Guest guest Posted February 24, 2000 Report Share Posted February 24, 2000 Hi Marta, Well, called everyone today and finally the heart surgeon called back. he is going to have another conference with the cardiologist and call again. At this time he says he doesn't see a need for heart surgery. The front of his heart is getting enough blood flow, the back of his heart is dead. so we don't know if he is going to rehab, disability or what. I will keep you posted. As soon as I know everything, I will post on lyme-aid. Everyones support and prayers were wonderful. I could not do this without all of you. Congrats on your IV's love ya, Con Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2000 Report Share Posted February 27, 2000 Hi Connie, Glad you finally got some news, it sounds good to me if no surgery, and rehab will help. And good to know that Joe is making those calls himself and not relying on you to do it all. I am not doing too good on the IV had trouble with the line to my port falling out this morning (Sunday) and nurses had to come out, port area too swollen for another line, so they infused me in my hand...ouch! Hopefully they can access the port tomorrow....at least I didn't miss a dose. Please keep us all posted, so sorry I am slow to respond, been feeling pretty awful. Hugs, Marta >From: Cslyme@... > >Hi Marta, > Well, called everyone today and finally the heart surgeon called >back. he is going to have another conference with the cardiologist and call >again. At this time he says he doesn't see a need for heart surgery. The >front of his heart is getting enough blood flow, the back of his heart is >dead. so we don't know if he is going to rehab, disability or what. I will >keep you posted. As soon as I know everything, I will post on lyme-aid. >Everyones support and prayers were wonderful. I could not do this without >all of you. > >Congrats on your IV's > >love ya, >Con > >------------------------------------------------------------------------ >@Backup-The Easiest Way to Protect and Access your files. >Automatic backups and off-site storage of your critical data. Install >your FREE trial today and have a chance to WIN a digital camera! >Click here. >1/1830/4/_/484634/_/951435020/ >------------------------------------------------------------------------ > >Send to -Offtopiconelist messages unrelated to lyme, please. >/archive/lyme-aid >/archives.cgi/Lyme-Documents >To unsubscribe, send email to -unsubscribeonelist >You may substitute " subscribe " , or " digest " or " normal " for >the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2000 Report Share Posted February 28, 2000 Hi Connie, Glad you finally got some news, it sounds good to me if no surgery, and rehab will help. And good to know that Joe is making those calls himself and not relying on you to do it all. I am not doing too good on the IV had trouble with the line to my port falling out this morning (Sunday) and nurses had to come out, port area too swollen for another line, so they infused me in my hand...ouch! Hopefully they can access the port tomorrow....at least I didn't miss a dose. Please keep us all posted, so sorry I am slow to respond, been feeling pretty awful. Hugs, Marta >From: Cslyme@... > >Hi Marta, > Well, called everyone today and finally the heart surgeon called >back. he is going to have another conference with the cardiologist and call >again. At this time he says he doesn't see a need for heart surgery. The >front of his heart is getting enough blood flow, the back of his heart is >dead. so we don't know if he is going to rehab, disability or what. I will >keep you posted. As soon as I know everything, I will post on lyme-aid. >Everyones support and prayers were wonderful. I could not do this without >all of you. > >Congrats on your IV's > >love ya, >Con > >------------------------------------------------------------------------ >@Backup-The Easiest Way to Protect and Access your files. >Automatic backups and off-site storage of your critical data. Install >your FREE trial today and have a chance to WIN a digital camera! >Click here. >1/1830/4/_/484634/_/951435020/ >------------------------------------------------------------------------ > >Send to -Offtopiconelist messages unrelated to lyme, please. >/archive/lyme-aid >/archives.cgi/Lyme-Documents >To unsubscribe, send email to -unsubscribeonelist >You may substitute " subscribe " , or " digest " or " normal " for >the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 In a message dated 00-02-29 11:39:27 EST, you write: << From: Cslyme@... Hi Everyone, We visited the cardiologist yesterday. So far they think that he can be treated chemically, no drugs. He is doing well on the " Study " drugs they put him on. He is going to do cardiac rehab again for 6 weeks, then try and go back to work. Thanks to all of you for all your prayers. Connie and Joe Siese >> Dear Connie, Thanks for sharing the GREAT news! YIPPEE! Keeping all paws crossed here that all will go well! Blessings & velcros Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 Hi, Can you believe I wrote, chemically, no drugs. Geeze, lyme has eaten my brain away. I will give it to science upon my demise so they can all have a good laugh. love to all for their support, Connie, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2000 