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Re: Hi Everyone - Yep, New With Questions About Surgery, et al

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Hi There,

I am limited on time at the moment, but if your having harrington rods put in

place...I say in the ballpark of atleast 4 wks before you even feel like leavinh

the house and only for very short periods. Then, atleast another 4-6 wks before

you will resume " somewhat normal " activity, but it is different for everyone.

My surgery was in 1998, so I may be way off taking the advance in technology

into consideration. Good luck and feel free to email me if you need

clarification.

God Bless,

Paige

On Tue Dec 21st, 2010 8:42 PM EST wrote:

>I'm about to become one on the OTHER side! Was a surgical scrub nurse and used

to assist in Harrington Rod placement. I go Jan 5th to find out when I will now

become the one on the table. This shoe sure feels a lot different!

>Mainly, I would like to know how long it takes before you are able to take care

of yourself. The reading I've done says after surgery, you will have a rough

week - but it doesnt say anything about self care.

>It is important for me to know because I am an Associate in a Benedictine

Monastery, and want to be able to plan for my return to the monastery ASAP. The

prayer life is very healing for me, but I can not return until I can take care

of myself. I dont want to fill myself with expectations that will not come

about - and then be at a battle of feeling disappointment.

>Anyone out there have a ballpark for me?

>Glad to be here and hope everyone has a wonderful season.

> (and yes, I am a female - LOL)

>

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Hi ,It depends on where your fusion is . Mine was t9 thru sacrum. It was two

weeks before I could even think of taking a shower and then after those two

weeks someone had to be in there with me . That was doctors orderss.

Also remember you will be on heavy drugs so cooking and such is not a good

idea. I had a walker for the first few months and could not cook for a few

months . NO lifting pan or pots . I guess what I am saying is have someone to

help with everything the first month after that you may feel up too doing small

things, but complete recovery as you most likely have been told will be six

months

>

> I'm about to become one on the OTHER side! Was a surgical scrub nurse and used

to assist in Harrington Rod placement. I go Jan 5th to find out when I will now

become the one on the table. This shoe sure feels a lot different!

> Mainly, I would like to know how long it takes before you are able to take

care of yourself. The reading I've done says after surgery, you will have a

rough week - but it doesnt say anything about self care.

> It is important for me to know because I am an Associate in a Benedictine

Monastery, and want to be able to plan for my return to the monastery ASAP. The

prayer life is very healing for me, but I can not return until I can take care

of myself. I dont want to fill myself with expectations that will not come

about - and then be at a battle of feeling disappointment.

> Anyone out there have a ballpark for me?

> Glad to be here and hope everyone has a wonderful season.

> (and yes, I am a female - LOL)

>

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Paige,

Harrington Rods are no longer used!! They are known to cause Flatback Syndrome.

Any reputable surgeon stopped using them by 1984. If a surgeon is still using

Harrington Rods, RUN!!!!

S.

Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

Hi There,

I am limited on time at the moment, but if your having harrington rods put in

place...I say in the ballpark of atleast 4 wks before you even feel like leavinh

the house and only for very short periods. Then, atleast another 4-6 wks before

you will resume " somewhat normal " activity, but it is different for everyone.

My surgery was in 1998, so I may be way off taking the advance in technology

into consideration. Good luck and feel free to email me if you need

clarification.

God Bless,

Paige

On Tue Dec 21st, 2010 8:42 PM EST wrote:

>I'm about to become one on the OTHER side! Was a surgical scrub nurse and used

to assist in Harrington Rod placement. I go Jan 5th to find out when I will now

become the one on the table. This shoe sure feels a lot different!

>Mainly, I would like to know how long it takes before you are able to take care

of yourself. The reading I've done says after surgery, you will have a rough

week - but it doesnt say anything about self care.

>It is important for me to know because I am an Associate in a Benedictine

Monastery, and want to be able to plan for my return to the monastery ASAP. The

prayer life is very healing for me, but I can not return until I can take care

of myself. I dont want to fill myself with expectations that will not come

about - and then be at a battle of feeling disappointment.

