Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi . Great to have you back!! I certainly remember you, and what a great inspiration you were to all of us! It is wonderful to hear that you are doing well with your studies. As for me, I am currently working part time at THE GAP in baby and kids sales. Without my CI, this would not be possible. I still read the posts daily. I will always remember the day of your surgery as I was on a plane returning from a visit to my family in the New York area back in 2004. Hope you are well also, and will have a great 2009. Irv in Ca. From: dreams_in_neon <dreams_in_neon@...> Subject: Hello Strangers! I'm Back! Date: Friday, January 16, 2009, 9:16 AM Hi everyone, For those who may not remember me, my name is and I used to be a member of over a year ago. I'm totally deafblind and have bilateral CIs. I received my first CI in December, 2004 and my second in February, 2006. It's amazing how quickly time flies! Not a minute goes by that I'm not thankful for the wonderful hearing my CIs have given me! I'm a university student working towards my Bachelor's degree in social work. I only have 3 more courses to take before graduation. Once I earn my Bachelor's, I plan to continue with a Master's in Psychology. From there, I would like to persue a Ph.D. in Psychiatry. I look forward to meeting all of the new members and catching up with those of you whom I've communicated with before! I hope this message finds all of you well. Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/3/06 Activated: 3/3/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 , It's so good to see you back on CI Hear. We've missed you. It sure has been a long time and we have worried about you when you went missing. It's great to get the update. It sounds like you've been busy and doing very well. Welcome Back !!! Alice http://www..com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Welcome back . Although I was implanted earlier with my first CI, it looks like I was right behind you with the second. Happy Hearing! Carol Boca Raton, FL N24C - Sprint then 3G left ear -12/11/01-upgraded to Freedom on 2/19/08 N Freedom- right ear- implanted 3/01/06 activated 4/6/06 Hello Strangers! I'm Back! Hi everyone, For those who may not remember me, my name is and I used to be a member of over a year ago. I'm totally deafblind and have bilateral CIs. I received my first CI in December, 2004 and my second in February, 2006. It's amazing how quickly time flies! Not a minute goes by that I'm not thankful for the wonderful hearing my CIs have given me! I'm a university student working towards my Bachelor's degree in social work. I only have 3 more courses to take before graduation. Once I earn my Bachelor's, I plan to continue with a Master's in Psychology. From there, I would like to persue a Ph.D. in Psychiatry. I look forward to meeting all of the new members and catching up with those of you whom I've communicated with before! I hope this message finds all of you well. Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/3/06 Activated: 3/3/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Can you hear me now?! I MISSED you! I tried to get the cops to search for yuh but they said call Dog the Bounty Hunter. LOL I am so happy to see you back with us. I was seriously concerned and had no idea how to find you short of traveling to Milwaukee. So gee, how the heck are you? This calls for a mocha! (hugs and dances around her and hugs her again!) *---* *---* *---* *---* *---* Why do you press harder on a remote-control when you know the battery's dead? & Dreamer Doll ke7nwn E-mail- rclark0276@... Home Page- http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi Alice! I haven't been around because I've had some issues I had to deal with (including 2 new diagnoses from doctors that I'm trying to come to terms with) and didn't have time to participate on any e-mail lists. However, all of them have been resolved and I'm now ready to jump in and see what everyone has been up to! <smile> > > , > > It's so good to see you back on CI Hear. We've missed you. It sure > has been a long time and we have worried about you when you went > missing. It's great to get the update. It sounds like you've been > busy and doing very well. > > Welcome Back !!! > > Alice > http://www..com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hello Irv, It's good to see you on the list! Congratulations on your job at " The Gap! " I think that's wonderful! It's amazing how much our CI's can make a real difference in our lives, isn't it? <smile> Keep up the good work! I'm proud of your accomplishment! On another note, is still on the list? I'm in the mood to give him a hard time, err, I mean I'm in the mood for some mocha. <giggle> Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/3/06 Activated: 3/3/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Carol, Oh, wow! You had your second CI surgery the day my second CI was activated! How cool is that? How do you like being bilateral? I think I can take a wild guess and say you love it. LOL! Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/3/06 Activated: 3/3/06 > > Welcome back . Although I was implanted earlier with my first CI, it looks like I was right behind you with the second. > > Happy Hearing! > Carol > Boca Raton, FL > N24C - Sprint then 3G left ear -12/11/01-upgraded to Freedom on 2/19/08 > N Freedom- right ear- implanted 3/01/06 activated 4/6/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Oops! My bad. Carol actually had her surgery 2 days before I had my activation. I think I need a mocha. <giggle> Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/3/06 Activated: 3/3/06 > > Carol, > > Oh, wow! You had your second CI surgery the day my second CI was > activated! How cool is that? > > How do you like being bilateral? I think I can take a wild guess and > say you love it. LOL! > > Left ear - Nucleus 24 Contour Advance with Freedom BTE > Implanted: 12/22/04 Activated: 1/18/05 > > Right ear - Nucleus Freedom > Implanted: 2/3/06 Activated: 3/3/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 , my friend! How are you? Are you behaving yourself? LOL! It is *so* good to be back! I missed all of you too! <group hug> I've thought about so often and felt bad because I couldn't participate on the list like I wanted to. Never fear though...I'm back! <smile> Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/3/06 Activated: 3/3/06 > > !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > Can you hear me now?! I MISSED you! I tried to get the cops to search > for yuh but they said call Dog the Bounty Hunter. LOL > > I am so happy to see you back with us. I was seriously concerned and > had no idea how to find you short of traveling to Milwaukee. > > So gee, how the heck are you? This calls for a mocha! (hugs and > dances around her and hugs her again!) > > *---* *---* *---* *---* *---* > Why do you press harder on a remote-control when you know the battery's > dead? > & Dreamer Doll ke7nwn > E-mail- > rclark0276@... > Home Page- > http://webpages.charter.net/dog_guide/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi , Welcome back!!! You have been missed. You may remember me from this list and from the old Hearing Aids list. I am loving my CI. It's hard to believe I've had it over 2 years now. Lynn Fairhope, AL Nucleus Freedom Surgery date 9/6/06 Activation date 9/27/06 Hello Strangers! I'm Back! Hi everyone, For those who may not remember me, my name is and I used to be a member of over a year ago. I'm totally deafblind and have bilateral CIs. I received my first CI in December, 2004 and my second in February, 2006. It's amazing how quickly time flies! Not a minute goes by that I'm not thankful for the wonderful hearing my CIs have given me! I'm a university student working towards my Bachelor's degree in social work. I only have 3 more courses to take before graduation. Once I earn my Bachelor's, I plan to continue with a Master's in Psychology. From there, I would like to persue a Ph.D. in Psychiatry. I look forward to meeting all of the new members and catching up with those of you whom I've communicated with before! I hope this message finds all of you well. Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/3/06 Activated: 3/3/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi Lynn! Yes, I do remember you. <smile> How have you been? I'm so glad you're happy with your CI! I can still remember when you were making the decision to be implanted. It seems like only yesterday! I can't believe you've had your CI for 2 years already! Are you thinking of going bilateral anytime in the future? Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 > > Hi , > Welcome back!!! You have been missed. You may remember me from this list and > from the old Hearing Aids list. > > I am loving my CI. It's hard to believe I've had it over 2 years now. > > Lynn > Fairhope, AL > > Nucleus Freedom > Surgery date 9/6/06 > Activation date 9/27/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Dolly! How's my favorite dolphin? The last time we talked, you were in the process of waiting for a CI evaluation. Are you still on the waiting list or did you change your mind about being implanted? Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 > > Dolly Dolphin whoosh out of the ocean water, flapped her long fins and flew to 's house and knock her door. > > open the door, Dolly Dolphin quickly gives the welcome > (((((((FINS HUGS))))))). > > tap Dolly Dolphin's beaks and scream out " LET ME BREATHE!!! " > > Oops! Sorry ! But you been away for a long time and I had to beat with his mocha otherwise we folks are going to have a tough time communicating with the two of you teasing each other. > > Now to watch and teasing one another while drinking their mocha. > > Dolly Dolphin waving her fins/tail to > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 You are amazing God Bless You ________________________________ From: dreams_in_neon <dreams_in_neon@...> Sent: Friday, January 16, 2009 2:16:27 PM Subject: Hello Strangers! I'm Back! Hi everyone, For those who may not remember me, my name is and I used to be a member of over a year ago. I'm totally deafblind and have bilateral CIs. I received my first CI in December, 2004 and my second in February, 2006. It's amazing how quickly time flies! Not a minute goes by that I'm not thankful for the wonderful hearing my CIs have given me! I'm a university student working towards my Bachelor's degree in social work. I only have 3 more courses to take before graduation. Once I earn my Bachelor's, I plan to continue with a Master's in Psychology. From there, I would like to persue a Ph.D. in Psychiatry. I look forward to meeting all of the new members and catching up with those of you whom I've communicated with before! I hope this message finds all of you well. Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/3/06 Activated: 3/3/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Dolly Dolphin whoosh out of the ocean water, flapped her long fins and flew to 's house and knock her door. open the door, Dolly Dolphin quickly gives the welcome (((((((FINS HUGS))))))). tap Dolly Dolphin's beaks and scream out " LET ME BREATHE!!! " Oops! Sorry ! But you been away for a long time and I had to beat with his mocha otherwise we folks are going to have a tough time communicating with the two of you teasing each other. Now to watch and teasing one another while drinking their mocha. Dolly Dolphin waving her fins/tail to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Wow, Dolly! I really have missed alot since I've been gone! Congratulations on your CI! I know it's easier said than done, but try to hang in there and take things slowly. You might want to write a journal of the sounds you hear and your impression of them. That's what my CI audi recommended I do and I'm so glad I took her advice because it helped me understand exactly what I was and wasn't hearing. I think it would be great if you could get an intervenor who could help you listen to sounds around you. I didn't have anyone here who could do that, but then again, it wasn't too difficult for me since I grew up hearing and could learn to recognize sounds based on their pattern and rhythm. Please continue to let us know how you are doing! I'm so glad you finally received your CI! Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 > > Oh dear, you have been gone a long time haven't you, lol? > > Well I did have the evaluation during 2007. Told I was a candidate and might have to wait up to one-two year but the CI audiologist and ENT doctor (especially the doctor) put my name toward the top of the list due to my vision slowly getting smaller and age. But within a few months I was told the date for the surgery was Nov. 22, 2007. I chose the best ear (left). > > For some reason my worse ear seem to be hearing better (the ear I had not worn hearing aid for over 40 years). > > Brother getting everything ready in less then two months sure was hectic (Intervenor, air flight, make foods to put in the freezer, my decision picking either the hospital Residence or the hotel, etc. I picked the Residence as all we had to do go out the back door walk less then half block to the hospital). It was done in Ottawa, Ontario. > > The switch-on was done Jan. 8, 2008. Today I had the first annual check up. I do not have to have another mapping until next year, Jan. 2010. > > I am doing it very slowly so not to be too overwhelm. The CI audiologist was happy today with the tests. She put today test in Program 1 and what was on Program 1 to Program 2. > > I told her today that I doing this slowly. I know it might take few more years but I am patience and letting my brain " click " on it own like it did around last Nov. 2008. I was sitting in my chair in the living room relaxing and everything was so strangely quiet. All the sudden I heard " tick, tick, tick " like a clock I heard often on TV. I thought, gee I must have left the water running in the kitchen. Nope, it is off. Then, like I mentioned it sounded so much like a clock. So I went closer to the wall clock close by. Sure enough it was the minute hands. WOW! > > I had four people who volunteers to help me " listen " since I think Feb. 2008. Two had stopped last Dec. due to being busy with