Re: help!Sinus stuff again

[Guest guest]

Hi guys

I got some disturbing news yesterday that I am not too sure about. I had

another cat scan that looked pretty bad again (sinus) even after the 2

surgeries. My primary asked if I knew of a family history of cyctic fibrosis -

it was kinda weird because my sister was pregnant recently and I guess they are

starting to test for the CF gene to see if the mom is a carrier - if so they

check the dad as if he is a carrier also then the child will have the disease.

She tested positive for the carrier gene - her hubby was neg so the baby is ok

but they stated that if she had any siblings, then we were more than likely

carriers also. What I am getting at, is that apparently there are some mild

forms of the disease among carriers that cause chronic sinus problems due to

thickened mucas that does not react to meds. I am really scared right now as I

am relatively sure I am a carrier because of my sister and maybe now this

explains everything. She sent me yesterday for a blood test to see if I am

positive for the gene - if so then I have to go to a specialist for further

testing to see how far along it is. sheeesh - I can't take much more of this

crap. anyone ever heard of this mild CF?

just wondering.

thanks

Shari

[Guest guest]

Shari, NO I havent. Although, anything we are genetically predisposed to may be triggered by implants. HOWEVER, please do not be too alarmed. I have found with implants that is causes all sorts of confusing sympoms, yet most of the time, no diseases are definitive . I do have thyroid disease, but I was tested for MS twice, and Lou Gerick's. As well as Lyme's disease. I had every symptom of MS. But my neuro says it is not ms to her at all.

Also ,chronic candida is something most docs are not familair with, or care not to know about- can cause terrible sinus issues. Realy ,they say sinus infections are yeast infections of the face! It just settled differntly. This could be from weakened immunity from the implants, or yeast/fungal overgrowth of the implants themselves, or left behind from them. Almsot all women with implants have this infection. Quite common. I had chronic fungal ear infections ,as well as yeast infections the last year with the implants and many other symptoms. And was found to have systemic candidas all over my body from bloodwork ,and live cell. I finally have gotten it down through a strict diet, and supplemnts. Look into that. Have you done the spit test to see if you may have it?

>From: halvey70@... >Reply- > >Subject: Re: help!Sinus stuff again >Date: Fri, 27 Feb 2004 08:51:18 -0500 > >Hi guys > >I got some disturbing news yesterday that I am not too sure about. I had another cat scan that looked pretty bad again (sinus) even after the 2 surgeries. My primary asked if I knew of a family history of cyctic fibrosis - it was kinda weird because my sister was pregnant recently and I guess they are starting to test for the CF gene to see if the mom is a carrier - if so they check the dad as if he is a carrier also then the child will have the disease. She tested positive for the carrier gene - her hubby was neg so the baby is ok but they stated that if she had any siblings, then we were more than likely carriers also. What I am getting at, is that apparently there are some mild forms of the disease among carriers that cause chronic sinus problems due to thickened mucas that does not react to meds. I am really scared right now as I am relatively sure I am a carrier because of my sister and maybe now this explains everything. She sent me yesterday for a blood test to see if I am positive for the gene - if so then I have to go to a specialist for further testing to see how far along it is. sheeesh - I can't take much more of this crap. anyone ever heard of this mild CF? >just wondering. >thanks > >Shari > > >

[Guest guest]

Yes my spit test is HIGHLY positive!! I have brought this up NUMEROUS times w/

my primary about thinking it is connected w/ the sinuses & she just looks at me

like I am nuts. I am used to that, though - these docs are all full of it most

of the time. She did give me a 3 pill round of 200mg Diflucan and i have been

using coconut oil, black walnut, and a low sugr diet.

thanks

shari

[Guest guest]

Shari,

Be sure to let us know what you find out! I haven't heard of this before.

Patty

----- Original Message -----

From: halvey70@...

