Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Hi-- I am finally starting to receive some of the lab tests I had done, after prompting my physicians of their agreeing for me to get a copy of my results. While I'm still awaiting my antibody counts to see if taking iodoral helped reduced their levels, (and from reading messages on here, I am thinking they won't be reduced much if at all but we'll see); but I did receive results from having cortisol acth, plasma. I had started to take iodoral Sept 3. My results from blood work on 9/22, 8am draw are Cortisol ACTH, Plasma 36 (high) [5-27] Cortisol, LC/MS/MS, serum 19 [5-21] Previous to this, I had a cortisol , free drawn 9/12 at 3pm (dumb time, but no one told me what time I should go); results were 0.78 [0.4-1.92 at 8-10am or 0.2-0.9 4-6pm. Prior to that I had done a saliva test 8/4. 7am 1222 [200-1600] 11am 241 [100-600] 4pm 413 [100-600] 11pm 225 [50-250] I'm confused. These aren't exactly the same tests, but does this seem consistent to anyone? Or is it possible taking iodoral has resulted in me having higher cortisol levels? (it has already resulted in my TSH going from around 3 or so to about 5.2). SINCE the 9/22 test, I went to a Broda doctor who thought I had more adrenal symptoms than thyroid. He said he no longer favored taking 50mg of iodoral a day; I told him I was trying it for 3 months--he thought I should definitely not take it longer than that. I have started HC...after he prescribed it, approx. 10/17. When I receive more tests results I will post. I am curious if anyone has an opinion about this. Thanks! ________________________________________________________________________________\ ____ Want to start your own business? Learn how on Small Business (http://smallbusiness.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 >From: Regis <vegan_mamma@...> Low thyroid / low adrenal symptoms are similar. Why did he think you had low cortisol, if your labs don't show it? Not everyone has low cortisol, some have high cortisol which can also cause symptoms. Since too much cortisol can interfere with thyroid function, you should know the specific reasons you're supplementing HC when you don't appear low. My wife has high cortisol. I think my thyroid doc is also Broda doc (or at least familiar with him and goes to their conferences), he's offered my wife HC almost everytime she's gone. But, she has high cortisol, so it doesn't make sense. Low cortisol is so common in hypos, the docs who are knowledgeable tend to think in terms of low cortisol. Skipper Skipper >Hi-- >I am finally starting to receive some of the lab tests >I had done, after prompting my physicians of their >agreeing for me to get a copy of my results. >While I'm still awaiting my antibody counts to see if >taking iodoral helped reduced their levels, (and from >reading messages on here, I am thinking they won't be >reduced much if at all but we'll see); but I did >receive results from having cortisol acth, plasma. >I had started to take iodoral Sept 3. My results from >blood work on 9/22, 8am draw are >Cortisol ACTH, Plasma 36 (high) [5-27] >Cortisol, LC/MS/MS, serum 19 [5-21] > >Previous to this, I had a cortisol , free drawn 9/12 >at 3pm (dumb time, but no one told me what time I >should go); >results were 0.78 [0.4-1.92 at 8-10am or 0.2-0.9 >4-6pm. > >Prior to that I had done a saliva test 8/4. >7am 1222 [200-1600] >11am 241 [100-600] >4pm 413 [100-600] >11pm 225 [50-250] > >I'm confused. These aren't exactly the same tests, >but does this seem consistent to anyone? Or is it >possible taking iodoral has resulted in me having >higher cortisol levels? (it has already resulted in >my TSH going from around 3 or so to about 5.2). > >SINCE the 9/22 test, I went to a Broda doctor >who thought I had more adrenal symptoms than thyroid. >He said he no longer favored taking 50mg of iodoral a >day; I told him I was trying it for 3 months--he >thought I should definitely not take it longer than >that. I have started HC...after he prescribed it, >approx. 10/17. > >When I receive more tests results I will post. I am >curious if anyone has an opinion about this. Thanks! > > > > >_______________________________________________________________________________\ _____ >Want to start your own business? Learn how on Small Business >(http://smallbusiness.) > > > >Iodine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 The doctor gave me HC since the only test results I had at that point were my saliva tests and the afternoon cortisol test that didn't mean much. I only received the 'high' test results in the mail this past Friday. As I mentioned, I was hoping to see if anyone else on the list had experienced a change in their cortisol levels after having started to take iodoral. Skipper, is your wife's cortisol levels consistently high throughout the day? Is she also on iodoral (how much, how long)? Did her doctor ever explain why he still recommends HC for her even with her high cortisol levels? --- Skipper Beers <lsb149@...> wrote: > > > > >From: Regis <vegan_mamma@...