Report Share Posted March 1, 2000 Hi Marta, Thanks for your note, you are right, I am exhausted. Last night when I sat down after an entire day of computer stuff, calling BC, etc, I told that I hate nights. Because when I sit down to relax I can really feel the pain, everything hurts and thumps. Of course his expert medical opinion was you must not be on the right medicines. (He who has to carry a list typed by me because he tell the doctors, he is on " stuff " , like yellow pill, etc.) I am off on spring break this week and hopefully will get some stuff done. There is so much going on, I can't keep up with it. But I am going to try. I am glad he didn't have to have surger and the study drugs he is on are working, but he has to do his part too. I caught a chest cold and am glad i can stay home and rest. And my student that I am in charge of at school had a couple of psychotic days, " alter ego " . I was also very tired from trying to straighten that out. Still have to write a summary to sent to his psychiatrist. But I have until Friday to do that. Thank you so much for your kind words and support. I know you are going thru a rough time with the IV's. Hang in there. I am looking forward to seeing you in Gettysburg. Love and hugs and thank you for that wonderful page, I sent it along to others and it made their day. Con Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2000 Report Share Posted March 1, 2000 Hi Connie, Great news, I needed to hear some, although in your short note I detect a bit of exasperation, you must be so exhausted from all this waiting and maybes. Joe too. I just hope both of you can move on with your lives after this ordeal and treat this as a bad memory. I hope you don't collapse now that this is kind of over, seems we tend to run on adrenaline until we can relax and then we are one huge walking pain center. Please take care of yourself, and see the doctor yourself if need be, Love, Marta >From: Cslyme@... > >Hi Everyone, > We visited the cardiologist yesterday. So far they think that he can be >treated chemically, no drugs. He is doing well on the " Study " drugs they put >him on. He is going to do cardiac rehab again for 6 weeks, then try and go >back to work. > Thanks to all of you for all your prayers. > Connie and Joe Siese Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 I had to write on this one. I mainly want to thank my husband for all his caring and understanding. I want those to know that don't have the ideal person for their spouse that there are good guys/gals out there. My husband is not perfect but loves me and would never leave me. Yes we do fight. But through out our whole marriage never once have we battled without love or forgiveness. We also have never called each other names...never once has he called me lazy or crazy or anything. And he acknowledges that he really can't understand what I am going through and vica versa for me too. We all deserve love and respect. There are people out there who have this kind of attitude of love and charity. Please remember that. And I love all of you my friends. You are all Princes and Princesses in the Lord's eyes. You deserve to be treated as such. I am praying for all of you that you might receive the respect and love you need. Cyntha Landon Idaho PS. Are these bumps people talking about that is on the head feel small and round, at first I felt they were just acne on my head but now I wonder...because they hurt if I push them.....just curious...mine aren't real bad but I have about 5 or 6 on my head that are fairly small....??????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 My hubby and I have a few nicknames, like I call him Bunky or Snuffy. He just always calls me Hon. Not too many times by my real name. Of course when we are arguing, we call each other every name in the book, like Marta, curse words.....no wonder his friends call me Sailor. My husband is understanding I think, but when you have all different problems, it becomes harder for him to understand, so if I was to say that something was hurting today, he would say, whats new? or what is it today? Boy, he needs to listen to himself. Lately he's had wrist pains, back pains, rib pains and who knows what else, probably ankle pain. I have heard of people getting pimples on their heads. Matter of fact, I think I have had a few. You can always have your spouse or other half look at them to see what they look like. Hope everyone is well! Love you guys! Anne Re: [ ] Hubby From: " Marta McCoy " <mlmccoy@...> Hi Cyntha, Glad you have such a good hubby, made me feel a bit guilty, my husband never ever calls me names either, but can't say the same for me....when I get mad, I have been known to call him every name under the sun, mostly cuss words, not personal words like " ugly " or " baldy " or " stupid " , just plain old profanity, but he always just lets it roll off his back, and in a few minutes he is ready to make up. I am very lucky! And all you list members thought I was such a nice person....Ha! As for those bumps, mine always itched, the small ones and the big ones. Not sure if acne itched, it's been a long time since I had that. They are also tender to touch, but I bet a pimple is too. Anyway, isn't your scalp a strange place to get acne??? I hope you figure out what they are soon....are they worse when you are on abx, and possibly herxing? Hugs, Marta >From: " Cyntha Landon " <cyntha@...