Re: Introducing..

[Guest guest]

Hello Barb

Are you in Huddersfield? If so did you get any help from the GP and who is your GP?

I think Dr Burrows will help you a lot - he agreed with me that I was hypothyroid even though my TSH was 2.5 and he's been very good. Im not sure that he will be interested in adrenal stuff - he's very good and will treat with Armour if pushed but he does say things like there is a lot of rubbish on the internet - so I tend to decide what I want from him before I go and have so far got what I want, though am only just getting towards a proper dose so havent broached armour or T3 with him yet!!

Gill

[Guest guest]

Dear Barb Welcome and so pleased to hear about your appointment with Dr Burrows. I am going to GP tomorrow to ask for a referral to him. I would love to hear about how you get on on the 8th Jan as I also have a conversion problem and want so much to get my treatment back under the NHS. So could you please let me or the group know how you get on. Thanks and welcome and Meyyr Christmas. Carolinepeacerosebarb <barbhyde@...> wrote: Hello Everyone,but my T3 is very much too low and this apparently indicates that I don't convert at all. Dr Peatfield thinks it is because of my adrenal exhaustion. I will be seeing Dr Burrows for the first time on 8th January so I hope that he will be sensitive to this and treat me accordingly. .

Never miss a thing. Make your homepage.

[Guest guest]

Hi Barb

I am very pleased you have found your password and able to chat with us again. I have my little green book with all my different passwords for everything I need a password for and keep changing them now on a regular basis. I would advise anybody to do this (but PLEASE keep a note) because passwords are so very 'fragile' and can be found by those determined enough.

I know that some of our Yorkshire Endocrinologists are learning fast about the use of alternative treatments such as T4/T3 combination (either synthetic or natural) if their patients don't do well on Thyroxine only, but it seems they can only take on one thing at a time *sigh!*. My endocrinologist is very happy to recommend Armour for me and many of his other patients and each time I see him, he encourages me to carry on with my campaigning to get Armour recognised throughout the whole of the NHS, but warns me not to confuse medical practitioners with information about an adrenal/thyroid connection. No matter what I tell him or what 'evidence' I give him, he tells me that endocrinologists will "laugh" at such a connection and even goes so far as to say that if I carry on with such a notion, I will no longer be taken seriously by them. What can one do???

We even went so far as me taking in one of my Nutri Adrenal Extra glandulars so that he could get the hospital laboratory to test it to see if it had any content. He told me that it contained no cortisol and therefore couldn't be doing me any good whatsoever. He did a 24 hour urine test which was collected in a massive container, and of course, guess what, it showed no sign that I had an adrenal problem at all. I love my endo. but he made me feel like a fraud, simply because he has made up his mind and will not be moved. They recognise only s disease and Cushings, with no shades of grey inbetween normal and compromised adrenals - yet there is so much research and evidence showing of such a connection. Why is this?

Having said all that Barb, we will wait and see what Dr Burrows says, but to be honest, considering he is a close friend of my endo. I would be very assertive and let him know that you have looked into this problem very seriously (do you know that even on the patient's pamphlet in boxes of levothyroxine, it tells you to notify your doctor if you have low adrenal reserve and you should not start taking thyroxine until these have been treated). My endo tells me this only means 's and Cushings. Who says this is only what it means?

I would start your adrenal support starting today Barb. Are you taking Nutri Adrenal Extra. Start by taking one with your breakfast for a couple of days, and then increase by taking another one with your lunch (but never after 1.00p.m.) Wait a couple of weeks and increase again by taking another tablet. You can go up to 4, and for some people, they need to take even more, but wait and see how you feel.

Because of your 'intolerance' to medication, I would start by taking half a tablet of NAE to see if you are able to tolerate it or not. Let us know how you get on, won't you. If you find that Dr Burrows suggests you start on Levothyroxine (it would be better if he could be persuaded to recommend Armour under the circumstances as it is natural, do remember that there is a pure version of thyroxine that can be prescribed that doesn't contain lactose or other fillers that might cause you problems. This can be purchased at dale's Pharmacy, but it has a very short half life. There is information about this in our Files.