> > > Low thyroid / low adrenal symptoms are similar. > > Why did he think you had low cortisol, if your labs > don't show it? > > Not everyone has low cortisol, some have high > cortisol which can also cause > symptoms. Since too much cortisol can interfere > with thyroid function, you > should know the specific reasons you're > supplementing HC when you don't > appear low. > > My wife has high cortisol. I think my thyroid doc > is also Broda doc > (or at least familiar with him and goes to their > conferences), he's offered > my wife HC almost everytime she's gone. But, she > has high cortisol, so it > doesn't make sense. Low cortisol is so common in > hypos, the docs who are > knowledgeable tend to think in terms of low > cortisol. > > Skipper > > Skipper > > > >Hi-- > >I am finally starting to receive some of the lab > tests > >I had done, after prompting my physicians of their > >agreeing for me to get a copy of my results. > >While I'm still awaiting my antibody counts to see > if > >taking iodoral helped reduced their levels, (and > from > >reading messages on here, I am thinking they won't > be > >reduced much if at all but we'll see); but I did > >receive results from having cortisol acth, plasma. > >I had started to take iodoral Sept 3. My results > from > >blood work on 9/22, 8am draw are > >Cortisol ACTH, Plasma 36 (high) [5-27] > >Cortisol, LC/MS/MS, serum 19 [5-21] > > > >Previous to this, I had a cortisol , free drawn > 9/12 > >at 3pm (dumb time, but no one told me what time I > >should go); > >results were 0.78 [0.4-1.92 at 8-10am or 0.2-0.9 > >4-6pm. > > > >Prior to that I had done a saliva test 8/4. > >7am 1222 [200-1600] > >11am 241 [100-600] > >4pm 413 [100-600] > >11pm 225 [50-250] > > > >I'm confused. These aren't exactly the same tests, > >but does this seem consistent to anyone? Or is it > >possible taking iodoral has resulted in me having > >higher cortisol levels? (it has already resulted > in > >my TSH going from around 3 or so to about 5.2). > > > >SINCE the 9/22 test, I went to a Broda > doctor > >who thought I had more adrenal symptoms than > thyroid. > >He said he no longer favored taking 50mg of iodoral > a > >day; I told him I was trying it for 3 months--he > >thought I should definitely not take it longer than > >that. I have started HC...after he prescribed it, > >approx. 10/17. > > > >When I receive more tests results I will post. I > am > >curious if anyone has an opinion about this. > Thanks! > > > > > > > > > >_______________________________________________________________________________\ _____ > >Want to start your own business? Learn how on > Small Business > >(http://smallbusiness.) > > > > > > > >Iodine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 >From: Regis <vegan_mamma@...> >The doctor gave me HC since the only test results I >had at that point were my saliva tests and the >afternoon cortisol test that didn't mean much. I only >received the 'high' test results in the mail this past >Friday. > >As I mentioned, I was hoping to see if anyone else on >the list had experienced a change in their cortisol >levels after having started to take iodoral. > >Skipper, is your wife's cortisol levels consistently >high throughout the day? Is she also on iodoral (how >much, how long)? Did her doctor ever explain why he >still recommends HC for her even with her high >cortisol levels? Yes, my wife's cortisol was always high. It is possible that now that she takes phosphatidylserine, it's not as high as it used to be. I suspect it's why she needed to take melatonin to help her sleep at night, because cortisol will suppress melatonin. She never had the 4 times per day saliva testing. The doctor doesn't explain. But, I know it's because he knows the lab values aren't that great an indicator of adrenal function and the majority of hypothyroid patients are likely to have low cortisol, at least in the beginning. Langer described how when someone started Armour, it would usually raise cortisol levels. Some of the smarter docs will prescribe HC for a while when one goes on thyroid meds because it will help them get better quicker. Doesn't mean the HC will be forever. After taking HC for six years, I'm not right now. I've noticed no decline in function from stopping. That doesn't mean it won't happen. For now, I'm wondering if maybe it's because I'm taking Lugol's Solution, if that's helping me so that I don't need HC any more. I think Zoe said one of the doctors claimed the adrenals take quite a bit of iodine, they just don't know what the adrenals do with it. Maybe it helps remove toxins from the adrenals or does something else of a positive nature. Skipper _________________________________________________________________ Find a local pizza place, music store, museum and more…then map the best route! http://local.live.com?FORM=MGA001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 I haven't experienced a change in the need for cortisol, and I have been taking Iodoral 50mg/day for 10 months. We have had this discussion about testing b4. I find most of the testing problematic, and I also would give Skipper's wife cortisol! The tests are the problem. FWIW my saliva tests for cortisol were high/high normal/high/high normal. Blood test normal, 24 hr urine from AAL lab low for adrenals and sex hormones. I spent a lot of time and $$$ on testing and goofy interpretations of testing. Gracia The doctor gave me HC since the only test results Ihad at that point were my saliva tests and theafternoon cortisol test that didn't mean much. I onlyreceived the 'high' test results in the mail this pastFriday.As I mentioned, I was hoping to see if anyone else onthe list had experienced a change in their cortisollevels after having started to take iodoral.Skipper, is your wife's cortisol levels consistentlyhigh throughout the day? Is she also on iodoral (howmuch, how long)? Did her doctor ever explain why hestill recommends HC for her even with her highcortisol levels? .. No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.17/505 - Release Date: 10/27/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 >From: " Gracia " <circe@...