> > >I had to write on this one. I mainly want to thank my husband for all his >caring and understanding. I want those to know that don't have the ideal >person for their spouse that there are good guys/gals out there. My husband >is not perfect but loves me and would never leave me. >> >PS. Are these bumps people talking about that is on the head feel small and >round, at first I felt they were just acne on my head but now I >wonder...because they hurt if I push them.....just curious...mine aren't >real bad but I have about 5 or 6 on my head that are fairly small....??????? > _____ <1/1694/4/_/484634/_/952520830/?_adid=health_questi ons2 & _conid=egroups & _java=T & _page=http://onhealth.com> [ o n h e a l t h ] Enter: <http://ad6.sonata.com/servlet/filedump/trans.gif?_adid=health_questi ons2 & _conid=egroups & _java=B> <1/1694/4/_/484634/_/952520830/?_adid=health_questi ons2 & _conid=egroups & _java=T & _page=http://onhealth.com> [ o n h e a l t h ] _____ Send to -Offtopiconelist messages unrelated to Lyme, please. Archives can be found at: /group/lyme-aid. </group/lyme-aid.> They are filed by month, pick a month and search those archives for subjects you are interested. Lyme chat, go to this URL: /chat/lyme-aid </chat/lyme-aid> Should you have trouble opening the page, go back to / </> and make sure you are registered with a password. You can ask ONELIST to remember you, and will only have to do this one time. To unsubscribe, send email to -unsubscribeonelist You may substitute " subscribe " , or " digest " or " normal " for the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 Hi Cyntha, Glad you have such a good hubby, made me feel a bit guilty, my husband never ever calls me names either, but can't say the same for me....when I get mad, I have been known to call him every name under the sun, mostly cuss words, not personal words like " ugly " or " baldy " or " stupid " , just plain old profanity, but he always just lets it roll off his back, and in a few minutes he is ready to make up. I am very lucky! And all you list members thought I was such a nice person....Ha! As for those bumps, mine always itched, the small ones and the big ones. Not sure if acne itched, it's been a long time since I had that. They are also tender to touch, but I bet a pimple is too. Anyway, isn't your scalp a strange place to get acne??? I hope you figure out what they are soon....are they worse when you are on abx, and possibly herxing? Hugs, Marta >From: " Cyntha Landon " <cyntha@...> > >I had to write on this one. I mainly want to thank my husband for all his >caring and understanding. I want those to know that don't have the ideal >person for their spouse that there are good guys/gals out there. My husband >is not perfect but loves me and would never leave me. >> >PS. Are these bumps people talking about that is on the head feel small and >round, at first I felt they were just acne on my head but now I >wonder...because they hurt if I push them.....just curious...mine aren't >real bad but I have about 5 or 6 on my head that are fairly small....??????? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2000 Report Share Posted March 12, 2000 I am on no abx. still fighting docs...but have been on amitriptoline *not sure if that is right spelling* but it has helped some. but I do have the little red bumps that itch all the time. Strangely I thought this last week I was pregnant. I was nauseated..throwing up felt exactly like morning sickness and was even leaking (breasts)*sensitive issue, sorry*. But the test said negative so now I get to find out why. May be lyme related. Anybody ever had this happening to them. I had an IUD so I was dumbfounded at the time and could not figure out how I could have gotten pregnant but I was that sure..lol...but nope. Life loves to play tricks. I was releaved but at the same time in a strange way disappointed. Makes sense right...lol By the way did anybody watch 20 20 the other day. About they think they may have found a cure for Chronic Fatigue Syndrome and Fibromyalgia??? It was very interesting. Cyntha Landon Idaho Re: [ ] Hubby > From: " Marta McCoy " <mlmccoy@...> > > Hi Cyntha, > Glad you have such a good hubby, made me feel a bit guilty, my husband > never ever calls me names either, but can't say the same for me....when I > get mad, I have been known to call him every name under the sun, mostly cuss > words, not personal words like " ugly " or " baldy " or " stupid " , just plain old > profanity, but he always just lets it roll off his back, and in a few > minutes he is ready to make up. I am very lucky! And all you list members > thought I was such a nice person....Ha! > As for those bumps, mine always itched, the small ones and the big ones. > Not sure if acne itched, it's been a long time since I had that. > They are also tender to touch, but I bet a pimple is too. Anyway, isn't > your scalp a strange place to get acne??? I hope you figure out what they > are soon....are they worse when you are on abx, and possibly herxing? > Hugs, > Marta > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2000 Report Share Posted March 13, 2000 , I seem to have the same feelings, nauseousness, leaking breast, on a