Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 I think this could be an adrenal related problem Carol. You cannot utilise thyroid hormone if you suffer with low adrenal reserve. I would start taking NAE (preferably stopping your Armour for a few days if you can).When did you stop taking NAE and what amount had you got up to when you stopped. Many of ous ened to continue taking adrenal support even when we are on thyroid hormone replacement. Luv - Sheila feeling hypo again? Shiela you may remember just over a week ago I was feeling unwell, Iupped my armour by a half a grain, I am feeling hypo again today, notsure about upping it as you are supposed to wait 3-4 weeks on the newdose but I am sure I am hypo again. Can you advise me please, should Iwait another 2 weeks or up it again. One other thing that i did notrelise was the being awake at 4am is connected, so on my next increaseI think I will add it later in the day. I have been on armour forjust over 8 weeks now and am on 2 grains a day, before that I was on100mcgs of thyroxineThank you for helpCarol No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.12/1163 - Release Date: 01/12/2007 12:05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 Hi there SheilaI was feeling really well, then got very hypo so upped the armour,and felt a whole lot better, now today about a week later am begining to feel hypo again. Headache and my eyes are aching, just what i am like when hypo also been having loads of pins and needles and of course the cramps. I am sure I am hypo. But not sure when i can up my dose, I have never been on any adrenal stuff. I am scared of taking too much too soon, when I first started on armour I took too higher dose and had that spaced out feeling, so I also know what that feels like and its not that either.I really do not want to take more and more medications/suppliments as before if you remember I had kidney and liver problems. I feel so much better than I did do not want to tempt fate. Would rather give this time to work out.Just need advise on when to up the armour and how much should i go up next time please. Carol X [thyroidpatientadvo cacy] feeling hypo again? Shiela you may remember just over a week ago I was feeling unwell, Iupped my armour by a half a grain, I am feeling hypo again today, notsure about upping it as you are supposed to wait 3-4 weeks on the newdose but I am sure I am hypo again. Can you advise me please, should Iwait another 2 weeks or up it again. One other thing that i did notrelise was the being awake at 4am is connected, so on my next increaseI think I will add it later in the day. I have been on armour forjust over 8 weeks now and am on 2 grains a day, before that I was on100mcgs of thyroxineThank you for helpCarol No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.12/1163 - Release Date: 01/12/2007 12:05 Get easy, one-click access to your favorites. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 Hi Carol If the problem is your adrenals, no matter how much you increase your Armour, it just isn't goiong to work and gradually, you will start to feel worse and worse because the hormones in your Armour are not going to go where they should, and you will probably get a toxic reaction. At least, go to our this link on our website http://www.tpa-uk.org.uk/adrenals.php and read everything you can about adrenal problems. Also, go to our Files thyroid treatment click on FILES on the Home Page and scroll down until you see Adrenal Questionnaire. Try to answer all the questions and let us have your score. Luv - Sheila [thyroidpatientadvo cacy] feeling hypo again? Shiela you may remember just over a week ago I was feeling unwell, Iupped my armour by a half a grain, I am feeling hypo again today, notsure about upping it as you are supposed to wait 3-4 weeks on the newdose but I am sure I am hypo again. Can you advise me please, should Iwait another 2 weeks or up it again. One other thing that i did notrelise was the being awake at 4am is connected, so on my next increaseI think I will add it later in the day. I have been on armour forjust over 8 weeks now and am on 2 grains a day, before that I was on100mcgs of thyroxineThank you for helpCarol No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.12/1163 - Release Date: 01/12/2007 12:05 Get easy, one-click access to your favorites. Make your homepage. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.12/1163 - Release Date: 01/12/2007 12:05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 Hi Carol, Feeling low again after an increase just means that you are not at optimum yet. Increasing too fast can cause hyper feelings in some folk, which can make them hypersensitive to the meds, so it is best to be patient and do it the recommended way. After all you have a lot of healing to do. Be kind to yourself. feeling hypo again? Shiela you may remember just over a week ago I was feeling unwell, I upped my armour by a half a grain, I am feeling hypo again today, not sure about upping it as you are supposed to wait 3-4 weeks on the new dose but I am sure I am hypo again. ........ I think I will add it later in the day. I have been on armour for just over 8 weeks now and am on 2 grains a day, before that I was on 100mcgs of thyroxine Thank you for help Carol Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 Hi Feeling a whole lot better today, I am looking forward to being at optimum level m:-) Thank you for your kind reply, I am taking it slowly.I have contacted Dr Secretary regarding a consultation. Quite expensive but she said he would put me back on the NHS after-wards if that was what I wanted. She has gone home now and I should telephone her tomorrow if I want to make the appointment. I think I will. He is already on your list in the files.. I think I will have to see my lovely GP for a referral letter first!! Thank heavens my hubby knows what he is like and will come with me.I also took that letter into the PCT this morning, bet the lady to whom it is addressed got a shock, as she never gave me any information on where she was and I got it all from the Internet.I think that I was at a stage with the treatment where I needed to up my dose and it all came at the same time, so confused everything and everyone. This is the clearest head I have had for years and years and I have no intentions of ever going back.Thanks to this group I am getting there. Carol X RE: feeling hypo again? Hi Carol, Feeling low again after an increase just means that you are not at optimum yet. Increasing too fast can cause hyper feelings in some folk, which can make them hypersensitive to the meds, so it is best to be patient and do it the recommended way. After all you have a lot of healing to do. Be kind to yourself. feeling hypo again? Shiela you may remember just over a week ago I was feeling unwell, I upped my armour by a half a grain, I am feeling hypo again today, not sure about upping it as you are supposed to wait 3-4 weeks on the new dose but I am sure I am hypo again. ........ I think I will add it later in the day. I have been on armour for just over 8 weeks now and am on 2 grains a day, before that I was on 100mcgs of thyroxine Thank you for help Carol Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 Hi Carol - you are considering going privately to see Dr B - Im just wondering what the advantage of this would be? You shouldnt wait very long to see him these days on the NHS and if he will put you back on the NHS after your first consultation, you will apparently in many Trusts go back to the bottom of the queue - I dont know how widespread this is but certainly in my area they have done this to stamp out what they consider queue jumping. unless you are going to get a very quick appointment you might be as well to save your money! (just watching your pennies for you!!!) Gill .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi there GillI may well wait until the 1st Feb, I joined a charity healthcare society called Benenden Healthcare, you can join if you have worked or are working in certain areas of social care or for the public I worked for social services in the 1980's. They help you with the costs for certain things, not sure how much but whatever will help. I really want to see this person privately first because I think the local pct are trying to stop him from prescribing armour.. The pct told me he was not prescribing it at the moment because he is conducting a trial? His NHS secretary told me there is a problem with armour, but would not elaborate!! So I can only assume its the PCT who are the problem, just from what they have said. Anyway if I see him privately first and get the low down, then transfer to the NHS and see what evolves from there. One other thing the person from the pct who told me she was a pharmasist said she did not know you could but armour and import it, I cannot believe she did not know that. Carol X Re: feeling hypo again? Hi Carol - you are considering going privately to see Dr B - Im just wondering what the advantage of this would be? You shouldnt wait very long to see him these days on the NHS and if he will put you back on the NHS after your first consultation, you will apparently in many Trusts go back to the bottom of the queue - I dont know how widespread this is but certainly in my area they have done this to stamp out what they consider queue jumping. unless you are going to get a very quick appointment you might be as well to save your money! (just watching your pennies for you!!!) Gill .. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Carol I joined Benenden last year. I am going to see a doctor when I can get an appointment (not the one I have been seeing who keeps ignoring me when I ask to see an endo etc.,) and ask to be referred to an endo who is at my local hospital. I will also ask if I can get to see him via Benenden. I have to phone the surgery at 8.30am to get an appointment for the same day.........and so does everyone else who wants an appoitment........last time it took me half an hour to get through only to be told there were no appointments left........ The NHS and all within it needs a good shaking........ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Carol, Getting there takes time- we all want to feel well immediately especially when a glimmer of light shows we are at last on the right road. You’ll get there in the end. Good for you to stand up to the PCT it’s the only way to let them know that we will not be kept in the dark like mushrooms……………….. Hi Feeling a whole lot better today, I am looking forward to being at optimum level m:-) Thank you for your kind reply, I am taking it slowly………….. I also took that letter into the PCT this morning, bet the lady to whom it is addressed got a shock, as she never gave me any information on where she was and I got it all from the Internet. Thanks to this group I am getting there. Carol X ----- Original Message ---- From: jenny stenning <jennystenning@...