Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 How old is you son ? Are you using a mask or just hand held? Shari Singleton NCQA Project Manager Director, Legal & Regulatory Services (918) 459-1298 > nebulizer question > > I was told to go ahead and try pulmicort for evan a few months ago, > but he really didn't think evan needed it (this was our yucky > immunologist...lol). He fought it so bad we ended up stopping it. > Now our new doc thinks evan definetly has asthma and wants me to do > it twice a day. OK now comes the hard part. I literally have to > restrain him to do it. I mean its bad. And i feel awful. I know he > needs it, or at least they think he may (no one knows why he has such > bad chest congestion). I have heard to try it in their sleep, but he > often sleeps in the dining room (I know sounds odd but I have run out > of bedrooms) and he wakes when i open the refrigerator. So what i > guess i am looking for is reassurance. They get used to it right?? > I won't be restraining him forever. Thanks > > > > > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Ask your immunologists for a mask that looks like a dinosaur they fit right on the neb. They are really neat and most kids respond better to them than just the plain masks and hand held. My daughters are seven and are on nebs two times daily with xopenex and pulmicourt and they use the masks that look like a dinosaur they also have a orange fish. Singleton Shari R <shari.singleton@...> wrote: How old is you son ? Are you using a mask or just hand held? Shari Singleton NCQA Project Manager Director, Legal & Regulatory Services (918) 459-1298 > nebulizer question > > I was told to go ahead and try pulmicort for evan a few months ago, > but he really didn't think evan needed it (this was our yucky > immunologist...lol). He fought it so bad we ended up stopping it. > Now our new doc thinks evan definetly has asthma and wants me to do > it twice a day. OK now comes the hard part. I literally have to > restrain him to do it. I mean its bad. And i feel awful. I know he > needs it, or at least they think he may (no one knows why he has such > bad chest congestion). I have heard to try it in their sleep, but he > often sleeps in the dining room (I know sounds odd but I have run out > of bedrooms) and he wakes when i open the refrigerator. So what i > guess i am looking for is reassurance. They get used to it right?? > I won't be restraining him forever. Thanks > > > > > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 He is 13 months old and there is a mask on his thing (me and all my technical terms...lol). I haven't been able to find a mask i can strap on to him. I have to hold it up to his mouth. It fits over his nose and he bites on the bottom of it. Sometimes teething on it distracts him. -- > How old is you son ? Are you using a mask or just hand held? > > Shari Singleton > NCQA Project Manager > Director, Legal & Regulatory Services > (918) 459-1298 > > > > nebulizer question > > > > I was told to go ahead and try pulmicort for evan a few months ago, > > but he really didn't think evan needed it (this was our yucky > > immunologist...lol). He fought it so bad we ended up stopping it. > > Now our new doc thinks evan definetly has asthma and wants me to do > > it twice a day. OK now comes the hard part. I literally have to > > restrain him to do it. I mean its bad. And i feel awful. I know he > > needs it, or at least they think he may (no one knows why he has such > > bad chest congestion). I have heard to try it in their sleep, but he > > often sleeps in the dining room (I know sounds odd but I have run out > > of bedrooms) and he wakes when i open the refrigerator. So what i > > guess i am looking for is reassurance. They get used to it right?? > > I won't be restraining him forever. Thanks > > > > > > > > > > > > This forum is open to parents and caregivers of children diagnosed with a > > Primary Immune Deficiency. Opinions or medical advice stated here are the > > sole responsibility of the poster and should not be taken as professional > > advice. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 , I forget, how old is Evan? Kody has used a nebulizer since he was 2 years old. And at first I tried to hold him down like that too and he just fought it tooth and nail. But then after a week of this, I got out the machine, sat Kody in my lap, and told him that he needed this medicine, I was going to give it to him if I have to sit on him to do it or if he wanted to he could hold the mask by himself but I don't know I told him, I'm just not sure if you are a big boy enough to do that by yourself. Naturally he insisted he was! And you know what he held it! And did good too! Of course I sat with him, and reminded him to keep it up by his face. Usually we used that time to