CMT vs DPMN - to

[Guest guest]

, DPMN is a nervous system disorder that lies within the spinal canal at

the motor neuron, and is not a peripheral nerve disorder, even though some of

the symptoms are very much alike. My symptoms involve extremely weak legs and

hands, balance problems, walking difficulties, etc. My illness is most closely

compared to Lou Gerhig's Disease (ALS), but it is not fatal. My doctors stressed

to me the importance of not becoming diabetic, staying thin, to avoid potential

situations where I could fall, and to get to the doctor immediately upon any

type of upper respiratory illness for antibiotics. So far, my pulmonary tests

are very positive, and my bone density is good. I am 44 years old. My doctors

also told me that I would definitely lose my ability to walk, but could not

really give me a time frame. So, like all of you with CMT, I'm being stubborn

and don't want to give in to my illness. My biggest challenge, I think, is to

understand my limits and not overdo. Pushing too hard can make things worse - I

find it hard to find the middle of the road. Thanks for caring -