Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 > >Hi Tracey How upsetting and frustrating for you. Is it an option for you to work part-time? I have a friend who works just over 16 hours a week, it enables her to get working family tax credit (or whatever it's called) as a single parent, and she's found that gives her enough to get by... obviously don't know all the ins and outs of your situation. Anyway, if you could consider part-time work, maybe you could apply for this job as some kind of job-share? I've been struggling with misdiagnosed and then mismanaged hypo for about 11 years - some days I've been fine, and well capable of working. Other days I have barely been able to speak, let alone string thoughts together. I've coped by working freelance (so I can work when capable) or part-time (with enough flexibility in hours to accommodate the " off " days). Possibly you've been feeling so dreadful today because of " good " stress yesterday, getting excited about the prospect of the job... extra work for the adrenals. Anyway, lots of sympathy, and good luck with finding a route through.. Janet > > I actually NEED to be working as I have insufficient money coming in > to feed and clothe my family and pay for rent, council tax and > utilities. I really don't know what to do. > > I suspect that other forum members have been in a similar situation > at some stage. Can anyone offer advice please? > > Thanks, > Tracey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Hi Tracey, It might be worth contacting the CAB (Citizens Advice Burea): see if you can find out what they aren't telling you at the Job Centre. I'll ask my daughter later on this evening, what she knows about it; she worked at a Job Centre for quite a long time until her children came along. Catch 22 is a tricky one to negotiate. best wishes Bob > > I'm at the end of the 1st month of my thyroxine trial, during which > time I have had at least 3 days when I have been unable to function > due to my symptoms being too bad. There were other days too when I > could function but not particularly well, but enough to scrape by. > > It really hit me today as my lone-parent advisor had found a > suitable job yesterday for me to apply for. Yikes the CV and > covering letter have to be in tomorrow! I was so keen I'd gone > straight over to the organisation offering the position and took the > opportunity to talk to one of the workers there, while I picked up > the full spec. In short it is a job I'd love - I am well-qualified > and capable and I had planned to work on the application today. BUT > this morning I woke up with full brain fog, feeling woozy, bitterly > cold and unable to even handle a pen. I feel quite devastated and > weepy as this came totally out of the blue. The previous time it > happened was last Wednesday and Thursday (had to sleep most of both > days) but that was because I'd got worn out travelling to a hospital > appintment in London and getting squashed in a train-carriage for > the return journey. > > Looking at the job spec, I am physically and mentally incapable of > doing it in the state I am today, yet more than capable of doing it > most of the other time. I can't even think straight enough to > complete the application and feel sick to the core about being like > this. At this very moment I really do feel quite disabled - not that > anyone could tell from looking at me. > > I phoned the job centre (hard because my speech is very slurry today) > to ask if they could bring forward an appointment scheduled with the > disability advisor. Last time I saw them they said not to worry > about applying for work as it wasn't essential for me to have a job > as my son was then 9. I was told I didn't qualify for disability > benefits as I was not disabled every day and didn't need help in my > day-to day things. > > I actually NEED to be working as I have insufficient money coming in > to feed and clothe my family and pay for rent, council tax and > utilities. I really don't know what to do. > > I suspect that other forum members have been in a similar situation > at some stage. Can anyone offer advice please? > > Thanks, > Tracey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 This could be happening because you need to strengthen your adrenals Tracey - remind me what you have been taking for them. No amount of thyroid hormone replacement is going to work for you unless they are strong. You really need to see a doctor who knows what he is doing. Sorry I can't write more now, but I will try to get back to you on this one. Luv - Sheila Applying for jobs when not 100% I'm at the end of the 1st month of my thyroxine trial, during which time I have had at least 3 days when I have been unable to function due to my symptoms being too bad. There were other days too when I could function but not particularly well, but enough to scrape by.It really hit me today as my lone-parent advisor had found a suitable job yesterday for me to apply for. Yikes the CV and covering letter have to be in tomorrow! I was so keen I'd gone straight over to the organisation offering the position and took the opportunity to talk to one of the workers there, while I picked up the full spec. In short it is a job I'd love - I am well-qualified and capable and I had planned to work on the application today. BUT this morning I woke up with full brain fog, feeling woozy, bitterly cold and unable to even handle a pen. I feel quite devastated and weepy as this came totally out of the blue. The previous time it happened was last Wednesday and Thursday (had to sleep most of both days) but