Re: Tinnitus - Pre facto or post facto?

[Guest guest]

Gerald,

I had mild tinnitus in my left ear pre-CI. After CI, I now have mild to moderate

tinnitus in both ears. I'm afraid now is not the time to ask me how I feel about

that because my tinnitus has been bothering me all day.

As for voices and delusions, I have them too, but they are due to my bipolar

disorder -- not my CIs.

[Guest guest]

,

 

All  of  my  psychological problems  occur  in  noisy places.  Being  severely 

to  profoundly  deaf  I  cannot  interpret  what  is  being said  so I project

my feelings onto other people.

 

Gerald

From: lkozlik@... <lkozlik@...>

Subject: Re: Tinnitus - Pre facto or post facto?

Date: Sunday, May 3, 2009, 2:54 AM

Gerald,

I had mild tinnitus in my left ear pre-CI. After CI, I now have mild to moderate

tinnitus in both ears. I'm afraid now is not the time to ask me how I feel about

that because my tinnitus has been bothering me all day.

As for voices and delusions, I have them too, but they are due to my bipolar

disorder -- not my CIs.

[Guest guest]

Gerald,

I understand and can relate. I used to do the same thing after I lost my hearing

in 1995. In fact, when I was hospitalized for severe depression, I had to be

restrained because I started screaming at one of the nurses after she told me to

turn the stereo (located in the lounge area) down. What made me even more

frustrated was the fact that there was a Deaf patient there who used an

interpreter and could understand everything that was being said in group therapy

while I could not. That was too much for me to take, so I took out my anger on

the nursing staff. I told my psychiatrist how I felt about it too and she agreed

that I had every right to be upset.

Noisy places cause me problems as well. When I'm around crowds or alot of

background noise, it makes me very nervous and manic (a symptom of my bipolar).

That in turn causes stress which then results in me hearing voices, becoming

delusional and extremely paranoid.

However, I've just been put on a new med regimen and I'm doing better. I've also

found that the softer maps my audi put on my CIs helps calm me down whenever I

feel hypomanic (mild mania) or have a headache.

[Guest guest]

I've had tinnitus for most of my life, before and after implantation. I

don't notice it (unless I really look for it) when I'm hooked up and hearing.

In a message dated 5/3/2009 2:46:41 A.M. Eastern Daylight Time,

gerald3nyc@... writes:

Was the tinnitus pre facto or post facto re the cochlear implant?

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[Guest guest]

My tinnitus was prior to my CIs.

Betty

In a message dated 5/3/2009 2:46:41 A.M. Eastern Daylight Time,

gerald3nyc@... writes:

Hi all,

A lot of people on this list write about their tinnitus. Was the

tinnitus pre facto or post facto re the cochlear implant? As for

myself like Joan of Arc sometimes I hear voices but delusions is not

tinnitus.

Gerald

[Non-text portions of this message have been removed]

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[Guest guest]

Gerald, my tinnitus prior to my CI could be described as a bell curve I

used to experience it frequently. It has decreased tremendously since I

had my CI surgery. I am bilateral, and do not hear sounds as mechanical now.

When first activated, yes there is the chip monk or duck sound

effect but once my brain got used to the incoming sounds, sounds became clear

and enjoyable.

Betty

In a message dated 5/3/2009 12:58:44 P.M. Eastern Daylight Time,

gerald3nyc@... writes:

Betty,

I am getting a skewed curve (sharp slope) and not a bell curve

(even distribution) on tinnitus prior to implantation. I live in

a New York City county and there are several medical centers in

Manhattan that do CI implants. But I have to consider giving up

poor but natural hearing in one ear for the mechanical sound but

acute sensitive hearing.

Gerald

From: _bjlfalm@..._ (mailto:bjlfalm@...) <_bjlfalm@..._

(mailto:bjlfalm@...) >

Subject: Re: Tinnitus - Pre facto or post facto?

_@..._ (mailto: )

Date: Sunday, May 3, 2009, 12:40 PM

My tinnitus was prior to my CIs.

