Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 dear All- wishing you a healthier New Year. I drop in & out of site depending on my health..of course i have run into a brick wall painfully so & am asking for your wisdoms collectively... about 6 weeks ago my hands began to ache, not debilitating just 'there'. took extra breakthrough dilaudid occassionally. then two weeks ago awoke with stiff neck, went to chiropracter, seemed to alleviate frozen neck, then started hands swelling & pain and then stabbing pain in my knees, stabbing in my hands, my fingers curling in a fisted position hurts to open hand then pain became excruciating from knees to toes, as if they were crushed, knife stabbing pain in hands and travelled up both arms into shoulders up neck into jaw. hurt to move mouth or arms or fingers, i was screaming in agony. It got so bad i lost use of my hands & arms for the day after christmas, too much pain, no one could pry my fists open, my fingers tightened grasp. my hubby had to dress me, potty me, any movement made me scream..my doc put me on an anti-biotic, anti-inflammatory Bextra, increase pain meds..Akso running fever 100 but don't feel it. just it is there every day along with dry mouth & the feeling my tongue is way to big for the ibnside of my mouth . the fibromyalgia doc thinks it was just a bad fibro flare-up out of control BUT I nEVER experienced pain in these places like this ever before. i am quite freaked out as I don't know what the heck is going on.. any thoughts on this bizarre stuff? wishing you many peaceful moments TwistedSister in NJ 1982 Scoliosis Harrington fusion, 1998 Revision A/P Surgery for Flatback Syndrome, 1998 Post Traumatic Stress Disorder, 1999 Degenrative SI Joints, 2000 Weight Loss Surgery, 2000 Spinal Hardware Removed, 2001 Cervical bulging discs, 2002 Arachnoiditis, 2002 GERD, 2002 Adhesions, 1993 Mitral Valve Prolapse, 1996 Fibromyalgia, 2001 Kidney Stones, 2003 Interstitial Cystitis, May 2003 Anterior spine hardware removal ** LIFE IS UNCERTAIN.............EAT DESSERT FIRST ** Harrington Rod scoliosis people and other post-op multiple spine surgery people may interested in the following website dedicated to Flatback Syndrome and revision/salvage spine surgery... " Salvaged Sisters of Scoliosis " website on Delphi Forums at: http://forums.delphiforums.com/adultscoliosis/messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Hi! (To Twisted Sister) I saw your posting relating your recent illness, and felt compelled to write. About six weeks ago for me, as well, in a different area of the country, I had a very strange " bug " . I went to bed and stayed there for a full week, in pain and running fevers as high as 103. Even my husband, who is unusually calm, was very upset by this " whatever it is " . I even saw the doctor at one point and, although he never identified the actual bug, my labs were way off in every category! I do have arthritis and osteoarthritis and, of course, scoliosis. Some thought I had a kidney infection (very likely) and others said my arthritis had gone over to " rheumatoid " . I was put on Cipro and increased pain meds as well. I was also told that it would take " some time " to get past the illness, and it did. I still am not sure what it was, but I do lean toward kidney. I certainly sympathize with you. We are not people who are easy to treat. I know that I have all sorts of sequelae from my back. I hope that by the time you read this you will know what your mysterious disease was and that, certainly, you are feeling very much better. Sincerely, Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Dear Kathleen, That is so awful! I'm sorry you've been in such pain. The fever does make it sound like some sort of infection, and all that other stuff sounds neuroligical, like an infection is attacking your nerves? I hope it goes away as mysteriously as it came, but otherwise I'd say an evaluation by a neurologist, if possible someone with a strong background in spinal and scoliosis surgery, would be in order. Sharon symptoms of Arach? dear All- wishing you a healthier New Year. I drop in & out of site depending on my health..of course i have run into a brick wall painfully so & am asking for your wisdoms collectively... about 6 weeks ago my hands began to ache, not debilitating just 'there'. took extra breakthrough dilaudid occassionally. then two weeks ago awoke with stiff neck, went to chiropracter, seemed to alleviate frozen neck, then started hands swelling & pain and