Re: LARGE ADVERTISEMENT NEEDED

[Guest guest]

Oh - what a great belly laugh I had with your wonderfuyl Advert ...Oh - if ONLY. ...BUT, I do get your drinf and think this is a wonderful idea and will try to get my thinking cap on and see if there is something we could do along these lines, but I think it might cost a lot more for a full page advert than £500 - see http://www.dailymailadvertising.co.uk/daily_mail/page_plan.htm

I'm ticking over already.

Luv - Sheila

Hi AllThere about 500 members of the tpa - if we all sent in a £1 coin.........I wonder how much it would cost to buy a full page advertisement in a dail paper such as the Daily Mail - with something like........We cannot let the arrogant, up their own exhaustb*****ds win. We have to be strong, we have to go on sendingletters, we have to keep bugging the doctors. The bottom line is whydo we have to pay for medical help and medication because they arenot doing their job properly - we all pay into the NHS - they workfor us. They are obviously 'not fit for the purpose'. If they weregarage mechanics of builders we could sue for bad work. How darethey treat us like idiot hypocondriacs - why cannot they work WITH usto make us better. I am spending money I cannot afford in an effortto make myself well. I want a refund from the NHS !!!!!!LONG LIVE THE TPA.UK B

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[Guest guest]

Woah, expensive

But hey, we might be able to do something if everyone of the 500 sent

something like £3-£5.

Love the ad too lol

I would put your statement 'The NHS is Killing Us' because it catches

they eye. Probably get sued though if you put that in the paper lol.

luv Dawn

[Guest guest]

" The NHS is killing us... " sounds like a title for Panorama don't you

think?

Pen x

[Guest guest]

I doubt we would get sued for putting "The NHS is Killing Us" because the NHS would have to PROVE they are not, and they cannot do that. It is FACT that they ARE killing us. Undiagnosed and un/undertreated thyroid disease is a killer.

Luv - Sheila

Woah, expensiveBut hey, we might be able to do something if everyone of the 500 sentsomething like £3-£5.Love the ad too lolI would put your statement 'The NHS is Killing Us' because it catchesthey eye. Probably get sued though if you put that in the paper lol.luv Dawn

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[Guest guest]

You know, I have used this title for the past couple of years, but first used it in my article on the BBC Action Alert - but nobody mentioned it. I thought it really appropriate, but had wondered as nobody ever talked about it, and now, I am delighted it is drawing attention. Yes, it would be a good title for Panorama.

Luv - Sheila

Re: LARGE ADVERTISEMENT NEEDED

"The NHS is killing us..." sounds like a title for Panorama don't you think?Pen x

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[Guest guest]

>

> Yes, it would be a good title for Panorama.

>

> Luv - Sheila

>

> Re: LARGE ADVERTISEMENT NEEDED

>

>

> " The NHS is killing us... " sounds like a title for Panorama

don't you

> think?

> Pen x

>

>

>

>

>

>

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> No virus found in this incoming message.

> Checked by AVG.

> Version: 7.5.524 / Virus Database: 269.23.7/1409 - Release Date:

01/05/2008 08:39

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[Guest guest]

(Ooh, how did that message send itself before I typed an answer???

Sorry)

Anyway the title IS good but would be better suited to an entire

mini-series! I'm not being ironic here, it is just that over the

years while trying to find out what is wrong with my heath, I have

heard so many people with so many different ailments conclude in

despair " The NHS is killing us! "

I have heard it said by the CO-poisoned, the mercury-poisoned,

parents of the vaccine-damaged, soldiers damaged by their Middle-

East war duties, poor people who cannot afford private health care,

people with a range of " its in your head " illnesses who yet have

become physically disabled, and very frequently of course by thyroid

sufferers!

One thing all these groups seem to have in common is, despite being

very vocal and being able to produce ample supporting evidence, they

are totally ignored and fobbed off or told they are delusional. Time

and again. They may even win the encouraging odd bit of news

coverage but it never goes far enough and is often a token gesture.

