Shriners

[Guest guest]

Thats SOO exciting Crista!!! IM SO HAPPY FOR YOU!!!

When do you go?

Congrats! Congrats! Congrats!

>I kind of

> feel guilty since we have Insurance so that is the least that we

can

> do. These hospitals need to stay open!!

DONT FEEL GUILTY!! Your son needs help and they are there to give

it!! Just be greatful and give that baby TONS OF KISSES!! Hes such a

special gift!!! *beaming for you both*

[Guest guest]

Hi ,

We leave for SLC on Jan. 20th and has his 1st appointment with Dr. D'astous on the 21st. I went ahead and sent all of his x-rays and medical records so that we could get in a cast on that trip. Dr. D'astous agreed because has been so progressive, so...My little baby(7months old) is coming home in a cast. It is bittersweet for me. He NEEDS a cast I know but I am so scared about it because he is so little. I am still in shock that they are paying for an airline ticket!!!! We have to go back about every 9 weeks to change the cast so that is pretty cool.

anyways.. time for night night, I am fighting that flu!! (I got the flu shot too)

I will check in in the AM

[Guest guest]

Hi, My name is Hansen and I just wanted to share with you

that my daughter Lily was also in a body cast for a while. She had

Scoli and bi-lateral hip dysplasia. She was in a cast with her legs

spread apart for her hips and then the metha cast for her back. It

was a cast connected though so It was just one cast. She was the

first one in Salt Lake Shriners that had ever had the dual cast. I

actually believe she was the first anywhere. Erie has never done a

dual cast like this before either. It was scarey, but amazingly she

adjusted much faster than I did. I will send you a picture if you

would like of a seat my husband made for her to sit in out of a baby

walker. We had to adjust it quite a bit to get her to fit in it but

she loved it and could even make her way around the house a little in

it. I am excited that you were happy with your visit to Shriners. We

love the treatment we get there from the staff in Salt Lake. Hope

everything goes well for you and Adison.

Hansen

Mike Hansen

Jake Hansen 4 yrs

Lily Hansen 20 months

>

> Adison had his appt. yesterday in Erie. It went very well. Our

doc.

> was Dr. Kirshan. I guess he is relatively new but he was very good.

> I like the way he thought....like me, lets try other methods before

> surgery. Adison's othro in the childrens hospital in Ohio was just

> going to do a serial cast for one month and then do surgery...he

> said so the scarring wouldnt be bad! I dont really care what it

> looks like!!! Gezzz....but i feel comfortable with the doc in Erie.

> Adison has his first set of casts. They are going to try and get

> more correctiveness out of his feet and knees. He looks so cute!

But

> half of his pants i cant get over the casts! He also took x-rays of

> his spine. His curve is 70 degrees! I was shocked!!! The other doc.

> (in Ohio) wasnt even worried! So they have to get the go ahead from

> adison's pulminologist but after that then they are going to but a

> METHA cast on him. He said that he wasnt sure what kind of scoli he

> had or what was causing it but they are going to do a MRI after he

> gets the cast so then he wont be moving around. We also scheduled

to

> see a hand specialist for his AMC. they will be calling monday with

> our next appt. dates their computers were down. But i know it will

> be a week or so to change the casts. Little guys going be wearing

so

> much stuff. A helmet, leg casts, and a body cast!! It is for his

> good though:) sorry this is so long!

>

[Guest guest]

Wow! It's a good thing you are getting him treated now with his curve being 70 degrees. I am also glad to hear that Shriners is hoping to avoid surgery. You are in great hands there. I hope the MRI goes well and that he is able to be casted. Keep us posted!

Noelle (12-2-01)Ian (8-15-04)

Shriners

Adison had his appt. yesterday in Erie. It went very well. Our doc. was Dr. Kirshan. I guess he is relatively new but he was very good. I like the way he thought....like me, lets try other methods before surgery. Adison's othro in the childrens hospital in Ohio was just going to do a serial cast for one month and then do surgery...he said so the scarring wouldnt be bad! I dont really care what it looks like!!! Gezzz....but i feel comfortable with the doc in Erie. Adison has his first set of casts. They are going to try and get more correctiveness out of his feet and knees. He looks so cute! But half of his pants i cant get over the casts! He also took x-rays of his spine. His curve is 70 degrees! I was shocked!!! The other doc. (in Ohio) wasnt even worried! So they have to get the go ahead from adison's pulminologist but after that then they are going to but a METHA cast on him. He said that he wasnt sure what kind of scoli he had or what was causing it but they are going to do a MRI after he gets the cast so then he wont be moving around. We also scheduled to see a hand specialist for his AMC. they will be calling monday with our next appt. dates their computers were down. But i know it will be a week or so to change the casts. Little guys going be wearing so much stuff. A helmet, leg casts, and a body cast!! It is for his good though:) sorry this is so long!