> > I haven't experienced a change in the need for cortisol, and I have been >taking Iodoral 50mg/day for 10 months. Everyone is different. Also, if you don't back off the dosage, you might not realize that backing off doesn't make a difference. I'm not saying this is a permanent change for me. But, so far it's been a couple weeks, and historically I haven't been able to stay off this long without problems. So, the iodine or other factor may be having an effect, or it may be the years on HC have simply allowed my adrenals to recover. IN some cases, that is what happens on HC. The adrenals rest long enough to recover their own function. That's the best case scenario. I really think it's the iodine having a positive impact, but have no way to know for sure. > We have had this discussion about testing b4. I find most of the >testing problematic, and I also would give Skipper's wife cortisol! But you would be WRONG. Not only does her cortisol always test at high in the range, she had high cortisol symptoms, and is taking phosphatidyserrine in order to lower cortisol levels. She's taking timed release T3 as her thyroid medication of choice, and the reason we think she needs a T3 only product, is because of the negative effect high cortisol has on conversion of T4 to T3. She did try a short trial of Cortef once, because the doctor thought it worth seeing what happened, and it simply made her symptoms worse. Not everyone has low cortisol. Without low adrenal function, it's not likely that taking HC will be beneficial. Skipper _________________________________________________________________ Find a local pizza place, music store, museum and more…then map the best route! http://local.live.com?FORM=MGA001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 I have tried backing off the dosage. I get into trouble after a few hours of needing next dose. I get confused and overwhelmed. Other times I have gotten so depressed and ache all over. I wouldn't make any assumptions about cortisol based on a blood test. I guess that's all endos use though. Gracia > >From: " Gracia " <circe@...> > >> I haven't experienced a change in the need for cortisol, and I have >> been >>taking Iodoral 50mg/day for 10 months. > > Everyone is different. Also, if you don't back off the dosage, you might > not realize that backing off doesn't make a difference. > > I'm not saying this is a permanent change for me. But, so far it's been a > couple weeks, and historically I haven't been able to stay off this long > without problems. So, the iodine or other factor may be having an effect, > or it may be the years on HC have simply allowed my adrenals to recover. > IN > some cases, that is what happens on HC. The adrenals rest long enough to > recover their own function. That's the best case scenario. > > I really think it's the iodine having a positive impact, but have no way > to > know for sure. > >> We have had this discussion about testing b4. I find most of the >>testing problematic, and I also would give Skipper's wife cortisol! > > But you would be WRONG. Not only does her cortisol always test at high in > the range, she had high cortisol symptoms, and is taking > phosphatidyserrine > in order to lower cortisol levels. She's taking timed release T3 as her > thyroid medication of choice, and the reason we think she needs a T3 only > product, is because of the negative effect high cortisol has on conversion > of T4 to T3. > > She did try a short trial of Cortef once, because the doctor thought it > worth seeing what happened, and it simply made her symptoms worse. > > Not everyone has low cortisol. Without low adrenal function, it's not > likely that taking HC will be beneficial. > > Skipper > > _________________________________________________________________ > Find a local pizza place, music store, museum and more.then map the best > route! http://local.live.com?FORM=MGA001 > > > > Iodine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Skipper-- I have just been going over some medical records I had transfered to myself and found that I had been tested for phosphatidylserine AB (IGM) and the result was high at 38 [<25] In the reply to a thread, (I've left below), you mention your wife is taking phosphatidylserine since she had high cortisol. I'm starting to get very confused about all of my test results, which seem to be all over the place. Has your wife specifically tested low in phosphatidylserine and that is why she is taking it? does she have autoimmune thyroiditis or just hypothyroidism? and I'm sorry, but I missed if you said your wife is also taking iodoral or are you only taking it? thanks so much.Skipper Beers <lsb149@...> wrote: >From: "Gracia" > I haven't experienced a change in the need for cortisol, and I have been >taking Iodoral 50mg/day for 10 months.Everyone is different. Also, if you don't back off the dosage, you might not realize that backing off doesn't make a difference.I'm not saying this is a permanent change for me. But, so far it's been a couple weeks, and historically I haven't been able to stay off this long without problems. So, the iodine or other factor may be having an effect, or it may be the years on HC have simply allowed my adrenals to recover. IN some cases, that is what happens on HC. The adrenals rest long enough to recover their own function. That's the best case scenario.I really think it's the iodine having a positive impact, but have no way to know for sure.