There is no proper follow, ie-it is dropped like an old sock when

the next story comes in.

It is a good point about Panorama. It is the ONLY investigative TV

program with any real bite these days. Their exposure of the Seroxat

scandal was remarkable - the program-makers actually took personal

risks in blowing the gaff on that one! Full marks to the BBC for

having the integrity to screen it and its follow-ups.

I think it my have been Horizon which had a program about mercury

once. Alas Horizon has dummed down, apparently to please the

American audience, and now is little more than a gimmicky

entertainment program which uses its former reputation as a science

program to act in a closed-minded manner to alternative thinking and

people with genuine medical issues.

Thyroid issues definitely need a more public profile. Has there been

any progress in finding a celebrity representative yet?

Tracey

> >

> > Yes, it would be a good title for Panorama.

> >

> > Luv - Sheila

> >

> > Re: LARGE ADVERTISEMENT

NEEDED

> >

> > " The NHS is killing us... " sounds like a title for Panorama

> don't you

> > think?

> > Pen x

[Guest guest]

......a good title for Panorama.

Their e-mail address, for programme suggestions etc is:

panorama.reply@...

Would it be worth asking the question at least?

Pen x

[Guest guest]

Another group of dissatisfied NHS customers to add to my previous

rant. This one is rather more surprising!

http://tinyurl.com/4oukcm

Talk about voting with their feet! Yet it is not just asylum seekers,

but native British who are doing the same.

Tracey

[Guest guest]

Hiya Sheila

All the wonderful work in sending out stuff to the medical profession

seens falling mostly on deaf ears (sorry p.c. slip - on the aurally

challenged). They are in one big club and the few who dare to

question the club rules are taken to court or suspended. The medical

students are being indoctrinated into the same way of thinking by

dinosaur tutors.

Papers are full of reports about how vitamins kill, reflexology is

bogus, any type of complementary medicine is made to look like

hippy/new age rubbish. The medical profession again - keeping their

position as know-alls - rubishing anything that will rock their boat.

The pharmacutical companies are funding the narrow minded thinking -

and who dares challenge them??

THE TPA.............that's who..........

We need to challenge the medical profession/NHS and their backers,

the pharmacuticals in a big way from OUTSIDE - get people, other than

the members of the forum, questioning them as well. Advertisements,

Panorama, magazines, radio - and as a last resort......getting naked

and marching down Oxford Street.....well something like that.

I am in one of my bolshi moods, so I hope you will excuse me.

Luv to you all

B

[Guest guest]

I think the problem lies with the way doctors are paid. They should be paid by customer satisfaction. After all we are their employers. After visiting the doctor, or completion of treatment, a patient should be made to fill in a form of how satisfied they are, before the doctor is paid.

And, as doctors charge us for every form they fill in we should be entitled to a set small fee from them for doing so.

If they are constantly getting bad reports, then they should be brought before GMC to assess whether they are still fit to practice.

Lilian

[Guest guest]

Oh Lilian - you are SO sensible - why are not employed with the other 'policy makers' within the NHS ?

Luv - Sheila

I think the problem lies with the way doctors are paid. They should be paid by customer satisfaction. After all we are their employers. After visiting the doctor, or completion of treatment, a patient should be made to fill in a form of how satisfied they are, before the doctor is paid.

And, as doctors charge us for every form they fill in we should be entitled to a set small fee from them for doing so.

If they are constantly getting bad reports, then they should be brought before GMC to assess whether they are still fit to practice.

Lilian

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[Guest guest]

HI Bolshie

I absolutely agree with everything you say - especially to getting all hypothyroid patients to strip off all their clothes and marching down Oxford Street. This would be one way that EVERYBODY would sit up and take notice. Perhaps we should do another calendar based on something similar to 'Calendar Girls' .....any takers?