Betty

In a message dated 5/3/2009 2:46:41 A.M. Eastern Daylight Time,

gerald3nyc (DOT) com writes:

Hi all,

A lot of people on this list write about their tinnitus. Was the

tinnitus pre facto or post facto re the cochlear implant? As for

myself like Joan of Arc sometimes I hear voices but delusions is not

tinnitus.

Gerald

[Non-text portions of this message have been removed]

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the

web. Get the Radio Toolbar!

(_http://toolbar._ (http://toolbar./) aol.com/aolradio /download.

html?ncid= emlcntusdown0000 0003)

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

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[Guest guest]

I can still get tinnitus if I go without my processors on for more than a

day or so. Then it becomes so bad I have to pop them back on to mask the

sound.

I remember on the very day I was to be activated for my second (bilateral)

implant, a horrible incessant buzz started in my head - it was so loud and

insistent that I nearly went crazy. It was a very frazzled patient that

showed up at the audiologist's office that day!

Kat

[Guest guest]

Betty,

 

I  am  getting  a  skewed  curve (sharp  slope)  and  not a  bell  curve (even 

distribution)  on  tinnitus  prior  to  implantation.  I  live  in  a  New  York

City  county  and  there  are several  medical  centers  in Manhattan  that  do

CI  implants.  But  I  have  to  consider  giving  up  poor  but  natural 

hearing  in one  ear  for  the  mechanical  sound  but  acute  sensitive 

hearing. 

Gerald

From: bjlfalm@... <bjlfalm@...>

Subject: Re: Tinnitus - Pre facto or post facto?

Date: Sunday, May 3, 2009, 12:40 PM

My tinnitus was prior to my CIs.

Betty

In a message dated 5/3/2009 2:46:41 A.M. Eastern Daylight Time,

gerald3nyc (DOT) com writes:

Hi all,

A lot of people on this list write about their tinnitus. Was the

tinnitus pre facto or post facto re the cochlear implant? As for

myself like Joan of Arc sometimes I hear voices but delusions is not

tinnitus.

Gerald

[Guest guest]

Gerald,

I think I had mild tinnitus pre CI. I still have mild tinnitus and

sometimes it gets quite annoying. The worst was the day of surgery. I had

coffee afterwards and oh boy did I find myself inside the waterfall. I

drank decaf for a week and it went back to the usual.

There are so many factors that contribute to tinnitus. Fever, weather,

medications, moods, diet, you name it.

*---* *---* *---* *---* *---*

A conscience is what hurts when all your other parts feel so good.

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

[Guest guest]

Hi Gerald,

I had one episode of severe vertigo around 1966. I thought it was from a viral

infection. The tinnitis came in 1969. The Meniere's came in 1970 and the

diagnosis of Meniere's came in 1972.

Jim

>

> Hi  all,

>  

> A  lot  of  people  on  this list write  about their tinnitus.  Was  the

tinnitus  pre facto  or  post facto re  the cochlear implant?  As  for myself 

like Joan of Arc sometimes I hear voices  but delusions  is not tinnitus.

>  

> Gerald

>

>

>

>

>

[Guest guest]

I have had severe tinnitus all my life and it wasn't changed or masked by

the CI. Ruth

From: [mailto: ] On Behalf Of

Gerald Gollinger

Sent: Sunday, May 03, 2009 2:46 AM

Subject: Tinnitus - Pre facto or post facto?

Hi all,

A lot of people on this list write about their tinnitus. Was the

tinnitus pre facto or post facto re the cochlear implant? As for

myself like Joan of Arc sometimes I hear voices but delusions is not

tinnitus.

Gerald

[Guest guest]

Hi Gerald,

My tinnits came from the Meniere's disease. I didn't get the cochlear implants

(CI) until 2005 and 2009. They have actually helped with the tinnitis. My

tinnitis is less severe since the surgeries and when the CIs are on they mask

tinnitis. One of the possible complications of ear surgery is increased

tinnitis though.

