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> lately i've been wondering what i'd do if i had to switch to different

medications.

, my name is Jane; I am 27+ but I have a 32 year old son who has just

been diagnosed with Stage 3 AS. He will inject Enbrel. The company that

manufactures Enbrel has an assistance program that will financially assist

you depending on your circumstances. His medicine will come from a

specialty pharmacy and it has to be shipped so there must be a way that you

could also get it. Jane

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,

My insurance co. makes me get Enbrel from a mail order pharmacy in

Florida. (I live in MA). They send it via Fedex overnight, in a small

styrofoam cooler with ice packs. I've never had a problem.

I don't know if they would be able to send it to China, though.

Enbrel also has a service called Enliven, and they have coolers

available and will be happy to instruct on how to travel with it.

So, it may be possible for you, if you get to that point, which I hope

you don't!

Charlene

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  • 2 weeks later...
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In a message dated 6/1/2006 1:56:05 A.M. Eastern Standard Time,

suvpr@... writes:

Most of the side effects I read from this group's

messages seem to be for kids who started medication at younger age.

Also I read somewhere that the drug tolerence increases with age. Is

that true? Does anybody has their kids started at this age? Please let

me know. I don't know what to expect but for now I am scared.

SU

I think drug dosage has more to do with weight than age - but even adults

can have adverse reactions to medication. That just depends on the individual.

My daughter started Prozac just a few months before her 15th birthday --

not 17yrs, but not far off from it. We've experienced nothing but improvement

& good things from it.

Do your research. Read up on the different types of drugs used & know what

the common side effects are. Your son might not experience any side effects

at all. You don't know until you try. There are TONS of side effects

related to Prozac - if you just go by the list, you would never put your child

on

it. Keep in mind, they have to report everything that could possibly happen

-- it doesn't mean it will.

Be extra observant once your son starts meds. Make note of any changes you

might notice & ask your doctor about them. Good luck. I hope meds help you

son the way they have helped my daughter. Prozac gave her her life back - it

was quite astonishing, and I can't believe that I was so against it in the

first place. Live & learn.... that's what I say!!!

LT

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In a message dated 6/1/2006 1:56:05 A.M. Eastern Standard Time,

suvpr@... writes:

Most of the side effects I read from this group's

messages seem to be for kids who started medication at younger age.

Also I read somewhere that the drug tolerence increases with age. Is

that true? Does anybody has their kids started at this age? Please let

me know. I don't know what to expect but for now I am scared.

SU

I think drug dosage has more to do with weight than age - but even adults

can have adverse reactions to medication. That just depends on the individual.

My daughter started Prozac just a few months before her 15th birthday --

not 17yrs, but not far off from it. We've experienced nothing but improvement

& good things from it.

Do your research. Read up on the different types of drugs used & know what

the common side effects are. Your son might not experience any side effects

at all. You don't know until you try. There are TONS of side effects

related to Prozac - if you just go by the list, you would never put your child

on

it. Keep in mind, they have to report everything that could possibly happen

-- it doesn't mean it will.

Be extra observant once your son starts meds. Make note of any changes you

might notice & ask your doctor about them. Good luck. I hope meds help you

son the way they have helped my daughter. Prozac gave her her life back - it

was quite astonishing, and I can't believe that I was so against it in the

first place. Live & learn.... that's what I say!!!

LT

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In a message dated 6/1/2006 6:07:55 P.M. Eastern Standard Time,

lilmissjeeper10@... writes:

He washes his hands constantly and they are red, swollen, and bleeding

alot.

Our dd also has the hand washing/showering/contamination issue. Meds helped

her showering immensely - the only tip I can offer on the hand washing is to

dump every, single bottle of " antibacterial " soap you have. I know it's

difficult (if not impossible in some stores) to find hand soap that's NOT

antibacterial, but look. Target offers some by the brand name of " Method " , and

Home Depot (believe it or not) also offers a liquid hand soap that is a

glycerine soap. When I first got rid of all the antibacterial soap, I replaced

it

all (in every bathroom & the kitchen) with only liquid pump Cetaphyl. Needless

to say, everyone in the family HATED it. Cetaphyl doesn't lather like

regular soap. It's like washing with lotion. After about a month of that, I

decided to get the non-antibacterial soap. It really does help with the dry

skin.

