Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi, i'm 16 and have CMT, and my feet turn black, purple and blue when im sitting down or even standing all the time. My doctors have checked them and they could not find a pulse, and did a reynauds test and it came back normal except for my 2nd digit toe on my left foot ( if that makes any sense? ). Any ways, they told me not to go around without shoes on ever bc i have no feeling in my feet, but it really freaks them out bc of the discoloration of my feet. Does anyone else have this problem?? i'm on medicine to get my blood flow going better now even though my circulation's ok.. If u could tell me what it is ( i know its pb part of my disease but.. ) i would really appreciate it thanks ! -Brittney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 Just a similar story, when I was pregnant with my first baby my tummy was crushing an artery when I sat down. I didn't turn purple I just got very very very swollen. It took me losing a lot of weight and my uterus going down to get back to normal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 Hi Brittney, My feet turn purple and blue not black, the doctors say my circulation is fine. I have been told I have reynauds, by 1 doctor and then another that says I don't. I have had pretty much every test done, but no explanation why they turn colors. I also am not allowed to walk barefoot because I have not feeling in either foot. I took 2 different kinds of medicine for the discoloration in the feet but they have taken me off both of them because it was still happening. They upped the dose but it still happened so the 1 doctor said he didn't like me on them because it was causing other problems. So I'm not much help, about why your feet do this, except that you know your not alone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 So i should attempt to lose alot of weight? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 , Well it sort of sounds like the whole deal with me having cmt. At first the dr. told me i had it , then said i didn't , now i have it again... even though like 7 ppl in my family have it and i have all the pain and symptoms. i guess doctors just get confused or don't know what their talking about with some diseases as well as others. My feet turn purple all the time but only the tips of my toes turn black sometimes.. My hands also get really blotchy looking too and kinda bluish looking too.. i dunno what it is? Oh well, i can only hope maybe the medicine they put me on will help but so far i dont really see a change lol, they're still like all weird looking and always numb and blue. but thanks though for letting me know that i'm not like the only person out there with weird feet lol i'll ttyl -Brittney Quote Link to comment Share on other sites More sharing options...
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