regular basis, but just started to be regular again within the last few months, also at the beginning of my treatment. And yes these are all part of Lyme & /or Fibromyalgia. I can't remember where I read that, but I remember when it first happened about 4 years ago, when I was still going to the doctor constantly with varying complaints, wondering what the hell was wrong with me. They never put all the symptoms together, even though one of my first complaints back in 1992 was " after raking leaves, developed rash all over torso (funny not on my legs), and has flu like symptoms, and aching joint " (HELLO, dah). I do know how you feel about being disappointed that it wasn't a pregnancy. Even though I not only do not want any more children and I 40 years old, its still rough when you experience such a beautiful event and not yearn to do it again. I have three children and being sick with Lyme, its not a good time to get pregnant - for you I mean. But I empathize. Take care, Vicki, Md >From: " Cyntha Landon " <cyntha@...> > Strangely I thought this last week I was pregnant. I was nauseated..throwing up felt exactly like morning sickness and was even leaking (breasts)*sensitive issue, sorry*. But the >test said negative so now I get to find out why. May be lyme related. >Anybody ever had this happening to them. I had an IUD so I was dumbfounded >at the time and could not figure out how I could have gotten pregnant but I >was that sure..lol...but nope. Life loves to play tricks. I was releaved >but at the same time in a strange way disappointed. Makes sense right...lol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2000 Report Share Posted March 13, 2000 , I seem to have the same feelings, nauseousness, leaking breast, on a regular basis, but just started to be regular again within the last few months, also at the beginning of my treatment. And yes these are all part of Lyme & /or Fibromyalgia. I can't remember where I read that, but I remember when it first happened about 4 years ago, when I was still going to the doctor constantly with varying complaints, wondering what the hell was wrong with me. They never put all the symptoms together, even though one of my first complaints back in 1992 was " after raking leaves, developed rash all over torso (funny not on my legs), and has flu like symptoms, and aching joint " (HELLO, dah). I do know how you feel about being disappointed that it wasn't a pregnancy. Even though I not only do not want any more children and I 40 years old, its still rough when you experience such a beautiful event and not yearn to do it again. I have three children and being sick with Lyme, its not a good time to get pregnant - for you I mean. But I empathize. Take care, Vicki, Md >From: " Cyntha Landon " <cyntha@...> > Strangely I thought this last week I was pregnant. I was nauseated..throwing up felt exactly like morning sickness and was even leaking (breasts)*sensitive issue, sorry*. But the >test said negative so now I get to find out why. May be lyme related. >Anybody ever had this happening to them. I had an IUD so I was dumbfounded >at the time and could not figure out how I could have gotten pregnant but I >was that sure..lol...but nope. Life loves to play tricks. I was releaved >but at the same time in a strange way disappointed. Makes sense right...lol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2000 Report Share Posted March 15, 2000 I agree with the baby thing Vicki...I was so worried that I would be pregnant and transfer this disease to another child. I couldn't bare to do that. But yeah the yearning to hold another baby is very strong....but sometimes...just got to be unselfish...also not to mention what it would do to my body...I already have enough problems with it....thanks for your reply....doctor had made me go in and take another pregnancy test but of course it was negative...duh I already knew that from my test that I took...sigh....thanks again.... Cyntha Landon Idaho Fw: [ ] Hubby > From: " Vicki Ferraro " <ferraroa@...> > > , > I seem to have the same feelings, nauseousness, leaking breast, on a regular > basis, but just started to be regular again within the last few months, also > at the beginning of my treatment. And yes these are all part of Lyme & /or > Fibromyalgia. I can't remember where I read that, but I remember when it > first happened about 4 years ago, when I was still going to the doctor > constantly with varying complaints, wondering what the hell was wrong with > me. They never put all the symptoms together, even though one of my first > complaints back in 1992 was " after raking leaves, developed rash all over > torso (funny not on my legs), and has flu like symptoms, and aching joint " > (HELLO, dah). I do know how you feel about being disappointed that it wasn't > a pregnancy. Even though I not only do not want any more children and I 40 > years old, its still rough when you experience such a beautiful event and > not yearn to do it again. I have three children and being sick with Lyme, > its not a good time to get pregnant - for you I mean. But I empathize. Take > care, Vicki, Md > > > >From: " Cyntha Landon " <cyntha@...