then stabbing pain in my knees, stabbing in my hands, my fingers curling in a fisted position hurts to open hand then pain became excruciating from knees to toes, as if they were crushed, knife stabbing pain in hands and travelled up both arms into shoulders up neck into jaw. hurt to move mouth or arms or fingers, i was screaming in agony. It got so bad i lost use of my hands & arms for the day after christmas, too much pain, no one could pry my fists open, my fingers tightened grasp. my hubby had to dress me, potty me, any movement made me scream..my doc put me on an anti-biotic, anti-inflammatory Bextra, increase pain meds..Akso running fever 100 but don't feel it. just it is there every day along with dry mouth & the feeling my tongue is way to big for the ibnside of my mouth . the fibromyalgia doc thinks it was just a bad fibro flare-up out of control BUT I nEVER experienced pain in these places like this ever before. i am quite freaked out as I don't know what the heck is going on.. any thoughts on this bizarre stuff? wishing you many peaceful moments TwistedSister in NJ 1982 Scoliosis Harrington fusion, 1998 Revision A/P Surgery for Flatback Syndrome, 1998 Post Traumatic Stress Disorder, 1999 Degenrative SI Joints, 2000 Weight Loss Surgery, 2000 Spinal Hardware Removed, 2001 Cervical bulging discs, 2002 Arachnoiditis, 2002 GERD, 2002 Adhesions, 1993 Mitral Valve Prolapse, 1996 Fibromyalgia, 2001 Kidney Stones, 2003 Interstitial Cystitis, May 2003 Anterior spine hardware removal ** LIFE IS UNCERTAIN.............EAT DESSERT FIRST ** Harrington Rod scoliosis people and other post-op multiple spine surgery people may interested in the following website dedicated to Flatback Syndrome and revision/salvage spine surgery... " Salvaged Sisters of Scoliosis " website on Delphi Forums at: http://forums.delphiforums.com/adultscoliosis/messages Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Kathleen, I'm so sorry to hear about your painful condition. I wish I had some advice to offer beyond what you have gotten from others. My thoughts are with you. symptoms of Arach? dear All- wishing you a healthier New Year. I drop in & out of site depending on my health..of course i have run into a brick wall painfully so & am asking for your wisdoms collectively... about 6 weeks ago my hands began to ache, not debilitating just 'there'. took extra breakthrough dilaudid occassionally. then two weeks ago awoke with stiff neck, went to chiropracter, seemed to alleviate frozen neck, then started hands swelling & pain and then stabbing pain in my knees, stabbing in my hands, my fingers curling in a fisted position hurts to open hand then pain became excruciating from knees to toes, as if they were crushed, knife stabbing pain in hands and travelled up both arms into shoulders up neck into jaw. hurt to move mouth or arms or fingers, i was screaming in agony. It got so bad i lost use of my hands & arms for the day after christmas, too much pain, no one could pry my fists open, my fingers tightened grasp. my hubby had to dress me, potty me, any movement made me scream..my doc put me on an anti-biotic, anti-inflammatory Bextra, increase pain meds..Akso running fever 100 but don't feel it. just it is there every day along with dry mouth & the feeling my tongue is way to big for the ibnside of my mouth . the fibromyalgia doc thinks it was just a bad fibro flare-up out of control BUT I nEVER experienced pain in these places like this ever before. i am quite freaked out as I don't know what the heck is going on.. any thoughts on this bizarre stuff? wishing you many peaceful moments TwistedSister in NJ 1982 Scoliosis Harrington fusion, 1998 Revision A/P Surgery for Flatback Syndrome, 1998 Post Traumatic Stress Disorder, 1999 Degenrative SI Joints, 2000 Weight Loss Surgery, 2000 Spinal Hardware Removed, 2001 Cervical bulging discs, 2002 Arachnoiditis, 2002 GERD, 2002 Adhesions, 1993 Mitral Valve Prolapse, 1996 Fibromyalgia, 2001 Kidney Stones, 2003 Interstitial Cystitis, May 2003 Anterior spine hardware removal ** LIFE IS UNCERTAIN.............EAT DESSERT FIRST ** Harrington Rod scoliosis people and other post-op multiple spine surgery people may interested in the following website dedicated to Flatback Syndrome and revision/salvage spine surgery... " Salvaged Sisters of Scoliosis " website on Delphi Forums at: http://forums.delphiforums.com/adultscoliosis/messages Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
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