Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Hi Alison, The jaundice and pancreatitis are definite signs of obstruction. This obstruction does not have to be stones. It can be inflammation infection etc. They will still want to cut no matter what. Unfortunately since they changed the format I can no longer insert into the message so I will try and answer up here. While low fat is a great idea to limit your chances of stimulating an attack, it is like turning the water off and then trying to flush the toilet. we need to keep the flow going to keep things from settling out and moving. Quite the quandary. Emulsify, thin, flow and flush. 1 not necessarily. His concern is a valid one but not a sure thing. 2 possibly but not for sure. If they do one and they show up they are seen, if they do not show up it does not mean something is not there. Most likely not very big or dense though. 3 possible but doubtful. 4.This is one of those turning points where leaps of " faith " are an option. You do not mention having attempted a flush since Nov. If not, this is precisely the kind of situation where many people have had dramatic results. You can always do one close to medical attention if you feel more comfortable. There is no better source of information that I know of than the archives of this group. Many such as Dale, Will , Vince and the like have suggestions on particular books and protocols. Depending on diet , lifestyle and present physiologic condition, changes in the above may be imperative. Even without performing a flush or possibly beforehand in preparation, thinning, dissolving, stimulating. As many point out there may be a parasitic component. 5 check out Dr. Mercola's stuff on diet. www.mercola.com<http://www.mercola.com/> ----- Original Message ----- From: Alison Orr<mailto:alison@...> gallstones <mailto:gallstones > Sent: Monday, October 09, 2006 2:50 PM Subject: Update on me I posted a while ago about the two gallbladder attacks I'd had which put me in hospital. The first time, in April, I had mild pancreatitis. The second time, in June, I had jaundice and was very unwell. I've had 6 attacks altogether between November 2005 and June 2006. I live in a rural area and there's only a small cottage hospital nearby with a visiting surgeon. He referred me for an MRCP but I freaked out in the MRI machine (I now know I definitely *am* claustrophobic!). Since June, I've been following a very low fat diet though recently I've begun to reintroduce (risk, more like!) more fat into my diet. I've not had any attacks since June. I've just heard from the surgeon and he wants to refer me for a " telescopic examination of the bile duct... and I suspect there may be one or two stones in this which have caused your recent jaundice and pancreatitis. " I have a few questions: 1 Isn't it most likely that I'd have had another attack if I have stones in my bile duct and have been eating more fat recently? 2 Could these stones not be detected with an ultrasound? 3 I had an ultrasound in April and only gravel and sludge were seen then. Is it likely that I could have developed stones since then? 4 I don't want to let go of my gallbladder if I don't have to but I'm a bit scared to do the flushes, especially if there are stones in the duct as I could end up very ill again (or worse). I'm convinced flushes are a good idea but what else should I be doing to improve my liver / gallbladder health? Can you all (Dave Shelden please!) recommend websites and /or books whose protocol I could follow? I would prefer to be able to compare several rather than just blindly follow one. 6 I would like to try a GL (glycemic load) diet as I know I'm not eating well at the moment. Anyone got thoughts on this? Thanks in advance! Alison God bless Give food to the hungry every day with a simple click, at no cost to you. Visit http://www.thehungersite.com<http://www.thehungersite.com/> today! -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.13.0/464 - Release Date: 05/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Hey Skip, You'll be in our prayers. There's got to be one more drug out there for you to try. Hugs, Vicki > > Hello all once again, > just an update on my ongoing battle with my CML and the drugs to combat it. > After my last hospital stay, I was told not to use dasatinib any more. > They had to tap me and remove all the pleural infusion build up caused by dasatinib. > They removed 8.5 500ML bottles of liquid,over a threee week period. After another 3 weeks my doc told me we would go back to Nilotinib, at a reduced rate (400MG once day). In six days to the hour, my liver enzymes shot through the roof. Once again I am off any of the nibs, Imatinib, Nilotinib and Dasatinib. I am still a bit sick and pain in the back but it is less that yesterday, so I imagine I will wait until my doc comes back from ASH to find out where we go from here. I am beginning to wonder if there is any of these drugs I can tolerate. I guess I am paying the piper for living so long with CML. > Have a great day all > > SkipD > dx'ed 30++++ years ago. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Skip: Don't give up the fight.? There are other medications, other trials, even older drugs to use to fight.? We are standing behind you so ask for help and you will get it. We believe in you my friend. Matt M. CML Motivation Department Florida [ ] Re: update on me Hey Skip, You'll be in our prayers. There's got to be one more drug out there for you to try. Hugs, Vicki > > Hello all once again, > just an update on my ongoing battle with my CML and the drugs to combat it. > After my last hospital stay, I was told not to use dasatinib any more. > They had to tap me and remove all the pleural infusion build up caused by dasatinib. > They removed 8.5 500ML bottles of liquid,over a threee week period. After another 3 weeks my doc told me we would go back to Nilotinib, at a reduced rate (400MG once day). In six days to the hour, my liver enzymes shot through the roof. Once again I am off any of the nibs, Imatinib, Nilotinib and Dasatinib. I am still a bit sick and pain in the back but it is less that yesterday, so I imagine I will wait until my doc comes back from ASH to find out where we go from here. I am beginning to wonder if there is any of these drugs I can tolerate. I guess I am paying the piper for living so long with CML. > Have a great day all > > SkipD > dx'ed 30++++ years ago. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 > > Hello all once again, > just an update on my ongoing battle with my CML and the drugs to combat it. > After my last hospital stay, I was told not to use dasatinib any more. > They had to tap me and remove all the pleural infusion build up caused by dasatinib. > They removed 8.5 500ML bottles of liquid,over a threee week period. After another 3 weeks my doc told me we would go back to Nilotinib, at a reduced rate (400MG once day). In six days to the hour, my liver enzymes shot through the roof. Once again I am off any of the nibs, Imatinib, Nilotinib and Dasatinib. I am still a bit sick and pain in the back but it is less that yesterday, so I imagine I will wait until my doc comes back from ASH to find out where we go from here. I am beginning to wonder if there is any of these drugs I can tolerate. I guess I am paying the piper for living so long with CML. > Have a great day all > > SkipD > dx'ed 30++++ years ago. > HI SKIP: You are a real trooper, and a great inspiration to all of us. I will pray that they come up with a new method of treatment for you. When Gleevec went into clinical trial, I had nothing going for me. It was a sit and wait situation for me for months, just using Hydrea. The trial came just in time for me, and I believe something new will pop up soon. Just have faith and believe it will all get better. Suzzie Quote Link to comment Share on other sites More sharing options...
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