Of course, I also had to raid my daughter's purses, drawers, backpack,

etc... for all the antibacterial hand gel bottles. She had a Sh*tload of

them!!!

Check to see if your son is hiding these bottles from you. That stuff will

chew through skin faster than anything. My daughter used to rub it into the

backs of her hands too - that was really bad.

One mom on the message board (sorry - don't recall which one) said that she

removed all the soap from every sink in the house. Her child had to ask

permission to wash their hands with soap. That way she could monitor how many

times her child used soap.

Good luck -- let us know how it works out for you. Definitely switch soap

out - I can't tell you what a difference it made in just a week or so. Also,

insist on you son using some sort of hand lotion - do you think he would do

that?

LT

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My daughter, who is now nearly 14, started taking meds for OCD at age 8. She has

been taking the same combo of meds at the same dosage for about three years,

until this month. We just REDUCED her Lexapro because she had become very

irritable and her pdoc said that could be the reason. She said she had another

patient who became very irritable on Lexapro after having taken it for a long

time with no problems. Weird. So you never know - we didn't have to increase

anything as my daughter grew up. We just changed meds a few times to find the

combo that worked for her (she has Tourette's, OCD and ADHD). I honestly can say

that she wouldn't have survived without the medication - it was not really a

choice for us. At this point she might be able to get along without medication,

but we wouldn't be able to live with her. And she certainly wouldn't be able to

go to school, have friends or participate in life in a normal way.

I agree with the person who said that you should start by educating yourself

about the medications. The more you know, the more informed your decision can

be.

Best wishes,

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My son is 7 (he'll be 8 June 6). When he was 6 he got put on zoloft 25 mg

becuase he would always ask if he face was dirty and I would have to look at him

directly and say no then we would repeat it 7 times in a row. As of 5 months

ago the meds stop working and his family care doctor uped his meds to 50mg.

That whole month he was very aggressive and never spoke always yelled so she

lowered him back to 25 mg and now we just had a three appt today with the pdoc

to put him on something that will hopefully work. He washes his hands constantly

and they are red, swollen, and bleeding alot. They look horrible. Yesterday we

started his cognative behavioral therapy and boy is that hard to follow through

with he moves from washing his face and hands all day long to taking two hour

baths. He gets very angry lately and has pushed the bathroom door into the

wall so hard that he put a whole in the wall. Also, on Tuesday I start at home

part time for the summer so that I can be

home with him and enforce the cognative behavioral therapy stuff. I am so

greatful for my boss being so kind as to let me do so. Thanks and hope to hear

from you real so.

Fowler <em.fowler@...> wrote:

My daughter, who is now nearly 14, started taking meds for OCD at age 8. She

has been taking the same combo of meds at the same dosage for about three years,

until this month. We just REDUCED her Lexapro because she had become very

irritable and her pdoc said that could be the reason. She said she had another

patient who became very irritable on Lexapro after having taken it for a long

time with no problems. Weird. So you never know - we didn't have to increase

anything as my daughter grew up. We just changed meds a few times to find the

combo that worked for her (she has Tourette's, OCD and ADHD). I honestly can say

that she wouldn't have survived without the medication - it was not really a

choice for us. At this point she might be able to get along without medication,

but we wouldn't be able to live with her. And she certainly wouldn't be able to

go to school, have friends or participate in life in a normal way.

I agree with the person who said that you should start by educating yourself

about the medications. The more you know, the more informed your decision can

be.

Best wishes,

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I was told that it is true that kids who don't tolerate SSRI's at a

young ages might tolerate them when older. My son's problems with the

meds were behavioral. You will be able to tell if something is wrong.

Try to relax.

Bonnie

>

> My son(17) will be going on medication from next month. He is on CBT

> from last one year. Most of the side effects I read from this group's

> messages seem to be for kids who started medication at younger age.

> Also I read somewhere that the drug tolerence increases with age. Is

> that true? Does anybody has their kids started at this age? Please let

> me know. I don't know what to expect but for now I am scared.

>

> SU

>

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  • 4 months later...

