Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 > lately i've been wondering what i'd do if i had to switch to different medications. , my name is Jane; I am 27+ but I have a 32 year old son who has just been diagnosed with Stage 3 AS. He will inject Enbrel. The company that manufactures Enbrel has an assistance program that will financially assist you depending on your circumstances. His medicine will come from a specialty pharmacy and it has to be shipped so there must be a way that you could also get it. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 , My insurance co. makes me get Enbrel from a mail order pharmacy in Florida. (I live in MA). They send it via Fedex overnight, in a small styrofoam cooler with ice packs. I've never had a problem. I don't know if they would be able to send it to China, though. Enbrel also has a service called Enliven, and they have coolers available and will be happy to instruct on how to travel with it. So, it may be possible for you, if you get to that point, which I hope you don't! Charlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 In a message dated 6/1/2006 1:56:05 A.M. Eastern Standard Time, suvpr@... writes: Most of the side effects I read from this group's messages seem to be for kids who started medication at younger age. Also I read somewhere that the drug tolerence increases with age. Is that true? Does anybody has their kids started at this age? Please let me know. I don't know what to expect but for now I am scared. SU I think drug dosage has more to do with weight than age - but even adults can have adverse reactions to medication. That just depends on the individual. My daughter started Prozac just a few months before her 15th birthday -- not 17yrs, but not far off from it. We've experienced nothing but improvement & good things from it. Do your research. Read up on the different types of drugs used & know what the common side effects are. Your son might not experience any side effects at all. You don't know until you try. There are TONS of side effects related to Prozac - if you just go by the list, you would never put your child on it. Keep in mind, they have to report everything that could possibly happen -- it doesn't mean it will. Be extra observant once your son starts meds. Make note of any changes you might notice & ask your doctor about them. Good luck. I hope meds help you son the way they have helped my daughter. Prozac gave her her life back - it was quite astonishing, and I can't believe that I was so against it in the first place. Live & learn.... that's what I say!!! LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 In a message dated 6/1/2006 1:56:05 A.M. Eastern Standard Time, suvpr@... writes: Most of the side effects I read from this group's messages seem to be for kids who started medication at younger age. Also I read somewhere that the drug tolerence increases with age. Is that true? Does anybody has their kids started at this age? Please let me know. I don't know what to expect but for now I am scared. SU I think drug dosage has more to do with weight than age - but even adults can have adverse reactions to medication. That just depends on the individual. My daughter started Prozac just a few months before her 15th birthday -- not 17yrs, but not far off from it. We've experienced nothing but improvement & good things from it. Do your research. Read up on the different types of drugs used & know what the common side effects are. Your son might not experience any side effects at all. You don't know until you try. There are TONS of side effects related to Prozac - if you just go by the list, you would never put your child on it. Keep in mind, they have to report everything that could possibly happen -- it doesn't mean it will. Be extra observant once your son starts meds. Make note of any changes you might notice & ask your doctor about them. Good luck. I hope meds help you son the way they have helped my daughter. Prozac gave her her life back - it was quite astonishing, and I can't believe that I was so against it in the first place. Live & learn.... that's what I say!!! LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 In a message dated 6/1/2006 6:07:55 P.M. Eastern Standard Time, lilmissjeeper10@... writes: He washes his hands constantly and they are red, swollen, and bleeding alot. Our dd also has the hand washing/showering/contamination issue. Meds helped her showering immensely - the only tip I can offer on the hand washing is to dump every, single bottle of " antibacterial " soap you have. I know it's difficult (if not impossible in some stores) to find hand soap that's NOT antibacterial, but look. Target offers some by the brand name of " Method " , and Home Depot (believe it or not) also offers a liquid hand soap that is a glycerine soap. When I first got rid of all the antibacterial soap, I replaced it all (in every bathroom & the kitchen) with only liquid pump Cetaphyl. Needless to say, everyone in the family HATED it. Cetaphyl