Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Hello everybody. I am new to this forum and was wondering if anyone out there can help. I have copied an email I sent to Sheila which should go most of the way to detailing my symptoms. I have had the fatigue problem for over 10 years; Hi Sheila, I hope you dont mind me contacting you again but it is just to say that I went to my doctor on Monday (27th Jan) and he was not too pleased with me. I had showed him the email you sent and he responded by telling me that the endocronologist I had seen around 9 months ago (Professor Wass of the Radcliffe hospital) was convinced my Thyroid was normal and that he would have done more tests if he suspected anything amis. I can't actually remember Professor Wass doing tests on my thyroid but the result of the last test I has showed the TSH to be 1.04 and my GP assured me that it was ok. I don't know what to think now maybe, if you dont mind, I could let you know my history concerning the fatigue. Firstly I am male, 53 years old and have Crohn's disease, type 1 Diabetes and Restless Legs Syndrome. I have been taking Prednisolone now since 1995 without a break. In 1997 following 2 years of major problems with Crohn's I had major surgery to remove a stricture in my bowel. For a couple of days following the surgery I felt comparatvely well then, all of a sudden (literaly) I started to feel unwell again. I put this down to the op. and thought it would pass but it didn't, after 4 years complaining of extreme pain and fatigue I was readmitted to hospital and operated on again as it was thought that the Crohn's had flared up again. It turned out that I had an adhesion, not a Crohn's flare up, this was dealt with but, while in hospital, I couldn't stop being sick and was told that I would not be allowed home until the sickness subsided, needless to say, it didn't. I was treated very badly by one particular doctor who, when I complained that I felt lousy, told me there were people in there with 'real' complaints (the chap in the opposite bed had cancer I apologised for not having cancer myself!), also I asked for my morphine drip to be removed before I got hooked on it, after a day and a half I removed it myself due to lack of response. The sickness was so bad I couldn't keep anything down and was told that I could not go home until it was under control. One night after being given an 'Ensure' drink I was sick all over the toilet, I was so worried about anyone finding out and not allowing me home that I cleaned it all up using 3 rolls of toilet paper! I eventually discharged myself because I knew I would never get better there. When home, the sickness subsided and I eventually regained my appetite but it was either then, or just after the first op (I can't really say because of the flareup's etc.) that I noticed I wasn't regaining my former strength and energy (it was following the first op I started getting RLS) and I have been like that ever since. I have tried every avenue including low testosterone, chronic fatigue syndrome, prednisolone withdrawal and of course low thyroid. All I know is that I am running at about 25% of my former self and I am really fed up with it. At the present time I am also being treated for depression which has come about as a result of my impending divorce (the thought of being away from my children makes me very down) along with difficulty in finding accommodation and not being able to work. This is having a very bad effect on me and I know it will contribute to my symptoms but, the same symptoms were there when none of this was happening. My GP keeps telling me that once I am in a more settled situation the symptoms will subside but, as I said previously, I had the same symptoms when I wasn't depressed. I am sure the fact I have never been able to get off the Prednisolone has something to do with it but I am told by my GP that it shouldn't have an effect. One very strange thing happened in 1999 and lasted for about 6 months. I lost control of my speech. What would happen was that I would have real difficulty getting words out and would stutter like crazy, I also mentioned this to my GP and to my Crohn's specialist who did a small test for a stroke, this showed nothing and the problem eventually went away but nothing like that had ever happened to me. Sorry, I have gone on a bit and I do hope I am not taking up too much of your time. I have not managed to join the forum as yes as I can't seem to get a connection through the link or even when I manually key in the address, I will keep trying though. Kindest regards Renny Quote Link to comment Share on other sites More sharing options...
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