their own lives. > > There is a practicum students just finished 3 years course as Intervenor for the Deaf-Blind. > > The RCMDB is trying her out for three months. So once I am feeling well I will book her to help " listen " and for anything else like shopping. This will give her some experience with the Deaf-Blind folks. The more she is with us, the more she learns and also if she does want to be an Intervenor for the Deaf-Blind. > > Each Deaf-Blind person is different and she will learn a lot from us all. I sure hope we don't drive her nutty (smile). > > Dolly Dolphin > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Thanks, ! <smile> Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 > > > > You are amazing > God Bless You > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi Lynn, I'm glad you're doing so well and are able to talk on the phone comfortably. I'm hoping to strengthen my left ear, but since it has always been my poorer ear, that may take some time. I can understand why you'd rather not go bilateral at this time. I also had concerns initially about being totally deaf without my processors on, but in my case, the hearing in my nonimplanted ear was no longer useful and I could no longer tell when my hearing aid was on or off. Hence my CI surgeon's recommendation that I have that ear implanted. I think it's going to be exciting when more developments are made to the totally implantable CI. You have so much to look forward to over the next several years in that regard. Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 > > Hi , > I have been doing very well. The CI works great for me. I can hear on the > phone quite well and take business phone calls all day. I recently bought a > really good cordless phone from . The sound is so clear I am not even > using the t-coil any more. My LG cell phone also works very well. > > I would love to go bilateral for the great hearing it would provide. I am > just not ready to be stone Deaf without my processor on. I still have enough > hearing in the left (unimplanted) ear to hear environmental sounds and wake > to a clock radio. I can even carry on a conversation provided I can read > lips. My hairdresser knows he has to talk to me where I can see him in the > mirror or look straight at me. My hope is that one day they will come out > with a completely implantable CI. Until then, or until my hearing takes a > further nosedive, I am planning to stay with just the one. > > Lynn > Fairhope, AL > > Nucleus Freedom > Surgery date 9/6/06 > Activation date 9/27/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Thanks, Carol! <hugs> I shouldn't have left the list like I did without saying a word. To be honest, I no longer remember why that happened in the first place, but I promise it won't happen again. If I need to talk, I will definitely let all of you know. Thanks for caring! Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 > > , > You are correct. I absolutely LOVE being bilateral. > BTW..... lots of people on the list were very concerned when you disappeared from the list. We understand that you had many issues to deal with but as Alice has said...... we are like a family and care when someone like you leaves us without any word. Please stay well and stay with us. We are here for you if you need a shoulder to lean on. > Happy Hearing! > Carol > Boca Raton, FL > N24C - Sprint then 3G left ear -12/11/01-upgraded to Freedom on 2/19/08 > N Freedom- right ear- implanted 3/01/06 activated 4/6/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hi Irv, Well, part of my problem was the fact that I had a psychiatrist who didn't address my symptoms when he should have. Therefore I suffered for over a year and a half when I really didn't need to. Fortunately, that all has changed. I'm now on a new med combo and am with a psychiatrist who promised he will do everything he can to get me stabilized again. I must say I'm doing pretty well because I haven't rapid cycled in 5 days now. (I've only been on my new meds since New Year's Day.) To make this CI related, I've been doing very well with mine. I'm starting to understand accents better which is something I had alot of problems with in the beginning. I've also noticed how much I've come to rely on using both CIs as opposed to one. When I use one CI, I have a much harder time listening and understanding. When I use two, speech and music sound louder, fuller and more natural. One thing that always makes me laugh is my sister when she tells me how jealous she is of the fact that I can't hear anything without my CIs (I'm totally deaf) and can get a perfect night's sleep. LOL! Left ear - Nucleus 24 Contour Advance with Freedom BTE Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 > > Hi again, . I guess by now you know is still with us as are many others who really missed you. Yes, CI's are really life changing. Sorry to hear about your health problems, but remember that our health comes before any on line groups we belong to. Have a great weekend. > Irv in Ca. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Wow, you are back! My prayers have been answered. We have been concerned for you. I am so glad a new psychiatrist prescribed a new med combo that is stabilizing the bipolar. And I am glad you are continuing your schooling. I continue to love my bilateral CIs, to eat out with friends & to do martial arts. Telly (dog guide) is still with ne. How is Tigger? The SASI list had been concerned about you too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hi Irv, You're exactly right that doctors are human too. I don't place all of the blame on my previous doctor. After all, I was the one who had every right to get a second opinion, but didn't, so that was my fault. I'm glad I'm not the only one who struggles to hear voices sometimes in background noise. Now that I hear so well with my CIs, sometimes I'm deluded into thinking that I should hear everything perfectly when I know full well that isn't being realistic. Oh well. I'll learn one of these days! LOL! Perhaps if offered me a peppermint mocha, I could be convinced. LOL! Bilateral Cochlear CIs December, 2004 and February, 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hello , It's good to see you here. We met on another list, This is Shari from WI with Usher Syndrome. I went ahead and got a CI myself. I'm so glad to hear that you are still working on your studies. You inspire me with all your accomplishments and what you are going to accomplish. I'm sorry to hear about your bipolar diagnosis, but it looks like the medication you are using is working. Smile. Shari from WI implanted with the Freedom July 23, 2008 activated August 25, 2008 Blog: http://literallyblindsided.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hi , It's so good to hear from you! <smile> I'm also glad that I was able to finally find a new psychiatrist who takes my treatment seriously and involves me in the process every step of the way. I'm already able to notice positive changes and am beginning to feel like my old self again. Even though he told me I will always have difficulties with rapid cycling, auditory hallucinations, delusions and paranoia (since bipolar is a lifelong disorder that requires meds), he also said there is an excellent chance of me becoming stabilized to the point where I am no longer rapid cycling every hour. My girlfriends are taking me out for my favorite dinner (Italian) tomorrow to celebrate the fact that I haven't rapid cycled for a week. I can't wait! I'm so happy that you're continuing to enjoy your bilaterals! How long have you had your CIs now? If I remember correctly, it's been several years, right? I didn't know you were taking martial arts. What kind of classes are you taking and how long have you participated in them? I'm thinking about taking martial arts myself. A very good friend of mine recommended Krav Manga since it is a tactually based system that anyone (including children) can learn. How is Telly doing? How old is she now? Tigger is 12. Unfortuantely, it looks as though I may have to retire her because of the severe carpal tunnel in my left wrist. The pain and numbness in my left hand has become so bothersome that it hurts for me to grasp her harness handle. I'm taking physical therapy right now even though my doctor told me I should have CTS surgery. Both my docor and physical therapist recommended that when I train with my next guide dog he or she be trained on my right side. I am supposed to wear wrist splints on both hands 24 hours a day, 7 days a week which is what I'm doing. The splint helps my right hand (in which I only have mild CTS), but not my left. In fact, it only increases the pain. I'm scheduled to see a neurologist regarding my CTS next month at which time we will discuss my options for surgery once I have completed my physical therapy. I don't know how it will feel to work with a dog on my right side, but maybe it won't feel as strange as I think it will. I know there are plenty of people who have had their dogs trained in this manner and they are doing just as well as those who have their dogs trained in the standard way. , would you mind sending me the subscription information for SASI? I'd like to join the list again and let everyone know how I'm doing. Thanks! Bilateral Cochlear CIs December, 2004 and February, 2006 > > Wow, you are back! My prayers have been answered. We have been > concerned for you. I am so glad a new psychiatrist prescribed a new med > combo that is stabilizing the bipolar. And I am glad you are continuing your > schooling. I continue to love my bilateral CIs, to eat out with friends & to > do martial arts. Telly (dog guide) is still with ne. How is Tigger? The SASI > list had been concerned about you too. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 , Thanks for the compliment! You know, ever since I lost my hearing I've become a stronger person. After I lost my hearing in 1995, I was extremely angry and had a very difficult time coping. It wasn't until I met a wonderful deafblind woman at my local deafblind center that I learned I was the one (and the only one) who had the power to change what kind of limitations I had and how deafblindness would define me. Even after all these years, I'll never forget what she told me. She said, " , you have a choice. You can either learn to accept your disabilities and move on with your life or you can continue to feel angry and resentful 24 hours a day 7 days a week about something you cannot change. Which would you prefer? " She was exactly right. Once I began learning alternative communication techniques for the deafblind (particularly tactile sign), a whole new world opened up to me. It also helped to meet other deafblind people like myself at an American Association of the Deaf-Blind (AADB) convention as well as through the support group offered by my local deafblind center. I can't say that I'm surprised to learn about the incidence of depression in people who are d/Deaf and hard of hearing. After all, blind and visually impaired people still have their ears to communicate with others. We don't and therefore must rely on visual or tactile forms of communication. I was diagnosed with major depression disorder (MDD) after I lost my hearing, but my therapist and psychiatrist actually think I had atypical bipolar. When we discussed the symptoms I've had since my early 20s both of them said it was evident that I was showing clear signs of the disorder but didn't know it. That's not uncommon for people who have bipolar. In fact, according to what my psychiatrist told me (and from what I've read), the average time between the onset of initial bipolar symptoms and diagnosis is 10 years. That makes perfect sense in my case since I had been experiencing symptoms since 1991 or so, but wasn't officially diagnosed until 2006. In addition, bipolar is usually diagnosed when a person is in their teens and early 20s. There are also cases of juvenile bipolar, but since this is a controversial diagnosis, there is some debate as to whether or not this form of the illness actually exists. Back to CIs...Your hearing loss sounds similar to what I experienced before I was implanted. The hearing in my left ear started at 95 dB, dropped to 100-120 dB between 500 and 750 Hz with no measureable hearing at 1000 Hz or above and my right ear started at 90 dB, dropped to 100-110 dB with no measureable hearing at 100 Hz and above. Since my right ear has always been my stronger ear, speech sounds much clearer in that ear than it does my left. When I wear my left CI alone, I have alot of difficulty understanding speech. One day I told my audi that I thought my ability to understand speech was much worse in my left ear than my right, but to my surprise, was told that both are pretty similar in their percentages. Wow! I'm really impressed with how well you're doing with your CIs! You're making wonderful progress! By the way, I'm *so* glad you were accepted as a CI candidate. In my opinion, I think people with lesser degrees of hearing loss (such as those in the normal to severe-profound range where hearing is normal in the low frequencies and severe or profound in the mid and high frequencies) should qualify for CIs because they can make such a huge difference compared to hearing aids. Here's wishing you continued success! Bilateral Cochlear CIs December, 2004 and February, 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hi Shari, How have you been? Well, I hope! I'm delighted to hear that you decided to get a CI! How long have you had it and how are you doing as far as understanding speech? Bilateral Cochlear CIs December, 2004 and February, 2006 > > Hello , > > It's good to see you here. We met on another list, > > This is Shari from WI with Usher Syndrome. I went ahead and got a CI myself. I'm so glad to hear that you are still working on your studies. You inspire me with all your accomplishments and what you are going to accomplish. > > I'm sorry to hear about your bipolar diagnosis, but it looks like the medication you are using is working. Smile. > > Shari from WI > > implanted with the Freedom July 23, 2008 > activated August 25, 2008 > > Blog: http://literallyblindsided.blogspot.com/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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