doesn't lather like regular soap. It's like washing with lotion. After about a month of that, I decided to get the non-antibacterial soap. It really does help with the dry skin. Of course, I also had to raid my daughter's purses, drawers, backpack, etc... for all the antibacterial hand gel bottles. She had a Sh*tload of them!!! Check to see if your son is hiding these bottles from you. That stuff will chew through skin faster than anything. My daughter used to rub it into the backs of her hands too - that was really bad. One mom on the message board (sorry - don't recall which one) said that she removed all the soap from every sink in the house. Her child had to ask permission to wash their hands with soap. That way she could monitor how many times her child used soap. Good luck -- let us know how it works out for you. Definitely switch soap out - I can't tell you what a difference it made in just a week or so. Also, insist on you son using some sort of hand lotion - do you think he would do that? LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 My daughter, who is now nearly 14, started taking meds for OCD at age 8. She has been taking the same combo of meds at the same dosage for about three years, until this month. We just REDUCED her Lexapro because she had become very irritable and her pdoc said that could be the reason. She said she had another patient who became very irritable on Lexapro after having taken it for a long time with no problems. Weird. So you never know - we didn't have to increase anything as my daughter grew up. We just changed meds a few times to find the combo that worked for her (she has Tourette's, OCD and ADHD). I honestly can say that she wouldn't have survived without the medication - it was not really a choice for us. At this point she might be able to get along without medication, but we wouldn't be able to live with her. And she certainly wouldn't be able to go to school, have friends or participate in life in a normal way. I agree with the person who said that you should start by educating yourself about the medications. The more you know, the more informed your decision can be. Best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 My son is 7 (he'll be 8 June 6). When he was 6 he got put on zoloft 25 mg becuase he would always ask if he face was dirty and I would have to look at him directly and say no then we would repeat it 7 times in a row. As of 5 months ago the meds stop working and his family care doctor uped his meds to 50mg. That whole month he was very aggressive and never spoke always yelled so she lowered him back to 25 mg and now we just had a three appt today with the pdoc to put him on something that will hopefully work. He washes his hands constantly and they are red, swollen, and bleeding alot. They look horrible. Yesterday we started his cognative behavioral therapy and boy is that hard to follow through with he moves from washing his face and hands all day long to taking two hour baths. He gets very angry lately and has pushed the bathroom door into the wall so hard that he put a whole in the wall. Also, on Tuesday I start at home part time for the summer so that I can be home with him and enforce the cognative behavioral therapy stuff. I am so greatful for my boss being so kind as to let me do so. Thanks and hope to hear from you real so. Fowler <em.fowler@...> wrote: My daughter, who is now nearly 14, started taking meds for OCD at age 8. She has been taking the same combo of meds at the same dosage for about three years, until this month. We just REDUCED her Lexapro because she had become very irritable and her pdoc said that could be the reason. She said she had another patient who became very irritable on Lexapro after having taken it for a long time with no problems. Weird. So you never know - we didn't have to increase anything as my daughter grew up. We just changed meds a few times to find the combo that worked for her (she has Tourette's, OCD and ADHD). I honestly can say that she wouldn't have survived without the medication - it was not really a choice for us. At this point she might be able to get along without medication, but we wouldn't be able to live with her. And she certainly wouldn't be able to go to school, have friends or participate in life in a normal way. I agree with the person who said that you should start by educating yourself about the medications. The more you know, the more informed your decision can be. Best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 I was told that it is true that kids who don't tolerate SSRI's at a young ages might tolerate them when older. My son's problems with the meds were behavioral. You will be able to tell if something is wrong. Try to relax. Bonnie > > My son(17) will be going on medication from next month. He is on CBT > from last one year. Most of the side effects I read from this group's > messages seem to be for kids who started medication at younger age. > Also I read somewhere that the drug tolerence increases with age. Is > that true? Does anybody has their kids started at this age? Please let > me know. I don't know what to expect but for now I am scared. > > SU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Hi! My daughter was on abilify (can't remember the dose) and we had some major behavioral issues (SIB aggressions towards others). Even worse than when we werent on any meds. We have been on so many meds, most werent helpful. We are now trying prozac and she is up and down with behv. Good luck and I hope it works for you!! , mom to Lilly 10 (autism) and Audrey Rose 7 (NT) From: "Dana" <dsherrera@...