>Anyone out there have a ballpark for me?

>Glad to be here and hope everyone has a wonderful season.

> (and yes, I am a female - LOL)

>

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Share on other sites

I had my surgery in 1998 and harrington rods were put in place...I had a second

surgery where they were supposed to remove them and clear up an infection in

2007...neither happened :( I do now have a severe case of Flat Back Syndrome,

but did not realize they no longer use the rods. Rather than do alot of

research, I guess I just ignore the issue and hope the problem goes away :(

Anyway, I know it won't so that is why I joined these groups. Best wishes as

technology has come a long way and im sure everything will be fine :)

-Paige

On Wed Dec 22nd, 2010 10:28 AM EST RSSSCOLIOSIS@... wrote:

>

> Paige,

>

>Harrington Rods are no longer used!! They are known to cause Flatback Syndrome.

Any reputable surgeon stopped using them by 1984. If a surgeon is still using

Harrington Rods, RUN!!!!

>

> S.

>

>

>

>

>

>

>

>

> Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

>

>

>

>

>

>Hi There,

> I am limited on time at the moment, but if your having harrington rods put in

place...I say in the ballpark of atleast 4 wks before you even feel like leavinh

the house and only for very short periods. Then, atleast another 4-6 wks before

you will resume " somewhat normal " activity, but it is different for everyone.

My surgery was in 1998, so I may be way off taking the advance in technology

into consideration. Good luck and feel free to email me if you need

clarification.

>God Bless,

>Paige

>

>On Tue Dec 21st, 2010 8:42 PM EST wrote:

>

>>I'm about to become one on the OTHER side! Was a surgical scrub nurse and used

to assist in Harrington Rod placement. I go Jan 5th to find out when I will now

become the one on the table. This shoe sure feels a lot different!

>>Mainly, I would like to know how long it takes before you are able to take

care of yourself. The reading I've done says after surgery, you will have a

rough week - but it doesnt say anything about self care.

>>It is important for me to know because I am an Associate in a Benedictine

Monastery, and want to be able to plan for my return to the monastery ASAP. The

prayer life is very healing for me, but I can not return until I can take care

of myself. I dont want to fill myself with expectations that will not come

about - and then be at a battle of feeling disappointment.

>>Anyone out there have a ballpark for me?

>>Glad to be here and hope everyone has a wonderful season.

>> (and yes, I am a female - LOL)

>>

>

>

>

>

>

>

>

>

>

>

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Thanks Paige and . SO helpful and I feel better already knowing there are

some people out there with a background re: the OTHER side of this! Also, I

have heard before that the Harrington Rods are now outmoded!!! And so, I will

indeed RUN if the Dr. I see Jan 5th tells me it is going to be Harringtons!!!

This is SO helpful in knowing if I cm going to a " quality " surgeon, and believe

me - having worked in the O.R. -- it makes ALL the difference!

> >

> >>I'm about to become one on the OTHER side! Was a surgical scrub nurse and

used to assist in Harrington Rod placement. I go Jan 5th to find out when I will

now become the one on the table. This shoe sure feels a lot different!

> >>Mainly, I would like to know how long it takes before you are able to take

care of yourself. The reading I've done says after surgery, you will have a

rough week - but it doesnt say anything about self care.

> >>It is important for me to know because I am an Associate in a Benedictine

Monastery, and want to be able to plan for my return to the monastery ASAP. The

prayer life is very healing for me, but I can not return until I can take care

of myself. I dont want to fill myself with expectations that will not come

about - and then be at a battle of feeling disappointment.

> >>Anyone out there have a ballpark for me?

> >>Glad to be here and hope everyone has a wonderful season.

> >> (and yes, I am a female - LOL)

> >>

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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  • 2 weeks later...