that was because I'd got worn out travelling to a hospital appintment in London and getting squashed in a train-carriage for the return journey.Looking at the job spec, I am physically and mentally incapable of doing it in the state I am today, yet more than capable of doing it most of the other time. I can't even think straight enough to complete the application and feel sick to the core about being like this. At this very moment I really do feel quite disabled - not that anyone could tell from looking at me.I phoned the job centre (hard because my speech is very slurry today)to ask if they could bring forward an appointment scheduled with the disability advisor. Last time I saw them they said not to worry about applying for work as it wasn't essential for me to have a job as my son was then 9. I was told I didn't qualify for disability benefits as I was not disabled every day and didn't need help in my day-to day things.I actually NEED to be working as I have insufficient money coming in to feed and clothe my family and pay for rent, council tax and utilities. I really don't know what to do. I suspect that other forum members have been in a similar situation at some stage. Can anyone offer advice please?Thanks,Tracey No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.0/1342 - Release Date: 25/03/2008 10:26 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 MODERATED TO REMOVE MESSAGES PREVIOUSLY READ. PLEASE CHECK THIS BEFORE CLICKING " SEND " SHEILA __________________________________ You mentioned that you are at the end of the first month of your thyroxine trial. Perhaps you need to take it for longer or you aren't on an optimal dose or it isn't the right medication for you. I'm not a doctor so I'm not sure. It is worth testing your TSH, T4, T3 and Reverse T3 to see exactly what is going on and so you can monitor it over time. I always get my path tests done at the same lab so the results are comparable. I can't recall the amount of time needed between taking the thyroid level tests right now (usually remember but this damn thyroid condition makes me forget things all the time). My doctor also tested my plasma zinc, selenium, copper and magnesium levels + plasma amino acids levels. Have you had these tests done? As far as trying to work goes, I totally empathise with you. Like you, I have days where simple tasks are monumental and other days where things don't seem too bad. On some days I find that simple things (like filling in forms or banking) are quite difficult to do and like you, on those days I have difficulties getting the words out. To me it feels like my brain 'wants' to say the words but the connection between brain and mouth doesn't work properly. I don't know how else to explain it. Very frustrating. It seems like lots of people with thyroid problems have the same symptoms. I used to have quite a responsible position and I couldn't believe it when I found my report writing and simple data entry impossible to do. These were things that I didn't have to think twice about before. I hope that your thyroid stuff improves and even though it might not really help your situation much, know that others are out there (like me!) with similar symptoms to yours who can completely empathise with your situation. > > I'm at the end of the 1st month of my thyroxine trial, during which > time I have had at least 3 days when I have been unable to function > due to my symptoms being too bad. There were other days too when I > could function but not particularly well, but enough to scrape by. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Thanks everyone for your comments. Patersonia's in particular expressed exactly the situation I'm in and it is strangely reassuring to know I'm not alone - not that it is something I'd wish on anyone! I just couldn't get the disability adviser to understand my problem, so it is a relief that you lot understand at least! What I'm finding frustrating is that the support is supposed to be there but, because our abilities fluctuate day to day depending on our health, we can't be pigeon-holed as one thing or the other. The advisors have pointed me in the direction of seeking part-time work and retraining - all of which I have been doing for some time now. As I'm not properly disabled (OK, I'm hearing impaired but I work around that one) the odd day when I canot function coherently is likely to be seen as laziness or malingering. I have been told I don't need to work, so I shouldn't be worried about it until next February when my son will be 11. That's not the point - we are struggling now because I am not earning! What's more, the stress of this is making me ill and rapidly becoming a vicious circle. In fact I have been under considerable stress recently thanks to the Council threatening to fine me and take me to court over debts which only came about through their own miscalculation and which I had been paying off in any case. It has created a lot of letter writing and communications with my MP, so far to no avail. I think it was stress of having to pay the full amount immediately on credit card which did me in, to be honest. We have no kitty left to buy fresh food for at least the next 2 weeks now and that always make me panic! As for feeling awful yesterday, I might actually be going down with something. This morning I've woken up with a very puffy face and a strange rash across my cheeks and tip of my nose. It looks like I've been slapped. My mouth and gums have ulcerated too. Gawd knows whats caused that! Tracey > > > As far as trying to work goes, I totally empathise with you. Like > you, I have days where simple tasks are monumental and other days > where things don't seem too bad. On some days I find that simple > things (like filling in forms or banking) are quite difficult to do > and like you, on those days I have difficulties getting the words > out. To me it feels like my brain 'wants' to say the words but the > connection between brain and mouth doesn't work properly. I don't > know how else to explain it. Very frustrating. It seems like lots > of people with thyroid problems have the same symptoms. I used to > have quite a responsible position and I couldn't believe it when I > found my report writing and simple data entry impossible to do. > These were things that I didn't have to think twice about before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi Tracey, Ask the police to intervene if you're being harrassed by the council. Causing further illness is assault. CAB might help. Vit C is probably very low, and teeth/gums will suffer, exacerbated by the hypothyroid condition. If you can find CoQ10 some time, that also may help with gums/gingivitis/periodontitis. Forcing you to pay over money for debts, leaving you without food is illegal.....always has been, the courts will support you not victimise you. best wishes Bob > > > > > > As far as trying to work goes, I totally empathise with you. Like > > you, I have days where simple tasks are monumental and other days > > where things don't seem too bad. On some days I find that simple > > things (like filling in forms or banking) are quite difficult to do > > and like you, on those days I have difficulties getting the words > > out. To me it feels like my brain 'wants' to say the words but the > > connection between brain and mouth doesn't work properly. I don't > > know how else to explain it. Very frustrating. It seems like lots > > of people with thyroid problems have the same symptoms. I used to > > have quite a responsible position and I couldn't believe it when I > > found my report writing and simple data entry impossible to do. > > These were things that I didn't have to think twice about before. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi , you need to get the 24 hour stress test . this is a test for the adrenals.details in our files. if you are on levothyroxine and you are not responding well this could mean that your adrenals need a boost.or that you need T3 to be added,some of us take armour thyroid, this is a natural medication to replace what your thyroid can not make because it is being attacked by auto antibodies.have you had any tests , if you have post them to us to get a better idea of what is going on. the best tests are T4-T3 and TPOab. hope this helps you. angel.post script --the TSH can be misleading so not very reliable test. for Good helps you make a difference Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 That made me grin Bob, but I don't think it will get me anywhere ) !! I'm still waiting for the blooming police to get back to me after my son was assaulted a fortnight ago! I'm going to see welfare rights or the CAB when I'm feeling a bit more lively and have a bit more energy to fight back. I've made sure everything is in writing where possible and have kept all the paper work. Now I need someone with a bit of clout to throw the book. I've found out what caused my mouth to blister. Unbeknown to me the water company had been working on the mains and they've tipped a load of chlorine in to repurify the water. It gets me every time! It also explains why I've had bright pink burning eyes all day. I never go swimming or go near swimming pools for precisely the same reason! I've been taking 1000mg of vit C+ zinc every day and I reckon it has helped. I used to get colds every fortnight and this just doesn't happen any more. Also since my ferritin levels have improved, my gums have been a lot healthier and less prone to bleeding. It all goes to show that supplements can and do make a difference. Tracey > > Hi Tracey, > > Ask the police to intervene if you're being harrassed by the council. > Causing further illness is assault. CAB might help. > > Vit C is probably very low, and teeth/gums will suffer, exacerbated by the hypothyroid condition. If you can find CoQ10 some time, that also may help with gums/gingivitis/periodontitis. > > Forcing you to pay over money for debts, leaving you without food is illegal.....always has been, the courts will support you not > victimise you. > > best wishes > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Hi Tracey, Zinc is very good against colds ----- Subject: Re: Applying for jobs when not 100% I've been taking 1000mg of vit C+ zinc every day and I reckon it has helped. I used to get colds every fortnight and this just doesn't happen any more. Also since my ferritin levels have improved, my gums have been a lot healthier and less prone to bleeding. It all goes to show that supplements can and do make a difference. Tracey > > Hi Tracey, > > Ask the police to intervene if you're being harrassed by the council. > Causing further illness is assault. CAB might help. > > Vit C is probably very low, and teeth/gums will suffer, exacerbated by the hypothyroid condition. If you can find CoQ10 some time, that also may help with gums/gingivitis/periodontitis. > > Forcing you to pay over money for debts, leaving you without food is illegal.....always has been, the courts will support you not > victimise you. > > best wishes > Bob ------------------------------------ Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
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