>Reply-Autism and Aspergers Treatment To: Autism and Aspergers Treatment Subject: MedicationsDate: Sun, 08 Oct 2006 20:09:45 -0000 Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abilify with their kiddos, and at what doses. My son's diagnosis are AS, ADHD, and depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My son is a 13 yo 8th grader fully included in school except for gifted classes. We had to change from Risperdal due to him beginning to develop metabolic syndrome. This change has set him so far back with behavior, yelling at students and teachers, tipping desks over, defiant just to be defiant, more stims, etc. He has gradually been increased to 20 mg, and I am just not seeing any improvement but more and more of the old behaviors seem to be showing up. I don't want to see him put back into a behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Abilify my son gained weight on the lowest dose, Risperdal my son gained lots of weight and developed breast neither med really helped with his behaviors he is now on Geodon 40 mg and it has worked better than the other 2 he is also on Concerta 36 mgs. > > Hi > I have not participated in this group much just read the posts. I am > wondering what results people have acheived with Abilify with their > kiddos, and at what doses. My son's diagnosis are AS, ADHD, and > depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My > son is a 13 yo 8th grader fully included in school except for gifted > classes. We had to change from Risperdal due to him beginning to > develop metabolic syndrome. This change has set him so far back with > behavior, yelling at students and teachers, tipping desks over, > defiant just to be defiant, more stims, etc. He has gradually been > increased to 20 mg, and I am just not seeing any improvement but more > and more of the old behaviors seem to be showing up. I don't want to > see him put back into a behavior classroom if we can help it. I am > also wondering if possibley some of you have seen an increase in > behaviors associated with puberty. If so at what point does it > decrease again. I greatly appreciate any feed back I recieve. > Thanks, Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abilify with their kiddos, and at what doses. My son's diagnosis are AS, ADHD, and depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My son is a 13 yo 8th grader fully included in school except for gifted classes. We had to change from Risperdal due to him beginning to develop metabolic syndrome. This change has set him so far back with behavior, yelling at students and teachers, tipping desks over, defiant just to be defiant, more stims, etc. He has gradually been increased to 20 mg, and I am just not seeing any improvement but more and more of the old behaviors seem to be showing up. I don't want to see him put back into a behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 The puberty part is especially difficult. My son is 13 also, and we have gone from a happy, intelligent kid, to a screaming, angry, meltdown all the time kid. I wish I had better info for you, but I have seen other asd boys hit puberty, and it is a crash course in chaos. Crystal MN OH MY GOODNESS! Puberty is when the stuff hit the fan in my house. Aggression,physical fights, anger, meltdowns, a scary face with bulging veins in the neck, balled up fists, swords used to intimidate. My kids were a little quirky (we thought shy) and didn't get diagnosed until they were 16. Up until that point things were manageable. I thought aliens had come and taken my boys and replaced them with look a likes who were bound and determined to drive me insane! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Risperdol is an absolute nightmare - my oldest daughter went from a tiny little thing to a grotesquely overweight child. She was at age 8 wearing women's mediums that I had to alter to fit her - it was awful. She takes seroquel at a low dose with absolutely no problems. She has AS, OCD, Mood Disorder etc., my youngest daughter is on Abilify, which has been very helpful, she has always been kind of chubby and it doesn't seem to sedate her at all.I would have to say I would NEVER put any of my kids on Risperdal, I was on it for a short time and went from 120 to 190 - seemed like when I breathed I put on a nother 10 pounds. This was over 5 years ago and I am STILL fighting the weight.Kesha <druspikeangel1@...