[Guest guest]

Hi,

Who was your ortho in Ohio? I am from Ohio and go to Rainbows in Cleveland. has Dr. and I think he is great. I was just curious.

Gloria

[Guest guest]

Glad to hear that is wasn't at Rainbows. I haven't heard good things about Arkon Children's. had his decompression done at Rainbows and I would never go anywhere else. We went to Shriner's in Erie for a second opinion and the doctor(can't remember his name, it was two years ago) didn't agree with using the night brace. However, it has been working nicely for .

Best of luck.

Gloria

[Guest guest]

Re: Shriners

> Hi,

> Who was your ortho in Ohio? I am from Ohio and go to Rainbows in

> Cleveland.

> has Dr. and I think he is great. I was just

curious.

> Gloria

>

No i went to Dr. in Akron Childrens....he is good but lack of

experience i think.

[Guest guest]

You can call the hospital and do the application process over the phone. You

just ask to speak to a care coordinator and they can take care of it for you.

The number in Erie is and the care coordinator for Dr. is

Jane Smalley.

Once they take your information, they can get you an appointment scheduled.

Good luck.

and Evan

freakygem37 wrote:

Can anyone tell me the best and fastest way to become a member of

Shriners? I would like to have Skylar see DR's there.

Thanks,

Chamberlain

Skylar 7/8/05 Infantile Scoliosis

7/23/04

Alissa 7/13/1993

---------------------------------

Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV.

[Guest guest]

Hi ,

you don't have to become a member, plus from what I understand only men can

join the Shriner's anyway. Their hospital are open to anyone, though. I'd

recommend calling your local shrine club and asking to have a sponsor assigned

to your child and then he'll help you fill out an application for the closest

shriner's hospital. Or you can just go through your pediatrician or you can

apply without ped and without sponsor, it might take a while for them to get

back to you though.

good luck,

ne

freakygem37 wrote:

Can anyone tell me the best and fastest way to become a member of

Shriners? I would like to have Skylar see DR's there.

Thanks,

Chamberlain

Skylar 7/8/05 Infantile Scoliosis

7/23/04

Alissa 7/13/1993

---------------------------------

Building a website is a piece of cake.

Yahoo! Small Business gives you all the tools to get online.

[Guest guest]

Hi ,

you don't have to become a member, plus from what I understand only men can

join the Shriner's anyway. Their hospital are open to anyone, though. I'd

recommend calling your local shrine club and asking to have a sponsor assigned

to your child and then he'll help you fill out an application for the closest

shriner's hospital. Or you can just go through your pediatrician or you can

apply without ped and without sponsor, it might take a while for them to get

back to you though.

good luck,

ne

freakygem37 wrote:

Can anyone tell me the best and fastest way to become a member of

Shriners? I would like to have Skylar see DR's there.

Thanks,

Chamberlain

Skylar 7/8/05 Infantile Scoliosis

7/23/04

Alissa 7/13/1993

---------------------------------

Building a website is a piece of cake.

Yahoo! Small Business gives you all the tools to get online.

[Guest guest]

Hi ,

you don't have to become a member, plus from what I understand only men can

join the Shriner's anyway. Their hospital are open to anyone, though. I'd

recommend calling your local shrine club and asking to have a sponsor assigned

to your child and then he'll help you fill out an application for the closest

shriner's hospital. Or you can just go through your pediatrician or you can

apply without ped and without sponsor, it might take a while for them to get

back to you though.

good luck,

ne

freakygem37 wrote:

Can anyone tell me the best and fastest way to become a member of

Shriners? I would like to have Skylar see DR's there.

Thanks,

Chamberlain

Skylar 7/8/05 Infantile Scoliosis

7/23/04

Alissa 7/13/1993

---------------------------------

Building a website is a piece of cake.

Yahoo! Small Business gives you all the tools to get online.

[Guest guest]

Only the Erie & Salt Lake City Shriners do the casting. You can call them

directly and do the paperwork over the phone. The contact at Erie is Jane

Smalley and she is the patient care coordinator.

Noelle (12-2-01)

Ian (8-15-04)

Re: Shriners

Hi ,

you don't have to become a member, plus from what I understand only men can

join the Shriner's anyway. Their hospital are open to anyone, though. I'd

recommend calling your local shrine club and asking to have a sponsor assigned

to your child and then he'll help you fill out an application for the closest

shriner's hospital. Or you can just go through your pediatrician or you can

apply without ped and without sponsor, it might take a while for them to get

back to you though.

good luck,

ne

freakygem37 wrote:

Can anyone tell me the best and fastest way to become a member of

Shriners? I would like to have Skylar see DR's there.

Thanks,

Chamberlain

Skylar 7/8/05 Infantile Scoliosis

7/23/04

Alissa 7/13/1993

---------------------------------

Building a website is a piece of cake.