GOOD LUCK for anyone having scoliosis surgery; may yours not be the nightmare I

still live with; almost 15 mths. in bed!  And the proud surgeon said " I've done

my job, you are straight!!!!!  "  So long in other words, as I can no longer

sit

in my wheelchair but for very brief, necessary moments.  Any advice to get a

new

set of eyes - no one in this small states seems to care, except stick a trial

stmulator in me.  And after one is permanent, no more MRI's I've learned!!!!!

________________________________

From: Paige Komar <ecstaticmommy2009@...>

Sent: Wed, December 22, 2010 10:28:28 AM

Subject: Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

 

I had my surgery in 1998 and harrington rods were put in place...I had a second

surgery where they were supposed to remove them and clear up an infection in

2007...neither happened :( I do now have a severe case of Flat Back Syndrome,

but did not realize they no longer use the rods. Rather than do alot of

research, I guess I just ignore the issue and hope the problem goes away :(

Anyway, I know it won't so that is why I joined these groups. Best wishes as

technology has come a long way and im sure everything will be fine :)

-Paige

On Wed Dec 22nd, 2010 10:28 AM EST RSSSCOLIOSIS@... wrote:

>

> Paige,

>

>Harrington Rods are no longer used!! They are known to cause Flatback Syndrome.

>Any reputable surgeon stopped using them by 1984. If a surgeon is still using

>Harrington Rods, RUN!!!!

>

> S.

>

>

>

>

>

>

>

>

> Re: Hi Everyone - Yep, New With Questions About

>Surgery, et al

>

>

>

>

>

>Hi There,

> I am limited on time at the moment, but if your having harrington rods put in

>place...I say in the ballpark of atleast 4 wks before you even feel like

leavinh

>the house and only for very short periods. Then, atleast another 4-6 wks before

>you will resume " somewhat normal " activity, but it is different for everyone.

My

>surgery was in 1998, so I may be way off taking the advance in technology into

>consideration. Good luck and feel free to email me if you need clarification.

>God Bless,

>Paige

>

>On Tue Dec 21st, 2010 8:42 PM EST wrote:

>

>>I'm about to become one on the OTHER side! Was a surgical scrub nurse and used

>>to assist in Harrington Rod placement. I go Jan 5th to find out when I will

now

>>become the one on the table. This shoe sure feels a lot different!

>>Mainly, I would like to know how long it takes before you are able to take

care

>>of yourself. The reading I've done says after surgery, you will have a rough

>>week - but it doesnt say anything about self care.

>>

>>It is important for me to know because I am an Associate in a Benedictine

>>Monastery, and want to be able to plan for my return to the monastery ASAP.

The

>>prayer life is very healing for me, but I can not return until I can take care

>>of myself. I dont want to fill myself with expectations that will not come

about

>>- and then be at a battle of feeling disappointment.

>>Anyone out there have a ballpark for me?

>>Glad to be here and hope everyone has a wonderful season.

>> (and yes, I am a female - LOL)

>>

>

>

>

>

>

>

>

>

>

>

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Share on other sites

  • 2 weeks later...

Hello Paige, I can only speak for myself. I had rod put in 28 years ago and

things have obviously changed since then; however, I was incapacitated for about

6 - 9 months. I was fortuante in that my parents were retired and moved in with

me to help me. I was single at the time. You best recovery is yourself.

Walking is the best. I couldn't leave the hospital until I could walk once

around the wing I was in. When I got home, I set a new daily distance goal.

First it was out the door, then to the mailbox, then to the corner. But each

day I got stronger. It also depends on whether or not you will be in a brace.

Wish you the best of luck. Write down all your questions so that if you forget,

someone else can ask for you.

Good luck and keep us posted.

Janie McManious

>

> >I'm about to become one on the OTHER side! Was a surgical scrub nurse and

used to assist in Harrington Rod placement. I go Jan 5th to find out when I will

now become the one on the table. This shoe sure feels a lot different!

> >Mainly, I would like to know how long it takes before you are able to take

care of yourself. The reading I've done says after surgery, you will have a

rough week - but it doesnt say anything about self care.