> wrote: Abilify my son gained weight on the lowest dose, Risperdal my son gained lots of weight and developed breast neither med really helped with his behaviors he is now on Geodon 40 mg and it has worked better than the other 2 he is also on Concerta 36 mgs. > > Hi > I have not participated in this group much just read the posts. I am > wondering what results people have acheived with Abilify with their > kiddos, and at what doses. My son's diagnosis are AS, ADHD, and > depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My > son is a 13 yo 8th grader fully included in school except for gifted > classes. We had to change from Risperdal due to him beginning to > develop metabolic syndrome. This change has set him so far back with > behavior, yelling at students and teachers, tipping desks over, > defiant just to be defiant, more stims, etc. He has gradually been > increased to 20 mg, and I am just not seeing any improvement but more > and more of the old behaviors seem to be showing up. I don't want to > see him put back into a behavior classroom if we can help it. I am > also wondering if possibley some of you have seen an increase in > behaviors associated with puberty. If so at what point does it > decrease again. I greatly appreciate any feed back I recieve. > Thanks, Dana > A great teacher never strives to explain his vision - he simply invites you to stand beside him and see for yourself.... The Rev. R. Inman Children are likely to live up to what you believe of them - Lady Bird Treat a child as though he already is the person he's capable of becoming - Haim Gnott Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Abilify has been a godsend for Hope, she takes 10mg, and takes tenex as well. We tried her on adderall but it caused her self injurious behavior to escalate, and made her very aggressive.My older daughter AS, OCD, BP - takes lexapro and seroquel and has for years - no side effects or anything.Dana <dsherrera@...> wrote: Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abilify with their kiddos, and at what doses. My son's diagnosis are AS, ADHD, and depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My son is a 13 yo 8th grader fully included in school except for gifted classes. We had to change from Risperdal due to him beginning to develop metabolic syndrome. This change has set him so far back with behavior, yelling at students and teachers, tipping desks over, defiant just to be defiant, more stims, etc. He has gradually been increased to 20 mg, and I am just not seeing any improvement but more and more of the old behaviors seem to be showing up. I don't want to see him put back into a behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve. Thanks, Dana A great teacher never strives to explain his vision - he simply invites you to stand beside him and see for yourself.... The Rev. R. Inman Children are likely to live up to what you believe of them - Lady Bird Treat a child as though he already is the person he's capable of becoming - Haim Gnott Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Is Abilify the new attention deficit patch? If so, how do you like it?KK Re: Medications Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abil behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 nooooo it is a mood stabilizer, your thinking of Daytrana - that is the patch for ADHD -----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ]On Behalf Of KKinKatySent: Monday, October 09, 2006 11:50 PMAutism and Aspergers Treatment Subject: Re: Medications Is Abilify the new attention deficit patch? If so, how do you like it?KK Re: Medications Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abil behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 The new patch is called Daytrana. My 9 year old w/ADD is now using it and loving it. The side-effects for us have been less of an appitite at dinner (He'll usually eat later) and some itching. For a child who couldn't swollow a pill, it's been a God send. It can be hard to locate in pharmacies due to its newness on the market. Gretchen Archinal From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of KKinKatySent: Monday, October 09, 2006 11:50 PMAutism and Aspergers Treatment Subject: Re: Medications Is Abilify the new attention deficit patch? If so, how do you like it?KK Re: Medications Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abil behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 The new patch is called Daytrana. My 9 year old w/ADD is now using it and loving it. The side-effects for us have been less of an appitite at dinner (He'll usually eat later) and some itching. For a child who couldn't swollow a pill, it's been a God send. It can be hard to locate in pharmacies due to its newness on the market. Gretchen Archinal From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of KKinKatySent: Monday, October 09, 2006 11:50 PMAutism and Aspergers Treatment Subject: Re: Medications Is Abilify the new attention deficit patch? If