read stories or put in a special video to watch. With Kody it was the elastic around his head that he hated. After a while he didn't mind that, especially when he figured out that he could have his hands free to do other things. We also got an extra mask at the pharmacy and put it on his favorite stuffed animal so that his Superdog got a nebulizer treatment too. I think having Kody hold it gave him some control and made him feel less " smothered " . Good Luck!!! Diane, Mom to Kody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 , I intended to answer this question earlier & just plain forgot. If you have to do these treatments on a daily basis, eventually your child will get used to them. How old is your child? When Autumn & Tabitha (she has very mild asthma) were little, I would put them in the high chair with one of their favorite snacks--cheerios, crackers, whatever & do blow by treatments while they ate. They didn't feel like they were being restrained & the treatments were a whole lot less stressful. If they didn't feel like eating, I gave them one or two of their favorite toys to play with. Always worked out great. As they got older, I tried to transition them to the mask. With Tabitha it was great--Autumn, not so great. I did have to sit & hold them. I finally told Autumn to go pick her favorite story & I would read while the treatment was going on. I wouldn't read that book at any other time, so it was like a treat to her. Now, if I tell her she needs a treatment (or if she tells me), she finds the spot she wants to sit while it goes on & will get her toys/books/blanket & wait for me. I hate that our kids have to get used to doing some of these things--almost like they're giving in against the system or something. On the other hand, they need to do them to get well/stay well. Good luck--it does get better. Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma, chronic sinusitis, and allergies), and Duncan (14 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 , You may want to try a blow by method. You do not attach the mask but put it under his nose or mouth.In the hospital we would tape the other end so that we did not lose the mist and then we put it under his nose and mouth. Some meds need to be kept out of the eyes. Check with your doctor or a Respiratory therapist for more hints and precautions. We would put on a video or read a book with treatments as a distraction. Over time they get use to it especially if it makes them feel better. Lucas would never use the mask under any cirmcumstances. I take that back we were able to for a time when he pretended to be playing Star wars as a pilot. BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Jan - we have 2 Pulmoaides. Both are the same model but stay at different locations. They've held up great and are both about 6 years old. Depending on how your insurance covers the equipment you still might consider a portable machine. You just never know when it might come in handy. Our insurance covered them all the same because we only paid a flat fee copay for equipment, so we got a Devilbiss portable 2001. The best time it's paid off is when Macey was so tight that we were taking her to the hospital and she was taking a treatment the whole time there (about a 20 minute drive for us). I'm sure she would have closed up more or had some type of respiratory arrest if the neb hadn't kept going and the med going in. But anyway, the Pulmoaide is great. Ursula Holleman mom to (10 yrs old) and Macey (8 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 All of my children have been asthmatics-- is now 22 months old and has been using a nebulizer for 2xdaily meds since he was 11 months old. The best site for asthma and allergy products is: www.allergycontrolproducts.com I have used the pulmoaide nebulizer, but found the Pari Nebulizer with the child compresser is best...It comes with Bubble the Fish coloring book and pediatric mask, stickers for the compressor, etc, but also the compressor dispenses meds quicker to accomodate children's shorter attention span.. nebulizer question A little update on our family. I have been reading emails and praying for the families with illness. Some of the struggles make me sad, but the courage is amazing and uplifting. There were no changes in my son's treatment this summer (CVID). He will have a trough level drawn in January. He has recovered well from a recent illness. He is growing well at age 15. His younger sister has asthma and allergies.We need to get a nebulizer for her. She is a 6th grader. We do not need it to be portable as it will be used at home. The doctor mentioned compressed air nebulizer and Pulmoaide. Is the Pulmoaide a brand of nebulizer? Has anyone used this brand? What brands of nebulizers do you like? She is able to use an albuterol