Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Gail, That is wonderful that you and your husband are going to provide such great care to your grandchildren! It is obvious you are very concerned for their welfare. I would recommend taking them all off dairy immediately, if they are on it. If it will make a difference, it will show up in about 3 days. My 5 yr. old son became much calmer without it. Check out the diet section of nids.net. I've been told there is a non-verbal intelligence test, if you feel its needed. Its called the Leiter test. Info can be found at: http://www.stoeltingco.com/tests/catalog/leiter-r.html Good luck, I'm new here I'm new to this group and I'm not even sure if I'm in the right place. I'll tell you my story and you can let me know if I'm in the right place. My husband and I are in the process of adopting our three special needs grandchildren. I will start with since he is the one with the most problems.He is 5.9 years old. He has dx of ADHD, Bipolar, PDD, SID, and PTSD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Thanks to everyone for all the responses to my post. You have given me a lot of research to do. I have lots of work to do know. Thanks again. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Welcome, Sue! Sorry about your RA diagnosis and that it took them awhile to figure it out. If you don't mind saying, what is your other disease? I'm glad you are feeling somewhat better with the Remicade and MTX and that you have been able to continue working. I hope your fatigue improves, too. No need to apologize. That really wasn't a long post (stick around and see!) and we don't mind length at all. The more information about you, the better. [ ] i'm new here > hi, my name is sue. i am new to this site. i have had ra for 2.5 > years. they were unable to definitely diagnose it until this spring. > that was due to another autoimmune disease that i have. i just > started remicade along with the mtx. i have on infusion and i feel so > much better. the pain is much less. i am hoping that the fatigue will > decrease also. i am an rn and was able to work three days straight > and still walk and hold things. i refuse to give up my life because > of this disease, but some days are so hard. i hope to get off > prednisone soon. i hate that drug. it makes me weird. i have been > looking for online support for a while. i am glad i found you. i live > in the country so getting to town to a group is impossible. i am also > a single parent of teenagers. sorry for writing so much. sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Welcome Sue, I'm also new to the group, single mom with two teenagers, ( 20 Caitlin 17). They don't really understand what it feels like for me sometimes, but I didn't know what my dad went through. I'm encouraged to see that the fatigue is so common w/RA. Sometimes when I'm in a flare up, aside from the pain, the overall feeling like I got hit w/ a Mac Truck is overwhelming.. Breathing is an effort.. I'm on a low dose prednisone and taking plaquilnal.. Only effects I'm feeling are in a fog (which could just be two teenagers) and constipation. LOTS of water, fruits and veggies for me...Feel Better... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Sue, I think you will enjoy this group. After awhile you get to know each of us as we post and we are a little family here. I also am a nurse with RA for 12 years now. I am employed full time as an office nurse for a very busy family practice. We see about 36-40 patients a day and my hours are anywhere from 9-12 hours a day. The office I work for is fairly supportive of my disease. I am allowed to park close to the building as my feet are pretty sore and stiff at the end of the day. They always try to have a chair free at my station so that I have the opportunity to sit when I need to. I am currently on Enbrel, Arava, Vioxx. I was a single mom for about 5 1/2 years when I married my high school sweetheart (our 5th wedding anniversary is this July). I have 2 children, a boy almost 16 and a girl 13. I have 3 step children. One lives here in town on his own (almost 20), and the other 2 live with their mom ( 17 years and 12). Feel free to ask questions, vent, celebrate pain free days or whatever with this wonderful group. Welcome!! Terri [ ] i'm new here > hi, my name is sue. i am new to this site. i have had ra for 2.5 > years. they were unable to definitely diagnose it until this spring. > that was due to another autoimmune disease that i have. i just > started remicade along with the mtx. i have on infusion and i feel so > much better. the pain is much less. i am hoping that the fatigue will > decrease also. i am an rn and was able to work three days straight > and still walk and hold things. i refuse to give up my life because > of this disease, but some days are so hard. i hope to get off > prednisone soon. i hate that drug. it makes me weird. i have been > looking for online support for a while. i am glad i found you. i live > in the country so getting to town to a group is impossible. i am also > a single parent of teenagers. sorry for writing so much. sue > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 , your job isn't going to be EASY! I have both MS and RA, and also DDD and several Herniated disc. One very bad MS relapse left me doing totally nothing. My muscles started wasting away, etc. Back pain became even more severe. And I could not do the " laying down " exercises, as the tail bone damage from a fall is so severe, I can't " lay " on it. So the lady that handled my PT, had her plate full with getting around all of that, and getting me on a " managable program " to keep as much muscle as I could to help me with the Walking & MS, and also the muscles strengthened around the JOINTS for support for the RA! All that and NOT put STRESS on my damaged spine!!! She was awesome! She " worked with me " ... did not force me to do anything that was uncomfortable or hurt. Mine is not a tipical injury you can " recover from " . She had the + of working years before with MS patients, and also the PT for back injuries. So she did know about ALL diseases/injuries and their limitations. You be the BEST you can! As there are many people like me with MULTIPLE disabilities to " work around " when you are trying to achieve a " workable program " for long term chronic disability. There is also a list " FriendsWithMS " that you could join to learn the severe " chronic " disabilities of MUSCLES, as with MS you have MANY " falls " and injuries, along with muscle athropy caused by the MS. And most of us also have RA or arthritis of some sorts. And people on that list can also give you another perspective of how to work with them. Most of all of MS patients have to go into PT. Susie (Elf) kelly_hamons wrote: > Hi, I am a physical therapy student at Texas Womans University in > Dallas, TX. As a part of an assignment I am supposed to join into a > support group. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 Welcome to our group. You'll get a very good idea of what we go through by reading posts. The biggest complaint we all have is that we look so good and feel so bad. PT is very important to arthritics so you joined the right group. Feel free to ask any questions. a > Hi, I am a physical therapy student at Texas Womans University in > Dallas, TX. As a part of an assignment I am supposed to join into a > support group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Welcome to the group My name is angie and i am 31 I was diagnosed with RA a littel over a year ago. This group is a great place for support. Again Welcome From Angie --- In , " Genest " <gl199213@y...> wrote: > Hi everyone, > > I'm new to this group so I thought I would say hi and tell you a > little about myself. My name is and I am 39. I live in southern > California. I have been married for 13 years and have a grown son, > who's recently married, and two daughters, ages 12 and 9. I am > currently disabled after being a paramedic for 10 years. Prior to that > I was in the Coast Guard. > > Ok now to my disease. I have Rheumatoid Arthritis and Fibromyalgia. I > was diagnosed with RA over 17 years ago but did not seek treatment > until about 9 years ago. I was just diagnosed with fibro about two > weeks ago. I was ignorant about the disease and did not know the > severity of it. I currently take Enbrel, Imuran, Neurontin, Medrol, > and Mobic. > > That's about it. Thank you for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Welcome , This is a good place to be, I do not post much but I read every day, great support and information, I am 35, 2 kids, 3 including my hubby (lol) Live in Texas, recently diagnosed with aggressive RA, trying to get it under control right now. Cassy --- In , " Genest " <gl199213@y...> wrote: > Hi everyone, > > I'm new to this group so I thought I would say hi and tell you a > little about myself. My name is and I am 39. I live in southern > California. I have been married for 13 years and have a grown son, > who's recently married, and two daughters, ages 12 and 9. I am > currently disabled after being a paramedic for 10 years. Prior to that > I was in the Coast Guard. > > Ok now to my disease. I have Rheumatoid Arthritis and Fibromyalgia. I > was diagnosed with RA over 17 years ago but did not seek treatment > until about 9 years ago. I was just diagnosed with fibro about two > weeks ago. I was ignorant about the disease and did not know the > severity of it. I currently take Enbrel, Imuran, Neurontin, Medrol, > and Mobic. > > That's about it. Thank you for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Welcome ! > Hi everyone, > > I'm new to this group so I thought I would say hi and tell you a > little about myself. My name is and I am 39. I live in southern > California. I have been married for 13 years and have a grown son, > who's recently married, and two daughters, ages 12 and 9. I am > currently disabled after being a paramedic for 10 years. Prior to that > I was in the Coast Guard. > > Ok now to my disease. I have Rheumatoid Arthritis and Fibromyalgia. I > was diagnosed with RA over 17 years ago but did not seek treatment > until about 9 years ago. I was just diagnosed with fibro about two > weeks ago. I was ignorant about the disease and did not know the > severity of it. I currently take Enbrel, Imuran, Neurontin, Medrol, > and Mobic. > > That's about it. Thank you for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Welcome to the group! Sounds like you've had two interesting careers, not to mention parenthood....which is the biggest adventure of all! I am a single mom with 4 kids, one still @ home but will be leaving for college in 2 weeks. (sniff, sniff.) Look forward to getting to know you. Jane --- In , " Genest " <gl199213@y...