so, how do you like it?KK Re: Medications Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abil behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 My 9yr old daughter takes Trileptal & Celexa. It has made an enormous difference. E. Colorado "Insanity runs in my family. It practically gallops." Cary Grant Medications Date: Sun, 08 Oct 2006 20:09:45 -0000 Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abilify with their kiddos, and at what doses. My son's diagnosis are AS, ADHD, and depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My son is a 13 yo 8th grader fully included in school except for gifted classes. We had to change from Risperdal due to him beginning to develop metabolic syndrome. This change has set him so far back with behavior, yelling at students and teachers, tipping desks over, defiant just to be defiant, more stims, etc. He has gradually been increased to 20 mg, and I am just not seeing any improvement but more and more of the old behaviors seem to be showing up. I don't want to see him put back into a behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve. Thanks, Dana Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 We tried the arreral XR and other things ... what we found for my son now 11 with AS is NOTHING .. we monitor what he eats and that seems to help more than anything we ever tried ... It took about a week for the medication to get out of his system and after that things were better. I am not saying things are great or wonderful, but teaching and watching him I feel is far better that any drugs the Dr.'s ever gave him ... Please no one take this the wrong way .. I would rather my son act a bit weird or strange then be for lack of a better term stoned all the time. I know this will not work for all out there, but it might be worth a try. --- d corbin <jdcorbin_2000@...> wrote: > Dana, I cannot tell you re the Abilify but the > Adderal XR, we really have had EXCELLENT experience! > I can tell in 1 sentance on the phone if my dd has > not taken her Adderall! I can say that behaviors do > seem to increase again with puberty. Also, going to > middle school is SUCH a huge change in routine, > there is not anywhere near the structure that was > involved in elementary.... That change was a > NIGHTMARE for us! We did not have the correct dx > then so did not prepare her specially for the > changes. She ended up in the hospital for 3 days > until we could get a correct dx and med shift and > then have to deal with the school. Well, that is all > of my input. Good luck and God bless! DeeDee > > Hi > I have not participated in this group much just read > the posts. I am > wondering what results people have acheived with > Abilify with their > kiddos, and at what doses. My son's diagnosis are > AS, ADHD, and > depression. His other meds are Aderall XR 40 mg and > Zoloft 100 mg. My > son is a 13 yo 8th grader fully included in school > except for gifted > classes. We had to change from Risperdal due to him > beginning to > develop metabolic syndrome. This change has set him > so far back with > behavior, yelling at students and teachers, tipping > desks over, > defiant just to be defiant, more stims, etc. He has > gradually been > increased to 20 mg, and I am just not seeing any > improvement but more > and more of the old behaviors seem to be showing up. > I don't want to > see him put back into a behavior classroom if we can > help it. I am > also wondering if possibley some of you have seen an > increase in > behaviors associated with puberty. If so at what > point does it > decrease again. I greatly appreciate any feed back I > recieve. > Thanks, Dana > > > > > > > --------------------------------- > Talk is cheap. Use Messenger to make > PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 I hate that my 20yo son has to take meds, but we've been through enough to know that his meds are the only thing between him and residential care. He has 6 inches and 57 pounds on me, and when he's in a rage, he's a mean, lean fighting machine - complete with holes in the walls and windows and doors, swinging belts and fists in my direction, and overturned furniture. We've tried many dietary things, and for years we kept him off FD & C food dyes, which really helped. We tried special vitamins, too. Eh, not much help. Have we had bad meds-caused situations? You bet. But am I willing to have institutionalization and perhaps enforced meds as an option? Not on your life. I will go to my grave fighting against that. And, BTW, when his Tourette's has broken through the maximum dose of Risperdal he was allowed to take, he has BEGGED me to take him to the doctor to get some help, and each time I've had to tell him that there was nothing more the doctor could do. Theresa Mesa Mesa Design House http://mesadesignhouse.com 909-335-9710 Hours: By appointment only On Jan 21, 2007, at 1:32 PM, Laha1960@... wrote: > > http://www.breggin.com/index.html > > PEGGY I saw your link above and the name BREGGIN. Is that PETER > BREGGIN? He is a doctor who has been around a long , long time, and > always in his articles and tv appearances and online, speaks > against medications. He has always been dead set against them. He > has done more HARM for the ADHD world, believe me! > > My son is 18 in April. We have had him on medications for about 14 > years or longer. NO, he is not at all hurt by the medications. He > has been changed. He is like a Dr Jekyl and Mr Hyde on and off of > them. They have made a difference in his life. > > My son was dignosed severe ADHD at the age of three, and he was > severe. The medications he had them did not help that much, low > doses, but he needed them. Then he was in a special preschool for > those with at risk problems. He was always, ALWAYS very bright and > academically superior. > > Well, we found out that his social problems and behaviors and his > lack of appropriate social skills and his anxiety etc was all a > part of his Aspergers, when he was finally diagnosed that at age > ten in 1999. He ADHD and ASPERGERS. > We are highly grateful for the medications which help him. > > He has had straight As all through Junior high and high school, is > a class rank of 19 out of 330 students, is a senior in high school, > taking AP honors English , Physics, Cal, and other things, and he > was selected to be an IL STATE SCHOLAR, only 10% of students in IL > get that honor. > My son took work, and we worked hard and still do, and do not get > me wrong, MEDICATIONS did not make him anything. > However, medicines helped him to be the person that he could be, > and to think and act better than he was without them. He also was > able to better control himself, though he is far from normal or > perfect around social situations. HIS worst offense is talking too > much, asking questions and not staying on a topic socially. He is > on the school chess team and just had some tournaments. He does > well. I am very happy how he is now. > > Despite his Aspergers and ADHD, my son is succeeding. I believe > that for him medications make the best difference. > > IT took a while and we had to go through different doctors, > psychiatrists, psychologist and medications to find the right > combination for him. His whole issues can not be taken care of with > one pill, even with three or four pills. He is still ASpergers. > However, he has taken these medications as medications have made a > difference. MEdications are highly individual and not everyone has > the same medications or same techniques or same therapies that > help.Everyone is different, so try to not pursuade anyone against > trying medications if that is what they wish to do and need to do. > > I have heard so much against that BREGGIN guy. I would highly > recommend that you do not listen to him, as most of those > professionals who work in advocating with those with ADHD AND other > disabilities do not take him seriously at all, he isa troublemaker. > > I would suggest that anyone who wants to try medications, discusses > this with their doctor and tries to find what works best. There > are some that have had awful experiences on all medications in this > world that are used to help every ailment or disorder or disease, > but that does not mean we all need to stay away from that medication. > > Good luck and God bless each person's choice! > > in IL > Check out the new AOL. Most comprehensive set of free safety and > security tools, free access to millions of high-quality videos from > across the web, free AOL Mail and more. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 LAURA, I'm going through the exact same thing u went through with your son. My son is only 9 but has been on medication since he was 4. I'm glad to hear how well your son has done. It give me hope for mine. Thank uLaha1960@... wrote: http://www.breggin.com/index.html PEGGY I saw your link above and the name BREGGIN. Is that PETER BREGGIN? He is a doctor who has been around a long , long time, and always in his articles and tv appearances and online, speaks against medications. He has always been dead set against them. He has done more HARM for the ADHD world, believe me! My son is 18 in April. We have had him on medications for about 14 years or longer. NO, he is not at all hurt by the medications. He has been changed. He is like a Dr Jekyl and Mr Hyde on and off of them. They have made a difference in his life. My son was dignosed severe ADHD at the age of three, and he was severe. The medications he had them did not help that much, low doses, but he needed them. Then he was in a special preschool for those with at risk problems. He was always, ALWAYS very bright and academically superior. Well, we found out that his social problems and behaviors and his lack of appropriate social skills and his anxiety etc was all a part of his Aspergers, when he was finally diagnosed that at age ten in 1999. He ADHD and ASPERGERS. We are highly grateful for the medications which help him. He has had straight As all through