> We have had this discussion about testing b4. I find most of the >testing problematic, and I also would give Skipper's wife cortisol!But you would be WRONG. Not only does her cortisol always test at high in the range, she had high cortisol symptoms, and is taking phosphatidyserrine in order to lower cortisol levels. She's taking timed release T3 as her thyroid medication of choice, and the reason we think she needs a T3 only product, is because of the negative effect high cortisol has on conversion of T4 to T3.She did try a short trial of Cortef once, because the doctor thought it worth seeing what happened, and it simply made her symptoms worse.Not everyone has low cortisol. Without low adrenal function, it's not likely that taking HC will be beneficial.Skipper_________________________________________________________________Find a local pizza place, music store, museum and more…then map the best route! http://local.live.com?FORM=MGA001Iodine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 >From: Regis <vegan_mamma@...> >Skipper-- > I have just been going over some medical records I had transfered to >myself and found that I had been tested for phosphatidylserine AB (IGM) and >the result was high at 38 [<25] > In the reply to a thread, (I've left below), you mention your wife is >taking phosphatidylserine since she had high cortisol. > > I'm starting to get very confused about all of my test results, which >seem to be all over the place. Has your wife specifically tested low in >phosphatidylserine and that is why she is taking it? does she have >autoimmune thyroiditis or just hypothyroidism? and I'm sorry, but I missed >if you said your wife is also taking iodoral or are you only taking it? > > thanks so much. That's quite interesting. I had no idea there were PS antibodies. That's what the test you mentioned would be for. I never even thought of a test for PS. No, she never tested low. However, her cortisol levels were always rather high. PS makes her mental acuity much better, as well as lowers her aggression. If observant, one might notice that patients taking large doses of Prednisone or other corticosteroid exhibit increased aggression. I suspect natural cortisol levels do the same thing. She's much nicer when she takes it, and feels much better, and can think much better. PS, Vitamin C, and magnesium all help to lower cortisol and she takes them all. My wife takes a drop of Lugol's Solution almost every day. She never tested positive for thyroid antibodies, but in 10 percent of cases according to Arem (Thyroid Solution) patients don't test positive, but damage can be seen on a scan, so even though she hasn't tested positive, I have wondered. Since her " Postpartum depression " followed the normal course of Hashimoto's, which means it started 3 to 6 months after pregnancy, I have wondered if she has it, and just doesn't test positive. http://www.aruplab.com/guides/ug/tests/0050905.jsp The detection of anti-phosphatidylserine antibodies by ELISA is recommended for the diagnosis of anti-phospholipid syndrome. Patients with positive reactions to both cardiolipin and phosphatidylserine are more likely to have clinical complications than those positive for only one antibody. Good discussion of anti-phospholid syndrome at http://www.medicinenet.com/antiphospholipid_syndrome/article.htm Did you have miscarriages or something that prompted the doctor to test? Skipper _________________________________________________________________ Try the next generation of search with Windows Live Search today! http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us & source=hmtag\ line Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Thanks for the links--I will check them out. The reason I was checked, I think, was to rule out lupus (?) after my ANA tested high. At least, that was when I was tested for anti-phosphatidylserine (as part of a anti-phospholipid panel?). It seems like I test abnormally for a lot, making me complicated enough that no one really wants to treat me. That testing was all pre-iodoral. Again, I'm so unclear about what all of this means. Again, thanks for the links! --- Skipper Beers <lsb149@...> wrote: > > http://www.aruplab.com/guides/ug/tests/0050905.jsp > The detection of anti-phosphatidylserine antibodies > by ELISA is recommended > for the diagnosis of anti-phospholipid syndrome. > Patients with positive > reactions to both cardiolipin and phosphatidylserine > are more likely to have > clinical complications than those positive for only > one antibody. > > > Good discussion of anti-phospholid syndrome at > http://www.medicinenet.com/antiphospholipid_syndrome/article.htm > > Did you have miscarriages or something that prompted > the doctor to test? > > > Skipper ________________________________________________________________________________\ ____ Get your email and see which of your friends are online - Right on the New .com (http://www./preview) Quote Link to comment Share on other sites More sharing options...
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