> wrote: > Hi everyone, > > I'm new to this group so I thought I would say hi and tell you a > little about myself. My name is and I am 39. I live in southern > California. I have been married for 13 years and have a grown son, > who's recently married, and two daughters, ages 12 and 9. I am > currently disabled after being a paramedic for 10 years. Prior to that > I was in the Coast Guard. > > Ok now to my disease. I have Rheumatoid Arthritis and Fibromyalgia. I > was diagnosed with RA over 17 years ago but did not seek treatment > until about 9 years ago. I was just diagnosed with fibro about two > weeks ago. I was ignorant about the disease and did not know the > severity of it. I currently take Enbrel, Imuran, Neurontin, Medrol, > and Mobic. > > That's about it. Thank you for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Welcome to our group . Sorry for your reasons that you're here, but glad you found us. This is a great place to talk to others that understand how you feel. I'm on Enbrel too, and it's helped a lot. I live in Florida and have 4 children, and 4 grandchildren. Glad to meet you. a On Aug 7, 2005, at 5:07 AM, Genest wrote: > Hi everyone, > > I'm new to this group so I thought I would say hi and tell you a > little about myself. My name is and I am 39. I live in southern > California. I have been married for 13 years and have a grown son, > who's recently married, and two daughters, ages 12 and 9. I am > currently disabled after being a paramedic for 10 years. Prior to that > I was in the Coast Guard. > > Ok now to my disease. I have Rheumatoid Arthritis and Fibromyalgia. I > was diagnosed with RA over 17 years ago but did not seek treatment > until about 9 years ago. I was just diagnosed with fibro about two > weeks ago. I was ignorant about the disease and did not know the > severity of it. I currently take Enbrel, Imuran, Neurontin, Medrol, > and Mobic. > > That's about it. Thank you for listening! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2005 Report Share Posted August 12, 2005 Hi : Welcome! The people in this group are so supportive and helpful - you will find that we all truly do understand what you are going through, having walked that same path ourselves - and the moderators keep us well informed on new medications, treatments, a lot of very good information. I have been a member now for about 3 years, and have found this group to be an invaluable help to my coping with my RA. I, too, also have Fibromyalgia, as well as Raynaud's syndrome. I was diagnosed with RA 6 years ago, and diagnosed with Fibro 1 year ago. I am currently taking Methotrexate, Mobic, Ultracet, and Enbrel for the RA, and Trazodone and Flexeril for the Fibro, along with meds for asthma and high blood pressure. Never in a hundred years would I have dreamed that I would have RA and FM, and be taking the amount of meds I am simply to be able to cope with all that they bring to my life. Turns your life upside down. I also live in Southern CA, down near the Temecula Valley. We have a small farm with horses, dogs, and various fowl, and the animals are what gets me up and out of bed each morning. Riding, when I can do it, is also great therapy for the soul. I am 51, and have two children, son 21 and daughter 18, and both they and my husband are great support for me. It was not always that way, in the beginning they had a hard time understanding why I could not do the things I used to, and why I was always so tired, but over the years it's gotten better. How are your medications doing for you? Are they helping? Sometimes it takes a while for them to kick in and become helpful, and it's hard when you are in pain to be patient for results. Where in Southern CA are you? Hope you are having a good day - Kathe in CA --- Genest <gl199213@...> wrote: > Hi everyone, > > I'm new to this group so I thought I would say hi > and tell you a > little about myself. My name is and I am 39. I > live in southern > California. I have been married for 13 years and > have a grown son, > who's recently married, and two daughters, ages 12 > and 9. I am > currently disabled after being a paramedic for 10 > years. Prior to that > I was in the Coast Guard. > > Ok now to my disease. I have Rheumatoid Arthritis > and Fibromyalgia. I > was diagnosed with RA over 17 years ago but did not > seek treatment > until about 9 years ago. I was just diagnosed with > fibro about two > weeks ago. I was ignorant about the disease and did > not know the > severity of it. I currently take Enbrel, Imuran, > Neurontin, Medrol, > and Mobic. > > That's about it. Thank you for listening! > > > Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Hi Carli, And welcome to the group. You might also look into joining NativeFamilyNutrition and GFCFNN, also on . If you haven't read Dr. Price's " Nutrition and Physical Degeneration " , you might get it and read it. One of the things he spent a lot of time discussing was the way healthy people around the world ate special foods so they could have children with optimal health. (I realize you have 4 children at this point, so you might be a " little " busy and not be planning to have more, but it still makes for interesting reading.) Also, check out the Weston A. Price Foundation's site (we call it 'WAPF' for short) at http://www.westonaprice.org and the Price- Pottenger Foundation at http://www.price-pottenger.org for other interesting articles. As a result of reading the material I just mentioned, I decided to start taking cod liver oil. (It's considered a " super food " by us Price afficiandos.) Actually, the thing that convinced me was when I read that a study had been done, and they found that children who were taking cod liver oil not only had fewer earaches, they had NO earaches. Well, I