Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 >Subject: Re: Fermented honey and mead > >Do you know how long? I buy wine that I routinely store for years at a > >time. I have some port that don't plan on opening for another 20 years > >or so. It would be fun at trying my hand with some slow fermenting mead. > > >I think I let mine go for 6 months or so, and it was still sweet! >Which I guess is an advantage if you like sweet wine. >-- Heidi Check out this site.. I make cider, beer and vinegar and want to try mead this year as well. I turned the local home brew supply store onto this site a couple yrs ago and he's made some great meads. I do have a local source for unpasturized apple juce/cider. mead-request@... sa they say Cheers! Charlie _________________________________________________________________ The new MSN 8: advanced junk mail protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2003 Report Share Posted August 5, 2003 On Sun, 03 Aug 2003 23:21:27 -0400 " Day " <chastsr@...> wrote: > Check out this site.. I make cider, beer and vinegar and want to try mead > this year as well. I turned the local home brew supply store onto this site > a couple yrs ago and he's made some great meads. I do have a local source > for unpasturized apple juce/cider. > mead-request@... sa they say Cheers! Charlie > Hi , I see you email address but I don't see the sight you are referring too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 What's TMG? Louis > Message: 13 > Date: Wed, 29 Jun 2005 17:53:47 -0000 > From: invest99_2000 > Subject: Re: DIM Discussion - Louis > > Louis, > > Dr. Crisler also highly recommends taking the DIM with 750mg of > TMG to better assist the conversion of bad estrogens to good > estrogens. > > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.8.6/33 - Release Date: 6/28/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 As a child I remember being horrified when my doctor recommended spinal surgery for me. It was the Harrington rods back then, and I understand the procedure is much different now. However, I am glad my mother refused the surgery for me. I am glad I do not have memories of the surgery, the pain, and the psychological ramifications of being in the hospital away from my family. I hated hospitals and how doctors interacted with my body. I have scoliosis and have noticed my curve has progressed a little over the years with intermittent back pain. But nothing I need to take pham medicine for, because acupuncture, restorative yoga, nutrition, and aromatherapy has been very effective for me. I do use a vent to augment my breathing, and believe me I have more energy now than I did before it-and do more too. I've have thought about the fact that if I had had back surgery would I have had to use a vent. I have come to the realization and acceptance that not having any invasive procedures (not even the Achilles (sp) tendon surgery) has enabled me to like my body or have a greater sense of bodily integrity than other people w/disabilities who had many surgeries. I'll never forget or be thankful enough that my mother asked me what I thought. I, at 11, said no. She respected my feelings. Now, as a parent she faced tremendous pressure for the surgery, but I think she made the right decision and I like to shimmy for my husband. Of course, there is a distinction between medical necessity and elective preventive procedures, and in some cases the line gets blurred because the rational is if you don't do it what will happen. Then there is guilt and on it goes. For parents, all I can say is honor your kids feelings, and be blatantly honest of all the pro and cons. They will continue to live in their body, and have a right to be comfortable and feel whole. There are trade offs but like everything you make a decision and live with it. My two cents. Michai Freeman Holistic Health Educator --- wrote: > There are 14 messages in this issue. > > Topics in this digest: > > 1. Re: Scoliosis > From: " Taija Heinonen KOTI " > <taija.heinonen@...> > 2. Re: Scoliosis & " Older people " > From: Angie <angie@...> > 3. Emotional feelings and the SMA > From: " Felipe da Motta " > <felipe@...> > 4. Re: Emotional feelings and the SMA > From: " Alana " <alrt@...> > 5. NYT: Computer Technology Opens a World of > Work to Disabled People > From: " Alana " <alrt@...> > 6. Re: Re: Emotional feelings and the SMA > From: " Felipe da Motta " > <felipe@...> > 7. Re: Re: Emotional feelings and the SMA > From: Stride <stride@...> > 8. Re: Re: Emotional feelings and the SMA > From: " Felipe da Motta " > <felipe@...