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The C word

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I agree, he should have done a little further research on the

subject, (jmo) he is clearly not educated on all of the issues that go along

with achalasia!! I do hope he educates himself and doesn’t tell

someone that they can be “cured”. If that were the case there

wouldn’t be much reason for this board now would there?

C Warren

Co-Founder

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of cynmark24@...

Sent: Friday, September 29, 2006 3:19 PM

achalasia

Subject: The " C " word

No, I'm not going to be talking about Cancer. You will recall

a couple of weeks ago a rather heated discussion took place on this Board as to

what Achalasia is. A disease, a disorder, a malfunction, a

condition, or whatever. I'm not going to revisit that discussion.

With Kia's insides being shown to the outside world, on TV, I

googled to see if there were any references to it. I came upon an

article published in December 2005 which really infuriated me (I guess it

doesn't take much to do so).

BBC - Health

- Ask the doctor - Achalasia

Dr. Rob Hicks was responding

to a question about achalasia, and concluded his response by saying the

following. The emphasized word in red was by me, and is the " C "

word.

" Performing an operation where the muscle is surgically cut

to prevent further obstruction can cure most

cases of achalasia. This operation is called a myotomy. "

Now, either he has a different definition for " cure " or

he did not know what he was talking about. A " cure " to

achalasia to me would be the restoring peristaltic motion in the esophagus and

an LES that opens and shuts when it is supposed to. I am not aware of any

such operation that can do that, nor is Dr. Rob. I don't think anyone on

this Board has ever considered themselves " cured. "

My point in presenting this is that many of us, at one point in

time, took it for granted that doctors knew what they were talking about.

The above quote can be very misleading, causing a person to think that they can

have a myotomy, be cured, then never have to worry again about achalasia.

We all know otherwise.

In his defense, maybe Dr. Hicks could not think of a more

appropriate word to use, but he should have.

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I'm in complete agreement, and I sent them a complaint via their website's complaints page to that effect. I wrote:--------------------------------------------The doctor who wrote this answer and the doctor who "reviewed" it last year are both uneducated in what achalasia is.

The description of what achalasia consists of is woefully inadequate, and the treatment of surgical myotomy being described as a "cure" is absolutely false. Achalasia cannot be cured. The symptoms can be reduced in most cases, but the proper functioning of the esophagus and sphincter muscle cannot be reinstated as of the year 2006.

If you are going to include medical information, even general medical information, you have an obligation to your audience to include ACCURATE and COMPLETE information to your readers. A simple "google" search can provide you with dozens (if not hundreds) of better answers than the one provided by your "medical personnel" on the website.

--------------------------------------------

I doubt that they'll actually do anything about it with just one complaint, but at least I felt better after hitting "submit"!

If anyone wants to join the cause, go to: http://www.bbc.co.uk/complaints/make_complaint_step1.shtml and click "make an official complaint" and follow the prompts.Debbi in Michigan

PS -- I also feel like posting another complaint on the BBC website telling them that "N. America" is NOT a country, it is a continent!!!! ;o)

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Well, you know me, .... shy, reserved, afraid to say what I'm really thinking/feeling....LOL

Pepto-Pink Debbi

Debbi,Girl you crack me up. You tell em!!!!!! C Warren

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  • 11 months later...

I know we have been quite a few new people here and I just wanted to

gently remind everyone know that we don't discuss chiropractors here

and what they do or don't do.

This group is for the discussion of established medical options like

surgery. This was established when the group was formed quite a few

years ago and it's kept the conflicts out. So lets just keep it that

way and try to refrain from using the C word.

Sorry for the somewhat terse message... I am in severe pain again and

it's hurts just to sit.

Moderator

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