Best regards,

Jim

> >

> > Hi  all,

> >  

> > A  lot  of  people  on  this list write  about their tinnitus.  Was  the

tinnitus  pre facto  or  post facto re  the cochlear implant?  As  for myself 

like Joan of Arc sometimes I hear voices  but delusions  is not tinnitus.

> >  

> > Gerald

> >

> >

> >

> >

> >

[Guest guest]

Hi ,

I had episodes of very loud tinnitis for a few days after both CI surgeries. I

think that is pretty common with the surgery with or without coffee.

Jim

>

> Gerald,

> I think I had mild tinnitus pre CI. I still have mild tinnitus and

> sometimes it gets quite annoying. The worst was the day of surgery. I had

> coffee afterwards and oh boy did I find myself inside the waterfall. I

> drank decaf for a week and it went back to the usual.

>

> There are so many factors that contribute to tinnitus. Fever, weather,

> medications, moods, diet, you name it.

>

> *---* *---* *---* *---* *---*

> A conscience is what hurts when all your other parts feel so good.

> & Dreamer Doll ke7nwn

> E-mail-

> rclark0276@...

> Home Page-

> http://webpages.charter.net/dog_guide/

>

[Guest guest]

Hi Gerald,

Yes, the tinnitis in my left ear started in 1969 and that ear was implanted in

2005. The tinnitis in my right ear started around 1990 and that ear was just

implanted on April 15, 2009.

Jim

> >

> > Gerald,

> > I think I had mild tinnitus pre CI. I still have mild tinnitus and

> > sometimes it gets quite annoying. The worst was the day of surgery. I had

> > coffee afterwards and oh boy did I find myself inside the waterfall. I

> > drank decaf for a week and it went back to the usual.

> >

> > There are so many factors that contribute to tinnitus. Fever, weather,

> > medications, moods, diet, you name it.

> >

> > *---* *---* *---* *---* *---*

> > A conscience is what hurts when all your other parts feel so good.

> > & Dreamer Doll ke7nwn

> > E-mail-

> > rclark0276@ ..

> > Home Page-

> > http://webpages. charter.net/ dog_guide/

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I heard a fire alarm right in my head 24/7 for a few days after surgery before

it finally subsided. Drove me nuts (short trip) Once I was activated the

tinnitis pretty much went away unless I'm tired, have to much caffeine (dang,

there goes my chocolate) or get and overload of salt. I find keeping busy so I'm

not concentrating just on the noise in my ears helps when the tinnitis starts up

again.

Suzanne Nebraska USA

Surgery 1/14/08 R ear N.Freedom

Activation Date 2/14/08

Dr. W. Conlon, Alpha ENT Clinic Ft. , CO

Hi ,

I had episodes of very loud tinnitis for a few days after both CI surgeries. I

think that is pretty common with the surgery with or without coffee.

Jim

[Guest guest]

Oh my gosh, Gerald - I just got reminded (by rereading posts) that you are

in NY! My goodness, you have your pick of places! They are all so

wonderful. If you click on " Stories " on the web page - you will see mine - I go

to

NYU. on this forum goes to - um - I forget! LOL But she loves her

surgeon and CI center, too. As to tinnitus - I've had it forever - before

and after - but the CI does " mask " it a lot better than the hearing aid did.

Jackie )

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tAndScore.aspx%3FID%3D91831F371F138345B53A153F49D4D872%26siteid%3De927580bf7

)

[Guest guest]

My dear Gerald - if you are going to NYU - have no fear - if you are

anywhere close to being able to benefit from a CI, you can be sure they will see

to it that you get one! LOL Don't tell them you know me, or they may charge

you double. LOL Good luck! who is your audi and surgeon? Jackie )

**************2009 3 Free CREDIT SCORES: See Your 3 Credit Scores from All

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tAndScore.aspx%3FID%3D91831F371F138345B53A153F49D4D872%26siteid%3De927580bf7

)

[Guest guest]

Gerald

Yes. I had a high pitch ringing in both ears before my CI like a choir singing

Christmas carols. It got louder as my hearing got worse over the years but I

seemed to deal with it okay.

