Guest guest Posted March 26, 2003 Report Share Posted March 26, 2003 I am new to the group and apologize for not making myself seen much. I am still in shock over my 11 year old daughter's recent dx. of CMT. I have read all that I could from this group and am so thankful for all of the information and feedback that so many of you have given me. I am sort of at a crossroads as far as finding the place we need to be in this CMT mess. We have a pediatric neurologist who diagnosed her and basically sent us on our way for 6 months. After my asking, she did write a prescription for PT. Well I am concerned that there are not a lot of therapists who will/can individually treat Jordan based on the progression of her CMT. I am afraid that if the therapist isn't knowledgeable he/she could cause Jordan more harm than good. I have found a local MD clinic but am hesitant still. She has an appointment in Michigan June 5 and I think that is where we need to be as no one around here (Birmingham, Al) does just CMT. Does anyone have any advice on these issues? Thank you all, Quote Link to comment Share on other sites More sharing options...
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