Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 As always, thank you . Krysi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 I've posted before about my recent revision surgery that included fusing me to my sacrum. That was back on Feb 4. Since that time I've been suffering with pain in my right side, up by my sacroiliac. Only way I don't have pain is if I spend most of my time lying in bed. Otherwise I take ocycontin. I thought that it wasn't right, because other than that one area, I feel all better. And only when I start moving, walking, whatever, does the pain start. So on June 2 I saw my xray and I have this really long screw, only on the right side, running right next to my illeum. When I didn't take any meds and went for a walk yesterday, just to see what my full amount of pain is, after 20 minutes I had such pain I was up most of the night even after I took medication. I feel prickly in various parts of my body which says to me that screw must be hitting nerves. My surgeon, who is in Phoenix, 6 hours from here, looked at the xray and said he doesn't see anything wrong and can't do anything without me coming in for an appointment. I said I just want the screw removed without all the traveling and expense, etc. Of course I don't have this option. I'm just wondering, has anyone who is fused to the sacrum seen their xray and remember anything about the screw placement? I know he said he placed this screw differently because I'm thin and he didn't want it protruding. But now I'm not knowing what to do. Go back to my original surgeon in Wisconsin? Go to the Baylor Scoliosis Institute in Texas? Live in pain and on pills? Has anyone ever had this issue after surgery? MA Recognizes National Scoliosis Awareness Month! This week, on Thursday, June 19th at 1pm the National Scoliosis Awareness Month will be officially recognized at the MA State House in Boston. Representative Nyman will host the event and ask his colleagues to join us. Chairs and a podium will be setup in front of the Grand Stairway. The awareness campaign and our two young patient spokespersons, Golden and Patellos will be featured. played a major role in our new school screening video currently in production and is an author of a new book on her scoliosis journey. She will be giving away several copies of her book at the event. Everyone is welcomed to join us so please invite your colleagues, fellow patients, family, friends etc and as many people as possible to help recognize National Scoliosis Awareness Month. There will be a group picture on the stairs at the end. Please bring your ID for security check at the entrance. Hope to see you there! We officially launched National Scoliosis Awareness Month on Monday, June 9th at the City Hall in Philadelphia. Mayor Nutter joined NSF President Joe O'Brien and Spokesperson Golden as PA Congresswoman Allyson Y. Schwartz presented the U.S. House of Representatives Proclamation. For further details and a copy of the Proclamation please go to www.scoliosis. org ------------ --------- --------- --------- - You are subscribed to this list as pattijohnson@ sbcglobal. net. To unsubscribe, send email to unsubscribe. 270724.217385213 .623753755087760 1872-pattijohnso n_sbcglobal. net@... ing.org. Our postal address is 5 Cabot Place Stoughton, Massachusetts 02072 United States Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 I had revision surgery last year in May. I was also fused to the sacrum. I have two long screws - one into each hip. Fortunately I have not had any problems but there are several that have had revision surgery that later had to have the screws into the pelvis removed due to pain. You need to be sure your fusion mass is solid before having the screw removed though. You will probably need to go back to your surgeon for removal. Peggy On Thu, Jun 19, 2008 at 9:48 PM, Randie Meyer <taknitlite@...> wrote: > I've posted before about my recent revision surgery that included fusing > me to my sacrum. That was back on Feb 4. Since that time I've been suffering > with pain in my right side, up by my sacroiliac. Only way I don't have pain > is if I spend most of my time lying in bed. Otherwise I take ocycontin. I > thought that it wasn't right, because other than that one area, I feel all > better. And only when I start moving, walking, whatever, does the pain > start. So on June 2 I saw my xray and I have this really long screw, only on > the right side, running right next to my illeum. When I didn't take any meds > and went for a walk yesterday, just to see what my full amount of pain is, > after 20 minutes I had such pain I was up most of the night even after I > took medication. I feel prickly in various parts of my body which says to me > that screw must be hitting nerves. My surgeon, who is in Phoenix, 6 hours > from here, looked at the xray and said he doesn't see anything wrong > and can't do anything without me coming in for an appointment. I said I > just want the