Suzanne Nebraska USA

Surgery 1/14/08 R ear N.Freedom

Activation Date 2/14/08

Dr. W. Conlon, Alpha ENT Clinic Ft. , CO

Suzanne, to continue my survey did you have tinnitus before surgery?

Gerald

[Guest guest]

Does the tinnitus that results from surgery go away after a day or a few days?

Or can it last a long time, months or years?

>

> ,

> That day of surgery, it hit me so hard after lunch, I knew it had to

> been the caffeine. I dont think I had any more of that loud tinnitus after

> that.

>

> Coffee is wonderful but I am not addicted to it. Mochas on the other

> hand... LOL

>

> *---* *---* *---* *---* *---*

> Love me when I least deserve it, because that's when I really need it.

> --Swedish proverb

> & Dreamer Doll ke7nwn

> E-mail-

> rclark0276@...

> Home Page-

> http://webpages.charter.net/dog_guide/

>

[Guest guest]

Hi Yaegr,

Normally it goes away after a few days, but it can persist. That is one of the

possible complications from the surgery I had to sign off on.

Jim

> >

> > ,

> > That day of surgery, it hit me so hard after lunch, I knew it had to

> > been the caffeine. I dont think I had any more of that loud tinnitus after

> > that.

> >

> > Coffee is wonderful but I am not addicted to it. Mochas on the other

> > hand... LOL

> >

> > *---* *---* *---* *---* *---*

> > Love me when I least deserve it, because that's when I really need it.

> > --Swedish proverb

> > & Dreamer Doll ke7nwn

> > E-mail-

> > rclark0276@

> > Home Page-

> > http://webpages.charter.net/dog_guide/

> >

>

[Guest guest]

Hi Larry,

Congratulations! I just went bilateral on April 15th and I'm loving it! The

second CI has made a huge difference for me. I'm finally over the post surgical

and anesthesia recovery. I now have directivity and stereo hearing is

wonderful.

Best regards and wishes,

Jim

> > >

> > > ,

> > > That day of surgery, it hit me so hard after lunch, I knew it had to

> > > been the caffeine. I dont think I had any more of that loud tinnitus

> after

> > > that.

> > >

> > > Coffee is wonderful but I am not addicted to it. Mochas on the other

> > > hand... LOL

> > >

> > > *---* *---* *---* *---* *---*

> > > Love me when I least deserve it, because that's when I really need it.

> > > --Swedish proverb

> > > & Dreamer Doll ke7nwn

> > > E-mail-

> > > rclark0276@

> > > Home Page-

> > > http://webpages. <http://webpages.charter.net/dog_guide/>

> charter.net/dog_guide/

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

Hi Gerald,

I am very pleased with the performance of my CIs for TV and stereo. I do not

need to use captioning or an assistive hearing device on the TV. The stereo

sounds very clear like before I came down with Meniere's disease. I'm sure

regular normal hearing is better, but I'm very pleased with what I have now. It

is head and shoulders above anything I ever had with hearing aids. The

distortion, hyperacusis and recruitment are gone.

Best luck with the CI workup.

Jim

> > > >

> > > > ,

> > > > That day of surgery, it hit me so hard after lunch, I knew it had to

> > > > been the caffeine. I dont think I had any more of that loud tinnitus

> > after

> > > > that.

> > > >

> > > > Coffee is wonderful but I am not addicted to it. Mochas on the other

> > > > hand... LOL

> > > >

> > > > *---* *---* *---* *---* *---*

> > > > Love me when I least deserve it, because that's when I really need it.

> > > > --Swedish proverb

> > > > & Dreamer Doll ke7nwn

> > > > E-mail-

> > > > rclark0276@

> > > > Home Page-

> > > > http://webpages. <http://webpages. charter.net/ dog_guide/>

> > charter.net/ dog_guide/

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks .

Larry

>

> Good luck to you, Larry.

> wendy

>