had earaches (but no cod liver oil) when I was young, and in early 2003 I had an eardrum burst, which was a new experience. So I started taking cod liver oil that spring. One of the things I wasn't really expecting was the minimizing of my " hay fever " allergies to the point where I no longer need to take antihistamines/decongestants and painkillers every day. I can't remember the last time I bought allergy meds. If I even have a box in the house, it is surely expired. That's my favorite recommendation for someone dealing with earaches and allergies. Beyond that, you will surely hear from listmembers who are also practicing a gluten-free (and, for some, a casein-free) lifestyle. I'm working at reducing the amount of gluten-containing food in our diet, but I'm not as far along that road as many others. --- In , " carlijot " <carlijot@g...> wrote: > This group was recommended to me by a member of the WellPeople > group. I have a 12 year old who has had several ear surgeries and > some skin problems. With the birth of my 4th child last November, I > began taking all my children to a naturopath. After looking at my > oldest son, she suggested I remove dairy from his diet, that a > dairy allergy may have been at the root of all his ear problems and > also the skin problems. My 9 month old has had some ear problems > this last week and she said it looked more like an allergic ear as > opposed to an all out infection. He is still nursing and has only > been introduced to organic fruit and vegetables that I puree myself, > with the exception of the introduction of oatmeal about 2 1/2 weeks > ago. She suggested that there was the possibility of a gluten > allergy and told me to stop the oatmeal and see what happened. > > I am here to find any information I can on food allergies, > especially in children, and how to deal with them. My husband and I > have cut dairy out of our diets to support our 12 year old and have > definitely noticed a difference in the way we have felt. Any > Information anyone has on shopping, cooking, even eating out, and > preparing school lunches especially, would be great to read. I will > also try going back and reading old posts on the subject if I can > find them. > > Thank you, > Carli T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 carlijot wrote: > This group was recommended to me by a member of the WellPeople > group. I have a 12 year old who has had several ear surgeries and > some skin problems. With the birth of my 4th child last November, I > began taking all my children to a naturopath. After looking at my > oldest son, she suggested I remove dairy from his diet, that a > dairy allergy may have been at the root of all his ear problems and > also the skin problems. My 9 month old has had some ear problems > this last week and she said it looked more like an allergic ear as > opposed to an all out infection. He is still nursing and has only > been introduced to organic fruit and vegetables that I puree myself, > with the exception of the introduction of oatmeal about 2 1/2 weeks > ago. She suggested that there was the possibility of a gluten > allergy and told me to stop the oatmeal and see what happened. > > I am here to find any information I can on food allergies, > especially in children, and how to deal with them. My husband and I > have cut dairy out of our diets to support our 12 year old and have > definitely noticed a difference in the way we have felt. Any > Information anyone has on shopping, cooking, even eating out, and > preparing school lunches especially, would be great to read. I will > also try going back and reading old posts on the subject if I can > find them. > > Thank you, > Carli T. > Welcome to the group! You should be aware we also have a " spinoff " group, GFCFNN, which concentrates specifically on gluten and dairy intolerance. There is lots of good info there. Also I have some files in the files section for GF bread. The thing that has helped our family more than anything else was finding a good source of *meat*. Mainly we buy meat now by the cow, grass fed Longhorn. It's pretty inexpensive that way, so we can have a meal that rotates around, say, a big rack of ribs or some nice rare steak or a big smoked roast. Then you don't have to deal with " stretching " the meal with the bready stuff (I can and do make GF bread, but it's more work and not as good for you as meat and vegies). Also I make jerky for travel snacks. This technique is amazingly successful, even with the visiting kids. Kids are amazing carnivores, given half a chance (but they like very tender meat, esp. if they have a loose tooth!). For eating out, the thing that has been a lifesaver for me is bentonite clay ... I use Pascalite. About 1/4 tsp. with a meal, and it seems to counteract whatever trace gluten or whatever it is that makes me ill, in a restaurant meal. I travel quite a bit, so it's handy! I buy coconut oil in bulk, and use that instead of butter for about everything (I get the deodorized CO). I dislike oatmeal myself, but there are non-oat flaked cereals that are similar, that some people use. Mainly my family doesn't get along with ANY of the whole grains (they give them IBS, soaked or otherwise) so the main grains I use are plain old white rice, and quinoa. Anyway, for more discussion about that specifically you might want to try the GFCFNN group! -- Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 >I am here to find any information I can on food allergies, >especially in children, and how