Luv - Sheila

Hiya SheilaAll the wonderful work in sending out stuff to the medical profession seens falling mostly on deaf ears (sorry p.c. slip - on the aurally challenged). They are in one big club and the few who dare to question the club rules are taken to court or suspended. The medical students are being indoctrinated into the same way of thinking by dinosaur tutors.Papers are full of reports about how vitamins kill, reflexology is bogus, any type of complementary medicine is made to look like hippy/new age rubbish. The medical profession again - keeping their position as know-alls - rubishing anything that will rock their boat. The pharmacutical companies are funding the narrow minded thinking - and who dares challenge them??THE TPA.............that's who..........We need to challenge the medical profession/NHS and their backers, the pharmacuticals in a big way from OUTSIDE - get people, other than the members of the forum, questioning them as well. Advertisements, Panorama, magazines, radio - and as a last resort......getting naked and marching down Oxford Street.....well something like that.I am in one of my bolshi moods, so I hope you will excuse me.Luv to you all B

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[Guest guest]

Panorama would be my choice too - and they are not easily scared off are they! Also, what about Murdoch Spenlock or whatever his name is - who did the film about eating a Mcs diet and the effects on his health - he seems to court controversy so might be a good choice. Ive also thought about Radio 4 and the PM programme with Eddie Mair - he seems to challenge things.

I still think that Lynn Fowles-Wood (not sure how to spell her name) might be helpful - she did the bowel cancer campaign after suffering it herself - and guess what there is to be a national bowel screening programme very shortly. She is a nice woman, knows how to campaign and get attention and might take us on even if she isnt hypoT herself.

Would it be an idea to draft a letter asking for their support that we could all send to people we think might help as and when we think of people? Surely then someone would take this up as a cause and it would start to get the word out. Another one Ive thought of is Harry Hill - now the comedian but he was a doctor so with a well worded letter he would understand the issue and might help too.

Gill

......a good title for Panorama.Their e-mail address, for programme suggestions etc is:panorama.replybbc (DOT) co.ukWould it be worth asking the question at least?Pen x

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[Guest guest]

Hi - that's the sort of fighting talk I like! We do need to kick up a fuss!

Gill

THE TPA.............that's who..........We need to challenge the medical profession/NHS and their backers, the pharmacuticals in a big way from OUTSIDE - get people, other than the members of the forum, questioning them as well. Advertisements, Panorama, magazines, radio - and as a last resort......getting naked and marching down Oxford Street.....well something like that.I am in one of my bolshi moods, so I hope you will excuse me.Luv to you all B

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[Guest guest]

Hi Lilian - maybe there is hope - the NHS do seem to be paying a lot of attention to what patients think now. There is Lord Darzi asking for our feedback by email (no wonder GPs are calling for his resignation!), there are the NHS national patient surveys - if you get one dont forget to comment on hypoT - and there are now new LINks groups being set up to replace the patient forums - these could be useful to us but are not yet in place. There are also local consultation sessions being arranged all over the Country to get patients views. And GP practices and anyone changing services or bringing in new services have a duty to consult with patients.

We really have to make the most use of these things to get our word out!

In China apparently doctors are paid when their patients are well, not when they are ill!

Gill

If they are constantly getting bad reports, then they should be brought before GMC to assess whether they are still fit to practice.

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[Guest guest]

Hi Sheila - well if I lose weight now Im on Armour, like most other people seem to do, I will volunteer - just as long as I can have some cherry buns to stand behind!!

Gill

EVERYBODY would sit up and take notice. Perhaps we should do another calendar based on something similar to 'Calendar Girls' .....any takers?

..

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[Guest guest]

Brilliant ideas, but pretty shattered right now, so will wait until after the holidays. Remind me please.There is SO much going on and SO much we need to do.

I still need volunteers to have a look through one months messages and cut and paste the 'controversial' one's from members who have had deplorable treatment at the hands of the NHS. Unless we can get these volunteers, I can't get on with this campaign. Problem is, I know so many of us are ill and haven't the brain function right now to get our heads around it. BUT - some of us are OK.

