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i know that is why i cant do the gluten free diet for my kid he isnt celiac thank god but we did have him tested and gone through all kinds of scopes and so forth(my cousins kid is celiac and we have many food allergies and stomache disorders in my family ) but thank god he aint .it is a very hard thing to deal with i read up on it when i was first getting my son tested and there are somethings a person with celiac can eat but where they are made at are make other things and so forth that now it aint edible for them .you are absolutely right with the cleaning also a lil crunb unnoticed can kill them .

but any way to do a gluten free diet for my sons woudl be to hard that is why i do not do that like i have said in other posts he is already not allowed to eat certain food for the cholesterol .it would be too hard for me to change the diets of all 5 of us.to do a gluten free.i just try to make sure what he eats well all of them is healhty and gives them nutrients there body needs .pop and candy/cookies are treats and not given regularly they eat a lot more fruits and veggies they eat more fish and chicken than red meat but even doing that is a big commitment now a days it is so eaasy to grab a fast food or throw in the mic a freezer meal .good luck to all

Re: MEDICATIONS

Just dyes. Saw a massive improvement.We tried restricting sugar and saw no improvement. When you consider that it's extremely rare that our children are fed pure sugar, this also made sense. Unless your child is bouncing off the walls after taking a couple of spoonsful from the sugar jar (and then is it cane sugar or beet sugar, or a bit of both, depending on the manufacturer? ), then you have to consider that something else in the sweet thing they're eating could be causing the trouble, even the most innocuous things. Is it the vanilla, is it the food dye, is it the preservative, is it a particular chemical, is it high-fructose corn syrup?Because my sister has celiac and has to be on a gluten-free diet, I helped her research what she needed to do. It's unbelievable what gluten can be in - ketchup, pickles, vanilla extract (!! - the alcohol used to steep the vanilla bean in is made from grain alcohol) or

imitation vanilla, the binders in pills and even vitamin supplements. And manufacturers who make things that they say are gluten-free can change sources or methods of production, so something that was gluten-free before isn't gluten-free anymore. Whenever I make something for my sister, I have to make sure I wipe down the counters a few times with an absolutely clean, fresh washcloth (forget e. coli - it's the gluten that will kill her), make sure everything was washed in the dishwasher, and call her to ask what ingredients I need to use are gluten-free, making sure that what I used before is still safe.For all y'all thinking about a gluten-free diet, understand that this is a full-time commitment, and I guarantee you that your cooking/ baking/shopping life will be turned upside down. ly, I don't know how my sister does it. Even many whole grains (vegan diets) are absolutely off-limits. The tofu you use - is

it gluten-free? Are the coatings on your non-organic veggies gluten-free? Have your beans been processed in a factory that also contains gluten-containing products? If so, your product may not be quite gluten-free. It's not just wheat. It's rye and barley and several other grains.BTW, the ONLY 100% way to see if someone is gluten-sensitive is to take a biopsy of the jeujeunum in the small intestine. The blood tests are not necessarily foolproof.We're not talking about misbehaving upon gluten ingestion. We're not talking about rashes or congestion or whatever. When your sister could DIE from eating gluten, it really puts a different spin on what it means to be on a restricted diet.Theresa MesaMesa Design Househttp://mesadesignho use.com909-335-9710Hours: By appointment onlyOn Jan 22, 2007, at 5:16 AM, Lana Gibbons

wrote:>>> On 1/21/07, Theresa Mesa <clanmesaearthlink (DOT) net> wrote:We've tried > many dietary things,> and for years we kept him off FD & C food dyes, which really helped. We> tried special vitamins, too. Eh, not much help.>> Theresa,>> Just out of curiosity, were you also restricting salicylates or > just dyes?>> -Lana>>

Don't be flakey. Get for Mobile and always stay connected to friends.

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My son is VERY allergic to red dye #40. We are having alot of

trouble finding any medications except motrin that is dye free. What

do you use?

thanks

We've tried

> > many dietary things,

> > and for years we kept him off FD & C food dyes, which really

helped. We

> > tried special vitamins, too. Eh, not much help.