> > > > Strangely I thought this last week I was pregnant. I was > nauseated..throwing up felt exactly like morning sickness and was even > leaking (breasts)*sensitive issue, sorry*. But the > >test said negative so now I get to find out why. May be lyme related. > >Anybody ever had this happening to them. I had an IUD so I was dumbfounded > >at the time and could not figure out how I could have gotten pregnant but I > >was that sure..lol...but nope. Life loves to play tricks. I was releaved > >but at the same time in a strange way disappointed. Makes sense > right...lol > > > > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > 1/975/4/_/484634/_/952957912/ > ------------------------------------------------------------------------ > > Send to -Offtopiconelist messages unrelated to Lyme, please. > Archives can be found at: > /group/lyme-aid. > They are filed by month, pick a month and search those archives for subjects you are interested. > Lyme chat, go to this URL: > /chat/lyme-aid > Should you have trouble opening the page, go back to / and make sure you are registered with a password. You can ask ONELIST to remember you, and will only have to do this one time. > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 , Thanks for laughing! I don't know what I would do without generous people such as yourself! The amazing thing about Axel's post that I did NOT mention, was that he actually remembered that I was an A on the list with an O husband. I guess we could talk about whether Axel is a chauvinistic O! (He cares not for other blood types! Only thinks of his O'n) Frances > Message: 11 > Date: Wed, 12 Dec 2001 15:39:11 +1100 > From: " Kalab " <jk@...> > Subject: RE: > > LOLOLOL. So true Frances. Frances has you there Axel! > > Hubby? > JK > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 Hello Francis, He's pretty amazing our adorable Axel isn't he? As much as he gets himself into trouble sometimes (with people misunderstanding him and whatnot)! Maybe he is building and storing profiles on us all!!!! I can just imagine him and his crazy sense of humour and life, conjuring up potions and making voodoo dolls of us all.... JK RE: > > LOLOLOL. So true Frances. Frances has you there Axel! > > Hubby? > JK > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Congrats Llinda and husband.. How well I remember the time frame when I was first DX.. The husband all the children and grandchildren where tested...Oh course our Primary Doctor was just floored ha ha.. Kathy Boo-- Hubby We just got the test results for my hubby from the VA. >> He Does Not Have Hepatitis!!! << Talk about a relief, whew. Next, I am expecting great results tomorrow from the pulmonary specialist. Then we will be set :-) Llinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Congrats Llinda and husband.. How well I remember the time frame when I was first DX.. The husband all the children and grandchildren where tested...Oh course our Primary Doctor was just floored ha ha.. Kathy Boo-- Hubby We just got the test results for my hubby from the VA. >> He Does Not Have Hepatitis!!! << Talk about a relief, whew. Next, I am expecting great results tomorrow from the pulmonary specialist. Then we will be set :-) Llinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 COOL!!!!!!!! Dick At 07:24 PM 5/24/05, you wrote: We just got the test results for my hubby from the VA. >> He Does Not Have Hepatitis!!! << Talk about a relief, whew. Next, I am expecting great results tomorrow from the pulmonary specialist. Then we will be set :-) Llinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Praise God! That is great news, Llinda! One less thing to worry about. De Faith is the ability to not panic. Hubby We just got the test results for my hubby from the VA. >> He Does Not Have Hepatitis!!! << Talk about a relief, whew. Next, I am expecting great results tomorrow from the pulmonary specialist. Then we will be set :-) Llinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Been so busy but I wanted to tell you guys that my husband also has gallstones and has done 3 flushes. The second one was amazing he had so many stones and 5 very large ones---larger than quarters. And they came out using the epsom salts. He could actually feel them because of their size. I never had those kinds of stones--very little if any at all. I think my problem is more sludge. Maybe all the apple juice broke it up?? And I did grind my own as well as cider/store brought/organic. Also pear has malic acid. I also think digestive enzymes help a great deal--especially if you have to eat protein--/heavy meal. I still have pain at night on the right side of the flank--not real bad but reminds me of the GB. A year later. I know I must keep flushing but it does get better--less fat helps as well. But almost a year later and no surgery. I never had the fever or yellow eyes--only one attack last June. Tough to say with your wife --you need to know the condition of her GB and get another opinion!!!!!!! Many if you have too----Go to a DO --they are much more open to alternatives. So hubby and I both have our GB's---we do notice we use a lot of salt---does anyone else as well?? We eat a lot less red meat--more fish--a lot of fruit-- So having the pain is not the worst thing in the world if we are eating better--- some good comes out of this!!! tina Quote Link to comment Share on other sites More sharing options...
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