> >It is important for me to know because I am an Associate in a Benedictine

Monastery, and want to be able to plan for my return to the monastery ASAP. The

prayer life is very healing for me, but I can not return until I can take care

of myself. I dont want to fill myself with expectations that will not come

about - and then be at a battle of feeling disappointment.

> >Anyone out there have a ballpark for me?

> >Glad to be here and hope everyone has a wonderful season.

> > (and yes, I am a female - LOL)

> >

>

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hi there thought I would add my experience.  I have two stainless steel rods

and

have had since 1966. I spent 6 months in bed with a cast and then 6 months with

a brace.  I do everything i want-they do not hold me back

________________________________

From: jm22553 <janiemcman@...>

Scoliosis Treatment

Sent: Fri, January 14, 2011 1:53:26 PM

Subject: Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

 

Hello Paige, I can only speak for myself. I had rod put in 28 years ago and

things have obviously changed since then; however, I was incapacitated for about

6 - 9 months. I was fortuante in that my parents were retired and moved in with

me to help me. I was single at the time. You best recovery is yourself. Walking

is the best. I couldn't leave the hospital until I could walk once around the

wing I was in. When I got home, I set a new daily distance goal. First it was

out the door, then to the mailbox, then to the corner. But each day I got

stronger. It also depends on whether or not you will be in a brace. Wish you the

best of luck. Write down all your questions so that if you forget, someone else

can ask for you.

Good luck and keep us posted.

Janie McManious

>

> >I'm about to become one on the OTHER side! Was a surgical scrub nurse and

used

>to assist in Harrington Rod placement. I go Jan 5th to find out when I will now

>become the one on the table. This shoe sure feels a lot different!

> >Mainly, I would like to know how long it takes before you are able to take

>care of yourself. The reading I've done says after surgery, you will have a

>rough week - but it doesnt say anything about self care.

>

> >It is important for me to know because I am an Associate in a Benedictine

>Monastery, and want to be able to plan for my return to the monastery ASAP. The

>prayer life is very healing for me, but I can not return until I can take care

>of myself. I dont want to fill myself with expectations that will not come

about

>- and then be at a battle of feeling disappointment.

> >Anyone out there have a ballpark for me?

> >Glad to be here and hope everyone has a wonderful season.

> > (and yes, I am a female - LOL)

> >

>

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Paige,

    I just had the surgery in June of 2010.  I had the rods put in from L5

to

T4.  I spent 9 days in the hospital until I could finally walk.  They had

damaged some of my nerves in surgery so it took me a little longer to finally

walk.  It took about 2 months for me to be able to care for myself, as far as

showers and dressing.  I am single, and moved back in with my parents for the

surgery.  I was not in a brace.  Just keep up with your walking, at first it

will absolutely exhaust you.  I had to take 3-4 hours naps after just walking a

few houses down my street in the beginning.  You will get stronger quicker than

you think.  I just went back to work last week and feel better than I ever

have.  I hope you have a quick recovery!

________________________________

From: jm22553 <janiemcman@...>

Scoliosis Treatment

Sent: Fri, January 14, 2011 12:53:26 PM

Subject: Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

 

Hello Paige, I can only speak for myself. I had rod put in 28 years ago and

things have obviously changed since then; however, I was incapacitated for about

6 - 9 months. I was fortuante in that my parents were retired and moved in with

me to help me. I was single at the time. You best recovery is yourself. Walking

is the best. I couldn't leave the hospital until I could walk once around the

wing I was in. When I got home, I set a new daily distance goal. First it was

out the door, then to the mailbox, then to the corner. But each day I got

stronger. It also depends on whether or not you will be in a brace. Wish you the

best of luck. Write down all your questions so that if you forget, someone else

can ask for you.

Good luck and keep us posted.

Janie McManious

>

> >I'm about to become one on the OTHER side! Was a surgical scrub nurse and

used

>to assist in Harrington Rod placement. I go Jan 5th to find out when I will now

>become the one on the table. This shoe sure feels a lot different!