> >

> > Theresa,

> >

> > Just out of curiosity, were you also restricting salicylates or

> > just dyes?

> >

> > -Lana

> >

> >

>

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This is definitely a hard one that requires a lot of research. More

companies are providing dye-free meds, but it's still just the tip of

the iceberg. Enlist the help of your pharmacist. Here are some

resources to start with...

http://www.epinions.com/content_142066093700 Benadryl

http://www.villagedrug.com/sections/level_info.php?

level_id=43 & page=compounding

http://www.portlandpharmacy.com/compounding.htm

http://www.custommedicine.com/pediatrics.htm

http://www.flavorx.com/human/press/press_jan_09_07.asp

I entered " dye-free medications " into Google.

Theresa Mesa

Mesa Design House

http://mesadesignhouse.com

909-335-9710

Hours: By appointment only

On Jan 30, 2007, at 1:07 AM, veltrinikki wrote:

> My son is VERY allergic to red dye #40. We are having alot of

> trouble finding any medications except motrin that is dye free. What

> do you use?

> thanks

>

> We've tried

> > > many dietary things,

> > > and for years we kept him off FD & C food dyes, which really

> helped. We

> > > tried special vitamins, too. Eh, not much help.

> > >

> > > Theresa,

> > >

> > > Just out of curiosity, were you also restricting salicylates or

> > > just dyes?

> > >

> > > -Lana

> > >

> > >

> >

>

>

>

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Another option might be a compounding pharmacy. If you have one

local, they can mix up just about anything you need free of dyes,

flavors, etc.

-LanaOn 2/1/07, Theresa Mesa <clanmesa@...> wrote:

This is definitely a hard one that requires a lot of research. Morecompanies are providing dye-free meds, but it's still just the tip ofthe iceberg. Enlist the help of your pharmacist. Here are someresources to start with...

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Another option might be a compounding pharmacy. If you have one

local, they can mix up just about anything you need free of dyes,

flavors, etc.

-LanaOn 2/1/07, Theresa Mesa <clanmesa@...> wrote:

This is definitely a hard one that requires a lot of research. Morecompanies are providing dye-free meds, but it's still just the tip ofthe iceberg. Enlist the help of your pharmacist. Here are someresources to start with...

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Yeah, many of the links I listed were compounding pharmacies...

Theresa Mesa

Mesa Design House

http://mesadesignhouse.com

909-335-9710

Hours: By appointment only

On Feb 6, 2007, at 1:22 PM, Lana Gibbons wrote:

> Another option might be a compounding pharmacy. If you have one

> local, they can mix up just about anything you need free of dyes,

> flavors, etc.

>

> -Lana

>

>

> On 2/1/07, Theresa Mesa <clanmesa@...> wrote:This is

> definitely a hard one that requires a lot of research. More

> companies are providing dye-free meds, but it's still just the tip of

> the iceberg. Enlist the help of your pharmacist. Here are some

> resources to start with...

>

>

>

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Thanks I sent a reqest to flavorex and suggested to my pharmacy to use themTheresa Mesa <clanmesa@...> wrote: Yeah, many of the links I listed were compounding pharmacies...Theresa MesaMesa Design Househttp://mesadesignhouse.com909-335-9710Hours: By appointment onlyOn Feb 6, 2007, at 1:22 PM, Lana Gibbons wrote:> Another option might be a compounding pharmacy. If you have one > local, they can mix up just about

anything you need free of dyes, > flavors, etc.>> -Lana>>> On 2/1/07, Theresa Mesa <clanmesaearthlink (DOT) net> wrote:This is > definitely a hard one that requires a lot of research. More> companies are providing dye-free meds, but it's still just the tip of> the iceberg. Enlist the help of your pharmacist. Here are some> resources to start with...>>>

8:00? 8:25? 8:40? Find a flick in no time with the Search movie showtime shortcut.