screw removed without all the traveling and expense, etc. Of > course I don't have this option. > I'm just wondering, has anyone who is fused to the sacrum seen their xray > and remember anything about the screw placement? I know he said he placed > this screw differently because I'm thin and he didn't want it protruding. > But now I'm not knowing what to do. Go back to my original surgeon in > Wisconsin? Go to the Baylor Scoliosis Institute in Texas? Live in pain and > on pills? Has anyone ever had this issue after surgery? > > MA Recognizes National Scoliosis Awareness Month! > > This week, on Thursday, June 19th at 1pm the National Scoliosis Awareness > Month will be officially recognized at the MA State House in Boston. > > Representative Nyman will host the event and ask his colleagues to > join us. Chairs and a podium will be setup in front of the Grand Stairway. > > The awareness campaign and our two young patient spokespersons, > Golden and Patellos will be featured. played a major role in our > new school screening video currently in production and is an > author of a new book on her scoliosis journey. She will be giving away > several copies of her book at the event. > > Everyone is welcomed to join us so please invite your colleagues, fellow > patients, family, friends etc and as many people as possible to help > recognize National Scoliosis Awareness Month. There will be a group picture > on the stairs at the end. > > Please bring your ID for security check at the entrance. > > Hope to see you there! > > We officially launched National Scoliosis Awareness Month on Monday, June > 9th at the City Hall in Philadelphia. > > Mayor Nutter joined NSF President Joe O'Brien and Spokesperson > Golden as PA Congresswoman Allyson Y. Schwartz presented the U.S. > House of Representatives Proclamation. > > For further details and a copy of the Proclamation please go to > www.scoliosis. org > > ------------ --------- --------- --------- - > You are subscribed to this list as pattijohnson@ sbcglobal. net. To > unsubscribe, send email to unsubscribe. 270724.217385213 .623753755087760 > 1872-pattijohnso n_sbcglobal. net@... <net%40en.groundspr> > ing.org. > > Our postal address is > 5 Cabot Place > Stoughton, Massachusetts 02072 > United States > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Thank you so much for responding. I wish I could figure out how to attach the xray I have, but the screw that bothers me is so strange bc it's only on one side. I have 2 that go into the top part of my pelvis, and then this long one that goes down the right side by my illium. Have you seen your xray to know if this is something out of the ordinary? I'm glad to hear, though, that I'm not alone in this type of issue. I wonder if that means I'll have to wait a full 2 years to have it removed. That would suck. MA Recognizes National Scoliosis Awareness Month! > > This week, on Thursday, June 19th at 1pm the National Scoliosis Awareness > Month will be officially recognized at the MA State House in Boston. > > Representative Nyman will host the event and ask his colleagues to > join us. Chairs and a podium will be setup in front of the Grand Stairway. > > The awareness campaign and our two young patient spokespersons, > Golden and Patellos will be featured. played a major role in our > new school screening video currently in production and is an > author of a new book on her scoliosis journey. She will be giving away > several copies of her book at the event. > > Everyone is welcomed to join us so please invite your colleagues, fellow > patients, family, friends etc and as many people as possible to help > recognize National Scoliosis Awareness Month. There will be a group picture > on the stairs at the end. > > Please bring your ID for security check at the entrance. > > Hope to see you there! > > We officially launched National Scoliosis Awareness Month on Monday, June > 9th at the City Hall in Philadelphia. > > Mayor Nutter joined NSF President Joe O'Brien and Spokesperson > Golden as PA Congresswoman Allyson Y. Schwartz presented the U.S. > House of Representatives Proclamation. > > For further details and a copy of the Proclamation please go to > www.scoliosis. org > > ------------ --------- --------- --------- - > You are subscribed to this list as pattijohnson@ sbcglobal. net. To > unsubscribe, send email to unsubscribe. 270724.217385213 .623753755087760 > 1872-pattijohnso n_sbcglobal. net@... <net%40en.groundspr > > ing.org. > > Our postal address is > 5 Cabot Place > Stoughton, Massachusetts 02072 > United States > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Are you saying that you have one screw on one side and two on the other side? I just have one on each side. I've not heard of anyone with a third screw. Those that have had them removed have had to wait at least 6 months, sometimes a year for removal. Peggy On Wed, Jun 25, 2008 at 11:08 PM, Randie Meyer <taknitlite@...