Luv - Sheila>> Hello Everyone,> > I think that this board is a wonderful source of encouragement and > information. Well done Sheila and everybody.> > I have finally found my password and am now able to access the site > instead of just reading the bulletins which come to my inbox. Sheila > thank you so much for all your support and advice. You have been > extremely helpful.> > I have just heard from Dr Peatfield and it appears that my cortisol > levels are low and my adrenals are almost exhausted so I am going to > require full adrenal support. Apparently, according to my Thyroid > Urine test, my T4 is midrange but my T3 is very much too low and this > apparently indicates that I don't convert at all. Dr Peatfield thinks > it is because of my adrenal exhaustion. I will be seeing Dr Burrows > for the first time on 8th January so I hope that he will be sensitive > to this and treat me accordingly.I suppose it would be best to start > on the Adrenal support before I see Dr Burrows in order to prepare my > body for the thyroid supplementation. > > I also seem to need the full candida protocol. Have any of you had to > be treated for candida and what did you find the most helpful? Any > advice woud be great.> > Thankfully my GP has been happy to refer me to Dr Burrows even though > he thinks my TSH is normal at 4.26 despite the fact it has gone up > from 3.4 in August. My TPO was 471.1 in August but this time it has > gone up to 1000 +. My T4 (at least I think it was T4 - it couldn't > be T3 could it?) was 4.96. My T3 was not done.> > Anyway, thank you all for your time and help. If you have any advice > or pearls of wisdom I would be so grateful. I have been feeling > pretty shocking for such a lot time that I am so grateful that I am > getting help at last. I have to say I am a little bit anxious about > starting the Thyroid supplementation and Adrenal support as I am so > sensitive to tablets and have never been able to tolerate HRT or even > the pill so hope all goes well.> > Thanks everyone.> Barb>

[Guest guest]

Hmmm! - - and there's a lot of "rubbish" being taught and practiced by NHS medical practitioners too. Heaven help us if we didn't have the Internet, each one of us would know nothing about T4/T3 combination either synthetic or natural, and as far as adrenals were concerned, we would most likely all now be properly pooped! BAH!

Luv - Frustrated of Ickornshaw

Im not sure that he will be interested in adrenal stuff - he's very good and will treat with Armour if pushed but he does say things like there is a lot of rubbish on the internet -

..

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.17.4/1187 - Release Date: 16/12/2007 11:36

[Guest guest]

Hello Gill,

Thank you so much for your reply. No, I am not in Huddersfield. I

live in Steeton and my GP is Dr . He wasn't going to refer me

but I took my husband in with me and together we pressed him for a

referral ;-)

Gill, do you have a T4-> T3 conversion problem? How long have you

been seeing Dr Burrows and how often does he arrange to see you once

he starts you on the first dose? Dr P says I may need T3 so I am

anxious about being started on Thyroxine when what I might need is

T3. Does Dr Burrows arrange T3 and T4 blood tests at your first

appointment?

Anyway, thanks for your advice Gill. I'll let you know how I get on.

Barb

>

> Hello Barb

>

> Are you in Huddersfield? If so did you get any help from the GP

and who is your GP?

>

> I think Dr Burrows will help you a lot - he agreed with me that I

was hypothyroid even though my TSH was 2.5 and he's been very good.

Im not sure that he will be interested in adrenal stuff - he's very

good and will treat with Armour if pushed but he does say things like

there is a lot of rubbish on the internet - so I tend to decide what

I want from him before I go and have so far got what I want, though

am only just getting towards a proper dose so havent broached armour

or T3 with him yet!!

>

> Gill

>

[Guest guest]

Hello Caroline,

Thanks for the welcome. I hope your appointment with the GP goes well

today. Please let me know how you get on.

I will definitely let you know how my appointment on the 8th goes. I

am looking forward to it.

Happy Christmas to you too, Caroline.

Barb

> Hello Everyone,

>

> but my T3 is very much too low and this

> apparently indicates that I don't convert at all. Dr Peatfield

thinks

> it is because of my adrenal exhaustion. I will be seeing Dr Burrows

> for the first time on 8th January so I hope that he will be

sensitive

> to this and treat me accordingly.

>

>

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[Guest guest]

Hi Sheila,

You are such a star. Thank you for all the time you take to reply to

everyone's questions and concerns.

Your advice and guidance is so helpful and sound. I thought the info

on the pamphlet in boxes of levothyroxine stating that " if you have

low adrenal reserve you should not start taking

thyroxine until these have been treated " was very interesting and how

can it be ignored. Dr Peatfield has suggested I take the Nutri

Adrenals so I will order them today. He has suggested the ordinary

ones not the extra because there is something in the extra I am

sensitive to (can't remember what} so he suggested I take the other

ones instead. Thanks for your guidance on how best to take them.I

will let you know how I get on.

Sheila, the result of 4.23 I gave you was apparently my TFT and not

my T4 or T3. Can you please tell me what the TFT means? Thanks so

much.