Junior high and high school, is a class rank of 19 out of 330 students, is a senior in high school, taking AP honors English , Physics, Cal, and other things, and he was selected to be an IL STATE SCHOLAR, only 10% of students in IL get that honor. My son took work, and we worked hard and still do, and do not get me wrong, MEDICATIONS did not make him anything. However, medicines helped him to be the person that he could be, and to think and act better than he was without them. He also was able to better control himself, though he is far from normal or perfect around social situations. HIS worst offense is talking too much, asking questions and not staying on a topic socially. He is on the school chess team and just had some tournaments. He does well. I am very happy how he is now. Despite his Aspergers and ADHD, my son is succeeding. I believe that for him medications make the best difference. IT took a while and we had to go through different doctors, psychiatrists, psychologist and medications to find the right combination for him. His whole issues can not be taken care of with one pill, even with three or four pills. He is still ASpergers. However, he has taken these medications as medications have made a difference. MEdications are highly individual and not everyone has the same medications or same techniques or same therapies that help.Everyone is different, so try to not pursuade anyone against trying medications if that is what they wish to do and need to do. I have heard so much against that BREGGIN guy. I would highly recommend that you do not listen to him, as most of those professionals who work in advocating with those with ADHD AND other disabilities do not take him seriously at all, he isa troublemaker. I would suggest that anyone who wants to try medications, discusses this with their doctor and tries to find what works best. There are some that have had awful experiences on all medications in this world that are used to help every ailment or disorder or disease, but that does not mean we all need to stay away from that medication. Good luck and God bless each person's choice! in IL Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Ally Don't be flakey. Get for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 Interestingly, after reading 's post, this window opened up with Dr. Breggin's name and different links. He actually seems pretty well respected. I read about Paxil and adult suicides and that a court had allowed his testimony to be opened against the wishes of Kline (there's a third, new, name) the drug company that makes it. I think what he is saying is similar to what I've heard Cousens say: that these drugs do things ... I'm looking for words that won't be perceived as an attack ... I think I'll just leave it at that. I'm glad your son is doing well. that's so gratifying, and I can see why you are pro-drugs. with Love, Francine In a message dated 1/22/2007 12:55:28 A.M. Eastern Standard Time, afortney74@... writes: LAURA, I'm going through the exact same thing u went through with your son. My son is only 9 but has been on medication since he was 4. I'm glad to hear how well your son has done. It give me hope for mine. Thank uLaha1960aol wrote: http://www.breggin.com/index.html PEGGY I saw your link above and the name BREGGIN. Is that PETER BREGGIN? He is a doctor who has been around a long , long time, and always in his articles and tv appearances and online, speaks against medications. He has always been dead set against them. He has done more HARM for the ADHD world, believe me! My son is 18 in April. We have had him on medications for about 14 years or longer. NO, he is not at all hurt by the medications. He has been changed. He is like a Dr Jekyl and Mr Hyde on and off of them. They have made a difference in his life. My son was dignosed severe ADHD at the age of three, and he was severe. The medications he had them did not help that much, low doses, but he needed them. Then he was in a special preschool for those with at risk problems. He was always, ALWAYS very bright and academically superior. Well, we found out that his social problems and behaviors and his lack of appropriate social skills and his anxiety etc was all a part of his Aspergers, when he was finally diagnosed that at age ten in 1999. He ADHD and ASPERGERS. We are highly grateful for the medications which help him. He has had straight As all through Junior high and high school, is a class rank of 19 out of 330 students, is a senior in high school, taking AP honors English , Physics, Cal, and other things, and he was selected to be an IL STATE SCHOLAR, only 10% of students in IL get that honor. My son took work, and we worked hard and still do, and do not get me wrong, MEDICATIONS did not make him anything. However, medicines helped him to be the person that he could be, and to think and act better than he was without them. He also was able to better control himself, though he is far from normal or perfect around social situations. HIS worst offense is talking too much, asking questions and not staying on a topic socially. He is on the school chess team and just had some tournaments. He does well. I am very happy how he is now. Despite his Aspergers and ADHD, my son is succeeding. I believe that for him medications make the best difference. IT took a while and we had to go through different doctors, psychiatrists, psychologist and medications to find the right combination for him. His whole issues can not be taken care of with one pill, even with three or four pills. He is still ASpergers. However, he has taken these medications as medications have made a difference. MEdications are highly individual and not everyone has the same medications or same techniques or same therapies that help.Everyone is different, so try to not pursuade anyone against trying medications if that is what they wish to do and need to do. I have heard so much against that BREGGIN guy. I would highly recommend that you do not listen to him, as most of those professionals who work in advocating with those with ADHD AND other disabilities do not take him seriously at all, he isa troublemaker. I would suggest that anyone who wants to try medications, discusses this with their doctor and tries to find what works best. There are some that have had awful experiences on all medications in this world that are used to help every ailment or disorder or disease, but that does not mean we all need to stay away from that medication. Good luck and God bless each person's choice! in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 On 1/21/07, Theresa Mesa <clanmesa@...> wrote: We've tried many dietary things,and for years we kept him off FD & C food dyes, which really helped. Wetried special vitamins, too. Eh, not much help. Theresa, Just out of curiosity, were you also restricting salicylates or just dyes? -Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Just dyes. Saw a massive improvement. We tried restricting sugar and saw no improvement. When you consider that it's extremely rare that our children are fed pure sugar, this also made sense. Unless your child is bouncing off the walls after taking a couple of spoonsful from the sugar jar (and then is it cane sugar or beet sugar, or a bit of both, depending on the manufacturer?), then you have to consider that something else in the sweet thing they're eating could be causing the trouble, even the most innocuous things. Is it the vanilla, is it the food dye, is it the preservative, is it a particular chemical, is it high-fructose corn syrup? Because my sister has celiac and has to be on a gluten-free diet, I helped her research what she needed to do. It's unbelievable what gluten can be in - ketchup, pickles, vanilla extract (!! - the alcohol used to steep the vanilla bean in is made from grain alcohol) or imitation vanilla, the binders in pills and even vitamin supplements. And manufacturers who make things that they say are gluten-free can change sources or methods of production, so something that was gluten-free before isn't gluten-free anymore. Whenever I make something for my sister, I have to make sure I wipe down the counters a few times with an absolutely clean, fresh washcloth (forget e. coli - it's the gluten that will kill her), make sure everything was washed in the dishwasher, and call her to ask what ingredients I need to use are gluten-free, making sure that what I used before is still safe. For all y'all thinking about a gluten-free diet, understand that this is a full-time commitment, and I guarantee you that your cooking/ baking/shopping life will be turned upside down. ly, I don't know how my sister does it. Even many whole grains (vegan diets) are absolutely off-limits. The tofu you use - is it gluten-free? Are the coatings on your non-organic veggies gluten-free? Have your beans been processed in a factory that also contains gluten-containing products? If so, your product may not be quite gluten-free. It's not just wheat. It's rye and barley and several other grains. BTW, the ONLY 100% way to see if someone is gluten-sensitive is to take a biopsy of the jeujeunum in the small intestine. The blood tests are not necessarily foolproof. We're not talking about misbehaving upon gluten ingestion. We're not talking about rashes or congestion or whatever. When your sister could DIE from eating gluten, it really puts a different spin on what it means to be on a restricted diet. Theresa Mesa Mesa Design House http://mesadesignhouse.com 909-335-9710 Hours: By appointment only On Jan 22, 2007, at 5:16 AM, Lana Gibbons wrote: > > > On 1/21/07, Theresa Mesa <clanmesa@...> wrote:We've tried > many dietary things, > and for years we kept him off FD & C food dyes, which really helped. We > tried special vitamins, too. Eh, not much help. > > Theresa, > > Just out of curiosity, were you also restricting salicylates or > just dyes? > > -Lana > > Quote Link to comment Share on other sites More sharing options...
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