Sent: Friday, February 27, 2004 5:51 AM

Subject: Re: help!Sinus stuff again

Hi guysI got some disturbing news yesterday that I am not too sure about. I had another cat scan that looked pretty bad again (sinus) even after the 2 surgeries. My primary asked if I knew of a family history of cyctic fibrosis - it was kinda weird because my sister was pregnant recently and I guess they are starting to test for the CF gene to see if the mom is a carrier - if so they check the dad as if he is a carrier also then the child will have the disease. She tested positive for the carrier gene - her hubby was neg so the baby is ok but they stated that if she had any siblings, then we were more than likely carriers also. What I am getting at, is that apparently there are some mild forms of the disease among carriers that cause chronic sinus problems due to thickened mucas that does not react to meds. I am really scared right now as I am relatively sure I am a carrier because of my sister and maybe now this explains everything. She sent me yesterday for a blood test to see if I am positive for the gene - if so then I have to go to a specialist for further testing to see how far along it is. sheeesh - I can't take much more of this crap. anyone ever heard of this mild CF?just wondering.thanksShari

[Guest guest]

--Shari

Did you find out anything about your blood test yet? Did you try

researching this on the internet? I will be praying for you. Let

us know how you are doing. My prayers are with you.

LOve,kathy

- In , " ~*Patty*~ " <redeemed7@c...>

wrote:

> Shari,

> Be sure to let us know what you find out! I haven't heard of this

before.

> Patty

> ----- Original Message -----

> From: halvey70@a...

>

> Sent: Friday, February 27, 2004 5:51 AM

> Subject: Re: help!Sinus stuff again

>

>

> Hi guys

>

> I got some disturbing news yesterday that I am not too sure

about. I had another cat scan that looked pretty bad again (sinus)

even after the 2 surgeries. My primary asked if I knew of a family

history of cyctic fibrosis - it was kinda weird because my sister

was pregnant recently and I guess they are starting to test for the

CF gene to see if the mom is a carrier - if so they check the dad as

if he is a carrier also then the child will have the disease. She

tested positive for the carrier gene - her hubby was neg so the baby

is ok but they stated that if she had any siblings, then we were

more than likely carriers also. What I am getting at, is that

apparently there are some mild forms of the disease among carriers

that cause chronic sinus problems due to thickened mucas that does

not react to meds. I am really scared right now as I am relatively

sure I am a carrier because of my sister and maybe now this explains

everything. She sent me yesterday for a blood test to see if I am

positive for the gene - if so then I have to go to a specialist for

further testing to see how far along it is. sheeesh - I can't take

much more of this crap. anyone ever heard of this mild CF?

> just wondering.

> thanks

>

> Shari

[Guest guest]

Kathy

I called yesterday but no results yet. They did get my thyroid back which was ok (I find that hard to believe, but??) they said that they will call when the cystic fibrosis stuff comes back. I have looked quite a bit into this on the internet and it seems to be a reasonable explanation that maybe I have a very mild form. I went back to the ENT to go over my cat scan from last Saturday (luckily he says that he doesn't think I need surgeryagain yet...). I asked him about it and he says that he sees a ton of kids with the disease but isn't sure that it is my problem. who knows but I guess it is worth looking into. Strangely enough, my sister who is only 26 has a 4 year old and a 1 1/2 year old who are constantly sick. The baby just got out of the hospital this morning from pneumonia - he was in for 4 days. This is his second bout of it in his short life and he has been through 2 sets of ear tubes and adnoid removal. Both have been diagnosed w/ asthma - kinda sounds like a pattern, huh? She did test positive for the gene (CF) at pregnancy so they tested her hubby who was negative so they said that the kids couldn't be anything but carriers since it would require two positives. sounds like horse poop to me - nobody in my family has asthma and her hubby has 3 kids from a previous marriage who don't have it either. Look up asthma on your serch engine and a ton of CF sites come up too. What a mess!! I have a 2 1/2 year old that I am praying to god that he is gonna turn out ok from all of this mess. I breast fed him for 9 months w/ the implants before I knew the truth. I would never forgive myself.

I will keep you guys posted

thanks

shari