> > 9. Re: Re: Emotional feelings and the SMA > From: Stride <stride@...> > 10. Re: Scoliosis > From: > <bukitindah27@...> > 11. Re: Re: is this an issue in other > countries? > From: Those Two <those2@...> > 12. Re: Scoliosis & " Older people " > From: Those Two <those2@...> > 13. Re: Scoliosis > From: Those Two <those2@...> > 14. Re: Sexual feelings and the SMA > From: Angie <angie@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Mon, 6 Mar 2006 19:26:53 +0200 > From: " Taija Heinonen KOTI " > <taija.heinonen@...> > Subject: Re: Scoliosis > > Hi > > Most people with SMA type II have had spinal surgery > - that is, adults or > young adults who are today in their 20's or younger. > (Older people did not > always have that option.) > > I have SMA type II, been sitting in a powered > wheelchair all my life, 36 > years old, and have had spinal surgery. > > So based on your daughter's diagnosis alone, one > cannot say with certainty > whether she'll need spinal surgery or not. Is she in > a wheelchair? Is she > able to use her arms any? How much trunk control > does she have? Does she > already have visible curvature? Those are some of > the issues that have an > effect on this. > > smiles > Taya > Scoliosis > > > > Hi, > > Can someone please advise with me if scoliosis is > one that every SMA'er > > will have eventually or surgery is a must. tq, > (mother of 7 with SMA > > 2). > > > > > > > > --------------------------------- > > > > Use Photomail to share photos without annoying > attachments. > > > > [Non-text portions of this message have been > removed] > > > > > > > > A FEW RULES > > > > * The list members come from many backgrounds, > ages and beliefs So all > > members most be tolerant and respectful to all > members. > > > > * Some adult language and topics (like sexual > health, swearing..) may > > occur occasionally in emails. Over use of > inappropriate language will > > not be allowed. If your under 16 ask your > parents/gaurdian before you > > join the list. > > > > * No SPAMMING or sending numerous emails unrelated > to the topics of > > spinal muscular atrophy, health, and the daily > issues of the disabled. > > > > Post message: > > Subscribe: -subscribe > > Unsubscribe: > -unsubscribe > > > > List manager: (Sexy Mature Artist) Email: > Esma1999@... > > > > > > > > > > oogroups.com > > > > List manager: (Sexy Mature Artist) Email: > Esma1999@... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 WHAT PAIN??? I had Harrington rods put in and had NO PAIN!!!!!! It was my decision at the age of 9.5yrs old, ten when the surgery took place. Please stop assuming pain is involved .... now I had some discomfort, but that was just where the wire stitches were. No PAIN anywhere in my back or hips. I truly think the earlier the better and only if the curvature is very noticible and health-invasive. Ideally when your strong enough respiratorily wise and at the age where growth is slowed down, say 10-15yrs old. It doesn't mean being vented or trached automatically not if your lungs are strong and you've no negative reaction to the sleep-gas. My memories were mixed; good and bad, but not traumatizing. Maybe I was lucky: good hospital, great surgeon and excellent parents. Angie On Wednesday 08 March 2006 04:09, lilypad6425 wrote: > As a child I remember being horrified when my doctor > recommended spinal surgery for me. It was the > Harrington rods back then, and I understand the > procedure is much different now. However, I am glad my > mother refused the surgery for me. I am glad I do not > have memories of the surgery, the pain, and the > psychological ramifications of being in the hospital > away from my family. I hated hospitals and how doctors > interacted with my body. I have scoliosis and have > noticed my curve has progressed a little over the > years with intermittent back pain. But nothing I need > to take pham medicine for, because acupuncture, > restorative yoga, nutrition, and aromatherapy has been > very effective for me. I do use a vent to augment my > breathing, and believe me I have more energy now than > I did before it-and do more too. > > I've have thought about the fact that if I had had > back surgery would I have had to use a vent. I have > come to the realization and acceptance that not having > any invasive procedures (not even the Achilles (sp) > tendon surgery) has enabled me to like my body or have > a greater sense of bodily integrity than other people > w/disabilities who had many surgeries. I'll never > forget or be thankful enough that my mother asked me > what I thought. I, at 