Also, Dr Peatfield suggested in his letter to me yesterday that I

might need to take T3 as opposed to T4 or Armour. I wonder what Dr

Burrows will say to that? Should I mention to Dr Burrows that I have

seen Dr P and should I also take my Thyroid urine and Cortisol

results with me?

I hope you are finding time to prepare for Christmas in between

answering everyone's qustions :-) I hope you have a wonderful

Christmas and that 2008 is an awesome year for us all.

Barb

>

> Hi Barb I am very pleased you have found your password and able to

> chat with us again. I have my little green book with all my

different

> passwords for everything I need a password for and keep changing

them

> now on a regular basis. I would advise anybody to do this (but

PLEASE

> keep a note) because passwords are so very 'fragile' and can be

found by

> those determined enough. I know that some of our Yorkshire

> Endocrinologists are learning fast about the use of alternative

> treatments such as T4/T3 combination (either synthetic or natural)

if

> their patients don't do well on Thyroxine only, but it seems they

can

> only take on one thing at a time *sigh!*. My endocrinologist is very

> happy to recommend Armour for me and many of his other patients and

each

> time I see him, he encourages me to carry on with my campaigning to

get

> Armour recognised throughout the whole of the NHS, but warns me not

to

> confuse medical practitioners with information about an

adrenal/thyroid

> connection. No matter what I tell him or what 'evidence' I give

him, he

> tells me that endocrinologists will " laugh " at such a connection and

> even goes so far as to say that if I carry on with such a notion, I

will

> no longer be taken seriously by them. What can one do??? We even

went

> so far as me taking in one of my Nutri Adrenal Extra glandulars so

that

> he could get the hospital laboratory to test it to see if it had any

> content. He told me that it contained no cortisol and therefore

couldn't

> be doing me any good whatsoever. He did a 24 hour urine test which

was

> collected in a massive container, and of course, guess what, it

showed

> no sign that I had an adrenal problem at all. I love my endo. but he

> made me feel like a fraud, simply because he has made up his mind

and

> will not be moved. They recognise only s disease and

Cushings,

> with no shades of grey inbetween normal and compromised adrenals -

yet

> there is so much research and evidence showing of such a

connection. Why

> is this? Having said all that Barb, we will wait and see what Dr

> Burrows says, but to be honest, considering he is a close friend of

my

> endo. I would be very assertive and let him know that you have

looked

> into this problem very seriously (do you know that even on the

patient's

> pamphlet in boxes of levothyroxine, it tells you to notify your

doctor

> if you have low adrenal reserve and you should not start taking

> thyroxine until these have been treated). My endo tells me this only

> means 's and Cushings. Who says this is only what it

means? I

> would start your adrenal support starting today Barb. Are you taking

> Nutri Adrenal Extra. Start by taking one with your breakfast for a

> couple of days, and then increase by taking another one with your

lunch

> (but never after 1.00p.m.) Wait a couple of weeks and increase

again by

> taking another tablet. You can go up to 4, and for some people, they

> need to take even more, but wait and see how you feel.

> Because of your 'intolerance' to medication, I would start by taking

> half a tablet of NAE to see if you are able to tolerate it or not.

Let

> us know how you get on, won't you. If you find that Dr Burrows

suggests

> you start on Levothyroxine (it would be better if he could be

persuaded

> to recommend Armour under the circumstances as it is natural, do

> remember that there is a pure version of thyroxine that can be

> prescribed that doesn't contain lactose or other fillers that might

> cause you problems. This can be purchased at dale's Pharmacy,

but

> it has a very short half life. There is information about this in

our

> Files.

>

> Luv - Sheila

> >

> > Hello Everyone,

> >

> > I think that this board is a wonderful source of encouragement and

> > information. Well done Sheila and everybody.

> >

> > I have finally found my password and am now able to access the

site

> > instead of just reading the bulletins which come to my inbox.

Sheila

> > thank you so much for all your support and advice. You have been

> > extremely helpful.

> >

> > I have just heard from Dr Peatfield and it appears that my

cortisol

> > levels are low and my adrenals are almost exhausted so I am going

to

> > require full adrenal support. Apparently, according to my Thyroid

> > Urine test, my T4 is midrange but my T3 is very much too low and

this

> > apparently indicates that I don't convert at all. Dr Peatfield

thinks

> > it is because of my adrenal exhaustion. I will be seeing Dr

Burrows

> > for the first time on 8th January so I hope that he will be

sensitive

> > to this and treat me accordingly.I suppose it would be best to

start

> > on the Adrenal support before I see Dr Burrows in order to

prepare my

> > body for the thyroid supplementation.