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Thanks I sent a reqest to flavorex and suggested to my pharmacy to use themTheresa Mesa <clanmesa@...> wrote: Yeah, many of the links I listed were compounding pharmacies...Theresa MesaMesa Design Househttp://mesadesignhouse.com909-335-9710Hours: By appointment onlyOn Feb 6, 2007, at 1:22 PM, Lana Gibbons wrote:> Another option might be a compounding pharmacy. If you have one > local, they can mix up just about

anything you need free of dyes, > flavors, etc.>> -Lana>>> On 2/1/07, Theresa Mesa <clanmesaearthlink (DOT) net> wrote:This is > definitely a hard one that requires a lot of research. More> companies are providing dye-free meds, but it's still just the tip of> the iceberg. Enlist the help of your pharmacist. Here are some> resources to start with...>>>

8:00? 8:25? 8:40? Find a flick in no time with the Search movie showtime shortcut.

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  • 5 months later...
Guest guest

Hey

I take Imuran (an immuno-suppresent) 50mg by mouth twice daily AND our friend

Prednisone 30mg per day....the Imuran has done very well for me....I have been

on it for about 2 years now....you may want to check it out....by the way,

Imuran also is know by

Azathioprine.

Hope this helps.

Larry B

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Guest guest

Hey

I take Imuran (an immuno-suppresent) 50mg by mouth twice daily AND our friend

Prednisone 30mg per day....the Imuran has done very well for me....I have been

on it for about 2 years now....you may want to check it out....by the way,

Imuran also is know by

Azathioprine.

Hope this helps.

Larry B

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Guest guest

Hey

I take Imuran (an immuno-suppresent) 50mg by mouth twice daily AND our friend

Prednisone 30mg per day....the Imuran has done very well for me....I have been

on it for about 2 years now....you may want to check it out....by the way,

Imuran also is know by

Azathioprine.

Hope this helps.

Larry B

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Guest guest

I'm sorry to say this but consider yourself lucky if you can get

injectables. Unfortunately, I can't. Many of those things are

related to another medications and I'm allergic to most of them.

Needless to say, when I become ill with an infection, treating me is

an absolute joy!

At the moment, I'm using ibuprofen 800, vicodin 10/660 (in the generic

form) and once in a great while prednisone.

Take care and be well.

Ellen

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  • 1 year later...

thanks!

Medications

,

There really is no set medication list. I for one cannot take

prednisone, which I actually am happy about. From there it jus depends

on the RD and their experience. Most people generally are on MTX or

Arava. Some of us take Plaquenil. If the doc starts on biologics,

they generally start with something that you inject at home, such as

Kineret or Enbrel or Humira and then if that doesn't work move on to

infusions such as Remicade or Rituxan. Here in the States a lot of

this is determined by insurance companies as they need to see a therapy

fail before they will pay for more expensive therapies.

But all in all, your son HAS to tell the doc exactly how he feels on

each medication. how else will the doc know if it's working or not. I

encourage open communication with the doctor.

Houston, TX

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  • 4 months later...
Guest guest

My pain after surgery was bad, I have been on morphine for so long that yes I

have built up. And HELLO DOC you script me for morphine post op and then give me

nothing else to take at home. THEN questions why I went through a 30 day supply

in 13 days.. HMMM cause I was in pain and I needed relieve...

As far as coming off meds I dont know yet only had mine for one month..

>

>

> I was just wondering what kind of meds you all were on BEFORE the

stimulator? were you able to stop taking them and go to something a little less

in strength.

>

> I am on roxycodone and was hoping to change to something non narcotic when

its all said and done.

>

> Also if you were on strong pain meds was it harder to get out of pain right

after the surgery? The surgeon said that people who have already built up a

tolerance to pain meds like me would have a harder time getting out of pain.

>

>

> thanks guys

>

> melissa

>

>

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  • 9 months later...

>

> I am takeing a statin, and am sore for it BUT I am also takeing

> beta blockers , ace inhibitors, calcium channel blockers. ezatrol, plavix,

asa, diovan, norvasc. does anyone know where I can grt info on the side

effects of these.....I know there there I am not myself..?