> wrote: > Thank you so much for responding. I wish I could figure out how to > attach the xray I have, but the screw that bothers me is so strange bc it's > only on one side. I have 2 that go into the top part of my pelvis, and then > this long one that goes down the right side by my illium. Have you seen your > xray to know if this is something out of the ordinary? I'm glad to hear, > though, that I'm not alone in this type of issue. I wonder if that means > I'll have to wait a full 2 years to have it removed. That would suck. > > MA Recognizes National Scoliosis Awareness Month! > > > > This week, on Thursday, June 19th at 1pm the National Scoliosis Awareness > > Month will be officially recognized at the MA State House in Boston. > > > > Representative Nyman will host the event and ask his colleagues to > > join us. Chairs and a podium will be setup in front of the Grand > Stairway. > > > > The awareness campaign and our two young patient spokespersons, > > Golden and Patellos will be featured. played a major role in > our > > new school screening video currently in production and is an > > author of a new book on her scoliosis journey. She will be giving away > > several copies of her book at the event. > > > > Everyone is welcomed to join us so please invite your colleagues, fellow > > patients, family, friends etc and as many people as possible to help > > recognize National Scoliosis Awareness Month. There will be a group > picture > > on the stairs at the end. > > > > Please bring your ID for security check at the entrance. > > > > Hope to see you there! > > > > We officially launched National Scoliosis Awareness Month on Monday, June > > 9th at the City Hall in Philadelphia. > > > > Mayor Nutter joined NSF President Joe O'Brien and Spokesperson > > Golden as PA Congresswoman Allyson Y. Schwartz presented the > U.S. > > House of Representatives Proclamation. > > > > For further details and a copy of the Proclamation please go to > > www.scoliosis. org > > > > ------------ --------- --------- --------- - > > You are subscribed to this list as pattijohnson@ sbcglobal. net. To > > unsubscribe, send email to unsubscribe. 270724.217385213 .623753755087760 > > 1872-pattijohnso n_sbcglobal. net@... <net%40en.groundspr><net%40en.groundspr > > > ing.org. > > > > Our postal address is > > 5 Cabot Place > > Stoughton, Massachusetts 02072 > > United States > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 Yes, basically that's how it is. I have two that go into the sacrum and one that runs down my right side, way down. I finally was able to speak with both of my surgeons and the word is I can have that screw removed after a full 9 months. So about 5 more to go. I guess it was put in for reinforcement since I didn't fuse last time. And apparently this causes discomfort more often in thin people and removal is not a big deal. In the meantime I can get a cortisone injection. I'm just so relieved! I'm not used to something having to do with my back turning out to be simple. MA Recognizes National Scoliosis Awareness Month! > > > > This week, on Thursday, June 19th at 1pm the National Scoliosis Awareness > > Month will be officially recognized at the MA State House in Boston. > > > > Representative Nyman will host the event and ask his colleagues to > > join us. Chairs and a podium will be setup in front of the Grand > Stairway. > > > > The awareness campaign and our two young patient spokespersons, > > Golden and Patellos will be featured. played a major role in > our > > new school screening video currently in production and is an > > author of a new book on her scoliosis journey. She will be giving away > > several copies of her book at the event. > > > > Everyone is welcomed to join us so please invite your colleagues, fellow > > patients, family, friends etc and as many people as possible to help > > recognize National Scoliosis Awareness Month. There will be a group > picture > > on the stairs at the end. > > > > Please bring your ID for security check at the entrance. > > > > Hope to see you there! > > > > We officially launched National Scoliosis Awareness Month on Monday, June > > 9th at the City Hall in Philadelphia. > > > > Mayor Nutter joined NSF President Joe O'Brien and Spokesperson > > Golden as PA Congresswoman Allyson Y. Schwartz presented the > U.S. > > House of Representatives Proclamation. > > > > For further details and a copy of the Proclamation please go to > > www.scoliosis. org > > > > ------------ --------- --------- --------- - > > You are subscribed to this list as pattijohnson@ sbcglobal. net. To > > unsubscribe, send email to unsubscribe. 270724.217385213 .623753755087760 > > 1872-pattijohnso n_sbcglobal. net@... <net%40en.groundspr ><net%40en. groundspr > > > ing.org. > > > > Our postal address is > > 5 Cabot Place > > Stoughton, Massachusetts 02072 > > United States > > > > Quote Link to comment Share on other sites More sharing options...
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