Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi Sharon: You are the first person I've ever heard speak of costochondritis! I have had what I call sternum pain on and off for years, and was told it is costro. Do you have sternum pain? Since I've had the revision surgery on 4/05, I have not had the pain, and hope it never returns! Hope you feel better soon. Sincerely, ette sharonmnkns <sharonmnkns@...> wrote:I have had 2 major spinal surgeries this past 2 yrs. due to scoliosis in the L1-L5 S1 to where they had placed the rods, screws, fusions and cages. I was diagnosed with Costochondritis in 3/05 and soon after with Fibro. I have never heard of either Fibro or Costo until now for it was just a forgein word to me. I didn't understand all this until I explored all the info I have found. I just typed the words in the computor and there's alot of info out there. I have found that there is some connection with scoliosis and this fibro stuff. With being born with scoliosis, Fibro also seems to attack the boney structures in our body along with alot of other systems that Fibro carries within itself! Fibro is also a problem with the Central Nervous System that has 18 trigger points in our bodies as in the neck, base of skull, shoulders, elbows, upper thieghs, mid back, knees, 2nd rib, and butt locks. It causes one to feel pain, numbness and tingling within our bodies. It all can cause one to become dizzy, short term memory loss, slurred words, headackes, fatigue, neausa, senitivities to smell, wheather change, lighting, senitivity to medication and alot more. It is a real problem that alot of other's don't understand. Go on the internet and look up Fibro and the causes and systems. The only thing I can say is educate yourself so you can have an understaning of Fibro. Listen to your body and pace yourself. I have found with me through my recovery with the spinal surgeries which is still hard that this Fibro is the worst. I don't want to scare you for all I said here is what I have read. I hope soon you will find your answers. Sharon --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Hi Sharon....my daughter had surgery 2 years ago and was diagnosed with severe fibromyalgia by Dr , Carmell knows him, here in Utah. He sent us to a wonderful pain management person who hopefully will get her on the right meds.....HOWEVER....this pain doc also said what we have thought all along....and finally it was said outloud....short and simple..nerves were cut during surgery that are causing her this much pain. She needed the operation and the scoli was corrected but she was left with nerve damage. Jess Present Moment, Wonderful Moment. Thich Nhat Hanh __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 a and Sharon, Thanks for the term, costochondritis. I've never heard it before and after googling it I realize that's what I have but never had the label. Over 20 years ago I first experienced 'chest pain' but didn't think it was a heart attack. My obgyn sent me to an internist and he dismissed it as muscularsketelal pain caused my scoliosis. I was told to take an aspirin and don't think about it. Ten years later that muscularsketal pain was labeled fibromyalgia, but the chest pain was just thrown into the mix of symptoms. Interesting enough the first internist didn't believe there was a condition called fibromyalgia. I have found that heat helps relief some of the pain temporarily. .. instinctually I hold my coffee cup on the sternum for relief. I also find that sleeping on my side I can bring on that pain. Thanks for the education. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 That is interesting. How often do you have chest pains? Does it feel like a tightening in your chest? I'm curious because i have had that but i always dismissed it for something else like indigestion. I get these pains in my chest so bad to the point that it really feels someone is squeezing my chest and no matter what i do NOTHING helps. The weird thing is, is that it i will have a couple over a few weeks then i won't have it happen for awhile. Buttonjo@... wrote:a and Sharon, Thanks for the term, costochondritis. I've never heard it before and after googling it I realize that's what I have but never had the label. Over 20 years ago I first experienced 'chest pain' but didn't think it was a heart attack. My obgyn sent me to an internist and he dismissed it as muscularsketelal pain caused my scoliosis. I was told to take an aspirin and don't think about it. Ten years later that muscularsketal pain was labeled fibromyalgia, but the chest pain was just thrown into the mix of symptoms. Interesting enough the first internist didn't believe there was a condition called fibromyalgia. I have found that heat helps relief some of the pain temporarily. .. instinctually I hold my coffee cup on the sternum for relief. I also find that sleeping on my side I can bring on that pain. Thanks for the education. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 Lorilyn, For me the costrochondritis feels like someone has hit me in the rib area between the breasts with a fast thrown softball. Mine is not a sharp pain but a radiating ache about 4 inches wide. When my fibromyaliga's chronic fatigue hits at the same time it feels like a sumo wrestler sitting on my chest daring me to breathe. It can last for days or in severe flares for weeks. It can end as abruptly as it begins. Jolene Quote Link to comment Share on other sites More sharing options...
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