>

Doug,

your list is scary. which came first the statin or the others?

tell us a little more about your situation such as what is your cholesterol

level, your age, breif medical history...

from what I see I suggest you think about changing doctors

in order here are adverse effects

http://en.wikipedia.org/wiki/Beta_blocker#Adverse_effects

http://en.wikipedia.org/wiki/ACE_inhibitor#Adverse_effects

http://yourtotalhealth.ivillage.com/calcium-channel-blockers.html?pageNum=5#5

http://www.ehow.com/facts_5530120_ezetrol-side-effects.html

http://en.wikipedia.org/wiki/Clopidogrel#Adverse_effects

http://www.drugs.com/sfx/asa-side-effects.html

http://www.drugs.com/diovan.html#side-effects

http://en.wikipedia.org/wiki/Amlodipine#Side_effects

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Good sites to hear feedback from others taking prescription drugs are:

1. medications.com

2. askapatient.com

Statins can make you feel weak, and make your muscles feel like you have been bruised all over with a baseball bat. They can also change your personality. You are also taking alot of other drugs with it creating your own custom cocktail of prescription drugs.

Bobby

http://geocities.com/flyinresorts/blog.html--- On Mon, 1/25/10, doug <loustat_vpr@...> wrote:

From: doug <loustat_vpr@...>Subject: medicationsLipitor Date: Monday, January 25, 2010, 3:54 PM

I am takeing a statin, and am sore for it BUT I am also takeingbeta blockers , ace inhibitors, calcium channel blockers. ezatrol, plavix, asa, diovan, norvasc. does anyone know where I can grt info on the side effects of these.....I know there there I am not myself..?

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The Cholestin acts like a statin but does not have th negative side effects.

iface.nsedreams.com

Jag

From: doug <loustat_vpr@ hotmail.com>Subject: [TakingLipitorAndHa teIt] medicationsTakingLipitorAndHat eItgroups (DOT) comDate: Monday, January 25, 2010, 3:54 PM

I am takeing a statin, and am sore for it BUT I am also takeingbeta blockers , ace inhibitors, calcium channel blockers. ezatrol, plavix, asa, diovan, norvasc. does anyone know where I can grt info on the side effects of these.....I know there there I am not myself..?

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I have said this before and at the risk of being tedious, I will repeat myself.

You should NOT be lowering your cholesterol by ANY means. It is not altered by

diet and all of the medical literature demonstrates that lower cholesterol is a

robust predictor of mortality. In simple language, people with artificially

lowered cholesterol die earlier than people with so-called high or bad

cholesterol levels.

Cholestin, and other preparations including plant stanols, red yeast rice,

cinnamon or whatever you feel like naming (and statins or bile acid

sequestrants) are just killing you. Your body knows how much cholesterol is

needed by your brain and the neurological system... just trust it.

Kind regards,

Jeff

Cable J: Adverse Events of Statins - An Informal Internet-based Study. JOIMR

2009;7(1):1

http://www.joimr.org/JOIMR_Vol7_No1_Dec2009.pdf

>

>

> From: doug <loustat_vpr@ hotmail.com>

> Subject: [TakingLipitorAndHa teIt] medications

> TakingLipitorAndHat eItgroups (DOT) com

> Date: Monday, January 25, 2010, 3:54 PM

>

>

>  

>

> I am takeing a statin, and am sore for it BUT I am also takeing

> beta blockers , ace inhibitors, calcium channel blockers. ezatrol, plavix,

asa, diovan, norvasc. does anyone know where I can grt info on the side effects

of these.....I know there there I am not myself..?

>

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Jag Jag

cholestin is made from red rice yeast and contains a natural form of lovastatin

and has exactly the same potential adverse effects as any statin...we've been

through this before see below

" Cholestin, which is sold as a dietary supplement. In June of 1998, the FDA

declared Cholestin an unapproved drug because the main active ingredient,

lovastatin, is equivalent to the active ingredient in the prescription drug

Mevacor. "

http://iml.jou.ufl.edu/projects/Spring2000/Kimpel/cholestin.html

If I were the moderator I would remove you from this forum for cause

>

>

> From: doug <loustat_vpr@ hotmail.com>

> Subject: [TakingLipitorAndHa teIt] medications

> TakingLipitorAndHat eItgroups (DOT) com

> Date: Monday, January 25, 2010, 3:54 PM

>

>

>  

>

> I am takeing a statin, and am sore for it BUT I am also takeing

> beta blockers , ace inhibitors, calcium channel blockers. ezatrol, plavix,

asa, diovan, norvasc. does anyone know where I can grt info on the side effects

of these.....I know there there I am not myself..?