Hi! My daughter was on abilify (can't remember the dose) and we had some major behavioral issues (SIB aggressions towards others). Even worse than when we werent on any meds. We have been on so many meds, most werent helpful. We are now trying prozac and she is up and down with behv. Good luck and I hope it works for you!! , mom to Lilly 10 (autism) and Audrey Rose 7 (NT)

From: "Dana" <dsherrera@...>Reply-Autism and Aspergers Treatment To: Autism and Aspergers Treatment Subject: MedicationsDate: Sun, 08 Oct 2006 20:09:45 -0000

Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abilify with their kiddos, and at what doses. My son's diagnosis are AS, ADHD, and depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My son is a 13 yo 8th grader fully included in school except for gifted classes. We had to change from Risperdal due to him beginning to develop metabolic syndrome. This change has set him so far back with behavior, yelling at students and teachers, tipping desks over, defiant just to be defiant, more stims, etc. He has gradually been increased to 20 mg, and I am just not seeing any improvement but more and more of the old behaviors seem to be showing up. I don't want to see him put back into a behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana

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Abilify my son gained weight on the lowest dose, Risperdal my son

gained lots of weight and developed breast neither med really helped

with his behaviors he is now on Geodon 40 mg and it has worked better

than the other 2 he is also on Concerta 36 mgs.

>

> Hi

> I have not participated in this group much just read the posts. I am

> wondering what results people have acheived with Abilify with their

> kiddos, and at what doses. My son's diagnosis are AS, ADHD, and

> depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My

> son is a 13 yo 8th grader fully included in school except for gifted

> classes. We had to change from Risperdal due to him beginning to

> develop metabolic syndrome. This change has set him so far back with

> behavior, yelling at students and teachers, tipping desks over,

> defiant just to be defiant, more stims, etc. He has gradually been

> increased to 20 mg, and I am just not seeing any improvement but more

> and more of the old behaviors seem to be showing up. I don't want to

> see him put back into a behavior classroom if we can help it. I am

> also wondering if possibley some of you have seen an increase in

> behaviors associated with puberty. If so at what point does it

> decrease again. I greatly appreciate any feed back I recieve.

> Thanks, Dana

>

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Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abilify with their kiddos, and at what doses. My son's diagnosis are AS, ADHD, and depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My son is a 13 yo 8th grader fully included in school except for gifted classes. We had to change from Risperdal due to him beginning to develop metabolic syndrome. This change has set him so far back with behavior, yelling at students and teachers, tipping desks over, defiant just to be defiant, more stims, etc. He has gradually been increased to 20 mg, and I am just not seeing any improvement but more and more of the old behaviors seem to be showing up. I don't want to see him put back into a

behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana

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The puberty part is especially difficult. My son is 13 also, and we have gone from a happy, intelligent kid, to a screaming, angry, meltdown all the time kid. I wish I had better info for you, but I have seen other asd boys hit puberty, and it is a crash course in chaos.

Crystal

MN

OH MY GOODNESS! Puberty is when the stuff hit the fan in my house. Aggression,physical fights, anger, meltdowns, a scary face with bulging veins in the neck, balled up fists, swords used to intimidate. My kids were a little quirky (we thought shy) and didn't get diagnosed until they were 16. Up until that point things were manageable. I thought aliens had come and taken my boys and replaced them with look a likes who were bound and determined to drive me insane!

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Risperdol is an absolute nightmare - my oldest daughter went from a tiny little thing to a grotesquely overweight child. She was at age 8 wearing women's mediums that I had to alter to fit her - it was awful. She takes seroquel at a low dose with absolutely no problems. She has AS, OCD, Mood Disorder etc., my youngest daughter is on Abilify, which has been very helpful, she has always been kind of chubby and it doesn't seem to sedate her at all.I would have to say I would NEVER put any of my kids on Risperdal, I was on it for a short time and went from 120 to 190 - seemed like when I breathed I put on a nother 10 pounds. This was over 5 years ago and I am STILL fighting the weight.Kesha <druspikeangel1@...> wrote: Abilify my son gained weight on the lowest dose, Risperdal my son gained lots of weight and developed breast neither med really helped with his behaviors he is now on Geodon 40 mg and it has worked better than the other 2 he is also on Concerta 36 mgs. > > Hi > I have not participated in this group much just read the posts. I am > wondering what results people have acheived with Abilify with their > kiddos, and at what doses. My son's diagnosis are AS, ADHD, and > depression. His other meds