> >Mainly, I would like to know how long it takes before you are able to take

>care of yourself. The reading I've done says after surgery, you will have a

>rough week - but it doesnt say anything about self care.

>

> >It is important for me to know because I am an Associate in a Benedictine

>Monastery, and want to be able to plan for my return to the monastery ASAP. The

>prayer life is very healing for me, but I can not return until I can take care

>of myself. I dont want to fill myself with expectations that will not come

about

>- and then be at a battle of feeling disappointment.

> >Anyone out there have a ballpark for me?

> >Glad to be here and hope everyone has a wonderful season.

> > (and yes, I am a female - LOL)

> >

>

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Glad you are well and enjoying your life. Good to hear positive results!

________________________________

From: Durand <d.durand56@...>

Scoliosis Treatment

Sent: Sat, January 15, 2011 10:43:41 AM

Subject: Re: Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

 

hi there thought I would add my experience.  I have two stainless steel rods

and

have had since 1966. I spent 6 months in bed with a cast and then 6 months with

a brace.  I do everything i want-they do not hold me back

________________________________

From: jm22553 <janiemcman@...>

Scoliosis Treatment

Sent: Fri, January 14, 2011 1:53:26 PM

Subject: Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

 

Hello Paige, I can only speak for myself. I had rod put in 28 years ago and

things have obviously changed since then; however, I was incapacitated for about

6 - 9 months. I was fortuante in that my parents were retired and moved in with

me to help me. I was single at the time. You best recovery is yourself. Walking

is the best. I couldn't leave the hospital until I could walk once around the

wing I was in. When I got home, I set a new daily distance goal. First it was

out the door, then to the mailbox, then to the corner. But each day I got

stronger. It also depends on whether or not you will be in a brace. Wish you the

best of luck. Write down all your questions so that if you forget, someone else

can ask for you.

Good luck and keep us posted.

Janie McManious

>

> >I'm about to become one on the OTHER side! Was a surgical scrub nurse and

used

>

>to assist in Harrington Rod placement. I go Jan 5th to find out when I will now

>become the one on the table. This shoe sure feels a lot different!

> >Mainly, I would like to know how long it takes before you are able to take

>care of yourself. The reading I've done says after surgery, you will have a

>rough week - but it doesnt say anything about self care.

>

> >It is important for me to know because I am an Associate in a Benedictine

>Monastery, and want to be able to plan for my return to the monastery ASAP. The

>prayer life is very healing for me, but I can not return until I can take care

>of myself. I dont want to fill myself with expectations that will not come

about

>

>- and then be at a battle of feeling disappointment.

> >Anyone out there have a ballpark for me?

> >Glad to be here and hope everyone has a wonderful season.

> > (and yes, I am a female - LOL)

> >

>

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Hi ,

Do you follow any particular routines, etc. such as swimming, massage, certain

vitamins, etc. to keep your back in good shape? Thanks,

________________________________

From: Durand <d.durand56@...>

Scoliosis Treatment

Sent: Sat, January 15, 2011 10:43:41 AM

Subject: Re: Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

hi there thought I would add my experience. I have two stainless steel rods and

have had since 1966. I spent 6 months in bed with a cast and then 6 months with

a brace. I do everything i want-they do not hold me back

________________________________

From: jm22553 <janiemcman@...>

Scoliosis Treatment

Sent: Fri, January 14, 2011 1:53:26 PM

Subject: Re: Hi Everyone - Yep, New With Questions About

Surgery, et al

Hello Paige, I can only speak for myself. I had rod put in 28 years ago and

things have obviously changed since then; however, I was incapacitated for about

6 - 9 months. I was fortuante in that my parents were retired and moved in with

me to help me. I was single at the time. You best recovery is yourself. Walking

is the best. I couldn't leave the hospital until I could walk once around the

wing I was in. When I got home, I set a new daily distance goal. First it was

out the door, then to the mailbox, then to the corner. But each day I got

stronger. It also depends on whether or not you will be in a brace. Wish you the

best of luck. Write down all your questions so that if you forget, someone else

can ask for you.