>

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I've been trying to raise my cholesterol and can't do it

147 lifetime cholesterol level and two attacks....it ain't the

cholesterol baby

Lee...

On 1/28/2010 11:25 AM, Jag Jag wrote:

The Cholestin acts like a statin but does not have th

negative side effects.

iface.nsedreams.com

Jag

From: doug <loustat_vpr@ hotmail.com>

Subject: [TakingLipitorAndHa teIt] medications

TakingLipitorAndHat eItgroups (DOT) com

Date: Monday, January 25, 2010, 3:54 PM

I am takeing a statin, and am sore for it BUT I

am also takeing

beta blockers , ace inhibitors, calcium channel blockers. ezatrol,

plavix, asa, diovan, norvasc. does anyone know where I can grt info on

the side effects of these.....I know there there I am not myself..?

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I agree with Lee it aint the cholesterol causing heart attacks.

I have a friend who has model perfect cholesterol numbers. Total, LDL, HDL, and ratios are perfect and on "target."

Yet this did not stop his carotid artery from developing plaque.

For anyone who still believes cholesterol causes artery plaque, I have a bridge in New York I would like to sell them.

Bobby

http://geocities.com/flyinresorts/blog.html

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  • 4 weeks later...

My mom has been lowering her cholesterol for over 10 years with Lipitor. I told

her the pain and forgetfulness she was having were from statins. She went off

for a while, but since she doesn't eat as she should, her TC went over 300 and

triglycerides way up. So, her doc put her on Trilipix and Crestor. She feels

miserable and her personality has changed, and she can't finish a sentence or

remember things I told her a few minutes before.

She now has congestive heart failure. I told her it's a side effect of statins

because of CoQ 10 defiency. I told her statins break down your muscle tissue,

that's probably what happened to the heart muscle. Her cardiologist says

" that's a different kind of muscle. "

I guess he thinks statins are wonderful.

She says, which pills should I stop taking. She takes blood pressure drugs,

Crestor, Trilipix and now has to take Coreg for the heart failure. She thinks

if she stops taking them, she will drop dead from a heart attack.

>

> I agree with Lee it aint the cholesterol causing heart attacks.

> �

> I have a friend who has model perfect cholesterol numbers. Total, LDL, HDL,

and ratios are perfect and on " target. "

>

> Yet this did not stop his carotid artery from developing plaque.

> �

> For anyone who still believes cholesterol causes artery plaque, I have a

bridge in New York I would like to sell them.

> �

> Bobby

> �

> �

>

> http://geocities.com/flyinresorts/blog.html

>

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Could you get a picture of the largest muscle in our bodies and post it to the

cardiologist. Just a thought1 Pamela SP

PS I have a friend exactly the same - her doctor will have none of it and she

just goes along with his prescribing.

> >

> > I agree with Lee it aint the cholesterol causing heart attacks.

> > �

> > I have a friend who has model perfect cholesterol numbers. Total, LDL, HDL,

and ratios are perfect and on " target. "

> >

> > Yet this did not stop his carotid artery from developing plaque.

> > �

> > For anyone who still believes cholesterol causes artery plaque, I have a

bridge in New York I would like to sell them.