11, said no. She respected my > feelings. Now, as a parent she faced tremendous > pressure for the surgery, but I think she made the > right decision and I like to shimmy for my husband. Of > course, there is a distinction between medical > necessity and elective preventive procedures, and in > some cases the line gets blurred because the rational > is if you don't do it what will happen. Then there is > guilt and on it goes. For parents, all I can say is > honor your kids feelings, and be blatantly honest of > all the pro and cons. They will continue to live in > their body, and have a right to be comfortable and > feel whole. > > There are trade offs but like everything you make a > decision and live with it. > > My two cents. > Michai Freeman > Holistic Health Educator > > --- wrote: > > There are 14 messages in this issue. > > > > Topics in this digest: > > > > 1. Re: Scoliosis > > From: " Taija Heinonen KOTI " > > <taija.heinonen@...> > > 2. Re: Scoliosis & " Older people " > > From: Angie <angie@...> > > 3. Emotional feelings and the SMA > > From: " Felipe da Motta " > > <felipe@...> > > 4. Re: Emotional feelings and the SMA > > From: " Alana " <alrt@...> > > 5. NYT: Computer Technology Opens a World of > > Work to Disabled People > > From: " Alana " <alrt@...> > > 6. Re: Re: Emotional feelings and the SMA > > From: " Felipe da Motta " > > <felipe@...> > > 7. Re: Re: Emotional feelings and the SMA > > From: Stride <stride@...> > > 8. Re: Re: Emotional feelings and the SMA > > From: " Felipe da Motta " > > <felipe@...> > > 9. Re: Re: Emotional feelings and the SMA > > From: Stride <stride@...> > > 10. Re: Scoliosis > > From: > > <bukitindah27@...> > > 11. Re: Re: is this an issue in other > > countries? > > From: Those Two <those2@...> > > 12. Re: Scoliosis & " Older people " > > From: Those Two <those2@...> > > 13. Re: Scoliosis > > From: Those Two <those2@...> > > 14. Re: Sexual feelings and the SMA > > From: Angie <angie@...> > > ________________________________________________________________________ > > ________________________________________________________________________ > > > Message: 1 > > Date: Mon, 6 Mar 2006 19:26:53 +0200 > > From: " Taija Heinonen KOTI " > > <taija.heinonen@...> > > Subject: Re: Scoliosis > > > > Hi > > > > Most people with SMA type II have had spinal surgery > > - that is, adults or > > young adults who are today in their 20's or younger. > > (Older people did not > > always have that option.) > > > > I have SMA type II, been sitting in a powered > > wheelchair all my life, 36 > > years old, and have had spinal surgery. > > > > So based on your daughter's diagnosis alone, one > > cannot say with certainty > > whether she'll need spinal surgery or not. Is she in > > a wheelchair? Is she > > able to use her arms any? How much trunk control > > does she have? Does she > > already have visible curvature? Those are some of > > the issues that have an > > effect on this. > > > > smiles > > Taya > > Scoliosis > > > > > Hi, > > > Can someone please advise with me if scoliosis is > > > > one that every SMA'er > > > > > will have eventually or surgery is a must. tq, > > > > (mother of 7 with SMA > > > > > 2). > > > > > > > > > > > > --------------------------------- > > > > > > Use Photomail to share photos without annoying > > > > attachments. > > > > > [Non-text portions of this message have been > > > > removed] > > > > > A FEW RULES > > > > > > * The list members come from many backgrounds, > > > > ages and beliefs So all > > > > > members most be tolerant and respectful to all > > > > members. > > > > > * Some adult language and topics (like sexual > > > > health, swearing..) may > > > > > occur occasionally in emails. Over use of > > > > inappropriate language will > > > > > not be allowed. If your under 16 ask your > > > > parents/gaurdian before you > > > > > join the list. > > > > > > * No SPAMMING or sending numerous emails unrelated > > > > to the topics of > > > > > spinal muscular atrophy, health, and the daily > > > > issues of the disabled. > > > > > Post message: > > > Subscribe: -subscribe > > > Unsubscribe: > > > > -unsubscribe > > > > > List manager: (Sexy Mature Artist) Email: > > > > Esma1999@... > > > > > oogroups.com > > > > > > List manager: (Sexy Mature Artist) Email: > > > > Esma1999@... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I had my spinal fusion at age 14. It, too, was my choice and everything went fine. Unfortunately, I am still suffering to this day with neural pains throughout my back and hips. I have been unable to find a pill to alleviate the pain and still allow me to function on a normal level. In the past I have found acupuncture, acupressure and stress relaxation techniques help greatly. I am now using acupuncture, water pressure techniques and herbal remedies with success. I had went back to my surgeon years later and discussed why I am experiencing pain when everything is fine. He told me, and I also researched further, that in patients who are very thin there is a chance that there is pain associated with the area for years later and it is undetermined why this occurs but possibly just the fact that there is little room inside of the body cavity and so that rods may be touching nerves or muscles that feel differently for each patients. However, I believe Michai was referring more to the pain associated with the actual surgery. Perhaps you were drugged well or cannot remember since it was such a long time ago, but there is a great deal of pain with any invasive procedure. I opted to not drugs after my surgery besides the one week morphine and then codeine while in the hospital. After being home, I didn't want that responsibility of taking drugs and dealing with the effects. I used OTC pain relievers and there was quite a lot of pain when trying to move after the surgery. <3Kendra > > > There are 14 messages in this issue. > > > > > > Topics in this digest: > > > > > > 1. Re: Scoliosis > > > From: " Taija Heinonen KOTI " > > > <taija.heinonen@...> > > > 2. Re: Scoliosis & " Older people " > > > From: Angie <angie@...> > > > 3. Emotional feelings and the SMA > > > From: " Felipe da Motta " > > > <felipe@...> > > > 4. Re: Emotional feelings and the SMA > > > From: " Alana " <alrt@...> > > > 5. NYT: Computer Technology Opens a World of > > > Work to Disabled People > > > From: " Alana " <alrt@...> > > > 6. Re: Re: Emotional feelings and the SMA > > > From: " Felipe da Motta " > > > <felipe@...> > > > 7. Re: Re: Emotional feelings and the SMA > > > From: Stride <stride@...> > > > 8. Re: Re: Emotional feelings and the SMA > > > From: " Felipe da Motta " > > > <felipe@...> > > > 9. Re: Re: Emotional feelings and the SMA > > > From: Stride <stride@...> > > > 10. Re: Scoliosis > > > From: > > > <bukitindah27@...> > > > 11. Re: Re: is this an issue in other > > > countries? > > > From: Those Two <those2@...> > > > 12. Re: Scoliosis & " Older people " > > > From: Those Two <those2@...> > > > 13. Re: Scoliosis > > > From: Those Two <those2@...> > > > 14. Re: Sexual feelings and the SMA > > > From: Angie <angie@...> > > > > ________________________________________________________________________ > > > > ________________________________________________________________________ > > > > > Message: 1 > > > Date: Mon, 6 Mar 2006 19:26:53 +0200 > > > From: " Taija Heinonen KOTI " > > > <taija.heinonen@...> > > > Subject: Re: Scoliosis > > > > > > Hi > > > > > > Most people with SMA type II have had spinal surgery > > > - that is, adults or > > > young adults who are today in their 20's or younger. > > > (Older people did not > > > always have that option.) > > > > > > I have SMA type II, been sitting in a powered > > > wheelchair all my life, 36 > > > years old, and have had spinal surgery. > > > > > > So based on your daughter's diagnosis alone, one > > > cannot say with certainty > > > whether she'll need spinal surgery or not. Is she in > > > a wheelchair? Is she > > > able to use her arms any? How much trunk control > > > does she have? Does she > > > already have visible curvature? Those are some of > > > the issues that have an > > > effect on this. > > > > > > smiles > > > Taya > > > Scoliosis > > > > > > > Hi, > > > > Can someone please advise with me if scoliosis is > > > > > > one that every SMA'er > > > > > > > will have eventually or surgery is a must. tq, > > > > > > (mother of 7 with SMA > > > > > > > 2). > > > > > > > > > > > > > > > > --------------------------------- > > > > > > > > Use Photomail to share photos without annoying > > > > > > attachments. > > > > > > > [Non-text portions of this message have been > > > > > > removed] > > > > > > > A FEW RULES > > > > > > > > * The list members come from many backgrounds, > > > > > > ages and beliefs So all > > > > > > > members most be tolerant and respectful to all > > > > > > members. > > > > > > > * Some adult language and topics (like sexual > > > > > > health, swearing..) may > > > > > > > occur occasionally in emails. Over use of > > > > > > inappropriate language will > > > > > > > not be allowed. If your under 16 ask your > > > > > > parents/gaurdian before you > > > > > > > join the