are Aderall XR 40 mg and Zoloft 100 mg. My > son is a 13 yo 8th grader fully included in school except for gifted > classes. We had to change from Risperdal due to him beginning to > develop metabolic syndrome. This change has set him so far back with > behavior, yelling at students and teachers, tipping desks over, > defiant just to be defiant, more stims, etc. He has gradually been > increased to 20 mg, and I am just not seeing any improvement but more > and more of the old behaviors seem to be showing up. I don't want to > see him put back into a behavior classroom if we can help it. I am > also wondering if possibley some of you have seen an increase in > behaviors associated with puberty. If so at what point does it > decrease again. I greatly appreciate any feed back I recieve. > Thanks, Dana > A great teacher never strives to explain his vision - he simply invites you to stand beside him and see for yourself.... The Rev. R. Inman Children are likely to live up to what you believe of them - Lady Bird Treat a child as though he already is the person he's capable of becoming - Haim Gnott

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Abilify has been a godsend for Hope, she takes 10mg, and takes tenex as well. We tried her on adderall but it caused her self injurious behavior to escalate, and made her very aggressive.My older daughter AS, OCD, BP - takes lexapro and seroquel and has for years - no side effects or anything.Dana <dsherrera@...> wrote: Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abilify with their kiddos, and at what doses. My son's

diagnosis are AS, ADHD, and depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My son is a 13 yo 8th grader fully included in school except for gifted classes. We had to change from Risperdal due to him beginning to develop metabolic syndrome. This change has set him so far back with behavior, yelling at students and teachers, tipping desks over, defiant just to be defiant, more stims, etc. He has gradually been increased to 20 mg, and I am just not seeing any improvement but more and more of the old behaviors seem to be showing up. I don't want to see him put back into a behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve. Thanks, Dana A great teacher never strives to explain his vision - he simply invites you to stand beside him and see for yourself.... The Rev. R. Inman Children are likely to live up to what you believe of them - Lady Bird Treat a child as though he already is the person he's capable of becoming - Haim Gnott

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Is Abilify the new attention deficit patch? If so, how do you like it?KK

Re: Medications

Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee

Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abil behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana

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nooooo it is a mood stabilizer, your thinking of Daytrana - that is the patch for ADHD

-----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ]On Behalf Of KKinKatySent: Monday, October 09, 2006 11:50 PMAutism and Aspergers Treatment Subject: Re: Medications

Is Abilify the new attention deficit patch? If so, how do you like it?KK

Re: Medications

Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee

Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abil behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana

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The new patch is called Daytrana. My 9 year old w/ADD is now using it and loving it. The side-effects for us have been less of an appitite at dinner (He'll usually eat later) and some itching. For a child who couldn't swollow a pill, it's been a God send. It can be hard to locate in pharmacies due to its newness on the market.

Gretchen Archinal

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of KKinKatySent: Monday, October 09, 2006 11:50 PMAutism and Aspergers Treatment Subject: Re: Medications

Is Abilify the new attention deficit patch? If so, how do you like it?KK

Re: Medications

Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee

Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abil behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana

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The new patch is called Daytrana. My 9 year old w/ADD is now using it and loving it. The side-effects for us have been less of an appitite at dinner (He'll usually eat later) and some itching. For a child who couldn't swollow a pill, it's been a God send. It can be hard to locate in pharmacies due to its newness on the market.

Gretchen Archinal

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of KKinKatySent: Monday, October 09, 2006 11:50 PMAutism and Aspergers Treatment Subject: Re: Medications

Is Abilify the new attention deficit patch? If so, how do you like it?KK

Re: Medications

Dana, I cannot tell you re the Abilify but the Adderal XR, we really have had EXCELLENT experience! I can tell in 1 sentance on the phone if my dd has not taken her Adderall! I can say that behaviors do seem to increase again with puberty. Also, going to middle school is SUCH a huge change in routine, there is not anywhere near the structure that was involved in elementary.... That change was a NIGHTMARE for us! We did not have the correct dx then so did not prepare her specially for the changes. She ended up in the hospital for 3 days until we could get a correct dx and med shift and then have to deal with the school. Well, that is all of my input. Good luck and God bless! DeeDee

Hi I have not participated in this group much just read the posts. I am wondering what results people have acheived with Abil behavior classroom if we can help it. I am also wondering if possibley some of you have seen an increase in behaviors associated with puberty. If so at what point does it decrease again. I greatly appreciate any feed back I recieve.Thanks, Dana

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My 9yr old daughter takes Trileptal & Celexa. It has made an enormous difference.