Yahoo! Small Business gives you all the tools to get online.

[Guest guest]

I looked into it and the closest one for me is Cincinatti, which is

three and a half hours from where I live, and I am not sure that I

could do that. Besides, I am really negative and I believe that in two

weeks my doctor is going to tell me that I need the surgery. Thanks for

looking out for me and giving me options!

[Guest guest]

I've been reading the conversations with and I just want to

mention one thing to Chris.

I had surgery in 1997 at age 50. The results were far better than I

ever imagined they could be. I wish there had been technology for me

such as they have today way back when I was a young person.

I know that the surgery is a real big deal, but it is far better to

have as a teen than as an adult.

Also, the teens who have surgery now are restored to an almost

perfectly straight spine.

Don't be afraid of the surgery. In fact, I would campaign for the

surgery because it is far easier to recover as a teen, and the

correction is so significant. It will wash away all those years

spent struggling with the brace.

Jeanne

>

> I looked into it and the closest one for me is Cincinatti, which is

> three and a half hours from where I live, and I am not sure that I

> could do that. Besides, I am really negative and I believe that in

two

> weeks my doctor is going to tell me that I need the surgery. Thanks

for

> looking out for me and giving me options!

>

[Guest guest]

I would love to tell him when I go back and if he tells me I need it,

but my parents are doing research and all that crap to find alternate

options because they have heard only bad things about it, so they are

doing everything they can so that I do not have surgery. It really

irritates me, because I have heard of no horror stories anywhere I

look, but since they found some. Then that means they have to defend

me and are doing almost anything so that I do not.

>

>

> I've been reading the conversations with and I just want to

> mention one thing to Chris.

>

> I had surgery in 1997 at age 50. The results were far better than

I

> ever imagined they could be. I wish there had been technology for

me

> such as they have today way back when I was a young person.

>

> I know that the surgery is a real big deal, but it is far better to

> have as a teen than as an adult.

>

> Also, the teens who have surgery now are restored to an almost

> perfectly straight spine.

>

> Don't be afraid of the surgery. In fact, I would campaign for the

> surgery because it is far easier to recover as a teen, and the

> correction is so significant. It will wash away all those years

> spent struggling with the brace.

>

> Jeanne

>

[Guest guest]

I am getting in on the tail end of your posts here on this site and I don't know

all the specifics of your case. But, as I have reported before, I wasn't

diagnosed with scoliosis until I was 28 years old. The curvature was mild at

that point. If they had done surgery when I was young, like you, I would not

have the deformity that I have now. However, the doctors always told me that I

was too old for surgery. I was finally referred to a surgeon who said that I was

facing a terribly miserable and painful old age if I did nothing.

I had my surgery last year and he was able to make some correction, but the

spine had pretty much fused itself and could not be straightened fully. He

improved my curvature from a 94 degree lumbar Cobb angle to a 59 degree angle.

That's still a significant curve; but it will not get worse because the rods and

screws will hold it in place. I have no pain and have returned to my pre-surgery

routine. Yes, I have some limitations. But my attitude is good and I'm looking

forward to an active future. I hike, and work out with a personal trainer. I

have been advised to not do contact sports, or running. You are young and you

will recover so much more quickly. Your parents are wise to do the research

before making a decision. But I would say that today's technology is light years

ahead of where it was in the 1960's. So do not go into this with fear and

trepidation.

The two books that I read before my surgery were, " Scoliosis Surgery: The

Definitive Patient's Reference (3rd Edition) (Paperback) " by Wohlpert, and

" The Scoliosis Source Book " by Neuwirth and Osborn (Paperback -

May 7, 2001). Both are great books and will be very helpful to you and your

parents as you decide what the best options are for your own situation. Have you

visited the Scoliosis Research Society web page. Maybe some useful information

can be gained for you there also.

I wish you the best future you can possibly have.

Patti

Re: Shriners

I would love to tell him when I go back and if he tells me I need it,

but my parents are doing research and all that crap to find alternate

options because they have heard only bad things about it, so they are

doing everything they can so that I do not have surgery. It really

irritates me, because I have heard of no horror stories anywhere I

look, but since they found some. Then that means they have to defend

me and are doing almost anything so that I do not.

>

>

> I've been reading the conversations with and I just want to

> mention one thing to Chris.

>

> I had surgery in 1997 at age 50. The results were far better than

I

> ever imagined they could be. I wish there had been technology for

me

> such as they have today way back when I was a young person.

>

> I know that the surgery is a real big deal, but it is far better to

> have as a teen than as an adult.

>

> Also, the teens who have surgery now are restored to an almost

> perfectly straight spine.

>

> Don't be afraid of the surgery. In fact, I would campaign for the

> surgery because it is far easier to recover as a teen, and the

> correction is so significant. It will wash away all those years

> spent struggling with the brace.

