Invisable Disability

[Guest guest]

" I see one more mountain to climb first (speaking in metaphors

there as I fall much better then I climb) "

LOL ! I was laughing too hard on that one. I can totally

relate to you and the other lady who wrote about her active

husband and kids. I feel like such a party pooper sometimes.

My dh tries to understand, but the kids are clueless. Things

that I used to do with ease 15-20 years ago, are just not so

easy anymore. One of dd's got a paper route in our neighborhood

and we insist that she have someone walk with her for safety

reasons. There are some days when there's no one but me to go

with her, and I do it, but by the time I get home from walking

the 5 blocks with her I can barely walk that evening. Dh says

he will do it, and he does most of the time (thank goodness),

but It bugs me that I used to be able to do it 5 years ago and

now I just can't. Even simple things like stirring gravy tires

my arms--which just seems too hard for anyone in my family to

understand because I look " normal " . This is not a " fair "

disease at all. At least some of the other neuromuscular

diseases cause deformities that look disabling as well as cause

the disability. People look at you like, " What's wrong with

you? " And I get tired of complaining all the time and

" whining " as my dh puts it. I try to pace myself but with 6

kids and a husband that's not always easy to do. Any

suggestions about how to " convince " others of your disablility

without whining would be appreciated here!