list. > > > > > > > > * No SPAMMING or sending numerous emails unrelated > > > > > > to the topics of > > > > > > > spinal muscular atrophy, health, and the daily > > > > > > issues of the disabled. > > > > > > > Post message: > > > > Subscribe: -subscribe > > > > Unsubscribe: > > > > > > -unsubscribe > > > > > > > List manager: (Sexy Mature Artist) Email: > > > > > > Esma1999@... > > > > > > > oogroups.com > > > > > > > > List manager: (Sexy Mature Artist) Email: > > > > > > Esma1999@... > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi All, Regarding scoliosis, it seems that we all think that what happened to us was the best choice. Me, I really had the recurring pneumonia when I wore the back brace and modifying the brace did not help any. For me, the operation was not all that terrible, I woke from anesthesia in no time at all and the benefit definitely outweighed the risks. Angie wrote " only if the curvature is very noticible and health-invasive. " If the curvature is not noticeable then it probably is not health invasive and you don't need the surgery. But note that the curvature can worsen rapidly when you are growing so it is also important anticipate things. Regarding age. " Ideally when you are strong enough respiratorily wise and at the age where growth is slowed down, say 10-15yrs old. " and there I fully agree. I had a friend who had the surgery in her 20's and she has today terrible pain in her hips. Anesthesia is not as dangerous to people with SMA as it is to people with some other form of muscular disease. These are my 2 Euro cents Taya Scoliosis > > > > > Hi, > > > Can someone please advise with me if scoliosis is > > > > one that every SMA'er > > > > > will have eventually or surgery is a must. tq, > > > > (mother of 7 with SMA > > > > > 2). > > > > > > > > > > > > --------------------------------- > > > > > > Use Photomail to share photos without annoying > > > > attachments. > > > > > [Non-text portions of this message have been > > > > removed] > > > > > A FEW RULES > > > > > > * The list members come from many backgrounds, > > > > ages and beliefs So all > > > > > members most be tolerant and respectful to all > > > > members. > > > > > * Some adult language and topics (like sexual > > > > health, swearing..) may > > > > > occur occasionally in emails. Over use of > > > > inappropriate language will > > > > > not be allowed. If your under 16 ask your > > > > parents/gaurdian before you > > > > > join the list. > > > > > > * No SPAMMING or sending numerous emails unrelated > > > > to the topics of > > > > > spinal muscular atrophy, health, and the daily > > > > issues of the disabled. > > > > > Post message: > > > Subscribe: -subscribe > > > Unsubscribe: > > > > -unsubscribe > > > > > List manager: (Sexy Mature Artist) Email: > > > > Esma1999@... > > > > > oogroups.com > > > > > > List manager: (Sexy Mature Artist) Email: > > > > Esma1999@... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Nope, no major drugs either, LOL. I am petitte too (5ft 1in barely 100lbs), so maybe it is all in the skilled hands of the surgeon. I have no nerve damage just a few numb spots were the incision is. My surgery did take 7hrs to do. How long was yours? My recovery took 6 months. How long did you take? Just curious? Angie On Wednesday 08 March 2006 14:11, Kendra wrote: > I had my spinal fusion at age 14. It, too, was my choice and > everything went fine. Unfortunately, I am still suffering to this day > with neural pains throughout my back and hips. I have been unable to > find a pill to alleviate the pain and still allow me to function on a > normal level. In the past I have found acupuncture, acupressure and > stress relaxation techniques help greatly. I am now using acupuncture, > water pressure techniques and herbal remedies with success. > > I had went back to my surgeon years later and discussed why I am > experiencing pain when everything is fine. He told me, and I also > researched further, that in patients who are very thin there is a > chance that there is pain associated with the area for years later and > it is undetermined why this occurs but possibly just the fact that > there is little room inside of the body cavity and so that rods may be > touching nerves or muscles that feel differently for each patients. > > However, I believe Michai was referring more to the pain associated > with the actual surgery. Perhaps you were drugged well or cannot > remember since it was such a long time ago, but there is a great deal > of pain with any invasive procedure. I opted to not drugs after my > surgery besides the one week morphine and then codeine while in the > hospital. After being home, I didn't want that responsibility of > taking drugs and dealing with the effects. I used OTC pain relievers > and there was quite a lot of pain when trying to move after the surgery. > > <3Kendra > > > > > > There are 14 messages in this issue. > > > > > > > > Topics in this digest: > > > > > > > > 1. Re: Scoliosis > > > > From: " Taija Heinonen KOTI " > > > > <taija.heinonen@...