>

> Jeanne

>

[Guest guest]

some people are just anti-surgery, and maybe don't trust surgeons. Even

though I am an RN, I always said that I would never have surgery for my

scoliosis. It was very hard for me to break through and admit that I really

needed it. I became disabled rather than face surgery. Now, I see what a good

thing it will be for me, after I get through the physical therapy and my body

adapts to the surgical changes. It's a big committment to have surgery, and you

have to realize that you must be committed to do alot of physical therapy and

spend time just waiting for your body to heal. It's a slow process and you will

have to be PATIENT. But I think if you do this now, it will change your life in

the long run. You have your whole life ahead of you.

Give your parents some gentle nudging and let them know how you feel. Have

they seen this chat room? Maybe they could ask some questions of other parents.

Good luck, Debbie

chrisman22122 <chrisman22122@...> wrote:

I would love to tell him when I go back and if he tells me I need it,

but my parents are doing research and all that crap to find alternate

options because they have heard only bad things about it, so they are

doing everything they can so that I do not have surgery. It really

irritates me, because I have heard of no horror stories anywhere I

look, but since they found some. Then that means they have to defend

me and are doing almost anything so that I do not.

>

>

> I've been reading the conversations with and I just want to

> mention one thing to Chris.

>

> I had surgery in 1997 at age 50. The results were far better than

I

> ever imagined they could be. I wish there had been technology for

me

> such as they have today way back when I was a young person.

>

> I know that the surgery is a real big deal, but it is far better to

> have as a teen than as an adult.

>

> Also, the teens who have surgery now are restored to an almost

> perfectly straight spine.

>

> Don't be afraid of the surgery. In fact, I would campaign for the

> surgery because it is far easier to recover as a teen, and the

> correction is so significant. It will wash away all those years

> spent struggling with the brace.

>

> Jeanne

>

[Guest guest]

The horror stories that scare your parents are because this is a huge

surgery and many things 'can' go wrong. They don't want anything to happen to

you

so they feel it is their job to protect you. They are correct for not jumping

right into it. What they don't realize is IF your progession is advancing

and a specialist recommends surgery, your risks for future deformity with

lungs and heart without surgery are higher than surgery complications.

The surgery is usually 8-15 hours long. It is the worse surgery a body can

go through, worse than open heart surgery. Complications can be from

infection to paralysis but there are %s of that risk happening that must be

looked

into before the surgery idea should be dismissed or accepted. Scoliosis

surgery is not like taking out an appendix...it doesn't 'cure' the patient.

You

will always have scoliosis but post op the progession may be stopped. The

pain after surgery may be temporary (2-6 months) or it may last for years.

Again the risk % can be answered that by a scoliosis surgeon. (not just an

orthopedic doctor) Some people need more than one surgery in a lifetime, but

not

everyone.

Your parents need to weigh all the facts. There may also be Scoliosis

Support Groups in your area for them to meet with scoliosis people who can share

their success stories. Or they can get online to this forum or the

Scoliosis.org Forum to talk with others who are glad they had surgery. You can

lead

them here or there to get real information. It is a big decision you can help

them be armed with the truth.

Jolene

60, 2 surgeries and glad I had them.

************************************** See what's new at http://www.aol.com

[Guest guest]

I highly suggest physical therapy. My 15 year old had her fusion last July

and we too were told we did not need PT. Now 6 months later we are in PT

trying to help her muscles and wish so much we had done PT last fall. Good

luck.

in MD

In a message dated 2/11/2008 7:47:22 P.M. Eastern Standard Time,

p0etiss@... writes:

I was wondering about physical therapy after being

discharged from the hospital. My son's dr didn't

think that would be necessary but it would make sense

to me that it might be. He will be 19 at the time of

the surgery. What do you all think?

--- debbie brickley <_debbiebrickley@debbiebri_

(mailto:debbiebrickley@...) > wrote:

> some people are just anti-surgery, and maybe

> don't trust surgeons. Even though I am an RN, I

> always said that I would never have surgery for my

> scoliosis. It was very hard for me to break through

> and admit that I really needed it. I became disabled

> rather than face surgery. Now, I see what a good

> thing it will be for me, after I get through the

> physical therapy and my body adapts to the surgical

> changes. It's a big committment to have surgery, and

> you have to realize that you must be committed to do

> alot of physical therapy and spend time just waiting

> for your body to heal. It's a slow process and you

> will have to be PATIENT. But I think if you do this

> now, it will change your life in the long run. You

> have your whole life ahead of you.

> Give your parents some gentle nudging and let

> them know how you feel. Have they seen this chat

> room? Maybe they could ask some questions of other

> parents.

> Good luck, Debbie

>

> chrisman22122 <_chrisman22122@chrisman2_ (mailto:chrisman22122@...)