Luv - Sheila

Panorama would be my choice too - and they are not easily scared off are they! Also, what about Murdoch Spenlock or whatever his name is - who did the film about eating a Mcs diet and the effects on his health - he seems to court controversy so might be a good choice. Ive also thought about Radio 4 and the PM programme with Eddie Mair - he seems to challenge things.

I still think that Lynn Fowles-Wood (not sure how to spell her name) might be helpful - she did the bowel cancer campaign after suffering it herself - and guess what there is to be a national bowel screening programme very shortly. She is a nice woman, knows how to campaign and get attention and might take us on even if she isnt hypoT herself.

Would it be an idea to draft a letter asking for their support that we could all send to people we think might help as and when we think of people? Surely then someone would take this up as a cause and it would start to get the word out. Another one Ive thought of is Harry Hill - now the comedian but he was a doctor so with a well worded letter he would understand the issue and might help too.

Gill

......a good title for Panorama.Their e-mail address, for programme suggestions etc is:panorama.replybbc (DOT) co.ukWould it be worth asking the question at least?Pen x

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[Guest guest]

evening all, i've always felt that doctors should be paid when the patients are well. when we are unwell, all payments should cease until we are healthy again . just a thought ! regards jane

Sent from .

A Smarter Email.

[Guest guest]

--

Thing is about Panorama, the presenter is the lovely Vine.

Don't know how much say he would have on it.

The Tonight Show might be a good one. I think the general issue is

that the NHS sucks. I saw a programme on BBC2 about a business guru

(I can't remember his name) who tried to sort out the NHS (he could

not) and he said the biggest problem with the NHS is the Government

medling and the sooner the NHS is severed from the Government the

better as truly wonderful things could happen.

There are numerous groups unhappy with the NHS. Another one being he

Pernicious Anemia group. Usual story they believe the NHS reference

ranges are too low and are fighting to get them changed and are left

to self inject to feel better.

Cheers

a

> .....a good title for Panorama.

>

>

>

[Guest guest]



But they will get round it by saying that we WERE very well it was just all in our heads.

Lilian

evening all, i've always felt that doctors should be paid when the patients are well. when we are unwell, all payments should cease until we are healthy again . just a thought ! regards jane

[Guest guest]

Perhaps such groups ought to get together with our complaints and get at the NHS that way - the more the merrier. I think Vine is a very intelligent guy, and if the right approach was made about our own particular hypothyroid problem(s) he could give it the importance that it deserves. I promise after the hols. I will get pen to paper - but I DO NEED STORIES FOR OUR MEMBERS TO BACK THIS UP. Tell me what happened to you to make you join this forum - tell me what your doctors said when they refused to give you a diagnosis of hypothyroidism, tell me the reason you were refused a trial of combination therapy. Tell me how your GP and NHS endocrinologist made you feel when they refused to take you seriously. That sort of thing. I want to know WHY you felt the need to join TPA and what has happened to you since you joined us.

I will put in my own "The NHS is Killing Us - The Great Thyroid Scandal" that is on the BBC Action Alert Website. That alone has brought so many people to seek help and support from our forum. They need to know the FACTS out there - and we need to make sure they take action to stop this happening to other sufferers.

Sheila

There are numerous groups unhappy with the NHS. Another one being hePernicious Anemia group. Usual story they believe the NHS referenceranges are too low and are fighting to get them changed and are leftto self inject to feel better.Cheersa> .....a good title for Panorama.> > >

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[Guest guest]