> > > > > 2. Re: Scoliosis & " Older people " > > > > From: Angie <angie@...> > > > > 3. Emotional feelings and the SMA > > > > From: " Felipe da Motta " > > > > <felipe@...> > > > > 4. Re: Emotional feelings and the SMA > > > > From: " Alana " <alrt@...> > > > > 5. NYT: Computer Technology Opens a World of > > > > Work to Disabled People > > > > From: " Alana " <alrt@...> > > > > 6. Re: Re: Emotional feelings and the SMA > > > > From: " Felipe da Motta " > > > > <felipe@...> > > > > 7. Re: Re: Emotional feelings and the SMA > > > > From: Stride <stride@...> > > > > 8. Re: Re: Emotional feelings and the SMA > > > > From: " Felipe da Motta " > > > > <felipe@...> > > > > 9. Re: Re: Emotional feelings and the SMA > > > > From: Stride <stride@...> > > > > 10. Re: Scoliosis > > > > From: > > > > <bukitindah27@...> > > > > 11. Re: Re: is this an issue in other > > > > countries? > > > > From: Those Two <those2@...> > > > > 12. Re: Scoliosis & " Older people " > > > > From: Those Two <those2@...> > > > > 13. Re: Scoliosis > > > > From: Those Two <those2@...> > > > > 14. Re: Sexual feelings and the SMA > > > > From: Angie <angie@...> > > ________________________________________________________________________ > > > ________________________________________________________________________ > > > > > Message: 1 > > > > Date: Mon, 6 Mar 2006 19:26:53 +0200 > > > > From: " Taija Heinonen KOTI " > > > > <taija.heinonen@...> > > > > Subject: Re: Scoliosis > > > > > > > > Hi > > > > > > > > Most people with SMA type II have had spinal surgery > > > > - that is, adults or > > > > young adults who are today in their 20's or younger. > > > > (Older people did not > > > > always have that option.) > > > > > > > > I have SMA type II, been sitting in a powered > > > > wheelchair all my life, 36 > > > > years old, and have had spinal surgery. > > > > > > > > So based on your daughter's diagnosis alone, one > > > > cannot say with certainty > > > > whether she'll need spinal surgery or not. Is she in > > > > a wheelchair? Is she > > > > able to use her arms any? How much trunk control > > > > does she have? Does she > > > > already have visible curvature? Those are some of > > > > the issues that have an > > > > effect on this. > > > > > > > > smiles > > > > Taya > > > > Scoliosis > > > > > > > > > Hi, > > > > > Can someone please advise with me if scoliosis is > > > > > > > > one that every SMA'er > > > > > > > > > will have eventually or surgery is a must. tq, > > > > > > > > (mother of 7 with SMA > > > > > > > > > 2). > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > > > > > > Use Photomail to share photos without annoying > > > > > > > > attachments. > > > > > > > > > [Non-text portions of this message have been > > > > > > > > removed] > > > > > > > > > A FEW RULES > > > > > > > > > > * The list members come from many backgrounds, > > > > > > > > ages and beliefs So all > > > > > > > > > members most be tolerant and respectful to all > > > > > > > > members. > > > > > > > > > * Some adult language and topics (like sexual > > > > > > > > health, swearing..) may > > > > > > > > > occur occasionally in emails. Over use of > > > > > > > > inappropriate language will > > > > > > > > > not be allowed. If your under 16 ask your > > > > > > > > parents/gaurdian before you > > > > > > > > > join the list. > > > > > > > > > > * No SPAMMING or sending numerous emails unrelated > > > > > > > > to the topics of > > > > > > > > > spinal muscular atrophy, health, and the daily > > > > > > > > issues of the disabled. > > > > > > > > > Post message: > > > > > Subscribe: -subscribe > > > > > Unsubscribe: > > > > > > > > -unsubscribe > > > > > > > > > List manager: (Sexy Mature Artist) Email: > > > > > > > > Esma1999@... > > > > > > > > > oogroups.com > > > > > > > > > > List manager: (Sexy Mature Artist) Email: > > > > > > > > Esma1999@... > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Ditto. Only for me, it was Luque rods at the age of 11. It was left up to me to decide. But yes, great hospital, supportive staff, super docs, and awesome