> >

> > I also seem to need the full candida protocol. Have any of you

had to

> > be treated for candida and what did you find the most helpful? Any

> > advice woud be great.

> >

> > Thankfully my GP has been happy to refer me to Dr Burrows even

though

> > he thinks my TSH is normal at 4.26 despite the fact it has gone up

> > from 3.4 in August. My TPO was 471.1 in August but this time it

has

> > gone up to 1000 +. My T4 (at least I think it was T4 - it couldn't

> > be T3 could it?) was 4.96. My T3 was not done.

> >

> > Anyway, thank you all for your time and help. If you have any

advice

> > or pearls of wisdom I would be so grateful. I have been feeling

> > pretty shocking for such a lot time that I am so grateful that I

am

> > getting help at last. I have to say I am a little bit anxious

about

> > starting the Thyroid supplementation and Adrenal support as I am

so

> > sensitive to tablets and have never been able to tolerate HRT or

even

> > the pill so hope all goes well.

> >

> > Thanks everyone.

> > Barb

> >

>

[Guest guest]

Hi Barb

I went to see Dr Peatfield and the tests I had done also showed that I

had low T4 and T3 under range suggesting a conversion problem. My

cortisol and DHEA levels were high. Dr P recommended that I take Nutri

Adrenal and Nutri Thyroid. After a slow start with NA, I am now

feeling a lot less panicky and anxious - taking 2 tablets a day. I am

taking 2 tablets of NT but don't seem to be feeling any different. My

temps are still low - from 96.8 to 97.2. Will be interested in how you

get on with NA and NT.

[Guest guest]

Hello Barb - I dont know where Steeton is, or who/which Dr smith is your GP! Anyway, Dr B started me on 25 mcg levothyroxine - a low dose trial as he agreed with what I said but presumably because my TSH was 2.5 he wanted to start me on a low dose, he has seen me every 3 or 4 months - but I think he would review more frequently if I wanted this, but that frequency seems to suit - I did phone his secretary and ask if I could increase the dose after a few weeks as I was feeling better and he agreed, but then I felt rough so dropped it again!. I dont know if I have a conversion problem - he always checks T3 and this last time my results were lower than the time before even though Id upped the dose. He suggested an increase and then go back in 4 months to see what was happening then.

He didnt check my bloods the first time because I had just had them done with NPtech and he accepted those and started me on thyroxine at the first visit, but Im sure he will do the bloods on the first visit if you havent had them done, and he always checks T3. I did ask him about converting t4 to t3 but he said at the 2nd appt that my bloods showed I was converting.

Gill

..

[Guest guest]

Thanks Gill. I will let you know how I get on.

Barb

>

>

> Hello Barb - I dont know where Steeton is, or who/which Dr smith

is your GP! Anyway, Dr B started me on 25 mcg levothyroxine - a low

dose trial as he agreed with what I said but presumably because my

TSH was 2.5 he wanted to start me on a low dose, he has seen me every

3 or 4 months - but I think he would review more frequently if I

wanted this, but that frequency seems to suit - I did phone his

secretary and ask if I could increase the dose after a few weeks as I

was feeling better and he agreed, but then I felt rough so dropped it

again!. I dont know if I have a conversion problem - he always

checks T3 and this last time my results were lower than the time

before even though Id upped the dose. He suggested an increase and

then go back in 4 months to see what was happening then.

>

> He didnt check my bloods the first time because I had just had

them done with NPtech and he accepted those and started me on

thyroxine at the first visit, but Im sure he will do the bloods on

the first visit if you havent had them done, and he always checks

T3. I did ask him about converting t4 to t3 but he said at the 2nd

appt that my bloods showed I was converting.

>

> Gill

>

>

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[Guest guest]

Hi ,

I have just ordered the NA. I have not ordered NT because I thought

Dr Peatfield said NT *OR* Thyroid replacement at my meeting with him.

I may be mistaken though. I wonder if I should be taking them both

together until I see the Endo.

I will certainly keep you posted :-)

Barb

>

> Hi Barb

>

> I went to see Dr Peatfield and the tests I had done also showed

that I

> had low T4 and T3 under range suggesting a conversion problem. My

> cortisol and DHEA levels were high. Dr P recommended that I take

Nutri

> Adrenal and Nutri Thyroid. After a slow start with NA, I am now

> feeling a lot less panicky and anxious - taking 2 tablets a day. I

am

> taking 2 tablets of NT but don't seem to be feeling any different.

My

> temps are still low - from 96.8 to 97.2. Will be interested in how

you

> get on with NA and NT.

>

>

>