Good luck and keep us posted.

Janie McManious

>

> >I'm about to become one on the OTHER side! Was a surgical scrub nurse and

used

>

>to assist in Harrington Rod placement. I go Jan 5th to find out when I will now

>become the one on the table. This shoe sure feels a lot different!

> >Mainly, I would like to know how long it takes before you are able to take

>care of yourself. The reading I've done says after surgery, you will have a

>rough week - but it doesnt say anything about self care.

>

> >It is important for me to know because I am an Associate in a Benedictine

>Monastery, and want to be able to plan for my return to the monastery ASAP. The

>prayer life is very healing for me, but I can not return until I can take care

>of myself. I dont want to fill myself with expectations that will not come

about

>

>- and then be at a battle of feeling disappointment.

> >Anyone out there have a ballpark for me?

> >Glad to be here and hope everyone has a wonderful season.

> > (and yes, I am a female - LOL)

> >

>

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Dear ,

Where do you live?  I know just the revisionist surgeon for you!

Lana

>

>>I'm about to become one on the OTHER side! Was a surgical scrub nurse and used

>>to assist in Harrington Rod placement. I go Jan 5th to find out when I will

now

>>become the one on the table. This shoe sure feels a lot different!

>>Mainly, I would like to know how long it takes before you are able to take

care

>>of yourself. The reading I've done says after surgery, you will have a rough

>>week - but it doesnt say anything about self care.

>>

>>It is important for me to know because I am an Associate in a Benedictine

>>Monastery, and want to be able to plan for my return to the monastery ASAP.

The

>>prayer life is very healing for me, but I can not return until I can take care

>>of myself. I dont want to fill myself with expectations that will not come

about

>>- and then be at a battle of feeling disappointment.

>>Anyone out there have a ballpark for me?

>>Glad to be here and hope everyone has a wonderful season.

>> (and yes, I am a female - LOL)

>>

>

>

>

>

>

>

>

>

>

>

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Hi :

My Harrington Rod was put in around 1973 (12 fused vertebrae), as a young woman

I really didn't need to modify my life in any significant way after the 9 months

of recovery. By the late 1980's I began using regular massage to keep myself

well. I gave birth twice in the early 1990's, by late that same decade I was

beginning to rely on anti-inflamatory drugs (still use Naproxen when needed

mostly when the weather is cold or wet). Since about 2006 I have been seeing a

rolfer once or twice a month --- amazing --- he moves my ribs back where they

belong, levels out my hips and relaxes my otherwise concrete muscles down my

back. Now in my 50's stretching is a lifeline for me and keeps me away from the

drugs (muscle relaxers & vicodin). While walking for exercise is difficult for

me now it is well worth it. I'm not much of a swimmer but can imagine that

would be right up there with rolfing! Stay active you'll have a full and

enjoyable old age.

Donna

> >

> > >I'm about to become one on the OTHER side! Was a surgical scrub nurse and

used

> >

> >to assist in Harrington Rod placement. I go Jan 5th to find out when I will

now

>

> >become the one on the table. This shoe sure feels a lot different!

> > >Mainly, I would like to know how long it takes before you are able to take

> >care of yourself. The reading I've done says after surgery, you will have a

> >rough week - but it doesnt say anything about self care.

> >

> > >It is important for me to know because I am an Associate in a Benedictine

> >Monastery, and want to be able to plan for my return to the monastery ASAP.

The

>

> >prayer life is very healing for me, but I can not return until I can take

care

> >of myself. I dont want to fill myself with expectations that will not come

about

> >

> >- and then be at a battle of feeling disappointment.

> > >Anyone out there have a ballpark for me?

> > >Glad to be here and hope everyone has a wonderful season.

> > > (and yes, I am a female - LOL)

> > >

> >

>

>

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