not the other,

she had no answer.

I have had hip x-rays from the front, the " frog leg " position, and they tell

me my hips look just fine other than the arthritis in the right one. But

they don't look at the area where the bone was taken from and they don't

seem to want to even discuss it.

So, I don't know what the answer to this is. I hope that one day someone can

tell me why it hurts all the time.

Jeanne

---

[Guest guest]

sorry their isnt any specialist in my country that i know of besides i have

accepted my condition if i were living in the USA YES i would take the chance

here in my country not a chance

________________________________

From: Randie Meyer <taknitlite@...>

Scoliosis Treatment

Sent: Sun, December 27, 2009 11:53:55 PM

Subject: Re: Post Surgery and Pain

Have you looked for an orthopedic surgeon that may be able to offer some help?

People with scoliosis have more options than prayer and exercise!

____________ _________ _________ __

From: carson alexander <crsnalexander>

Scoliosis Treatment

Sent: Mon, November 30, 2009 7:19:04 PM

Subject: Re: Post Surgery and Pain

the following story has inspired me to share my story .ITS SAD 2 HEAR OF THIS

HAPPENING I ALSO HAVE SCOLIOSIS this is my story . My sister of a different

mother had it first I was informed by her to check my mom advised me not 2

little did i know it came from my fathers side of the family. One day I

experienced sever chest & back pains while at work I am still working there as a

Janitor. I checked out a doctor she advised me 2 take an x ray believing it to

be scoliosis i was in denial. When the results came i was distraught i thought i

had AIDS there went down the tubes of living a normal life. I was a vegetable in

a spit of an eye . Intense pain followed me after that pains while bathing chest

pains while working u name it. I went 2 therapy in the hospital then stopped as

i found the same work out in a book i never let another doctor examine me there

again. I stopped eating meat prayed more exercised at home i have now stopped

jogging will be taking

up walking & tai chi . I take no tablets for pain will be sleeping on the ground

more often than usual. I encourage persons / co workers 2 bend their knees &

check out a doctor when any sign of back problems occur if my nurses/doctors had

diagnosed me properly when i was yet a baby it would have been treated in time.

I also suffer from bronchitis coughs so when normal persons get the flu mine can

go into bronchitis instantly the cough rocks my chest i dont eat meat only from

the sea no milk products on cheese to limit

Alas i live with this its my cross only prayers and perseverance keeps me afloat

i live my dream as a HUMANITARIAN every hour in thought and action.

____________ _________ _________ __

From: Llweyn Friars <mad.monkshaw (DOT) ca>

Scoliosis Treatment

Sent: Mon, November 30, 2009 4:04:43 AM

Subject: RE: Post Surgery and Pain

In Canada, we can request copies, under the Freedom of Information Act, plus

the medical system is allowed to destroy records after 7 years, which is why

I advise anyone with a chronic condition to have their own copies. Yes, some

still meet these requests with suspicion, but I just let them know that this

is a chronic condition for life plus I want to understand the situation

myself so that I can work with them better to achieve a better quality of

life. When they understand that I am not question them but want to work with

them, then they are more willing. If they are still acting suspicious, then

it make me wonder what they are hiding.

Llweyn

_____

From: Scoliosis Treatment

[mailto:Scoliosis- Medical] On Behalf Of Lida Kraz

Sent: November-29- 09 5:09 PM

Scoliosis Treatment

Subject: Post Surgery and Pain

In the UK we are not allowed to keep copies of our GP records. You can

request them, but the request is met with suspicion.

Lida in London

Re: Post Surgery and Pain

Lida,

My mother has told me that for a long time after my surgery I complained

about pain in the harvest hip. It did subside and for quite a long time I

don't recall having significant discomfort in that area. However, in the

past several years I have had fairly constant pain in the upper hip area, I

believe it's called the iliac crest(?) I do have arthritis in this hip, as I

mentioned before. What's odd is that my left hip is the one that I get a lot

of " clunking " from when I do certain exercises, but no pain. I have some

numbness and mild pain that is on and off in the right leg as well.

I have also read where many people have trouble with the hip that the bone

is harvested from, but some doctors still seem to use this practice. I don't

think they believe that we might suffer some problems from this procedure. I

know I commented about the pain I'm having to a doctor I saw recently and

she just shrugged it off. She tried to tell me it was from my spine, but

when I asked her why was the pain only in that one hip and not the other,

she had no answer.

I have had hip x-rays from the front, the " frog leg " position, and they tell

me my hips look just fine other than the arthritis in the right one. But

they don't look at the area where the bone was taken from and they don't

seem to want to even discuss it.

So, I don't know what the answer to this is. I hope that one day someone can

tell me why it hurts all the time.

Jeanne

---