inhaler, but needs the nebulizer and a different med for the longer lasting asthma flares. Thank you for any info on nebulizers. Jan This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Glad it helped! I like the nebulizer idea too though, for lungs. If iodine could help lung infections that is a GREAT thing! I do worry a bit about bacterial growth in the solution though. Possibly it should be kept in the fridge. I don't know what level of iodine is required to keep the water from growing bacteria, or how long the iodine " keeps " in the water. With chlorine, a couple of drops will keep a gallon of water free of bacteria, I think, but the chlorine dissapates after awhile. Since iodine is light-sensitive, and turns into a gas, I think there is some time period after which the solution won't be good to use. -- On 10/20/07, Shirley <pj20844@...> wrote: > Thanks . I couldn't recall the real > name of the 'thing' you used when I was writing > that mail, so I just used 'nebulizer'. Anyhoo, > looks like anything will work, as long as the > solution gets up there. ly, I was so eager > I made my own solution--put 3 drops of Lugol's in > a one oz. nasal pump from Costco--Kirkland brand > and 4 to a box. About 6 dollars. It is an > excellent device for this sort of thing. The > stuff in it is very smelly and takes a lot of > rinsing to get it even remotely suitable, but > once that is done, it is very good. The solution > immediately reduced swelling, even making my left > eye feel better at once. That eye gives some > trouble so this was a very welcome result. I > will bear in mind to keep the amount of iodine > below the stinging level. Thank you very much. pj > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 I wonder if a neti pot would be easier? It's a little plastic container with something like an elongated spout. It is traditionally filled with warm water and salt and poured into one nostril at a time - while leaning over a sink so it can pour back out, or out the other nostril. It was recommended to me by an acupuncturist friend when I had a throat and sinus irritation - I purchased it [about $5] but could never bring myself to put water up my nose so I can't personally vouch for it. But I know many who think they're fabulous. You could put whatever solution you want in it, I'd guess. > > Thanks . I couldn't recall the real > name of the 'thing' you used when I was writing > that mail, so I just used 'nebulizer'. Anyhoo, > looks like anything will work, as long as the > solution gets up there. ly, I was so eager > I made my own solution--put 3 drops of Lugol's in > a one oz. nasal pump from Costco--Kirkland brand > and 4 to a box. About 6 dollars. It is an > excellent device for this sort of thing. The > stuff in it is very smelly and takes a lot of > rinsing to get it even remotely suitable, but > once that is done, it is very good. The solution > immediately reduced swelling, even making my left > eye feel better at once. That eye gives some > trouble so this was a very welcome result. I > will bear in mind to keep the amount of iodine > below the stinging level. Thank you very much. pj > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Neti pots are great! To avoid the discomfort of running water up uoir nostrils, place some salt in the water and let it dissolve. This brings the salinity more in line with that of the body and thus greatly reduces the sensation we all have experienced from swimming. At about .9% mixture equals the salinity of sea water. Mankind may have come from the sea via the evolutionary process as scientists believe. Dr. Rene Quniton replaced the blood of a dog with sea water. Within 24 hours normal blood was found circulating in the dog's veins. Sea water contains all of the essential minerals that are required to make blood within the body. http://www.nexusmagazine.com/articles/SaltWaterBlood.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 " comdyne2002 " <comdyne@...> wrote: > > Neti pots are great! I would go with a neti over a neubulizer for almost any purpose. For more info, see my articles on " Neti " (or Jalaneti) and " Sinus Infections " at url below. Carol willis_protocols Articles in Files. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Except, what about the lungs? If an infection is in the lungs, a Neti pot won't reach it. A nebulizer might? -- On 10/27/07, cbwillis9 <cbwillis9@...> wrote: > " comdyne2002 " <comdyne@...> wrote: > > > > Neti pots are great! > > > > I would go with a neti over a neubulizer for almost any purpose. > For more info, see my articles on " Neti " (or Jalaneti) and > " Sinus Infections " at url below. > > Carol > willis_protocols > Articles in Files. Quote Link to comment Share on other sites More sharing options...
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