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Hi , I have had CMT since I was 4. I have 3 kids with CMT.

I was in PT for about 3 years. PT helped me learn to stretch out

my heel cords when they were tight. It also gave me someone to

talk to about my CMT. PT didn't do much for me physically.

Swimming now that was fun and I felt stronger. My advice to you

is forget PT with a traditional therapist. Have your daughter

do her own PT by swimming a lot and let her lead as normal a

life as possible. This is hard for a Mom to do because we want

to FIX our children. I promise you that your not alone in this.

I am sure that one day soon CMT will have a treatment.

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