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Hey Mona,

Always glad to pass on my hard won knowledge on thing dizziness

related. One of the first things I learned was to write down which way

you are spinning (left to right, right to left, up and down, at an angle)

and if you feel like YOU are spinning or the room is. That helps the Drs

narrow it down. Years ago a Dr. asked me to describe the dizziness. And

that's what he meant. I thought dizzy is dizzy. Now I can tell them,

what direction it goes, if the room is moving or I am, and so forth.

The BPPV is something lots of people get, and who knows why.

Gymnasts are particularly prone to it, because of all the spinning around

they do. Get those little crystals out of where they belong. Not

related to cochlear implants.

BUT it is important to tell the CI Dr. or audiologist any balance

issues you are having since the implant is very close to the semi

circular canals, which actually control dizziness. And with your being

blind, you have one less sense to help you keep upright. So never think

a symptom is something they don't need to know about, because it could be

related. Well, maybe not a hangnail, but you know what I mean. If it's

dizziness, mention it. No need to be suffering for months with it.

The dizziness I get with migraine is only helped by taking relpax

(for migraine) and lorezapam (for dizziness). Usually will knock you

right out so you sleep it off. I have a pillow and a blanket in both

bathrooms, and a phone, too, in case it gets too awful.

Happy Easter,

,

LOL! You certainly do know alot about various medical conditions.

Certainly more than the average doctor.

I think the reason why my CI surgeon and audi never caught on to what I

had is because I only told them about my symptoms in an e-mail yesterday.

I wasn't specific as to what kind of dizziness and nausea I was having

which is probably why they couldn't determine the cause.

I also experience dizziness and nausea when I have a migraine, so Lexi

will work with me on exercises to help with that as well

Mona

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You're very welcome, Mona.

ALL the symptoms were there, and I'm amazed the CI surgeon, or your

audiologist didn't catch it before you went on the list to ask.

I have a dizziness doc who wanted me to sleep upright one day a week

to keep from getting BPPV. That's the same as not sleeping at all,

because there is no comfortable way to sleep upright in a bed. I don't

have a recliner.

So, move up the appt with Lexi, and get yourself fixed. You'll be

amazed. And do have her show you how to do it yourself, so if you find

those symptoms coming again, you'll know what to do. The main thing is

making sure you don't smack your head when you go backwards. I do mine

off the end of the bed, and have to make sure I'm clear of the posts.

But your head must be below your shoulders, so you have to be ON

something when it's done.

Horray, I should qualify for an MD by now. Glad to be of help.

Thanks again ! I've been trying to understand the cause of my

dizziness and nausea for quite awhile now and you were a huge help with

that!

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  • 4 years later...
Guest guest

,

I wanted to thank you for your e-mail about BPPV. I contacted my CI surgeon to

ask if this is what I have and he believes that I do.

Here is my e-mail followed by his:

Dr.,

I have an appointment with Lexi on May 20th. I plan to see her, but I have a

question. Are there any meds I can take for dizziness and nausea? I never

mentioned this, but I'm also dizzy and nauseous whenever I turn from one side to

the other in bed, get up out of bed or move from a lying position to an upright

position. If there are any meds you think could help, would you mind if I tried

one of them?

CI surgeon's e-mail:

It sounds like you do have benign positional vertigo (I did see your other

email). This can often be treated very successfully by a vestibular therapist

(Lexi) and doesn't need any medications. Let's see how you do with her first

before we consider medication. I've cc'ed her on this email so she can move you

up and treat you earlier if you wish.

Me: I plan to schedule an earlier appointment with Lexi and will keep all of you

updated as to how everything goes. Thanks again ! I've been trying to

understand the cause of my dizziness and nausea for quite awhile now and you

were a huge help with that!

Bilateral Cochlear CIs

December 2004 and February 2006

Deafblind/Postlingual

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Guest guest

,

LOL! You certainly do know alot about various medical conditions. Certainly more

than the average doctor.

I think the reason why my CI surgeon and audi never caught on to what I had is

because I only told them about my symptoms in an e-mail yesterday. I wasn't

specific as to what kind of dizziness and nausea I was having which is probably

why they couldn't determine the cause.

I also experience dizziness and nausea when I have a migraine, so Lexi will work

with me on exercises to help with that as well

Mona

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