> > �

> > Bobby

> > �

> > �

> >

> > http://geocities.com/flyinresorts/blog.html

> >

>

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I was ambushed at the Dr.'s office when I went in for antibiotics for an infection that would not go away. I am the VYTORIN VICTIM. During & after taking this dangerous drug, I have noticed increased infections that rage through my body since taking this form of "cyanide". My brain function is just now normalizing after 2 years of hard work. I am eating & drinking only 100% healthy foods, using, as Dr. OZ puts it, the grocery store as my pharmacy. Must have 50% vegetables with each meal. I feel the Vytorin permanently screwed up my metabolism. I believe the statin my Dad took was what made him so mean before his death. He only listened to his heart doctor, not me. I have done more research on this than my doctor. He does not have time to do this. Now because my LDL is high, he wants to put me on ZETIA!!!!!! Side effects are muscle pain & weakness. No way! What do you all know about this

drug?Sent from my iPhoneOn Feb 25, 2010, at 12:20 PM, "cls54721" <cls54721@...> wrote:

My mom has been lowering her cholesterol for over 10 years with Lipitor. I told her the pain and forgetfulness she was having were from statins. She went off for a while, but since she doesn't eat as she should, her TC went over 300 and triglycerides way up. So, her doc put her on Trilipix and Crestor. She feels miserable and her personality has changed, and she can't finish a sentence or remember things I told her a few minutes before.

She now has congestive heart failure. I told her it's a side effect of statins because of CoQ 10 defiency. I told her statins break down your muscle tissue, that's probably what happened to the heart muscle. Her cardiologist says "that's a different kind of muscle."

I guess he thinks statins are wonderful.

She says, which pills should I stop taking. She takes blood pressure drugs, Crestor, Trilipix and now has to take Coreg for the heart failure. She thinks if she stops taking them, she will drop dead from a heart attack.

>

> I agree with Lee it aint the cholesterol causing heart attacks.

> �

> I have a friend who has model perfect cholesterol numbers. Total, LDL, HDL, and ratios are perfect and on "target."

>

> Yet this did not stop his carotid artery from developing plaque.

> �

> For anyone who still believes cholesterol causes artery plaque, I have a bridge in New York I would like to sell them.

> �

> Bobby

> �

> �

>

> http://geocities.com/flyinresorts/blog.html

>

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I was ambushed at the Dr.'s office when I went in for antibiotics for an infection that would not go away. I am the VYTORIN VICTIM. During & after taking this dangerous drug, I have noticed increased infections that rage through my body since taking this form of "cyanide". My brain function is just now normalizing after 2 years of hard work. I am eating & drinking only 100% healthy foods, using, as Dr. OZ puts it, the grocery store as my pharmacy. Must have 50% vegetables with each meal. I feel the Vytorin permanently screwed up my metabolism. I believe the statin my Dad took was what made him so mean before his death. He only listened to his heart doctor, not me. I have done more research on this than my doctor. He does not have time to do this. Now because my LDL is high, he wants to put me on ZETIA!!!!!! Side effects are muscle pain & weakness. No way! What do you all know about this

drug?Sent from my iPhoneOn Feb 25, 2010, at 12:20 PM, "cls54721" <cls54721@...> wrote:

My mom has been lowering her cholesterol for over 10 years with Lipitor. I told her the pain and forgetfulness she was having were from statins. She went off for a while, but since she doesn't eat as she should, her TC went over 300 and triglycerides way up. So, her doc put her on Trilipix and Crestor. She feels miserable and her personality has changed, and she can't finish a sentence or remember things I told her a few minutes before.

She now has congestive heart failure. I told her it's a side effect of statins because of CoQ 10 defiency. I told her statins break down your muscle tissue, that's probably what happened to the heart muscle. Her cardiologist says "that's a different kind of muscle."

I guess he thinks statins are wonderful.

She says, which pills should I stop taking. She takes blood pressure drugs, Crestor, Trilipix and now has to take Coreg for the heart failure. She thinks if she stops taking them, she will drop dead from a heart attack.

>

> I agree with Lee it aint the cholesterol causing heart attacks.

> �

> I have a friend who has model perfect cholesterol numbers. Total, LDL, HDL, and ratios are perfect and on "target."

>

> Yet this did not stop his carotid artery from developing plaque.

> �

> For anyone who still believes cholesterol causes artery plaque, I have a bridge in New York I would like to sell them.

> �

> Bobby

> �

> �

>

> http://geocities.com/flyinresorts/blog.html

>

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