Re: CLL and Iodine

[Guest guest]

CLL=chronic lymphocytic leukemia

From: " twosteprav " <twosteprav@...>

> Linn, Dwyer and his canadian buddy that was so mean to you about

> Iodine were also mean to me and got muzzled. Check out his whiny letter

> on CLL Canada.

Someone repeated that same whiny letter on the CLL Forum. He has

sympathizers there. I remember reading something from him that I thought

would get him kicked off for sure, maybe that his response to your post.

His problem is that he thinks he was kicked off because of political

correctness and right-winger list managers, which means he fails to

recognize his total lack of list etiquette and attack dog style as the real

reasons. If he had cited sources for his contrary opinion, instead of just

pronouncing something as worthless and a waste of list time, it could have

been an honest intellectual debate. Instead he just slung mud. Maybe

there's some relevance in that to this list, although everyone seems quite

congenial again.

> I was told I had two and a half years left if I din't get Chemo. The

> doctor was trying to scare me into his making big bucks off of giving

> me poison. I am feeling better today than I was two and a half years

> ago.

Great! Why do you think you're feeling better - what are you doing?

> I would probably be dead or very sick if I listened to doctors who make

> big bucks off of being narrow minded. I caught my doctor off guard and

> asked him if he had my medical problems and was in my shoes would he

> take chemo and he said NO. But he still keeps trying to push it on me.

> I don't trust him anymore.

Understandably. There is such an attitude that anything other than chemo is

just snake oil and people who promote alternative therapies are all

charlatans and quacks out to steal your money. Well doctor, look in the

mirror.

> My lymphcytes keep going up and my platelets keep going down but not

> too fast. My lymph glands and spleen are enlarged but not growing. I

> would love to hear more about what Iodine does for CLL.

All I know about what iodine does for CLL are 2 anecdotal stories and my own

husband's experience, and none of these stories are based on more than 1

month's experience. So I don't know that there is much to tell you. There

is more known about iodine and breast and prostate cancer and iodine's

ability to induce apoptosis in cancer cells. I don't know if Zoe has built

files specific to iodine and cancer, but if not, it seems like that would be

a good thing. I read the files and database and iodine4health before my

husband was diagnosed, so I would have glossed over anything there. I need

to check them out again.

My husband was diagnosed with CLL on 6/21/06 and had a repeat CBC that day.

My husband seems to have many hypo symptoms - fatigue, chilled easily,

losing hair, eczema, lost the outer third of his eyebrows, despite a thyroid

blood panel that seemed okay (no FT3 or FT4 test was done even though doc

promised to do it). Since I'm hypothyroid, hypoadrenal, and hypogonadal, I

figured iodine/iodide would help me and my husband. We started on 1/2

Iodoral a day and gradually built up so that we were taking 4 a day at the

end of July. He also started taking Essiac tea three times a day on 6/22,

which is supposed to be mildly cancerolytic.

He had another CBC on 8/17. Compared to 6/21, his lymph nodes had

diminished and his energy level was higher. His WBC, which has always been

in reference range, and his lymphocytes, which are somewhat above normal,

diminished slightly. However, his RBC, sodium, chloride, and neutrophils

dropped below range for the first time, and his BUN and creatinine went over

range. All slightly under or over, but other than the WBC and lymphocytes,

a downward trend.

Since he was taking them at the same time, I can't isolate out the effects

from the Essiac tea from the effects of the iodine. I also don't know how

to interpret the CBC changes, whether it means the disease is progressing or

maybe the iodine or Essiac tea caused the downward trend. But they and some

dietary changes could also have caused the positive changes: lower WBC,

lower lymphocytes, smaller lymph nodes, more energy, better cognitive

function. The only thing I feel certain about is that it's much too early

for us to know what effect iodine has on CLL.

Lynn

[Guest guest]

I believe the reason I feel good in spite of having 20

different medical problems is as follows:

1. I excercise daily. I feel much better when I do.

2. I eat healthy. I find when I loose weight my

leukemia grows slower too. I treat sugar and fast food

like poison.

3. I use a heating pad to help my arthritis pain so I

can get a good nights sleep.

4. I keep a positive mental attitude. After I retired

from the Army I spent 20 years helping battered wives

and rape victims. When I came down with Diabetes and

Leukemia I cut back on spending time helping others

but I still feel good helping others and need it as

part of my life.

Now if I could only find out how to keep my

lymphocytes from growning and my platelets from

dropping I would be able to live longer.

[Guest guest]

Lynn, have you read Mark Starr's Hypothyroidism Type 2 ? He relates a number of conditions (including cancer) to low thyroid and has had good results with using desiccated thyroid. It is a fascinating book, and includes several things I didn't know -- like the genetics of mitochondria. He doesn't trust any of the blood tests and discusses how he diagnoses and treats a variety of issues.

Since the body relates to the various forms of iodine so differently (e.g., T4, T3, T2, T1, I2, I-), you might want to consider desiccated thyroid as well as traditional iodine sources.

Zoe

My husband was diagnosed with CLL on 6/21/06 and had a repeat CBC that day.My husband seems to have many hypo symptoms - fatigue, chilled easily,losing hair, eczema, lost the outer third of his eyebrows, despite a thyroidblood panel that seemed okay (no FT3 or FT4 test was done even though docpromised to do it).

Lynn McG

[Guest guest]

,Do you take enzymes?  Dr. Tim O'Shea has a lot of good info regarding cancer on his website at thedoctorwithin.com, enter the website, click on the chapters icon, then on the chapter "To the Cancer Patient".LinnOn Sep 2, 2006, at 7:08 AM, Doey wrote:I believe the reason I feel good in spite of having 20different medical problems is as follows:1. I excercise daily. I feel much better when I do.2. I eat healthy. I find when I loose weight myleukemia grows slower too. I treat sugar and fast foodlike poison.3. I use a heating pad to help my arthritis pain so Ican get a good nights sleep.4. I keep a positive mental attitude. After I retiredfrom the Army I spent 20 years helping battered wivesand rape victims. When I came down with Diabetes andLeukemia I cut back on spending time helping othersbut I still feel good helping others and need it aspart of my life.Now if I could only find out how to keep mylymphocytes from growning and my platelets fromdropping I would be able to live longer. __.. 

[Guest guest]

Thanks for that site Linn. I take digestive enzymes

faithfully for my Erosive gastritis and Colitis. I

suffered the gastorenterology clinic screw ups for 15

years before I found digestive enzymes. I used to

bleed daily but seldom do any more.

I will look further into enhancing metabolic enzymes.

It seems hopeful too.

[Guest guest]

You're welcome, he has a lot of good info.  I started taking enzymes late last year and have had good results also.  I used to have a problem with easy brusing which has disappeared now.  Several alternative cancer treatments utilize enzymes, Dr. Kelley's treatment of cancer with enzymes is very interesting reading if you're not already familiar with that.  Keep us posted.  I like to read up on cancer related info as I figure it's good to use as a preventative.  There's several good cancer sites listed in the files and lots of info on the altmed group also.LinnOn Sep 2, 2006, at 10:45 PM, Doey wrote:Thanks for that site Linn. I take digestive enzymesfaithfully for my Erosive gastritis and Colitis. Isuffered the gastorenterology clinic screw ups for 15years before I found digestive enzymes. I used tobleed daily but seldom do any more.I will look further into enhancing metabolic enzymes.It seems hopeful too.__. 

[Guest guest]

>Lynn, have you read Mark Starr's Hypothyroidism Type 2 ? He relates a number of conditions (including cancer) to low thyroid and has had good results with using desiccated thyroid. It is a fascinating book, and includes several things I didn't know -- like the genetics of mitochondria. He doesn't trust any of the blood tests and discusses how he diagnoses and treats a variety of issues.

Since the body relates to the various forms of iodine so differently (e.g., T4, T3, T2, T1, I2, I-), you might want to consider desiccated thyroid as well as traditional iodine sources.

Zoe

No, I haven't read Starr's book yet. I know it's gotten great reviews at NTH, but I didn't know how much I would benefit by buying yet another hypothyroid book. I had found a real interesting discussion of thyroid and mitochondrial function on the internet, but I don't think I've ever even seen any mention of the genetics of mitochondria anywhere.

I wanted to see if my husband's symptoms would respond to a few months of Iodoral before trying any desiccated thyroid, since it's highly likely that we're both iodine deficient. Except for the eyebrow loss, so many of his symptoms could be attributed to CLL as well as hypothyroidism, it's hard to sort out what is the cause. His daytime temp was around 98.3 the last time I checked, which didn't seem low enough to make him obviously hypo.

Thanks for the iodine and cancer links. I had put off searching through the vastness of the information you have available to find them, but I thought I had remembered reading something.

Lynn

[Guest guest]

Well I missed it. Can you send the link again?

On Sep 2, 2006, at 9:01 PM, Linn wrote:

> Thanks for that site Linn. I take digestive enzymes

> faithfully for my Erosive gastritis and Colitis. I

> suffered the gastorenterology clinic screw ups for 15

> years before I found digestive enzymes. I used to

> bleed daily but seldom do any more.

Parashis

artpages@...

zine:

artpagesonline.com

portfolio:

http://www.artpagesonline.com/EPportfolio/000portfolio.html

[Guest guest]

,

Which enzymes do you take and why that kind? Thanks.

Jane

[Guest guest]

I take Q-Zyme from garden of Life. Can't remember why. I think they are

a company Price Foundation recommends for at least some things.

Wish to take Pancreatic enzymes but not in budget to do all things.

from autismcoach.com (even though not autistic) taking HN-Zyme Prime

and Peptizyde.

The Autism group came up maybe in the iodine group I belong to. Is

thought that autistic people don't digest well so came up with these

enzymes that would do a more thorough job and be in a capsule that

wasn't toxic in any way.

I actually wish I knew more. Just know I don't have enough hydrochloric

acid so take lots of that and know I've abused my body with the wrong

foods for years so probably don't have many enzymes left and chemo must

have destroyed ability to utilize some also. Just using a shotgun

approach since I can't afford a wholistic doctor.

If you find out more, let me know.

On Sep 8, 2006, at 4:55 PM, Jane Rowland wrote:

> ,

> Which enzymes do you take and why that kind? Thanks.

>  

> Jane

>

Parashis

artpages@...

zine:

artpagesonline.com

portfolio:

http://www.artpagesonline.com/EPportfolio/000portfolio.html