> wrote:

> I would love to tell him when I go back

> and if he tells me I need it,

> but my parents are doing research and all that crap

> to find alternate

> options because they have heard only bad things

> about it, so they are

> doing everything they can so that I do not have

> surgery. It really

> irritates me, because I have heard of no horror

> stories anywhere I

> look, but since they found some. Then that means

> they have to defend

> me and are doing almost anything so that I do not.

>

>

> >

> >

> > I've been reading the conversations with and

> I just want to

> > mention one thing to Chris.

> >

> > I had surgery in 1997 at age 50. The results were

> far better than

> I

> > ever imagined they could be. I wish there had been

> technology for

> me

> > such as they have today way back when I was a

> young person.

> >

> > I know that the surgery is a real big deal, but it

> is far better to

> > have as a teen than as an adult.

> >

> > Also, the teens who have surgery now are restored

> to an almost

> > perfectly straight spine.

> >

> > Don't be afraid of the surgery. In fact, I would

> campaign for the

> > surgery because it is far easier to recover as a

> teen, and the

> > correction is so significant. It will wash away

> all those years

> > spent struggling with the brace.

> >

> > Jeanne

> >

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

_http://mobile.http://mobhttp://mobile.<Whttp://mobile.<Wht_

(http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ)

**************The year's hottest artists on the red carpet at the Grammy

Awards. Go to AOL Music.

(http://music.aol.com/grammys?NCID=aolcmp00300000002565)

[Guest guest]

I was wondering about physical therapy after being

discharged from the hospital. My son's dr didn't

think that would be necessary but it would make sense

to me that it might be. He will be 19 at the time of

the surgery. What do you all think?

--- debbie brickley <debbiebrickley@...> wrote:

> some people are just anti-surgery, and maybe

> don't trust surgeons. Even though I am an RN, I

> always said that I would never have surgery for my

> scoliosis. It was very hard for me to break through

> and admit that I really needed it. I became disabled

> rather than face surgery. Now, I see what a good

> thing it will be for me, after I get through the

> physical therapy and my body adapts to the surgical

> changes. It's a big committment to have surgery, and

> you have to realize that you must be committed to do

> alot of physical therapy and spend time just waiting

> for your body to heal. It's a slow process and you

> will have to be PATIENT. But I think if you do this

> now, it will change your life in the long run. You

> have your whole life ahead of you.

> Give your parents some gentle nudging and let

> them know how you feel. Have they seen this chat

> room? Maybe they could ask some questions of other

> parents.

> Good luck, Debbie

>

> chrisman22122 <chrisman22122@...> wrote:

> I would love to tell him when I go back

> and if he tells me I need it,

> but my parents are doing research and all that crap

> to find alternate

> options because they have heard only bad things

> about it, so they are

> doing everything they can so that I do not have

> surgery. It really

> irritates me, because I have heard of no horror

> stories anywhere I

> look, but since they found some. Then that means

> they have to defend

> me and are doing almost anything so that I do not.

>

>

> >

> >

> > I've been reading the conversations with and

> I just want to

> > mention one thing to Chris.

> >

> > I had surgery in 1997 at age 50. The results were

> far better than

> I

> > ever imagined they could be. I wish there had been

> technology for

> me

> > such as they have today way back when I was a

> young person.

> >

> > I know that the surgery is a real big deal, but it

> is far better to

> > have as a teen than as an adult.

> >

> > Also, the teens who have surgery now are restored

> to an almost

> > perfectly straight spine.

> >

> > Don't be afraid of the surgery. In fact, I would

> campaign for the

> > surgery because it is far easier to recover as a

> teen, and the

> > correction is so significant. It will wash away

> all those years

> > spent struggling with the brace.

> >

> > Jeanne

> >

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

If the goal is pain suppression it might help to have physiotherapy

but I don't think it would help much. While I have spent countless

hours in physiotherapy for the pain issue I have never considered it

for surgery recovery. I doubt it would be that effective because of

the pain level. It would probably limit what they could do to a bare

minimum. I doubt you could use anything on the fresh scar area like

TENS or laser. And exercising the area isn't an option so probably the

surgeon is right in saying it's not needed. I can't honestly think of

any benefit he'd get from it and I have been down that road four times.

> > >

> > >

> > > I've been reading the conversations with and

> > I just want to

> > > mention one thing to Chris.

> > >

> > > I had surgery in 1997 at age 50. The results were

> > far better than

> > I

> > > ever imagined they could be. I wish there had been

> > technology for

> > me

> > > such as they have today way back when I was a

> > young person.

> > >

> > > I know that the surgery is a real big deal, but it

> > is far better to

> > > have as a teen than as an adult.

> > >

> > > Also, the teens who have surgery now are restored

> > to an almost

> > > perfectly straight spine.