> thyroid treatment Sent: Monday, December 3, 2007 12:45:04 PM Subject: RE: feeling hypo again? Hi Carol, Feeling low again after an increase just means that you are not at optimum yet. Increasing too fast can cause hyper feelings in some folk, which can make them hypersensitive to the meds, so it is best to be patient and do it the recommended way. After all you have a lot of healing to do. Be kind to yourself. feeling hypo again? Shiela you may remember just over a week ago I was feeling unwell, I upped my armour by a half a grain, I am feeling hypo again today, not sure about upping it as you are supposed to wait 3-4 weeks on the new dose but I am sure I am hypo again. ........ I think I will add it later in the day. I have been on armour for just over 8 weeks now and am on 2 grains a day, before that I was on 100mcgs of thyroxine Thank you for help Carol Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi there I didnt see any for the Medway hosp. on the list. I tried one in Canterbuy and he was horrid.. he said he wouldnt treat me until my tsh got to 10. I would have been going in reverse by then.. Anyway he was not nice and gave me the fibromyalgia leaflet they all seem to have in their cabinets, I knew what he was going to give me before he found it. I do not know how I kept a straight face. I am not sure how to give you my usual email address, I only use this one for the group. Maybe Sheila or Lee could help out here and I can message you privately and tell you about the consultant I hope to see and you can tell me what you know about the one you wish to see. I live near the hospital that keeps making headlines. for killing its patients with bugs. You should know which one that is. Carol X Re: feeling hypo again? Hi Carol I am in Kent - the endo I hope to see is at Medway Hospital. I can't remember where I got his name from - probably one of the tpa links. As ever - thank goodness for the tpa. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Carol - sometimes i think you do find they are more helpful when you are a private patient! It does sound a bit dodgy not sure why they wont tell you. You could try the ethics committee of the hospital trust to see if they will tell you about the trial - I dont think this is confidential information. Or if you really want to know then you could do a request under the freedom of information Act - which they then have to reply to you within a time period, unless its confidential - but if its a trial I dont think thats confidential - they wouldnt be telling you confidential patient info would they. Im hoping to get a reply from someone about the pharmacist thing - but not heard yet. This is from someone who is the lead for medicines management in a PCT so might shed some light. I wouldnt mind knowing a bit more about Beneden healthcare - is there a websitef? Gillscomm co_,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 Hi there Gill I sent the hospial a request on information. And I have at last found how to add my signature to email.I wonder what they will tell me? Mrs C Freedom of Information Officer Trust Headquarters Maidstone Hospital Hermitage Lane, Maidstone Kent ME16 9QQ 5th December 2007 Dear Sir/ Madam Please can you send me any information you have on any trials on thyroid drugs that are taking place at any of the Maidstone and Weald Trusts Hospitals, including Maidstone Hospital, Pembury Hospital and The Kent and Sussex Hospital. Freedom of Information requests The Trust is obliged to respond to requests about the information that it holds and records in any form and gives members of the public right of access to that information. Freedom of Information requests must be made in writing and sent in either by letter or email to the Trust. Write to Freedom of Information Officer, Trust Headquarters, Maidstone Hospital, Hermitage Lane, Maidstone Kent ME16 9QQ or email foiadmin@... The Trust has a duty to respond to all Freedom of Information enquiries within 20 working days. Yours faithfully. Mrs C Carol X Re: feeling hypo again? Hi Carol - sometimes i think you do find they are more helpful when you are a private patient! It does sound a bit dodgy not sure why they wont tell you. You could try the ethics committee of the hospital trust to see if they will tell you about the trial - I dont think this is confidential information. Or if you really want to know then you could do a request under the freedom of information Act - which they then have to reply to you within a time period, unless its confidential - but if its a trial I dont think thats confidential - they wouldnt be telling you confidential patient info would they. Im hoping to get a reply from someone about the pharmacist thing - but not heard yet. This is from someone who is the lead for medicines management in a PCT so might shed some light. I wouldnt mind knowing a bit more about Beneden healthcare - is there a websitef? Gillscomm co_,_._,___ Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 Hi Carol - crikey - you're quick off the mark arent you!!! Be interesting to hear what they have to say wont it. For info for anyone wanting to find information: Freedom of Info act, as I understand is for information that is in the public domain and can include letters and policies etc. We can also ask for information held on us as individuals under the Data Protection Act. Gill Hi there Gill I sent the hospial a request on information. And I have at last found how to add my signature to email.I wonder what they will tell me? Mrs C .. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.14/1172 - Release Date: 05/12/07 08:41 Quote Link to comment Share on other sites More sharing options...
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