to deal with them. My husband and I >have cut dairy out of our diets to support our 12 year old and have >definitely noticed a difference in the way we have felt. Any >Information anyone has on shopping, cooking, even eating out, and >preparing school lunches especially, would be great to read. I will >also try going back and reading old posts on the subject if I can >find them. > >Thank you, >Carli T. > Welcome Carli, I am sure if you asked specific questions as they come up, you will get a response. For reading information from the archives, you may want to try this search engine: http://onibasu.com/ Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hello everyone, I am new to this group and was hoping for some help and info. This past October i had my first gallbladder attack. I thought it was terrible indigestion, but realized after having my second one a week later and being hospitalized that the gallbladder was the culprit. I pushed to put off the surgery, but I am still experiencing weekly attacks. The big problem is that they are lasting almost 8 hours now. I was awakened at 3am Christmas night with my last one. The pain was severe for about 4 hours, but nearly 2 days later, I am still feeling some pain. I was told the gall bladder is inflammed and I am not sure how to handle this problem. I'm lethargic, and I feel like I have constant indigestion. I'd appreciate any help that anyone can give me to relieve me. I was told that my stones were small and that I shouldn't be having pain passing them (the pain was due to the inflammation). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Dear , We're happy you've found us!! You will find so much information and support here. Alot of Dr.s don't believe in the implant illness connection, but as we know, it is very very real!! Dr. Feng's office is wonderful and super informative. There are a handful of wonderful surgeons who can do your explant PROPERLY so that you can regain your health. Welcome! Katy:)poledanceraz <poledanceraz@...> wrote: Hi Ladies! I would like to introduce myself. My name is , I just turned 28 and I live in Arizona. I realize now that I have made a horrible mistake. I had my breast augmentation on August 29, 2005. I had textured saline implants put in that are the teardrop shape (not the round ones)at 750cc under the muscle. I know, you probably think I was totally crazy. I was down for over 6 months after my surgery. About a year ago I started getting really sick. I won't go into details (I'll save that for my personal story). Needless to say, I have been diagnosed with Grave's Disease, Hashimoto's Disease, and possible numerous other autoimmune problems. I was very healthy before the implants and now I just feel like what the hell happend to me. I see numerous doctors weekly and I have been told it's not my implants. I can honestly say that I don't believe them. I talkied to Dr. Feng's office this morning to see about explantation. I have felt so alone this past year and I am so happy to have found this group! Thanks for reading! Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Hi , You are not alone. I am 34, had my textured saline implants (through my belly button) in 1999. Ever since December of 2006 my health has been a spiral downward and the doctors can't figure out why. First they thought it was Rheumatoid Arthritis - due to a highly elevated ANA - ended up my Rheumatoid factor was okay. Next, Lupus - but that was also negative. Then I ended up with Thyroiditis which they feel might turn into Hashimotos if my Thyroid levels keep getting lower (which they do every 6 months). I have had costochondritis and all sorts of other arthritic pains in my fingers and feet. One doctor said it as all anxiety, then depression - sent me to a shrink. I knew that I was not feeling right though!! So I started researching on my own. I thought to myself, what is the one foreign object that is in my body that my immune system is trying to fight but can't beat - AH HA!!! Dang implants. Just like your doctors, mine swear they are safe too (please). Just had an explant on Friday the 13th. I am starting to regain my health. I have noticed my thyroid feels better. I still have a long road to recovery. I am so happy you found this board. The women here are my experts. I trust them more than my doctors. Hugs, Lynn > > Hi Ladies! I would like to introduce myself. My name is , I > just turned 28 and I live in Arizona. I realize now that I have made > a horrible mistake. I had my breast augmentation on August 29, 2005. > I had textured saline implants put in that are the teardrop shape (not > the round ones)at 750cc under the muscle. I know, you probably think > I was totally crazy. I was down for over 6 months after my surgery. > About a year ago I started getting really sick. I won't go into > details (I'll save that for my personal story). Needless to say, I > have been diagnosed with Grave's Disease, Hashimoto's Disease, and > possible numerous other autoimmune problems. I was very healthy > before the implants and now I just feel like what the hell happend to > me. I see numerous doctors weekly and I have been told it's not my > implants. I can honestly say that I don't believe them. I talkied to > Dr. Feng's office this morning to see about explantation. I have felt > so alone this past year and I am so happy to have found this group! > Thanks for reading! > > Quote Link to comment Share on other sites More sharing options...
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