> > >

> > > Don't be afraid of the surgery. In fact, I would

> > campaign for the

> > > surgery because it is far easier to recover as a

> > teen, and the

> > > correction is so significant. It will wash away

> > all those years

> > > spent struggling with the brace.

> > >

> > > Jeanne

> > >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

[Guest guest]

After my surgery last September, my surgeon wouldn't order physical therapy for

3 months. Just walk, she said. I was having a hard time walking because of

continued pain in my left leg. I finally got her to order some physical therapy,

as I had so many questions about what to do and how much to do. Also my surgeon

was 3 hours away, so I didn't see her for 4 months. My physical therapist helped

me with alot of questions. I really think PT has a place, but it is up to your

surgeon.

Debbie

Gail Merri <p0etiss@...> wrote:

I was wondering about physical therapy after being

discharged from the hospital. My son's dr didn't

think that would be necessary but it would make sense

to me that it might be. He will be 19 at the time of

the surgery. What do you all think?

--- debbie brickley <debbiebrickley@...> wrote:

> some people are just anti-surgery, and maybe

> don't trust surgeons. Even though I am an RN, I

> always said that I would never have surgery for my

> scoliosis. It was very hard for me to break through

> and admit that I really needed it. I became disabled

> rather than face surgery. Now, I see what a good

> thing it will be for me, after I get through the

> physical therapy and my body adapts to the surgical

> changes. It's a big committment to have surgery, and

> you have to realize that you must be committed to do

> alot of physical therapy and spend time just waiting

> for your body to heal. It's a slow process and you

> will have to be PATIENT. But I think if you do this

> now, it will change your life in the long run. You

> have your whole life ahead of you.

> Give your parents some gentle nudging and let

> them know how you feel. Have they seen this chat

> room? Maybe they could ask some questions of other

> parents.

> Good luck, Debbie

>

> chrisman22122 <chrisman22122@...> wrote:

> I would love to tell him when I go back

> and if he tells me I need it,

> but my parents are doing research and all that crap

> to find alternate

> options because they have heard only bad things

> about it, so they are

> doing everything they can so that I do not have

> surgery. It really

> irritates me, because I have heard of no horror

> stories anywhere I

> look, but since they found some. Then that means

> they have to defend

> me and are doing almost anything so that I do not.

>

>

> >

> >

> > I've been reading the conversations with and

> I just want to

> > mention one thing to Chris.

> >

> > I had surgery in 1997 at age 50. The results were

> far better than

> I

> > ever imagined they could be. I wish there had been

> technology for

> me

> > such as they have today way back when I was a

> young person.

> >

> > I know that the surgery is a real big deal, but it

> is far better to

> > have as a teen than as an adult.

> >

> > Also, the teens who have surgery now are restored

> to an almost

> > perfectly straight spine.

> >

> > Don't be afraid of the surgery. In fact, I would

> campaign for the

> > surgery because it is far easier to recover as a

> teen, and the

> > correction is so significant. It will wash away

> all those years

> > spent struggling with the brace.

> >

> > Jeanne

> >

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

I would say about 3 months after would be a great time to start PT. It helps

so much with the muscles that have been stretched. They are even working the

muscles in between my daughters ribs. I can't wait to see where she is in 2

months. Thanks

in MD

In a message dated 2/12/2008 8:41:33 P.M. Eastern Standard Time,

p0etiss@... writes:

Thanks . Do you know how soon after the surgery

physical therapy is recommended?

--- _des@..._ (mailto:des@...) wrote:

> I highly suggest physical therapy. My 15 year old

> had her fusion last July

> and we too were told we did not need PT. Now 6

> months later we are in PT

> trying to help her muscles and wish so much we had

> done PT last fall. Good luck.

>

> in MD

>

>

> In a message dated 2/11/2008 7:47:22 P.M. Eastern

> Standard Time,

> _p0etiss@..._ (mailto:p0etiss@...) writes:

>

>

>

>

> I was wondering about physical therapy after being

> discharged from the hospital. My son's dr didn't

> think that would be necessary but it would make

> sense

> to me that it might be. He will be 19 at the time of

> the surgery. What do you all think?

> --- debbie brickley <_debbiebrickley@_debbiebric

> (mailto:_debbiebrickley@debbiebri_ (mailto:debbiebrickley@...) ) >

wrote:

>

> > some people are just anti-surgery, and

> maybe

> > don't trust surgeons. Even though I am an RN, I

> > always said that I would never have surgery for

> my

> > scoliosis. It was very hard for me to break

> through

> > and admit that I really needed it. I became

> disabled

> > rather than face surgery. Now, I see what a good

> > thing it will be for me, after I get through the

> > physical therapy and my body adapts to the

> surgical

> > changes. It's a big committment to have surgery,

> and

> > you have to realize that you must be committed to

> do

> > alot of physical therapy and spend time just

> waiting

> > for your body to heal. It's a slow process and

> you

> > will have to be PATIENT. But I think if you do

> this

> > now, it will change your life in the long run.

