Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Hi ... I'm surprised that you said that your doctors are puzzled about your numbness. Is this post-surgical numbness? If so, it's extremely common. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Is the numbness we are talking about on the back? It has been 3 weeks since my surgery and I have a little bit of numbness on one side of my back where they put the rod. Is this common to get numbness on the back after surgery??? Thanks Suhani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Suhani... I think everyone who has scoliosis surgery has some degree of numbness. It can last for a long time, or even forever. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Hi Zeeshan.... I believe that both Shriners and ish Rite treat scoliosis patients under the age of 18 at no charge. Because of your age, you may have trouble finding treatment options in the US. You might want to contact FOCOS. FOCOS is a not-for-profit group that provides free complex spinal surgery in Ghana and Barbados. You can read about them at: http://www.orthofocos.org Good luck. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 I had Sx in 1989, for the past 5 years the numbness has gotten worse, yet the doc.s don't seem to know why. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 I feel I need to make my self more clear. The numbness I am experiencing started almost ten years after my Sx. This numbness comes and goes & is in my left arm and legs. My legs go dead at night and after sitting or standing for long periods of time. The numbness and tingling is so painful it wakes me up at night. I also experience weakness in my legs and knees, unsure of my balance when I first get up from sitting. In my left arm, I have severe pain in my neck down my shoulder and to my elbow. When the arm goes dead it is numb and tingling down to my last two fingers. I am now also starting to feel drooping on the left side of my face. I am wondering if another harrington rod/spinal fusion patient has experienced these symptoms. And if so, maybe share your Drs. name with me so I can find someone who is familiar with late stage complications in scoliosis. My Dr. now cant find reasons for the numbness or pain. *Also, for all the responses regarding numbness after Sx. I too had numbness on my back along my incision for close to a year after my Sx in 1989. I do understand that's normal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Northern California, Santa . But am willing to travel 50+ miles for a good Dr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Iamstellablue... Where are you located? -- IMSTELLABLUE@... wrote: > I am wondering if another harrington rod/spinal fusion patient has > experienced these symptoms. And if so, maybe share your Drs. name with me so > I can find someone who is familiar with late stage complications in > scoliosis. My Dr. now cant find reasons for the numbness or pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Imstellablue... Gray has an office in Santa . He did my surgery 11 years ago, and I had a good outcome. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 To StellaBlue My surgery was in 1992 and I, too, have numbness. I honestly think that, with all the curves we have, we probably have damage to discs that we don't even know about causing this. I'm not sure I want to know about ALL of it, since I'm sure that it isn't really something that can be corrected. It may even be some of the pain that we are treated for (chronic pain?). I recently had a partial MRI, since they could not do my whole spine, but what showed was sad. I just filed it away. My doctors are good and kind and would remove my hardware in a moment if I asked; I'm not sure I'm ready for that. If I can be somewhat comfortable and useful, I guess I will settle - at least for the most part. Have I given up? Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Carole, Where do you live? How old were you when you had your Sx? And what have you been doing to cope? Lots of Questions, hope to hear back from you soon. Stellablue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Hi Stellablue, Actually, I was 57 when I finally had surgery. To cope? Well, I've been to Pain Clinic, I've had counseling and I love this group! I do take pain meds and I have learned to (am learning to) prioritize activities that require physical activity. My husband has been a major help in this area of my life. He, more than anyone, sees what happens to me as the day wears on. God love him! How about you? Carole Quote Link to comment Share on other sites More sharing options...
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