parents. Blessings, Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I was 4'7 " at 32 pounds. My surgery took 12 hours and I had a 3 week recovery period. It isn't nerve damage that I suffer, it's neural pain. <3Kendra > > > > > There are 14 messages in this issue. > > > > > > > > > > Topics in this digest: > > > > > > > > > > 1. Re: Scoliosis > > > > > From: " Taija Heinonen KOTI " > > > > > <taija.heinonen@> > > > > > 2. Re: Scoliosis & " Older people " > > > > > From: Angie <angie@> > > > > > 3. Emotional feelings and the SMA > > > > > From: " Felipe da Motta " > > > > > <felipe@> > > > > > 4. Re: Emotional feelings and the SMA > > > > > From: " Alana " <alrt@> > > > > > 5. NYT: Computer Technology Opens a World of > > > > > Work to Disabled People > > > > > From: " Alana " <alrt@> > > > > > 6. Re: Re: Emotional feelings and the SMA > > > > > From: " Felipe da Motta " > > > > > <felipe@> > > > > > 7. Re: Re: Emotional feelings and the SMA > > > > > From: Stride <stride@> > > > > > 8. Re: Re: Emotional feelings and the SMA > > > > > From: " Felipe da Motta " > > > > > <felipe@> > > > > > 9. Re: Re: Emotional feelings and the SMA > > > > > From: Stride <stride@> > > > > > 10. Re: Scoliosis > > > > > From: > > > > > <bukitindah27@> > > > > > 11. Re: Re: is this an issue in other > > > > > countries? > > > > > From: Those Two <those2@> > > > > > 12. Re: Scoliosis & " Older people " > > > > > From: Those Two <those2@> > > > > > 13. Re: Scoliosis > > > > > From: Those Two <those2@> > > > > > 14. Re: Sexual feelings and the SMA > > > > > From: Angie <angie@> > > > > ________________________________________________________________________ > > > > > > ________________________________________________________________________ > > > > > > > Message: 1 > > > > > Date: Mon, 6 Mar 2006 19:26:53 +0200 > > > > > From: " Taija Heinonen KOTI " > > > > > <taija.heinonen@> > > > > > Subject: Re: Scoliosis > > > > > > > > > > Hi > > > > > > > > > > Most people with SMA type II have had spinal surgery > > > > > - that is, adults or > > > > > young adults who are today in their 20's or younger. > > > > > (Older people did not > > > > > always have that option.) > > > > > > > > > > I have SMA type II, been sitting in a powered > > > > > wheelchair all my life, 36 > > > > > years old, and have had spinal surgery. > > > > > > > > > > So based on your daughter's diagnosis alone, one > > > > > cannot say with certainty > > > > > whether she'll need spinal surgery or not. Is she in > > > > > a wheelchair? Is she > > > > > able to use her arms any? How much trunk control > > > > > does she have? Does she > > > > > already have visible curvature? Those are some of > > > > > the issues that have an > > > > > effect on this. > > > > > > > > > > smiles > > > > > Taya > > > > > Scoliosis > > > > > > > > > > > Hi, > > > > > > Can someone please advise with me if scoliosis is > > > > > > > > > > one that every SMA'er > > > > > > > > > > > will have eventually or surgery is a must. tq, > > > > > > > > > > (mother of 7 with SMA > > > > > > > > > > > 2). > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > > > > > > > > Use Photomail to share photos without annoying > > > > > > > > > > attachments. > > > > > > > > > > > [Non-text portions of this message have been > > > > > > > > > > removed] > > > > > > > > > > > A FEW RULES > > > > > > > > > > > > * The list members come from many backgrounds, > > > > > > > > > > ages and beliefs So all > > > > > > > > > > > members most be tolerant and respectful to all > > > > > > > > > > members. > > > > > > > > > > > * Some adult language and topics (like sexual > > > > > > > > > > health, swearing..) may > > > > > > > > > > > occur occasionally in emails. Over use of > > > > > > > > > > inappropriate language will > > > > > > > > > > > not be allowed. If your under 16 ask your > > > > > > > > > > parents/gaurdian before you > > > > > > > > > > > join the list. > > > > > > > > > > > > * No SPAMMING or sending numerous emails unrelated > > > > > > > > > > to the topics of > > > > > > > > > > > spinal muscular atrophy, health, and the daily > > > > > > > > > > issues of the disabled. > > > > > > > > > > > Post message: > > > > > > Subscribe: -subscribe > > > > > > Unsubscribe: > > > > > > > > > > -unsubscribe > > > > > > > > > > > List manager: (Sexy Mature Artist) Email: > > > > > > > > > > Esma1999@ > > > > > > > > > > > oogroups.com > > > > > > > > > > > > List manager: (Sexy Mature Artist) Email: > > > > > > > > > > Esma1999@ > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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