Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Hiya , I had a fusion around that age and area; when I was a little over 11yrs. This was in 1981 and I also had 2 rods attached to my spine; and had to wear a protective trunk (plastic or whatnot) cast for 6 of the hottest months of summer *whew*. I could not take off the cast, had to bathe and sleep with it. So it depends on what the doctor says, your son my have no problems and just may have to take it easy for a while till the fusion melds. Or he (like myself) might have to change his way of life. I was not allowed to do anything in the way of " falling " like off a bike or ride a rollercoaster that was " too jaunting " . I just recently found out that I am not supposed to use tanning beds (1 cause my grandpa died of skin cancer) but because of the hardware attached to my spine. Another question to ask the doctor is this going to be a bone fusion or perhaps will they use the little titanium plates like they do for other fusions like ankles or wrists. Don't be afraid to write down anything you want to ask, there's no stupid questions. You might want your son to sit down and ask the doctor anything before the surgery so he'll know that the doctor really needs to tell him what he should be able to do after surgery. I hope all goes well, and my prayers are with your son and family. =) Cyn Hatmaker Bissell <sue4272000@...> wrote: I have a question for anyone out there in the scoliosis group. How does fusion (of the thoracic area) effect children? Are there complications and what about the lost of growth? How long is recovery and what is limited? My son will have his fusion this winter and he is very active and I'm afraid he will do something he shouldn't and harm the fusion. He wants to know if he can do things his friends are doing. How long is he going to be limited from playing on a trampoline, sports and just plain goofing around? Please any comment is welcomed! Bissell __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Hi ... You'll need to check with your son's doctor aout limitations. Some doctors tell their patients that, after fusion is complete (about 6 mos to a year in kids), they can do anything they want. Others will set some limits. If your son is not finished growing, fusion will limit growth in that area of the spine. While he won't reach his full potential in terms of height, it shouldn't cause aany health problems unless it's a long fusion in a very young child. Regards, > I have a question for anyone out there in the > scoliosis group. > > How does fusion (of the thoracic area) effect > children? Are there complications and what about the > lost of growth? How long is recovery and what is > limited? My son will have his fusion this winter and > he is very active and I'm afraid he will do something > he shouldn't and harm the fusion. He wants to know if > he can do things his friends are doing. How long is he > going to be limited from playing on a trampoline, > sports and just plain goofing around? > > Please any comment is welcomed! > > > Bissell > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Hi , Like said, the fusion will stop the vertical growth of the vertebrae in the fused area. The vertebrae will continue to grow in thickness but the full potential for growth is removed to complete the fusion. You indicated your son will have thoracic fusion. Has he had a pulminary function test to determine how much lung function he has currently? My son had fusion only surgery (no instrumentation) at 11 months old. He is fused from T5-L1. The docs have guessed that he's lost about 3-4 inches of height in his spine. He's short, but proportionately so. Thoracic fusion will not restrict your son's mobility as much as it sounds. Braydon still wiggles and squirms and plays and wrestles with his dad and brother (much to his mother's dismay) and has very little restricted movement in his spine. He sits cross-legged on the floor, rides his bike, digs in the dirt and many other things 9yr old boys do. He doesn't do very graceful somersaults, however. When Braydon was 6yrs old he had surgery to expand the right side of his chest (by cutting apart two sets of fused ribs) and place two vertical rods to support his chest and spine. He was in the hospital for 2 weeks and out of school for another 6 weeks. His recovery was a cautious one, with no complications. The surgeons are now being more aggressive with the kids and they only stay in-patient for a week, and are back to normal activities in a month. The rods are NOT fused into place, so fusion isn't an issue with this surgery. Like said, too, the fusion will take 6 to 12 months to be completely solid. After the recovery, he likely won't have many restrictions besides no full contact sports. I don't know any orthopod who thinks trampolines are good, so I'm not sure he will be officially " approved " to jump on one. Braydon shouldn't be on a trampoline, but has done so, a few times. Again, if the fusion is very solid and he has healed well, his spine will be very strong and rigid in the area of the fusion. I know a few people who are now adults who had long fusions done at age 10 or 11. They, as adults, wish the surgery would have been done later, so their bodies had more time to grow. Some have restricted lung function, and most have a disproportionate trunk to limbs (in size). Why are they suggesting fusion at age 10? How severe is his curve? Is there a chance he could wait a few years before fusion to allow his body to grow more? I don't know (or remember) any details. Carmell mom to Kara 18, idiopathic scoliosis and hypothyroidism; Blake 14, GERD; and Braydon 9, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, bicuspid AV, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. http://pages.ivillage.com/carmellb/myfamily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 Hola I had my surgery at the age of 12 and my surgeon said no trampolining forever, this was in 1989 and things may have changed since then but I still wouldnt go on a trampoline now because I have problems. I had to avoid any kind of contact sports during the rest of my time at school which was annoying but I took part in the swimming lessons and when we were not doing that I opted for another class or I had a free period. The person that was on the stryker frame before me, was into skateboarding and he ended up hurting himself and having surgery twice. What things does he want to do I think is the question and take each sport from there, I know for a good 6 months these days you should be careful while the hard ware does its job and he may be able to resume activities after this time. However, goofing around I did plenty of that when I was a child, with or without my Scoliosis, I still used to run and play in the garden with my friends and didnt really notice my hard ware during this time, but I did everything my surgeon instructed me to do. Hope that helps and if you post back with some sports he wishes to do, might be able to be more specific. Take care and best wishes Nutty Fusion on a 10 year old. I have a question for anyone out there in the scoliosis group. How does fusion (of the thoracic area) effect children? Are there complications and what about the lost of growth? How long is recovery and what is limited? My son will have his fusion this winter and he is very active and I'm afraid he will do something he shouldn't and harm the fusion. He wants to know if he can do things his friends are doing. How long is he going to be limited from playing on a trampoline, sports and just plain goofing around? Please any comment is welcomed! Bissell __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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