Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Hi Helen, ask your doctor for the TPOab test (auto-antibodies to thyroid peroxidase.)this may show that the cause of your hypo may be hashimoto`s disease.if it comes back that it is below 10 then ask for a fine needle test , which is a fine needle is inserted into the thyroid to see if antibodies are present. angel. Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 It is ridiculous that a Dr can say that someone is not Hypo when they are outside the reference range (I refuse to call it normal as it isn't!!) and got lots of symptoms The only reason that this appears to have been done is to save money! For crying out loud, I would willingly give up my free prescriptions for everything other than my thyroid condition on 2 provisos 1 - I get the medication most suited to me and if that was Armour then so be it 2 - I am treated by my symptoms and not a pathetic lab result which is evidently ignored anyway Drat now I need something for this foaming at the mouth and a hand down from my soap box .... Jacqui x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Hi Jacqui At last year's FTP hearing (Doc Skinner) they (Dr Spence? et el) had to admit that a patient with myxoedema would have to be treated whatever the blood tests said...there's an amount of dissimulation going on that beggars belief..... What the tissues experience (T3) isn't what's in the blood/serum, and that's clear from the work of Panicker et al (2008). How they define sub-clinical hypothyroidism is also designed to confuse the blazes out of doctors ~ mainly to continue the intimidation. You know how, when you paint a floor, it's quite easy to end up in the corner and not able to exit across the wet paint....It seems to be the mechanism used by the BTA (up to now) to ensnare the medical profession in a morass of sticky wet paint..... The debilitating symptoms that they appear to be willing to ignore and pass off as something entirely different from thyroid disease ... is shocking, causes endless running around in make-work circles and ignores the knock on costs of the further testing. Two-three weeks in intensive care with full testing might come to something like £50,000...when the reason for the admission is failure to follow the protocol that the adrenal function should be checked before instituting thyroid disease (hypo- ) treatment. A high proportion of those patients admitted to intensive care will be in the cardiac intensive care unit due to plain old electrolyte imbalance(s). ....and it looks increasingly likely that a fair number of diabetic patients will be 'distressed' due to the under/non-treatment of hypothyroidism.....so too, high cholesterol won't be associated with hypothyroidism ....hmmmm? best skeptical wishes Bob > > It is ridiculous that a Dr can say that someone is not Hypo when they Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Bob, the more I read about the situation in the UK and what Dr Skinner had to go through, the more I appreciate the medical system and my doctors over here! P > > At last year's FTP hearing (Doc Skinner) they (Dr Spence? et el) had to admit that a patient with myxoedema would have to be treated whatever the blood tests said...there's an amount of dissimulation going on that beggars belief.....What the tissues experience (T3) isn't what's in the blood/serum, and that's clear from the work of Panicker et al (2008)....... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Bob When I was 5 my father died and I changed countries, languages and schools which all culminated in blistered red raw hands. I have always had these blisters and had countless prescriptions for a variety of drugs and never yet had a firm diagnosis - the nearest I got was 'some kind of eczema'. I have also had fainting spells (countless tests for that) and had anaemia (more pills) and been diagnosed with asthma (more drugs) and depression (refused drugs)and allergies (horse pills) back pain (physio, pain relief and 'happy pills' - it hurts but I just don't care ....) All in all I have seen so many specialists, had so many pills and hospital visits it is incredible I was diagnosed with an underactive thyroid in 2001 (after 5 years of trying) and have been running at 50% or less until recently. Funnily enough after 6 months of treating my adrenals and 2 months on Armour my blisters on my hands have gone, my allergies are reduced, I am running at about 75%, I no longer have dizzy spells, I don't faint, I don't need my inhaler, I can survive on 8 - 9 hours sleep as opposed to 12-13. I can do a days walking and not need 3 days to recover my strength, I have little to no pain Perhaps if Adrenal insufficiency and Thyroid problems were taken more seriously and considered more in the young (I think I started with adrenal problems aged 5 due to all the stress which continued in various forms until leaving home at 18) I could have saved the NHS a bundle. Jacqui (already sceptical) x > The debilitating symptoms that they appear to be willing to ignore > and pass off as something entirely different from thyroid disease ... > is shocking, causes endless running around in make-work circles and > ignores the knock on costs of the further testing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Where is that " over here " ? (maybe thinking of emigrating! :-)) Miriam > > Bob, the more I read about the situation in the UK and what Dr Skinner > had to go through, the more I appreciate the medical system and my > doctors over here! > P > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Bob and Jacqui I was in a similar position to you - I have just posted photos in our files and there is no better proof than looking at them what damage these stupid tsh tests can do. Every time I went to see the doctor over the past 5-6 years complaining of fluid retention, depression, weight gain, foggy headedness, memory problems etc etc they would do a blood test and because I was in the range I did not get any treatment until last year. Now when I go to the doctors they see the proof staring them in the face! I said to one doctor who I had seen over and over again. Well I am better now doctor decided to try me on thyroxine and like my mother I have an underactive thyroid. No apologies were forth coming he just said 'clever Dr '. It makes my blood boil! Don't let them fob you off saying you are not hypo they are just trying to save their own faces! Good luck and I hope you get better. Luv > > > > It is ridiculous that a Dr can say that someone is not Hypo when > they > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Jacqui, I can relate to what you said. My father and brother had TB when I was 5 years old. My father was close to dying when he was taken into hospital and my brother was only 8 months old. My mother was obviously very upset and stressed for the 18 months they were away in the hospitals and my stress, worry and unhappiness was ignored. I went through every day worried that I too might have TB. I used to faint when I got to school in the mornings - no one seemed to think that I needed a doctor. Things got better obviously, when my father and brother came out of hospital but the emotional scars remained. My panic attacks, depression, insomnia, sinus problems, migraine, constipation, cold hands and feet, PMS / flooding etc., I have suffered all my adult life thinking it was just something I had to bear. Doctors dismissed my symptoms and offered anti.ds. I have wasted so much of my life feeling ill - I think I will never be free of the feeling - I am 60 and, in a strange way, I think it is part of me now. Reading Dr Rind's metabolic matrix scoreboard thingy was like a light being turned on in my dark room. Dr P's book was a revelation (as was Dr P) and the TPA is wonderful. I am thankful for the www and modern technology that allowed me to access the information to do what should have been done years ago by the doctors. If we can find out about our condition and be open minded and flexible about treatment etc., - why can't the doctors and endos? A slightly depressed B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Jacqui It is never too late to enjoyh being 'bad' in a good way - and to be able to enjoy your life and health 100%. Do loads of reading, ask loads of questions, let us know all the time any of your medication changes - keep a diary and write down when things are good and when they are bad - and the possible reasons why these may be. There are lots of associated conditions that go along with hypothyroidism that may be stopping you from reaching your optimal health, because these associated conditions stop your thyroid hormone from working properly as they cannot be absorbed. Go to our website www.tpa-uk.org.uk and click on Hypothyroidism, and then click on the drop down Menu - 'Associated Conditions' and read them one by one so you know what to do. Luv - Sheila I whole heartedly agree with you, if only this had been available to me earlier I could have been feeling better earlier. I suppose it is the old addage 'better late than never' but I am the type of girl whos virtues have never included patience (and possibly a few others but that is a whole differnt story ...)I understand when you say you feel that you will always be ill but every now and again I get that excited feeling that I may someday have the energy to party hard and STILL function the day after. 60 is never too late to be a bad (in a good way) girl ;-)Jacqui xxNo virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 08/07/2008 06:33 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.