Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 HI Carol I am responding to your letter to me with the copy of the letter from your PCT on the forum, as others have been following your story and would no doubt like to see how all this concludes. The letter sent to you by the PCT is really a very fair - I can't find anything where we need to ask for any clarification and it is obvious she has looked into this matter well. The whole thing boils down to the fact that with unlicensed medication, it usually has to be recommended by an endocrinologist, and if a GP is then happy to prescribe it for you, he does so knowing that any responsibility if anything went wrong with you, would be his. She is also correct in that some endocrinologists actually will give their patients a prescription for unlicensed medicines (either within the NHS or privately). If this is NHS, you have to get these filled at the hospital pharmacy. However, this is usually temporary and a specialist would not carry on prescribing this for life (as we need thyroid replacement for life). Normally, endocrinologists just recommend what they feel the GP should prescribe. You could write back and tell her that the cost of fulfilling a private prescription for Armour was almost double the cost of you purchasing it without prescription from an Internet Pharmacy, but even so, as you will be taking this prescription for the rest of your life, and that as it has been used safely and effectively for over 100 years, you would have liked to get a NHS prescription for this, as many sufferers who cannot regain their normal health on thyroxine only medication do. However, she is wrong in that ONLY endocrinologists take total care of their hypothyroid patients and the prescribing of Armour. There are many GP's all over the UK who are prescribing Armour themselves (at their patients request for a trial) and who are doing very well. As there is a Children's British National Formulary advising on "recognised unlicensed" medicines for Children, surely there should be such advice on "recognised unlicensed" medicine for adults who are unable to tolerate the NHS olne and only medication for hypothyroidism, because, quite simply, Armour Thyroid, USP is FDA approved and meets all the specifications laid down by the United States Pharmacopiea (USP) and thyroid extract has been used safely and effectively for over 100 years. This is something you might ask her to explain, and perhaps they would look into this for you. The NHS should NOT be leaving us without any alternative medication when Armour is available - and which CAN be prescribed according to the MHRA. I would contact your GP again and ask them to trace the whereabouts of the letter in question. Hope this helps. Luv - Sheila pct letter Dear Sheila I have scanned and attatched the letter for you, which you did ask me for. I have sent it to your what i think is private email addy as my address appears on it. I did phone the consultants secretary and ask for a copy of his letter to my GP, so far nothing has arrived and my GP says they have not had anything either. Where next please? Carol X Be a better friend, newshound, and know-it-all with Mobile. Try it now. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.17.1/1183 - Release Date: 13/12/2007 09:15 Quote Link to comment Share on other sites More sharing options...
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