> You

> > have your whole life ahead of you.

> > Give your parents some gentle nudging and let

> > them know how you feel. Have they seen this chat

> > room? Maybe they could ask some questions of

> other

> > parents.

> > Good luck, Debbie

> >

> > chrisman22122 <_chrisman22122@_chrisman2

> (mailto:_chrisman22122@chrisman2_ (mailto:chrisman22122@...) )

> > wrote:

> > I would love to tell him when I go back

> > and if he tells me I need it,

> > but my parents are doing research and all that

> crap

> > to find alternate

> > options because they have heard only bad things

> > about it, so they are

> > doing everything they can so that I do not have

> > surgery. It really

> > irritates me, because I have heard of no horror

> > stories anywhere I

> > look, but since they found some. Then that means

> > they have to defend

> > me and are doing almost anything so that I do

> not.

> >

> >

> > >

> > >

> > > I've been reading the conversations with Chris

> and

> > I just want to

> > > mention one thing to Chris.

> > >

> > > I had surgery in 1997 at age 50. The results

> were

> > far better than

> > I

> > > ever imagined they could be. I wish there had

> been

> > technology for

> > me

> > > such as they have today way back when I was a

> > young person.

> > >

> > > I know that the surgery is a real big deal, but

> it

> > is far better to

> > > have as a teen than as an adult.

> > >

> > > Also, the teens who have surgery now are

> restored

> > to an almost

> > > perfectly straight spine.

> > >

> > > Don't be afraid of the surgery. In fact, I

> would

> > campaign for the

> > > surgery because it is far easier to recover as

> a

> > teen, and the

> > > correction is so significant. It will wash away

> > all those years

> > > spent struggling with the brace.

> > >

> > > Jeanne

> > >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

__http://mobile.http://mobile.http://mo_

(http://mobile.http//mobhttp://mobile.) <_Whttp://mobile._ (whttp://mobile./)

<Wht_

>

>

(_http://mobile.http://mobhttp://mobile.<Whttp://mobile.<Wht_

(http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ) )

>

>

>

>

>

>

>

>

> ************ ************<WBR>**The year's hott

> carpet at the Grammy

> Awards. Go to AOL Music.

>

(_http://music.http://music.<WBhttp://music.<WBhttp://mu_

(http://music.aol.com/grammys?NCID=aolcmp00300000002565) )

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Search.

_http://tools.http://tools.http://tools.http://tohttp://tools.http://t_

(http://tools.search./newsearch/category.php?category=shopping)

**************The year's hottest artists on the red carpet at the Grammy

Awards. Go to AOL Music.

(http://music.aol.com/grammys?NCID=aolcmp00300000002565)

[Guest guest]

Thanks . Do you know how soon after the surgery

physical therapy is recommended?

--- des@... wrote:

> I highly suggest physical therapy. My 15 year old

> had her fusion last July

> and we too were told we did not need PT. Now 6

> months later we are in PT

> trying to help her muscles and wish so much we had

> done PT last fall. Good luck.

>

> in MD

>

>

> In a message dated 2/11/2008 7:47:22 P.M. Eastern

> Standard Time,

> p0etiss@... writes:

>

>

>

>

> I was wondering about physical therapy after being

> discharged from the hospital. My son's dr didn't

> think that would be necessary but it would make

> sense

> to me that it might be. He will be 19 at the time of

> the surgery. What do you all think?

> --- debbie brickley <_debbiebrickley@debbiebri_

> (mailto:debbiebrickley@...) > wrote:

>

> > some people are just anti-surgery, and

> maybe

> > don't trust surgeons. Even though I am an RN, I

> > always said that I would never have surgery for

> my

> > scoliosis. It was very hard for me to break

> through

> > and admit that I really needed it. I became

> disabled

> > rather than face surgery. Now, I see what a good

> > thing it will be for me, after I get through the

> > physical therapy and my body adapts to the

> surgical

> > changes. It's a big committment to have surgery,

> and

> > you have to realize that you must be committed to

> do

> > alot of physical therapy and spend time just

> waiting

> > for your body to heal. It's a slow process and

> you

> > will have to be PATIENT. But I think if you do

> this

> > now, it will change your life in the long run.

> You

> > have your whole life ahead of you.

> > Give your parents some gentle nudging and let

> > them know how you feel. Have they seen this chat

> > room? Maybe they could ask some questions of

> other

> > parents.

> > Good luck, Debbie

> >

> > chrisman22122 <_chrisman22122@chrisman2_

> (mailto:chrisman22122@...)