E.

Colorado

"Insanity runs in my family. It practically gallops."

Cary Grant

Medications

Date: Sun, 08 Oct 2006 20:09:45 -0000

Hi

I have not participated in this group much just read the posts. I am

wondering what results people have acheived with Abilify with their

kiddos, and at what doses. My son's diagnosis are AS, ADHD, and

depression. His other meds are Aderall XR 40 mg and Zoloft 100 mg. My

son is a 13 yo 8th grader fully included in school except for gifted

classes. We had to change from Risperdal due to him beginning to

develop metabolic syndrome. This change has set him so far back with

behavior, yelling at students and teachers, tipping desks over,

defiant just to be defiant, more stims, etc. He has gradually been

increased to 20 mg, and I am just not seeing any improvement but more

and more of the old behaviors seem to be showing up. I don't want to

see him put back into a behavior classroom if we can help it. I am

also wondering if possibley some of you have seen an increase in

behaviors associated with puberty. If so at what point does it

decrease again. I greatly appreciate any feed back I recieve.

Thanks, Dana

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We tried the arreral XR and other things ... what we

found for my son now 11 with AS is NOTHING .. we

monitor what he eats and that seems to help more than

anything we ever tried ... It took about a week for

the medication to get out of his system and after that

things were better. I am not saying things are great

or wonderful, but teaching and watching him I feel is

far better that any drugs the Dr.'s ever gave him ...

Please no one take this the wrong way .. I would

rather my son act a bit weird or strange then be for

lack of a better term stoned all the time.

I know this will not work for all out there, but it

might be worth a try.

--- d corbin <jdcorbin_2000@...> wrote:

> Dana, I cannot tell you re the Abilify but the

> Adderal XR, we really have had EXCELLENT experience!

> I can tell in 1 sentance on the phone if my dd has

> not taken her Adderall! I can say that behaviors do

> seem to increase again with puberty. Also, going to

> middle school is SUCH a huge change in routine,

> there is not anywhere near the structure that was

> involved in elementary.... That change was a

> NIGHTMARE for us! We did not have the correct dx

> then so did not prepare her specially for the

> changes. She ended up in the hospital for 3 days

> until we could get a correct dx and med shift and

> then have to deal with the school. Well, that is all

> of my input. Good luck and God bless! DeeDee

>

> Hi

> I have not participated in this group much just read

> the posts. I am

> wondering what results people have acheived with

> Abilify with their

> kiddos, and at what doses. My son's diagnosis are

> AS, ADHD, and

> depression. His other meds are Aderall XR 40 mg and

> Zoloft 100 mg. My

> son is a 13 yo 8th grader fully included in school

> except for gifted

> classes. We had to change from Risperdal due to him

> beginning to

> develop metabolic syndrome. This change has set him

> so far back with

> behavior, yelling at students and teachers, tipping

> desks over,

> defiant just to be defiant, more stims, etc. He has

> gradually been

> increased to 20 mg, and I am just not seeing any

> improvement but more

> and more of the old behaviors seem to be showing up.

> I don't want to

> see him put back into a behavior classroom if we can

> help it. I am

> also wondering if possibley some of you have seen an

> increase in

> behaviors associated with puberty. If so at what

> point does it

> decrease again. I greatly appreciate any feed back I

> recieve.

> Thanks, Dana

>

>

>

>

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make

> PC-to-Phone calls. Great rates starting at 1¢/min.

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  • 3 months later...

I hate that my 20yo son has to take meds, but we've been through

enough to know that his meds are the only thing between him and

residential care. He has 6 inches and 57 pounds on me, and when he's

in a rage, he's a mean, lean fighting machine - complete with holes

in the walls and windows and doors, swinging belts and fists in my

direction, and overturned furniture. We've tried many dietary things,

and for years we kept him off FD & C food dyes, which really helped. We

tried special vitamins, too. Eh, not much help.

Have we had bad meds-caused situations? You bet. But am I willing to

have institutionalization and perhaps enforced meds as an option? Not

on your life. I will go to my grave fighting against that.

And, BTW, when his Tourette's has broken through the maximum dose of

Risperdal he was allowed to take, he has BEGGED me to take him to the

doctor to get some help, and each time I've had to tell him that

there was nothing more the doctor could do.

Theresa Mesa

Mesa Design House

http://mesadesignhouse.com

909-335-9710

Hours: By appointment only

On Jan 21, 2007, at 1:32 PM, Laha1960@... wrote:

>

> http://www.breggin.com/index.html

>

> PEGGY I saw your link above and the name BREGGIN. Is that PETER

> BREGGIN? He is a doctor who has been around a long , long time, and

> always in his articles and tv appearances and online, speaks

> against medications. He has always been dead set against them. He

> has done more HARM for the ADHD world, believe me!

>

> My son is 18 in April. We have had him on medications for about 14

> years or longer. NO, he is not at all hurt by the medications. He

> has been changed. He is like a Dr Jekyl and Mr Hyde on and off of

> them. They have made a difference in his life.

>

> My son was dignosed severe ADHD at the age of three, and he was

> severe. The medications he had them did not help that much, low

> doses, but he needed them. Then he was in a special preschool for

> those with at risk problems. He was always, ALWAYS very bright and

> academically superior.

>

> Well, we found out that his social problems and behaviors and his

> lack of appropriate social skills and his anxiety etc was all a

> part of his Aspergers, when he was finally diagnosed that at age

> ten in 1999. He ADHD and ASPERGERS.

> We are highly grateful for the medications which help him.

>

> He has had straight As all through Junior high and high school, is

> a class rank of 19 out of 330 students, is a senior in high school,

> taking AP honors English , Physics, Cal, and other things, and he

> was selected to be an IL STATE SCHOLAR, only 10% of students in IL

> get that honor.

> My son took work, and we worked hard and still do, and do not get

> me wrong, MEDICATIONS did not make him anything.

> However, medicines helped him to be the person that he could be,

> and to think and act better than he was without them. He also was

> able to better control himself, though he is far from normal or

> perfect around social situations. HIS worst offense is talking too

> much, asking questions and not staying on a topic socially. He is

> on the school chess team and just had some tournaments. He does

> well. I am very happy how he is now.

>

> Despite his Aspergers and ADHD, my son is succeeding. I believe

> that for him medications make the best difference.

>

> IT took a while and we had to go through different doctors,

> psychiatrists, psychologist and medications to find the right

> combination for him. His whole issues can not be taken care of with

> one pill, even with three or four pills. He is still ASpergers.

> However, he has taken these medications as medications have made a

> difference. MEdications are highly individual and not everyone has

> the same medications or same techniques or same therapies that

> help.Everyone is different, so try to not pursuade anyone against

> trying medications if that is what they wish to do and need to do.

>

> I have heard so much against that BREGGIN guy. I would highly

> recommend that you do not listen to him, as most of those

> professionals who work in advocating with those with ADHD AND other

> disabilities do not take him seriously at all, he isa troublemaker.

>

> I would suggest that anyone who wants to try medications, discusses

> this with their doctor and tries to find what works best. There

> are some that have had awful experiences on all medications in this

> world that are used to help every ailment or disorder or disease,

> but that does not mean we all need to stay away from that medication.

>

> Good luck and God bless each person's choice!

>

> in IL

> Check out the new AOL. Most comprehensive set of free safety and

> security tools, free access to millions of high-quality videos from

> across the web, free AOL Mail and more.

>

>

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LAURA, I'm going through the exact same thing u went through with your son. My son is only 9 but has been on medication since he was 4. I'm glad to hear how well your son has done. It give me hope for mine. Thank uLaha1960@... wrote: http://www.breggin.com/index.html PEGGY I saw your link above and the name BREGGIN. Is that PETER BREGGIN? He is a doctor who has been

around a long , long time, and always in his articles and tv appearances and online, speaks against medications. He has always been dead set against them. He has done more HARM for the ADHD world, believe me! My son is 18 in April. We have had him on medications for about 14 years or longer. NO, he is not at all hurt by the medications. He has been changed. He is like a Dr Jekyl and Mr Hyde on and off of them. They have made a difference in his life. My son was dignosed severe ADHD at the age of three, and he was severe. The medications he had them did not help that much, low doses, but he needed them. Then he was in a special preschool for those with at risk problems. He was always, ALWAYS very bright and academically superior. Well, we found out that his social problems and behaviors and his lack of appropriate social skills and his anxiety etc was all a part of his

Aspergers, when he was finally diagnosed that at age ten in 1999. He ADHD and ASPERGERS. We are highly grateful for the medications which help him. He has had straight As all through Junior high and high school, is a class rank of 19 out of 330 students, is a senior in high school, taking AP honors English , Physics, Cal, and other things, and he was selected to be an IL STATE SCHOLAR, only 10% of students in IL get that honor. My son took work, and we worked hard and still do, and do not get me wrong, MEDICATIONS did not make him anything. However, medicines helped him to be the person that he could be, and to think and act better than he was without them. He also was able to better control himself, though he is far from normal or perfect around social situations. HIS worst offense is talking too much, asking questions and not staying on a topic socially. He is on the school chess team and just had some

tournaments. He does well. I am very happy how he is now. Despite his Aspergers and ADHD, my son is succeeding. I believe that for him medications make the best difference. IT took a while and we had to go through different doctors, psychiatrists, psychologist and medications to find the right combination for him. His whole issues can not be taken care of with one pill, even with three or four pills. He is still ASpergers. However, he has taken these medications as medications have made a difference. MEdications are highly individual and not everyone has the same medications or same techniques or same therapies that help.Everyone is different, so try to not pursuade anyone against trying medications if that is what they wish to do and need to do. I have heard so much against that BREGGIN guy. I would highly recommend that you do not listen to him, as most of those

professionals who work in advocating with those with ADHD AND other disabilities do not take him seriously at all, he isa troublemaker. I would suggest that anyone who wants to try medications, discusses this with their doctor and tries to find what works best. There are some that have had awful experiences on all medications in this world that are used to help every ailment or disorder or disease, but that does not mean we all need to stay away from that medication. Good luck and God bless each person's choice! in IL Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL

Mail and more. Ally

Don't be flakey. Get for Mobile and always stay connected to friends.

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Interestingly, after reading 's post, this window opened up with Dr. Breggin's name and different links. He actually seems pretty well respected. I read about Paxil and adult suicides and that a court had allowed his testimony to be opened against the wishes of Kline (there's a third, new, name) the drug company that makes it.

I think what he is saying is similar to what I've heard Cousens say: that these drugs do things ... I'm looking for words that won't be perceived as an attack ... I think I'll just leave it at that. I'm glad your son is doing well. that's so gratifying, and I can see why you are pro-drugs.

with Love,

Francine

In a message dated 1/22/2007 12:55:28 A.M. Eastern Standard Time, afortney74@... writes:

LAURA,

I'm going through the exact same thing u went through with your son. My son is only 9 but has been on medication since he was 4. I'm glad to hear how well your son has done. It give me hope for mine. Thank uLaha1960aol wrote:

http://www.breggin.com/index.html

PEGGY I saw your link above and the name BREGGIN. Is that PETER BREGGIN? He is a doctor who has been around a long , long time, and always in his articles and tv appearances and online, speaks against medications. He has always been dead set against them. He has done more HARM for the ADHD world, believe me!

My son is 18 in April. We have had him on medications for about 14 years or longer. NO, he is not at all hurt by the medications. He has been changed. He is like a Dr Jekyl and Mr Hyde on and off of them. They have made a difference in his life.

My son was dignosed severe ADHD at the age of three, and he was severe. The medications he had them did not help that much, low doses, but he needed them. Then he was in a special preschool for those with at risk problems. He was always, ALWAYS very bright and academically superior.

Well, we found out that his social problems and behaviors and his lack of appropriate social skills and his anxiety etc was all a part of his Aspergers, when he was finally diagnosed that at age ten in 1999. He ADHD and ASPERGERS.

We are highly grateful for the medications which help him.

He has had straight As all through Junior high and high school, is a class rank of 19 out of 330 students, is a senior in high school, taking AP honors English , Physics, Cal, and other things, and he was selected to be an IL STATE SCHOLAR, only 10% of students in IL get that honor.

My son took work, and we worked hard and still do, and do not get me wrong, MEDICATIONS did not make him anything.

However, medicines helped him to be the person that he could be, and to think and act better than he was without them. He also was able to better control himself, though he is far from normal or perfect around social situations. HIS worst offense is talking too much, asking questions and not staying on a topic socially. He is on the school chess team and just had some tournaments. He does well. I am very happy how he is now.

Despite his Aspergers and ADHD, my son is succeeding. I believe that for him medications make the best difference.

IT took a while and we had to go through different doctors, psychiatrists, psychologist and medications to find the right combination for him. His whole issues can not be taken care of with one pill, even with three or four pills. He is still ASpergers. However, he has taken these medications as medications have made a difference. MEdications are highly individual and not everyone has the same medications or same techniques or same therapies that help.Everyone is different, so try to not pursuade anyone against trying medications if that is what they wish to do and need to do.

I have heard so much against that BREGGIN guy. I would highly recommend that you do not listen to him, as most of those professionals who work in advocating with those with ADHD AND other disabilities do not take him seriously at all, he isa troublemaker.

I would suggest that anyone who wants to try medications, discusses this with their doctor and tries to find what works best. There are some that have had awful experiences on all medications in this world that are used to help every ailment or disorder or disease, but that does not mean we all need to stay away from that medication.

Good luck and God bless each person's choice!

in IL

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On 1/21/07, Theresa Mesa <clanmesa@...> wrote:

We've tried many dietary things,and for years we kept him off FD & C food dyes, which really helped. Wetried special vitamins, too. Eh, not much help.

Theresa,

Just out of curiosity, were you also restricting salicylates or just dyes?

-Lana

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Just dyes. Saw a massive improvement.

We tried restricting sugar and saw no improvement. When you consider

that it's extremely rare that our children are fed pure sugar, this

also made sense. Unless your child is bouncing off the walls after

taking a couple of spoonsful from the sugar jar (and then is it cane

sugar or beet sugar, or a bit of both, depending on the

manufacturer?), then you have to consider that something else in the

sweet thing they're eating could be causing the trouble, even the

most innocuous things. Is it the vanilla, is it the food dye, is it

the preservative, is it a particular chemical, is it high-fructose

corn syrup?

Because my sister has celiac and has to be on a gluten-free diet, I

helped her research what she needed to do. It's unbelievable what

gluten can be in - ketchup, pickles, vanilla extract (!! - the

alcohol used to steep the vanilla bean in is made from grain alcohol)

or imitation vanilla, the binders in pills and even vitamin

supplements. And manufacturers who make things that they say are

gluten-free can change sources or methods of production, so something

that was gluten-free before isn't gluten-free anymore. Whenever I

make something for my sister, I have to make sure I wipe down the

counters a few times with an absolutely clean, fresh washcloth

(forget e. coli - it's the gluten that will kill her), make sure

everything was washed in the dishwasher, and call her to ask what

ingredients I need to use are gluten-free, making sure that what I

used before is still safe.

For all y'all thinking about a gluten-free diet, understand that this

is a full-time commitment, and I guarantee you that your cooking/

baking/shopping life will be turned upside down. ly, I don't

know how my sister does it. Even many whole grains (vegan diets) are

absolutely off-limits. The tofu you use - is it gluten-free? Are the

coatings on your non-organic veggies gluten-free? Have your beans

been processed in a factory that also contains gluten-containing

products? If so, your product may not be quite gluten-free. It's not

just wheat. It's rye and barley and several other grains.

BTW, the ONLY 100% way to see if someone is gluten-sensitive is to

take a biopsy of the jeujeunum in the small intestine. The blood

tests are not necessarily foolproof.

We're not talking about misbehaving upon gluten ingestion. We're not

talking about rashes or congestion or whatever. When your sister

could DIE from eating gluten, it really puts a different spin on what

it means to be on a restricted diet.

Theresa Mesa

Mesa Design House

http://mesadesignhouse.com

909-335-9710

Hours: By appointment only

On Jan 22, 2007, at 5:16 AM, Lana Gibbons wrote:

>

>

> On 1/21/07, Theresa Mesa <clanmesa@...> wrote:We've tried

> many dietary things,

> and for years we kept him off FD & C food dyes, which really helped. We

> tried special vitamins, too. Eh, not much help.

>

> Theresa,

>

> Just out of curiosity, were you also restricting salicylates or

> just dyes?

>

> -Lana

>

>

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