When I was suffering so badly with non diagnosis I contacted my local

MP who was very sympathetic and he forwarded my letters to the then

Minister for Health Ladyman who was also very helpful - I was

advised by my MP to write to another MP - Mark Oaten - I think that

was his name - and he had to resign due to a personal scandal so I

never sent the letter. If enough of us go to our local MP's surgery

and complain something will get done - it is in the interests of the

government to cut costs and proper diagnosis of thyroid disorders WILL

CUT COSTS - I was told that the Tories are aware there is an issue

with diagnosis of thyroid disorders and that they will be looking into

it if they get in power. It is my opinion that the non-diagnosis of

thyroid disorders is a bit deeper than we all might think - could it

be that the government does not want over 2 million extra people being

given free prescriptions AND endocrinogists I am sure do not want to

have those 2 million odd people pouring into their offices for out

patient treatment - they might have to actually do something. I would

like see a large amount of us - possibly make it the largest legal

test case in this country - take the field of endocrinology to court

and sue them for forgetting more than they now know about their

subject - I believe it is part of a doctors remit that they must keep

their subject knowledge up to date. Why when thyroid disease which

was discovered in this country over 150 years ago and was diagnosed by

the symptoms only are we now relying on a blood test result as the

sole means of that diagnosis. It is a scandal - anyone think this is

a good idea - anyone know any emminent medical lawyers who would like

to do this case as a freeby in order to make their name.

Mandy

[Guest guest]

Oh darling - if ONLY it was that simple. We have, on this forum previously, lobbied our MP's to sign an early day motion about the inability of NHS trained doctors to diagnose or properly treat hypothyroidism. This was tabled by Mark Oaten and we managed to get 366 MP's to sign this EDM - then, after the scandal, it was never taken up and at the end of the year, it was removed. I then got Austin MP interested enough to take this up again - and once again, every one of us lobbied our MP and I wrote individually to all 630 odd MP's on behalf of all hypothyroid sufferers. We started to get signatures on this new EDM and when we got up to 166 - suddenly signatures stopped. I couldn't understand why, but eventually was told that the British Thyroid Association had told the MP's that they were wasting their time as they would NOT be changing their present protocol about how doctors should reached a diagnoses of hypothyroidism, nor would they be changing the present treatment using L-thyroxine only. That was that - dead in the water.Needless to say, Austim MP also appears to be dead in the water - as I cannot get any response from him to my many letters.

I understand everything in the rest of your letter and agree with it. I would love to take this to court and make it the biggest medical scandal - leaving millions of people throughout the world undiagnosed and untreated. There IS an agenda here, but who has the proof - and proof is what is needed. We are doing what we can, little by little. Right now, it is essential to get letters from as many people as we can about their lack of care and bad treatment within the NHS - so I can pass these on to the BMA for them to investigate and for us to pass on to reporters, TV investigative programmes.

Luv - Sheila

When I was suffering so badly with non diagnosis I contacted my localMP who was very sympathetic and he forwarded my letters to the thenMinister for Health Ladyman who was also very helpful - I wasadvised by my MP to write to another MP - Mark Oaten - I think thatwas his name - and he had to resign due to a personal scandal so Inever sent the letter. If enough of us go to our local MP's surgeryand complain something will get done - it is in the interests of thegovernment to cut costs and proper diagnosis of thyroid disorders WILLCUT COSTS - I was told that the Tories are aware there is an issuewith diagnosis of thyroid disorders and that they will be looking intoit if they get in power. It is my opinion that the non-diagnosis ofthyroid disorders is a bit deeper than we all might think - could itbe that the government does not want over 2 million extra people beinggiven free prescriptions AND endocrinogists I am sure do not want tohave those 2 million odd people pouring into their offices for outpatient treatment - they might have to actually do something. I wouldlike see a large amount of us - possibly make it the largest legaltest case in this country - take the field of endocrinology to courtand sue them for forgetting more than they now know about theirsubject - I believe it is part of a doctors remit that they must keeptheir subject knowledge up to date. Why when thyroid disease whichwas discovered in this country over 150 years ago and was diagnosed bythe symptoms only are we now relying on a blood test result as thesole means of that diagnosis. It is a scandal - anyone think this isa good idea - anyone know any emminent medical lawyers who would liketo do this case as a freeby in order to make their name. Mandy

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[Guest guest]

OH DEAR NO!! Not after his crass comment on his Radio 2 slot about

thyroid issues being part of an American craze!!

Tracey

>

> Thing is about Panorama, the presenter is the lovely Vine.

> Don't know how much say he would have on it.