> > wrote:

> > I would love to tell him when I go back

> > and if he tells me I need it,

> > but my parents are doing research and all that

> crap

> > to find alternate

> > options because they have heard only bad things

> > about it, so they are

> > doing everything they can so that I do not have

> > surgery. It really

> > irritates me, because I have heard of no horror

> > stories anywhere I

> > look, but since they found some. Then that means

> > they have to defend

> > me and are doing almost anything so that I do

> not.

> >

> >

> > >

> > >

> > > I've been reading the conversations with Chris

> and

> > I just want to

> > > mention one thing to Chris.

> > >

> > > I had surgery in 1997 at age 50. The results

> were

> > far better than

> > I

> > > ever imagined they could be. I wish there had

> been

> > technology for

> > me

> > > such as they have today way back when I was a

> > young person.

> > >

> > > I know that the surgery is a real big deal, but

> it

> > is far better to

> > > have as a teen than as an adult.

> > >

> > > Also, the teens who have surgery now are

> restored

> > to an almost

> > > perfectly straight spine.

> > >

> > > Don't be afraid of the surgery. In fact, I

> would

> > campaign for the

> > > surgery because it is far easier to recover as

> a

> > teen, and the

> > > correction is so significant. It will wash away

> > all those years

> > > spent struggling with the brace.

> > >

> > > Jeanne

> > >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

_http://mobile.http://mobhttp://mobile.<Whttp://mobile.<Wht_

>

>

(http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ)

>

>

>

>

>

>

>

>

> **************The year's hottest artists on the red

> carpet at the Grammy

> Awards. Go to AOL Music.

>

(http://music.aol.com/grammys?NCID=aolcmp00300000002565)

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

[Guest guest]

Thanks Debbie. - debbie brickley

<debbiebrickley@...> wrote:

> After my surgery last September, my surgeon wouldn't

> order physical therapy for 3 months. Just walk, she

> said. I was having a hard time walking because of

> continued pain in my left leg. I finally got her to

> order some physical therapy, as I had so many

> questions about what to do and how much to do. Also

> my surgeon was 3 hours away, so I didn't see her for

> 4 months. My physical therapist helped me with alot

> of questions. I really think PT has a place, but it

> is up to your surgeon.

> Debbie

>

> Gail Merri <p0etiss@...> wrote:

> I was wondering about physical therapy

> after being

> discharged from the hospital. My son's dr didn't

> think that would be necessary but it would make

> sense

> to me that it might be. He will be 19 at the time of

> the surgery. What do you all think?

> --- debbie brickley <debbiebrickley@...>

> wrote:

>

> > some people are just anti-surgery, and

> maybe

> > don't trust surgeons. Even though I am an RN, I

> > always said that I would never have surgery for my

> > scoliosis. It was very hard for me to break

> through

> > and admit that I really needed it. I became

> disabled

> > rather than face surgery. Now, I see what a good

> > thing it will be for me, after I get through the

> > physical therapy and my body adapts to the

> surgical

> > changes. It's a big committment to have surgery,

> and

> > you have to realize that you must be committed to

> do

> > alot of physical therapy and spend time just

> waiting

> > for your body to heal. It's a slow process and you

> > will have to be PATIENT. But I think if you do

> this

> > now, it will change your life in the long run. You

> > have your whole life ahead of you.

> > Give your parents some gentle nudging and let

> > them know how you feel. Have they seen this chat

> > room? Maybe they could ask some questions of other

> > parents.

> > Good luck, Debbie

> >

> > chrisman22122 <chrisman22122@...> wrote:

> > I would love to tell him when I go back

> > and if he tells me I need it,

> > but my parents are doing research and all that

> crap

> > to find alternate

> > options because they have heard only bad things

> > about it, so they are

> > doing everything they can so that I do not have

> > surgery. It really

> > irritates me, because I have heard of no horror

> > stories anywhere I

> > look, but since they found some. Then that means

> > they have to defend

> > me and are doing almost anything so that I do not.

> >

> >

> > >

> > >

> > > I've been reading the conversations with Chris

> and

> > I just want to

> > > mention one thing to Chris.

> > >

> > > I had surgery in 1997 at age 50. The results

> were

> > far better than

> > I

> > > ever imagined they could be. I wish there had

> been

> > technology for

> > me

> > > such as they have today way back when I was a

> > young person.

> > >

> > > I know that the surgery is a real big deal, but

> it

> > is far better to

> > > have as a teen than as an adult.

> > >

> > > Also, the teens who have surgery now are

> restored

> > to an almost

> > > perfectly straight spine.

> > >

> > > Don't be afraid of the surgery. In fact, I would

> > campaign for the

> > > surgery because it is far easier to recover as a

> > teen, and the

> > > correction is so significant. It will wash away

> > all those years

> > > spent struggling with the brace.

> > >

> > > Jeanne

> > >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping