Re: Wish I had started at a lower dose of Iodoral

[Guest guest]

Suzanne,

From the experience of many of us, these symptoms are all bromide detox. Two things have worked:

(1) the salt loading protocol along with 3-10 grams Vitamin C per day. See: www.breastcancerchoices.org/drshevin Most of us use 1/2 teaspoon of salt in the initial half cup of water.

(2) Stopping the Iodoral two days for a "wash-out" so your detox organs get a chance to rest. Then you can restart, and you might keep doing the salt loading before you get symptoms.

The bromide detox doesn't go on too long. When the majority of it is excreted you will be able to take more Iodoral if you remember to "salt out the bromide" when you get detox symptoms.

Let us know how you progress.

Lynne

In a message dated 6/30/2007 9:33:00 P.M. Eastern Daylight Time, suzannelafreniere@... writes:

I have been feeling really poorly, terrible fatigue, depression, body aches and a recurrence of these dreaded tongue sores I get. I am hypothyroid and have been for years.

See what's free at AOL.com.

[Guest guest]

I had a hard time in the beginning too. I just felt strange but I felt stranger if I missed a dose.

Your adrenals might be stressed. I became extremely fatigued like chronic fatigue syndrome and depressed on a small amount of Armour, b4 I got some cortef.

Gracia

I was diagnosed low iodine by my doctor from the results of the iodine loading test, He started me on 50 mg Iodoral right away about 18 days ago.I have been reading on this site that it is better to start with a low dose and build slowly to avoid a detoxing from bromides etc. (I have a minimal understanding)I have been feeling really poorly, terrible fatigue, depression, body aches and a recurrence of these dreaded tongue sores I get. I am hypothyroid and have been for years.I am now wondering if I am feeling this way due to this detoxing, and should I just back off the Iodoral to 12.5 mgs or even less? My doctor didn't say anything about dosing when I asked him, he said ask the Iodoral people.I like this doctor, he is as good as it gets here in Portland Oregon.Should I just drop down in dosing tomorrow and see how I feel after a few days?I can barely function, this is always so hard on my Family, I feel guilt and shame when I am not up to doing anything.I don't want to give up on the Iodoral, I just wish I had started more slowly. any suggestions?PS, want to think the input and answers I received last week from my first post here.Suzanne

[Guest guest]

Well two things. It could be detox or it could be allergy. Dr. Brownstein

had me do NAET treatments for iodine when I first started. Then when I

started to have severe detox he had me back down to a comfortable amount

which is very, very little.

Irene

At 06:32 PM 6/30/2007, you wrote:

I was diagnosed low iodine by my

doctor from the results of the

iodine loading test, He started me on 50 mg Iodoral right away about

18 days ago.

I have been reading on this site that it is better to start with a

low dose and build slowly to avoid a detoxing from bromides etc. (I

have a minimal understanding)

I have been feeling really poorly, terrible fatigue, depression, body

aches and a recurrence of these dreaded tongue sores I get. I am

hypothyroid and have been for years.

I am now wondering if I am feeling this way due to this detoxing,

and should I just back off the Iodoral to 12.5 mgs or even less? My

doctor didn't say anything about dosing when I asked him, he said ask

the Iodoral people.

I like this doctor, he is as good as it gets here in Portland

Oregon.

Should I just drop down in dosing tomorrow and see how I feel after a

few days?

I can barely function, this is always so hard on my Family, I feel

guilt and shame when I am not up to doing anything.

I don't want to give up on the Iodoral, I just wish I had started

more slowly. any suggestions?

PS, want to think the input and answers I received last week from my

first post here.

Suzanne

[Guest guest]

-Thanks for the responses, Gracia, when you said you had a hard time

in the beginning, you do mean with the Iodoral? Did you back down

in the dose? The way I am feeling I want to just stop, I want to

get it out of my system.

Today I only took one Iodoral, down from 4 the last few weeks. I

just feel so awful, allergies acting up, canker sores, bad stomach,

severe headache all day, eyes hurt, really depressed and apathetic

about life. When I feel this badly I can barely help myself or care.

I am about to take the saliva test via ZRT labs, I have had to wait

until some prednosone was out of my system that was given to me for

my allergies. I do believe I have weak adrenals also.

It just feels overwhelming to me, my husband was ready to take me to

the hospital today!

I think I will stay on a small dose of Iodoral for the week and call

and let my

doctor know, maybe I only need a small amount of Iodoral, that is

possible?

I have also just had to reduce my Armours Thyroid by a 1/2 grain,

this never feels good, med changes.

This sucks!

Suzanne

-- In iodine , " Gracia " <circe@...> wrote:

>

>

> I had a hard time in the beginning too. I just felt strange but I

felt stranger if I missed a dose.

> Your adrenals might be stressed. I became extremely fatigued

like chronic fatigue syndrome and depressed on a small amount of

Armour, b4 I got some cortef.

> Gracia

>

> I was diagnosed low iodine by my doctor from the results of the

> iodine loading test, He started me on 50 mg Iodoral right away

about

> 18 days ago.

>

> I have been reading on this site that it is better to start with

a

> low dose and build slowly to avoid a detoxing from bromides etc.

(I

> have a minimal understanding)

>

> I have been feeling really poorly, terrible fatigue, depression,

body

> aches and a recurrence of these dreaded tongue sores I get. I am

> hypothyroid and have been for years.

>

> I am now wondering if I am feeling this way due to this detoxing,

> and should I just back off the Iodoral to 12.5 mgs or even less?

My

> doctor didn't say anything about dosing when I asked him, he said

ask

> the Iodoral people.

>

> I like this doctor, he is as good as it gets here in Portland

Oregon.

>

> Should I just drop down in dosing tomorrow and see how I feel

after a

> few days?

>

> I can barely function, this is always so hard on my Family, I

feel

> guilt and shame when I am not up to doing anything.

>

> I don't want to give up on the Iodoral, I just wish I had started

> more slowly. any suggestions?

>

> PS, want to think the input and answers I received last week from

my

> first post here.

>

> Suzanne

>

[Guest guest]

I think you really have adrenal probs, made worse by the pred. Cortef can alleviate all those symptoms.

I felt very toxic in the beginning of taking Iodoral, but never thought to use salt or extra magnesium.

I know how horrible it is to feel like that. In 2001 I was so depressed and sick, laid off from my job and no health insurance, barely able to tolerate 90mg Armour. I used to wish a plane would hit my house, then my wonderdog was run over by a car, then 9-11 happened. then I got some cortef.

Gracia

-Thanks for the responses, Gracia, when you said you had a hard time in the beginning, you do mean with the Iodoral? Did you back down in the dose? The way I am feeling I want to just stop, I want to get it out of my system. Today I only took one Iodoral, down from 4 the last few weeks. I just feel so awful, allergies acting up, canker sores, bad stomach, severe headache all day, eyes hurt, really depressed and apathetic about life. When I feel this badly I can barely help myself or care.I am about to take the saliva test via ZRT labs, I have had to wait until some prednosone was out of my system that was given to me for my allergies. I do believe I have weak adrenals also. It just feels overwhelming to me, my husband was ready to take me to the hospital today! I think I will stay on a small dose of Iodoral for the week and call and let my doctor know, maybe I only need a small amount of Iodoral, that is possible? I have also just had to reduce my Armours Thyroid by a 1/2 grain, this never feels good, med changes. This sucks!Suzanne--

..

[Guest guest]

-Thanks again, my new doctor who is great in every other respect,

orders the right tests, is up on many of the other issues affecting

thyroid and post-menopausal women, which I am.

Anyway he has already told me he does not use Cortef or even Isocort,

only in extreme cases of adrenal fatigue, I asked why and he said he

prefers a natural method (diet, being decaffinated, stress

reduction) Now I am a recovering alcoholic and I have only one

addiction left, my cup of coffee in the morning. I don't think I can

quit my coffee.

He also has the same concern I have heard other docs say about your

adrenals getting dependant on the Cortef. I think I will bring this

up with him after my tests, I will mention the book " Safe Uses Of

Cortisol " to him.

I am feeling a little bit discouraged by his not knowing how to

prescribe the Iodoral. That I have to learn the hardway, by taking

too much at first and feeling so sick.

I have done some of this supplementing on my own (Isocort,Cortef)

following the protocol suggested on the Stop the Madness website, I

had some reactions to the Cortef, I had ordered it online.

I am really trying to follow exactly what the doctor says, I am

tired of trying to run the show with not much success.

I did have ferritin checked and it was 70, and my b12 was high, he

said I got all of it in my Family as my sister has PA, the other

factor I have going on is the low Vit D.

I do believe I have the adrenal issue. We will also be testing all

the other hormones with the saliva test.

Gracia, did you feel much better with the Cortef and could you then

increase the Armour Thyroid?

Do you feel optimized at this point? What other hormonal imbalances

did you have?

My daughter has Graves Disease, she has had low ferritin too. I want

her checked for low iodine also.

I do feel better upon awakening this morning, yesterday I lowered

the Iodoral to 1 pill, today I will take the same, stay on 1 a day

and see how I feel.

Are there any folks on here that only need 1 or less of the Iodoral?

Okay I'm done, Suzanne

-- In iodine , " Gracia " <circe@...> wrote:

>

>

> I think you really have adrenal probs, made worse by the pred.

Cortef can alleviate all those symptoms.

> I felt very toxic in the beginning of taking Iodoral, but never

thought to use salt or extra magnesium.

> I know how horrible it is to feel like that. In 2001 I was so

depressed and sick, laid off from my job and no health insurance,

barely able to tolerate 90mg Armour. I used to wish a plane would

hit my house, then my wonderdog was run over by a car, then 9-11

happened. then I got some cortef.

> Gracia

>

>

> -Thanks for the responses, Gracia, when you said you had a hard

time

> in the beginning, you do mean with the Iodoral? Did you back down

> in the dose? The way I am feeling I want to just stop, I want to

> get it out of my system.

> Today I only took one Iodoral, down from 4 the last few weeks. I

> just feel so awful, allergies acting up, canker sores, bad

stomach,

> severe headache all day, eyes hurt, really depressed and

apathetic

> about life. When I feel this badly I can barely help myself or

care.

>

> I am about to take the saliva test via ZRT labs, I have had to

wait

> until some prednosone was out of my system that was given to me

for

> my allergies. I do believe I have weak adrenals also.

> It just feels overwhelming to me, my husband was ready to take me

to

> the hospital today!

> I think I will stay on a small dose of Iodoral for the week and

call

> and let my

> doctor know, maybe I only need a small amount of Iodoral, that is

> possible?

> I have also just had to reduce my Armours Thyroid by a 1/2 grain,

> this never feels good, med changes.

> This sucks!

> Suzanne

>

> --

> Recent Activity

> a.. 12New Members

> Visit Your Group

>

[Guest guest]

Suzanne

I drink about 3 cups of coffee a day---with cream

Don't believe all the myths about cortef---it is just plain wonderful, especially for a recovering alcoholic. On cortef within a week I was feeling incredible---just plain normal, depression gone. I would not bother with isocort at all. Once again you need to dose cortef properly---5mg 4X a day works best for most peeps. IMO take DHEA with it, Flechas recommends 50mg. I take 7-keto 50mg. For me, cortef is just as important as Armour and iodine, so I guess I am "dependent" on all those things to have a life.

I am quite sure you will do well on 50mg Iodoral, once you have adrenal support. I could increase Armour from 90mg to 240mg once I got cortef and estrogen. I still need lots of estrogen too. Blood testing for adrenals was "normal". Saliva testing was high/high normal. 24 hr urine testing from AAL http://www.antibodyassay.com was low on adrenal and sex hormones.

Graves disease=iodine deficiency.

Gracia

-Thanks again, my new doctor who is great in every other respect, orders the right tests, is up on many of the other issues affecting thyroid and post-menopausal women, which I am.Anyway he has already told me he does not use Cortef or even Isocort, only in extreme cases of adrenal fatigue, I asked why and he said he prefers a natural method (diet, being decaffinated, stress reduction) Now I am a recovering alcoholic and I have only one addiction left, my cup of coffee in the morning. I don't think I can quit my coffee.He also has the same concern I have heard other docs say about your adrenals getting dependant on the Cortef. I think I will bring this up with him after my tests, I will mention the book "Safe Uses Of Cortisol" to him.I am feeling a little bit discouraged by his not knowing how to prescribe the Iodoral. That I have to learn the hardway, by taking too much at first and feeling so sick.I have done some of this supplementing on my own (Isocort,Cortef) following the protocol suggested on the Stop the Madness website, I had some reactions to the Cortef, I had ordered it online. I am really trying to follow exactly what the doctor says, I am tired of trying to run the show with not much success.I did have ferritin checked and it was 70, and my b12 was high, he said I got all of it in my Family as my sister has PA, the other factor I have going on is the low Vit D.I do believe I have the adrenal issue. We will also be testing all the other hormones with the saliva test.Gracia, did you feel much better with the Cortef and could you then increase the Armour Thyroid?Do you feel optimized at this point? What other hormonal imbalances did you have? My daughter has Graves Disease, she has had low ferritin too. I want her checked for low iodine also.I do feel better upon awakening this morning, yesterday I lowered the Iodoral to 1 pill, today I will take the same, stay on 1 a day and see how I feel. Are there any folks on here that only need 1 or less of the Iodoral?Okay I'm done, Suzanne--

..

[Guest guest]

Just my .02....

I would back down to half or even a quarter or less of a tablet. If

you know you need iodine then use it, of course, but recognize that

you will be detoxing. Several folks on " curezone " have gone before all

of us and discovered the detox effects and been the guinnea pigs.

They recommend salt water (has to be celtic salt) to drink to help

with detox symptoms, as well as supplemental selenium and vitamin C.

Getting these in place and then starting with a low dose makes sense.

> >

> >

> > I had a hard time in the beginning too. I just felt strange but I

> felt stranger if I missed a dose.

> > Your adrenals might be stressed. I became extremely fatigued

> like chronic fatigue syndrome and depressed on a small amount of

> Armour, b4 I got some cortef.

> > Gracia

> >

> > I was diagnosed low iodine by my doctor from the results of the

> > iodine loading test, He started me on 50 mg Iodoral right away

> about

> > 18 days ago.

> >

> > I have been reading on this site that it is better to start with

> a

> > low dose and build slowly to avoid a detoxing from bromides etc.

> (I

> > have a minimal understanding)

> >

> > I have been feeling really poorly, terrible fatigue, depression,

> body

> > aches and a recurrence of these dreaded tongue sores I get. I am

> > hypothyroid and have been for years.

> >

> > I am now wondering if I am feeling this way due to this detoxing,

> > and should I just back off the Iodoral to 12.5 mgs or even less?

> My

> > doctor didn't say anything about dosing when I asked him, he said

> ask

> > the Iodoral people.

> >

> > I like this doctor, he is as good as it gets here in Portland

> Oregon.

> >

> > Should I just drop down in dosing tomorrow and see how I feel

> after a

> > few days?

> >

> > I can barely function, this is always so hard on my Family, I

> feel

> > guilt and shame when I am not up to doing anything.

> >

> > I don't want to give up on the Iodoral, I just wish I had started

> > more slowly. any suggestions?

> >

> > PS, want to think the input and answers I received last week from

> my

> > first post here.

> >

> > Suzanne

> >

>

[Guest guest]

What about mercury detoxing? I'm afraid to start my iodine once it gets

here because I have a mouth full of mercury fillings. I feel damned if

I do and damned if I don't. Can't afford to get the fillings out right

now.

On Jun 30, 2007, at 7:55 PM, slythy@... wrote:

> Suzanne,

>  

> From the experience of many of us, these symptoms are all bromide

> detox. Two things have worked:

> (1) the salt loading protocol along with 3-10 grams Vitamin C per day.

> See: www.breastcancerchoices.org/drshevin  Most of us use 1/2 teaspoon

> of salt in the initial half cup of water.

>  

> (2) Stopping the Iodoral two days for a " wash-out " so your detox

> organs get a chance to rest. Then you can restart, and you might keep

> doing the salt loading before you get symptoms.

>  

> The bromide detox doesn't go on too long. When the majority of it is

> excreted you will be able to take more  Iodoral if you remember to

> " salt out the bromide " when you get detox symptoms.

>  

> Let us know how you progress.

>  

> Lynne

>  

> In a message dated 6/30/2007 9:33:00 P.M. Eastern Daylight Time,

> suzannelafreniere@... writes:

> I have been feeling really poorly, terrible fatigue, depression, body

> aches and a recurrence of these dreaded tongue sores I get.  I am

> hypothyroid and have been for years.

Parashis

artpages@...

zine:

artpagesonline.com

portfolio:

http://www.artpagesonline.com/EPportfolio/000portfolio.html

[Guest guest]

It's an issue for me as well, since I've already been dx'd with

elevated mercury in my system and have quite a few amalgams. I'm

hoping to lower my heavy metals tissue load by taking the iodine and,

after only 4 days on 2 drops of Lugol's, already have signs that it's

starting to mobilize them.

I haven't read anything about iodine leeching more mercury from

amalgams like other chelating agents. Could be because I just

haven't found the research yet, or maybe the research hasn't been

done, or maybe iodine doesn't affect amalgams. Don't know on that

one.

Since I'm primarily taking iodine for my thyroid and other health

issues, removal of any heavy metals would be an added bonus.

-Michele

>

> What about mercury detoxing? I'm afraid to start my iodine once it

gets

> here because I have a mouth full of mercury fillings. I feel damned

if

> I do and damned if I don't. Can't afford to get the fillings out

right

> now.

>

>

[Guest guest]

-Gracia, thanks for your support I have read and re-read your

responses several times.

I have put a call in to my doctor the last 2 days, he is not

available, I am feeling this surging sensation in the area of the

thyroid, I want to reduce the Armour thyroid even more. I am still

on 1 Iodoral a day, down from the 4 he had me on for 2 weeks.

I am sure I have weak adrenal as I was tested 2 years ago with a home

kit with 4 tubes and saliva, at the time my morning cortisol was

below range only coming up a little through the day and then too high

while sleeping.

At the time I was seeing a naturepathic doctor who would not use

Cortef or even Isocort, so here I am 2 years later still having

problems with Armour or any thyroid hormones, now Iodoral has been

thrown in the mix.

I wish I could start all over treating the adrenals first.

I have a saliva kit from my doctor from ZRT labs which I plan on

taking samples for on Monday. He has said he will only use Cortef

with severe adrenal deficiency. Cross that bridge later.

I am holding on here, barely able to do my job, I am not much of a

Mom or wife at the moment.

Have you ever experienced the throat surging, I wanted to see my

doctor but can't until next week, he is away.

I am going to reduce the Armour myself by 1/2 grain, that will put

me at 1 and 1/2 grains plus the 25 T4 I take. I left a message saying

so, I think he would want me to do that.

I am wondering about the Iodoral at this point, whether I should

take any, especially if I have suspected adrenal problems. Seems like

the Iodoral has been causing the hyper symptoms.

I wish I had more positives to report.

I am scared with any hyper symptoms, my sister had a heart attack a

few years ago.

-- In iodine , " Gracia " <circe@...> wrote:

>

>

> Suzanne

> I drink about 3 cups of coffee a day---with cream

> Don't believe all the myths about cortef---it is just plain

wonderful, especially for a recovering alcoholic. On cortef within a

week I was feeling incredible---just plain normal, depression gone.

I would not bother with isocort at all. Once again you need to

dose cortef properly---5mg 4X a day works best for most peeps. IMO

take DHEA with it, Flechas recommends 50mg. I take 7-keto 50mg.

For me, cortef is just as important as Armour and iodine, so I guess

I am " dependent " on all those things to have a life.

> I am quite sure you will do well on 50mg Iodoral, once you have

adrenal support. I could increase Armour from 90mg to 240mg once I

got cortef and estrogen. I still need lots of estrogen too. Blood

testing for adrenals was " normal " . Saliva testing was high/high

normal. 24 hr urine testing from AAL http://www.antibodyassay.com

was low on adrenal and sex hormones.

> Graves disease=iodine deficiency.

> Gracia

>

>

>

> -Thanks again, my new doctor who is great in every other respect,

> orders the right tests, is up on many of the other issues

affecting

> thyroid and post-menopausal women, which I am.

>

> Anyway he has already told me he does not use Cortef or even

Isocort,

> only in extreme cases of adrenal fatigue, I asked why and he said

he

> prefers a natural method (diet, being decaffinated, stress

> reduction) Now I am a recovering alcoholic and I have only one

> addiction left, my cup of coffee in the morning. I don't think I

can

> quit my coffee.

>

> He also has the same concern I have heard other docs say about

your

> adrenals getting dependant on the Cortef. I think I will bring

this

> up with him after my tests, I will mention the book " Safe Uses Of

> Cortisol " to him.

> I am feeling a little bit discouraged by his not knowing how to

> prescribe the Iodoral. That I have to learn the hardway, by

taking

> too much at first and feeling so sick.

>

> I have done some of this supplementing on my own (Isocort,Cortef)

> following the protocol suggested on the Stop the Madness website,

I

> had some reactions to the Cortef, I had ordered it online.

> I am really trying to follow exactly what the doctor says, I am

> tired of trying to run the show with not much success.

>

> I did have ferritin checked and it was 70, and my b12 was high,

he

> said I got all of it in my Family as my sister has PA, the other

> factor I have going on is the low Vit D.

>

> I do believe I have the adrenal issue. We will also be testing

all

> the other hormones with the saliva test.

>

> Gracia, did you feel much better with the Cortef and could you

then

> increase the Armour Thyroid?

>

> Do you feel optimized at this point? What other hormonal

imbalances

> did you have?

>

> My daughter has Graves Disease, she has had low ferritin too. I

want

> her checked for low iodine also.

>

> I do feel better upon awakening this morning, yesterday I lowered

> the Iodoral to 1 pill, today I will take the same, stay on 1 a

day

> and see how I feel.

>

> Are there any folks on here that only need 1 or less of the

Iodoral?

>

> Okay I'm done, Suzanne

>

> --

> Recent Activity

> a.. 12New Members

> Visit Your Group

>

[Guest guest]

Suzanne:

"Have you ever experienced the throat surging, I wanted to see my doctor but can't until next week, he is away."

I recently had this, when my doctor thought I could reduce my HC, and I couldn't. To me, it was a reaction to the thyroid hormone not being able to get into my cells.

I have some nodules on my thyroid, and one that I can feel with my hand. When I had this feeling in my thyroid, that nodule would be larger than usual. After I took my HC in the evening, the feeling would go away and the nodule would get smaller. I spent the first week thinking I was hyperthyroid and then finally realized it was low cortisol! (Not that your reaction might not be hyperthyroid.)

"I am wondering about the Iodoral at this point, whether I should take any, especially if I have suspected adrenal problems. Seems like the Iodoral has been causing the hyper symptoms."

I did this back in Jan./Feb. and ran into problems. It wasn't until I started HC that I was able to tolerate the Iodoral. I still have to keep the amount low, because I think it is raising my progesterone. My adrenals seem fine with it though.

Are you sure the Iodoral is making you hyper? It might be, especially with the Armour added with it. I was taking it before I was on Armour or HC. I thought it was making me hyper, but it was actually majorly stressing my adrenals. Low adrenal symptoms can mimic hyperthyroid.

"I am holding on here, barely able to do my job, I am not much of a Mom or wife at the moment."

I understand, and I know this is a terrible feeling! I felt like this for 2 years. For about the last 9 months of that time, I tried herbs, amino acids, vit, etc. with a ND for my adrenals which were in stage 6. I was still miserable. I started HC and then Armour 2 months ago. My life has totally turned around. It is amazing! There is definitely hope! Good luck!

(I am on digest, but if you want to email me off list, you can.)

-Olif

[Guest guest]

"I am wondering about the Iodoral at this point, whether I should take any, especially if I have suspected adrenal problems. Seems like the Iodoral has been causing the hyper symptoms.""I did this back in Jan./Feb. and ran into problems. It wasn't until I started HC that I was able to tolerate the Iodoral. I still have to keep the amount low, because I think it is raising my progesterone. My adrenals seem fine with it though."

I'm chiming in with my experience here which mimics both of yours...I also couldn't tolerate Iodoral w/o becoming hyper until I was on sufficient h.c.

Not sure why this isn't more widely known and discussed by folks. Sure seems important.

Dahlia

[Guest guest]

the surging sensation sounds to me like your thyroid gland is wanting more iodine, maybe more meds. I have had that feeling when I needed to feed my thyroid gland, it felt like it was struggling. But maybe you will have to take cortef in order to tolerate thyroid meds/iodine you need.

I know it is hell to feel so bad. I order cortef from a source in England, it is cheap except for shipping no Rx required, let me know if you want it.

Gracia

-Gracia, thanks for your support I have read and re-read your responses several times.I have put a call in to my doctor the last 2 days, he is not available, I am feeling this surging sensation in the area of the thyroid, I want to reduce the Armour thyroid even more. I am still on 1 Iodoral a day, down from the 4 he had me on for 2 weeks. I am sure I have weak adrenal as I was tested 2 years ago with a home kit with 4 tubes and saliva, at the time my morning cortisol was below range only coming up a little through the day and then too high while sleeping. At the time I was seeing a naturepathic doctor who would not use Cortef or even Isocort, so here I am 2 years later still having problems with Armour or any thyroid hormones, now Iodoral has been thrown in the mix.I wish I could start all over treating the adrenals first.I have a saliva kit from my doctor from ZRT labs which I plan on taking samples for on Monday. He has said he will only use Cortef with severe adrenal deficiency. Cross that bridge later.I am holding on here, barely able to do my job, I am not much of a Mom or wife at the moment.Have you ever experienced the throat surging, I wanted to see my doctor but can't until next week, he is away.I am going to reduce the Armour myself by 1/2 grain, that will put me at 1 and 1/2 grains plus the 25 T4 I take. I left a message saying so, I think he would want me to do that.I am wondering about the Iodoral at this point, whether I should take any, especially if I have suspected adrenal problems. Seems like the Iodoral has been causing the hyper symptoms.I wish I had more positives to report.I am scared with any hyper symptoms, my sister had a heart attack a few years ago.-- In iodine , "Gracia" <circe@...> wrote:>> > Suzanne> I drink about 3 cups of coffee a day---with cream > Don't believe all the myths about cortef---it is just plain wonderful, especially for a recovering alcoholic. On cortef within a week I was feeling incredible---just plain normal, depression gone. I would not bother with isocort at all. Once again you need to dose cortef properly---5mg 4X a day works best for most peeps. IMO take DHEA with it, Flechas recommends 50mg. I take 7-keto 50mg. For me, cortef is just as important as Armour and iodine, so I guess I am "dependent" on all those things to have a life.> I am quite sure you will do well on 50mg Iodoral, once you have adrenal support. I could increase Armour from 90mg to 240mg once I got cortef and estrogen. I still need lots of estrogen too. Blood testing for adrenals was "normal". Saliva testing was high/high normal. 24 hr urine testing from AAL http://www.antibodyassay.com was low on adrenal and sex hormones. > Graves disease=iodine deficiency.> Gracia> > > > -Thanks again, my new doctor who is great in every other respect, > orders the right tests, is up on many of the other issues affecting > thyroid and post-menopausal women, which I am.> > Anyway he has already told me he does not use Cortef or even Isocort, > only in extreme cases of adrenal fatigue, I asked why and he said he > prefers a natural method (diet, being decaffinated, stress > reduction) Now I am a recovering alcoholic and I have only one > addiction left, my cup of coffee in the morning. I don't think I can > quit my coffee.> > He also has the same concern I have heard other docs say about your > adrenals getting dependant on the Cortef. I think I will bring this > up with him after my tests, I will mention the book "Safe Uses Of > Cortisol" to him.> I am feeling a little bit discouraged by his not knowing how to > prescribe the Iodoral. That I have to learn the hardway, by taking > too much at first and feeling so sick.> > I have done some of this supplementing on my own (Isocort,Cortef) > following the protocol suggested on the Stop the Madness website, I > had some reactions to the Cortef, I had ordered it online. > I am really trying to follow exactly what the doctor says, I am > tired of trying to run the show with not much success.> > I did have ferritin checked and it was 70, and my b12 was high, he > said I got all of it in my Family as my sister has PA, the other > factor I have going on is the low Vit D.> > I do believe I have the adrenal issue. We will also be testing all > the other hormones with the saliva test.> > Gracia, did you feel much better with the Cortef and could you then > increase the Armour Thyroid?> > Do you feel optimized at this point? What other hormonal imbalances > did you have? > > My daughter has Graves Disease, she has had low ferritin too. I want > her checked for low iodine also.> > I do feel better upon awakening this morning, yesterday I lowered > the Iodoral to 1 pill, today I will take the same, stay on 1 a day > and see how I feel. > > Are there any folks on here that only need 1 or less of the Iodoral?> > Okay I'm done, Suzanne> > --> Recent Activity> a.. 12New Members> Visit Your Group >

[Guest guest]

-Hi Michele, I have a mouth full of these fillings also. I can't

afford to have them removed, let alone just pay for any dental care.

The more I read about all the issues affecting the auto immune

problems I have, the more overwhelmed I feel.

Sometimes I have to take a break from reading all this stuff, I do

get help here and hope. However I am the knid of person that the

more I focus on what's wrong with me the worse I feel.

Damned if you do, damned if you don't is so how I feel.

Suzanne

-- In iodine , " nyxchild " <nyxchild@...> wrote:

>

> It's an issue for me as well, since I've already been dx'd with

> elevated mercury in my system and have quite a few amalgams. I'm

> hoping to lower my heavy metals tissue load by taking the iodine

and,

> after only 4 days on 2 drops of Lugol's, already have signs that

it's

> starting to mobilize them.

>

> I haven't read anything about iodine leeching more mercury from

> amalgams like other chelating agents. Could be because I just

> haven't found the research yet, or maybe the research hasn't been

> done, or maybe iodine doesn't affect amalgams. Don't know on that

> one.

>

> Since I'm primarily taking iodine for my thyroid and other health

> issues, removal of any heavy metals would be an added bonus.

>

> -Michele

>

>

> >

> > What about mercury detoxing? I'm afraid to start my iodine once

it

> gets

> > here because I have a mouth full of mercury fillings. I feel

damned

> if

> > I do and damned if I don't. Can't afford to get the fillings out

> right

> > now.

> >

> >

>

[Guest guest]

This was my experience too.

I'm hashi's...and always reacted adversely to iodine, even in

vitamins.

Since starting HC last year, I have been able to take 6.25 mg.

lugol's with no ill effect...even paint some in addition to that.

I think that the HC might play a role in suppressing certain

antibodies that may make iodine problematic in some hashi's

folks...but I have no science on that.

There has been some talk here and on 'thyroid' forum about this

HC effect and being able to then tolerate iodine...but very limited.

cindi

..

>

>

It wasn't until I

> started HC that I was able to tolerate the Iodoral.

> I'm chiming in with my experience here which mimics both of

yours...I

> also couldn't tolerate Iodoral w/o becoming hyper until I was on

> sufficient h.c.

>

> Not sure why this isn't more widely known and discussed by folks.

Sure

> seems important.

[Guest guest]

Cindi-

I never knew you took HC. How much do you take?

Re: Wish I had started at a lower dose of Iodoral

This was my experience too. I'm hashi's...and always reacted adversely to iodine, even in vitamins. Since starting HC last year, I have been able to take 6.25 mg. lugol's with no ill effect...even paint some in addition to that. I think that the HC might play a role in suppressing certain antibodies that may make iodine problematic in some hashi's folks...but I have no science on that. There has been some talk here and on 'thyroid' forum about this HC effect and being able to then tolerate iodine...but very limited. cindi.>> It wasn't until I> started HC that I was able to tolerate the Iodoral.> I'm chiming in with my experience here which mimics both of yours...I> also couldn't tolerate Iodoral w/o becoming hyper until I was on> sufficient h.c.> > Not sure why this isn't more widely known and discussed by folks. Sure> seems important.

[Guest guest]

I was diagnosed with Schmidt's Syndrome (polyglandular syndrome II -

hashi's + adrenal insufficiency) last fall. I take 30 mg./day.

Cindi

>

> Cindi-

>

> I never knew you took HC. How much do you take?

[Guest guest]

Is Schmidt's syndrome adrenal insufficiency a condition like 's where you must take it the rest of your life?

Re: Wish I had started at a lower dose of Iodoral

I was diagnosed with Schmidt's Syndrome (polyglandular syndrome II - hashi's + adrenal insufficiency) last fall. I take 30 mg./day.Cindi>> Cindi-> > I never knew you took HC. How much do you take?

[Guest guest]

Cindi-

I forgot to ask. Does this mean that you test positive for adrenal antibodies?

Re: Wish I had started at a lower dose of Iodoral

I was diagnosed with Schmidt's Syndrome (polyglandular syndrome II - hashi's + adrenal insufficiency) last fall. I take 30 mg./day.Cindi>> Cindi-> > I never knew you took HC. How much do you take?

[Guest guest]

yes, i did.

and i think more Hashi's folks with apparent adrenal problems should

ask for this lab test - it's a good tool.

cindi

>

> Cindi-

>

> I forgot to ask. Does this mean that you test positive for adrenal

antibodies?

[Guest guest]

yes...lifetime adrenal hormone replacement.

The stats are that up to around 25% of Hashi's folks may have

coexisting autoimmune adrenal dysfunction...that's why i think it

extremely important to get as much info as possible before starting on

any HC self-treatment protocol - so a person really has a clear idea of

what they are dealing with specifically.

Cindi

>

> Is Schmidt's syndrome adrenal insufficiency a condition like

's where you must take it the rest of your life?

[Guest guest]

-Thanks Gracia,

I do feel hyper and have symptoms of hyper/overmedication, my Free

T3 was above range when tested a few weeks ago, then we reduced by a

half

grain but at the same time the doc put me on the high dose (50 mg)

Iodoral, it has really affected me, I lowered the Iodoral 7 days ago

to 12.5 mg and the last 2 days to half that (7.25 mg) and I still

feel hyper.

Is it possible that I now only need a little bit of Armour Thyroid?

Has anyone been able to reduce their thyroid meds after just a few

weeks on the Iodoral?

I know I have adrenal issues, I have to take the saliva test before

I can start taking HC, I swore I would not self treat anymore. I

sure wish I could find a doctor who would give me the Cortef, I will

have to wait until testing comes back, maybe this doc will treat with

HC.

I have lost confidence with this doctor because he was clueless about

how to take the Iodoral, he never mentioned a detoxing could happen

or that we might wait until the adrenals were treated before putting

me on that much Iodoral

I have to say the detoxing symptoms were really strange, creepy and I

just wanted something out of my body, I am still recovering from this

even after reducing the Iodoral aa weeks ago.

I have to hang in there

Suzanne

-- In iodine , " Gracia " <circe@...> wrote:

>

>

> the surging sensation sounds to me like your thyroid gland is

wanting more iodine, maybe more meds. I have had that feeling when

I needed to feed my thyroid gland, it felt like it was struggling.

But maybe you will have to take cortef in order to tolerate thyroid

meds/iodine you need.

> I know it is hell to feel so bad. I order cortef from a source

in England, it is cheap except for shipping no Rx required, let me

know if you want it.

> Gracia

>

> -Gracia, thanks for your support I have read and re-read your

> responses several times.

>

> I have put a call in to my doctor the last 2 days, he is not

> available, I am feeling this surging sensation in the area of the

> thyroid, I want to reduce the Armour thyroid even more. I am

still

> on 1 Iodoral a day, down from the 4 he had me on for 2 weeks.

> I am sure I have weak adrenal as I was tested 2 years ago with a

home

> kit with 4 tubes and saliva, at the time my morning cortisol was

> below range only coming up a little through the day and then too

high

> while sleeping.

>

> At the time I was seeing a naturepathic doctor who would not use

> Cortef or even Isocort, so here I am 2 years later still having

> problems with Armour or any thyroid hormones, now Iodoral has

been

> thrown in the mix.

>

> I wish I could start all over treating the adrenals first.

>

> I have a saliva kit from my doctor from ZRT labs which I plan on

> taking samples for on Monday. He has said he will only use Cortef

> with severe adrenal deficiency. Cross that bridge later.

>

> I am holding on here, barely able to do my job, I am not much of

a

> Mom or wife at the moment.

>

> Have you ever experienced the throat surging, I wanted to see my

> doctor but can't until next week, he is away.

> I am going to reduce the Armour myself by 1/2 grain, that will

put

> me at 1 and 1/2 grains plus the 25 T4 I take. I left a message

saying

> so, I think he would want me to do that.

>

> I am wondering about the Iodoral at this point, whether I should

> take any, especially if I have suspected adrenal problems. Seems

like

> the Iodoral has been causing the hyper symptoms.

>

> I wish I had more positives to report.

>

> I am scared with any hyper symptoms, my sister had a heart attack

a

> few years ago.

>

> -- In iodine , " Gracia " <circe@> wrote:

> >

> >

> > Suzanne

> > I drink about 3 cups of coffee a day---with cream

> > Don't believe all the myths about cortef---it is just plain

> wonderful, especially for a recovering alcoholic. On cortef

within a

> week I was feeling incredible---just plain normal, depression

gone.

> I would not bother with isocort at all. Once again you need to

> dose cortef properly---5mg 4X a day works best for most peeps.

IMO

> take DHEA with it, Flechas recommends 50mg. I take 7-keto 50mg.

> For me, cortef is just as important as Armour and iodine, so I

guess

> I am " dependent " on all those things to have a life.

> > I am quite sure you will do well on 50mg Iodoral, once you have

> adrenal support. I could increase Armour from 90mg to 240mg once

I

> got cortef and estrogen. I still need lots of estrogen too. Blood

> testing for adrenals was " normal " . Saliva testing was high/high

> normal. 24 hr urine testing from AAL http://www.antibodyassay.com

> was low on adrenal and sex hormones.

> > Graves disease=iodine deficiency.

> > Gracia

> >

> >

> >

> > -Thanks again, my new doctor who is great in every other

respect,

> > orders the right tests, is up on many of the other issues

> affecting

> > thyroid and post-menopausal women, which I am.

> >

> > Anyway he has already told me he does not use Cortef or even

> Isocort,

> > only in extreme cases of adrenal fatigue, I asked why and he

said

> he

> > prefers a natural method (diet, being decaffinated, stress

> > reduction) Now I am a recovering alcoholic and I have only one

> > addiction left, my cup of coffee in the morning. I don't think

I

> can

> > quit my coffee.

> >

> > He also has the same concern I have heard other docs say about

> your

> > adrenals getting dependant on the Cortef. I think I will bring

> this

> > up with him after my tests, I will mention the book " Safe Uses

Of

> > Cortisol " to him.

> > I am feeling a little bit discouraged by his not knowing how to

> > prescribe the Iodoral. That I have to learn the hardway, by

> taking

> > too much at first and feeling so sick.

> >

> > I have done some of this supplementing on my own

(Isocort,Cortef)

> > following the protocol suggested on the Stop the Madness

website,

> I

> > had some reactions to the Cortef, I had ordered it online.

> > I am really trying to follow exactly what the doctor says, I am

> > tired of trying to run the show with not much success.

> >

> > I did have ferritin checked and it was 70, and my b12 was high,

> he

> > said I got all of it in my Family as my sister has PA, the

other

> > factor I have going on is the low Vit D.

> >

> > I do believe I have the adrenal issue. We will also be testing

> all

> > the other hormones with the saliva test.

> >

> > Gracia, did you feel much better with the Cortef and could you

> then

> > increase the Armour Thyroid?

> >

> > Do you feel optimized at this point? What other hormonal

> imbalances

> > did you have?

> >

> > My daughter has Graves Disease, she has had low ferritin too. I

> want

> > her checked for low iodine also.

> >

> > I do feel better upon awakening this morning, yesterday I

lowered

> > the Iodoral to 1 pill, today I will take the same, stay on 1 a

> day

> > and see how I feel.

> >

> > Are there any folks on here that only need 1 or less of the

> Iodoral?

> >

> > Okay I'm done, Suzanne

> >

> > --

> > Recent Activity

> > a.. 12New Members

> > Visit Your Group

> >

[Guest guest]

Can you describe what you mean when you say you have " throat surging? "

Thanks, Donna

>

> Suzanne:

> " Have you ever experienced the throat surging, I wanted to see my

> doctor but can't until next week, he is away. "

>

> I recently had this, when my doctor thought I could reduce my HC,

and I couldn't. To me, it was a reaction to the thyroid hormone not

being able to get into my cells.

>

> I have some nodules on my thyroid, and one that I can feel with my

hand. When I had this feeling in my thyroid, that nodule would be

larger than usual. After I took my HC in the evening, the feeling

would go away and the nodule would get smaller. I spent the first

week thinking I was hyperthyroid and then finally realized it was low

cortisol! (Not that your reaction might not be hyperthyroid.)

>

> " I am wondering about the Iodoral at this point, whether I should

> take any, especially if I have suspected adrenal problems. Seems

like

> the Iodoral has been causing the hyper symptoms. "

>

> I did this back in Jan./Feb. and ran into problems. It wasn't until

I started HC that I was able to tolerate the Iodoral. I still have to

keep the amount low, because I think it is raising my progesterone.

My adrenals seem fine with it though.

>

> Are you sure the Iodoral is making you hyper? It might be,

especially with the Armour added with it. I was taking it before I

was on Armour or HC. I thought it was making me hyper, but it was

actually majorly stressing my adrenals. Low adrenal symptoms can

mimic hyperthyroid.

>

> " I am holding on here, barely able to do my job, I am not much of a

> Mom or wife at the moment. "

>

> I understand, and I know this is a terrible feeling! I felt like

this for 2 years. For about the last 9 months of that time, I tried

herbs, amino acids, vit, etc. with a ND for my adrenals which were in

stage 6. I was still miserable. I started HC and then Armour 2 months

ago. My life has totally turned around. It is amazing! There is

definitely hope! Good luck!

>

> (I am on digest, but if you want to email me off list, you can.)

>

> -Olif

>

[Guest guest]

-Hey thanks for your message, it feels like the pulsing in the

thyroid area is worse the last few days. I do feel hyper, why, not

sure, my T3 was over range last month so we lowered the Armour by 1/2

grain. I want to lower it more, I have read if low iodine is the

problem people may need half of what they have been taking.

I did take 4 Iodoral a day for 2 weeks, as I said before I have only

been taking 1/2 Iodoral now for 5-6 days.

I still can't get in to see my doctor, I can e-mail him. I strongly

think it may be a low cortisol problem, I do have some Cortef, I

can't take it because tomorrow I planned to do the saliva test for

all the hormones. I doubt he will approve of HC anyway.

I am thinking that low Iodine has been the main cause of hypo for me,

and I am feeling that taking the Iodoral is changing how much thyroid

hormones I take. It is possible I only need about 1/2 of what I was

taking a few months ago, that being 2 and 1/2 grains and 25 mcg

Synthroid.

Could this have happened so quickly with the Iodoral?

Everything has changed in my body since taking the Iodoral, what if

I only need a small amount of Iodoral and thyroid meds? It is

possible.

The way I am feeling today I would like to take a 1 day break from

the 2 grains Armour and the T4 and the Iodoral.

Last night I couldn't sleep, my throat was throbbing, I wouldn't

call it pain though, also my tongue felt swollen and I felt like my

heart was beating in my neck and ears and tongue, chest pressure too.

I have been sweating alot and feel speedy, I have been having many

more BM's than I do, this is hyper. It is also 100 degrees out!

I am very heat intolerant

I talk to my daughter alot about hyper symptoms. she has Graves. I

think this is worse than hypo.

I did not take my meds this AM, waiting to hear from the doctor.

I get a bit freaked out as I have high blood pressure and my sister

had a massive heart attack around my age (I am 60)

Right now my body's instinct is saying get the thyroid meds out of me.

I had to take an atenolol to calm my heart down. Meanwhile I could

have a heart attack waiting to hear back from the doctor, what would

anyone else here do in my situation? I am not taking anything today.

On Sunday I felt like going to the hospital, I just know what they

would do, my husband is concerned, he is hypo too.

Help!

Suzanne

-- In iodine , " dgo1223 " <dgo1223@...> wrote:

>

> Can you describe what you mean when you say you have " throat

surging? "

> Thanks, Donna

>

>

> >

> > Suzanne:

> > " Have you ever experienced the throat surging, I wanted to see my

> > doctor but can't until next week, he is away. "

> >

> > I recently had this, when my doctor thought I could reduce my HC,

> and I couldn't. To me, it was a reaction to the thyroid hormone not

> being able to get into my cells.

> >

> > I have some nodules on my thyroid, and one that I can feel with

my

> hand. When I had this feeling in my thyroid, that nodule would be

> larger than usual. After I took my HC in the evening, the feeling

> would go away and the nodule would get smaller. I spent the first

> week thinking I was hyperthyroid and then finally realized it was

low

> cortisol! (Not that your reaction might not be hyperthyroid.)

> >

> > " I am wondering about the Iodoral at this point, whether I should

> > take any, especially if I have suspected adrenal problems. Seems

> like

> > the Iodoral has been causing the hyper symptoms. "

> >

> > I did this back in Jan./Feb. and ran into problems. It wasn't

until

> I started HC that I was able to tolerate the Iodoral. I still have

to

> keep the amount low, because I think it is raising my progesterone.

> My adrenals seem fine with it though.

> >

> > Are you sure the Iodoral is making you hyper? It might be,

> especially with the Armour added with it. I was taking it before I

> was on Armour or HC. I thought it was making me hyper, but it was

> actually majorly stressing my adrenals. Low adrenal symptoms can

> mimic hyperthyroid.

> >

> > " I am holding on here, barely able to do my job, I am not much of

a

> > Mom or wife at the moment. "

> >

> > I understand, and I know this is a terrible feeling! I felt like

> this for 2 years. For about the last 9 months of that time, I tried

> herbs, amino acids, vit, etc. with a ND for my adrenals which were

in

> stage 6. I was still miserable. I started HC and then Armour 2

months

> ago. My life has totally turned around. It is amazing! There is

> definitely hope! Good luck!

> >

> > (I am on digest, but if you want to email me off list, you can.)

> >

> > -Olif

> >

>