Guest guest Posted August 14, 2007 Report Share Posted August 14, 2007 Welcome to this website, . I am also a new member and I love it here..........Lynn new member message Hi there, my name is , I'm 53 was diagnosed with AOSD in April this year after spending three weeks in hospital while they conducted all sorts of test before finally a rheumatologist worked out what the problem was. Symptoms first started in February and I was admitted to hospital because life was becoming extremely painful and I could hardly walk more than 10-20 yards! Apart from other medication I am currently taking 12.5 mg of Methotrexate weekly (5gm morning and evening on Thursday and 2.5 on Friday). I would be particularly interested in other people's MTX experiences and what kind of side-effects experienced. Apart from that I'm a dermatology nursing sister (on sick leave!), live with my husband and one Norwegian Forest cat, recently we lost another much loved cat (kidney disease), this I found difficult to cope with - but I've come to terms with it now. I feel I'm lucky that the Still's was diagnosed as early as it was. Best wishes to all other members. __________________________________________________________ Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase. http://farechase.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Hi , Welcome to the group! </HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Hi , Welcome to the group! </HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 - I was born profoundly deaf. I got CIs at 20 years old. I don't use my voice. I primarily communicate with ASL. So if you want to learn about some things from my perspective, I am more than glad to help you. Best of luck -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Hello , I'd love to hear your experience/story. I am 24 years old, and was also born profoundly deaf. I also use sign language as my main mode of communication. I am seriously considering a CI. Thanks! > > - > > I was born profoundly deaf. I got CIs at 20 years old. I don't use my > voice. I primarily communicate with ASL. So if you want to learn about > some things from my perspective, I am more than glad to help you. > > Best of luck > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Oops...I meant , not ..sorry! > > - > > I was born profoundly deaf. I got CIs at 20 years old. I don't use my > voice. I primarily communicate with ASL. So if you want to learn about > some things from my perspective, I am more than glad to help you. > > Best of luck > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Hey - How come are you considering a CI? I'm just curious because you were born profoundly deaf and communicate primarily with sign language. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 -Hi , I grew up using hearing aids, but just used them to be aware of environmental sounds (not speech). These types of aids are different from those that just amplify sounds, rather they compress sounds into the frequency range that I have very little residual hearing in. I can hear a lot with these aids, but would like to be able to hear a bit more if possible. I'm looking into different aids and CIs to see what might be the best for me. I am considering a CI because I'd like to improve my lipreading/speechreading abilities and speech. I do understand that CIs for someone with a background like mine (born deaf, sign language user, etc) that I'd receive the least benefit from a CI compared to others. I still want to find out more information about other people's experiences with a CI, even though it varies form one person to another . -- In , <nah1248@...> wrote: > > Hey - > > How come are you considering a CI? I'm just curious because you were > born profoundly deaf and communicate primarily with sign language. > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Hi , I hope you're able to gain speech recognition and you probably will. However, the environmental sounds should be new to you also, not being compressed, and I should think they would be fascinating. It was, and is still, a great pleasure for me to hear my car alarm for lights or keys and to hear birds scolding me and so many more higher pitched sounds I hadn't heard in a great many years. I think you're in for a real treat. Some confusion too, most likely, but hang with it and try for patience. Virg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 Re: : Welcome to . Visit today! Hi and thanks for the note, I am in the process of making the decision on CI's. I am a 64 year old active male, profoundly deaf but scared of giving up the balance (less than 10%) of my natural hearing. Bluntly, it is a little scary. But I am so tired of trying to hear, I go home exhausted each day after work. I have done a little research and just found your group. Thanks for being there. Tell me about recovery times, etc. What won't I be able to do with CI's? I ride a motorcycle, swim etc. Stupid question? Does anything protrude from my skull? I have been told by my family physician and my audiologist that I am a prime candidate for CI. I have a meeting with the specialist (surgeon) in Mid February. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 Howdy , The gains with a CI cab far outweigh the loss of what is left of your hearing. Yes it is scary but so many of us have ventured into the unknown and come out with better hearing. Its not a magic pill, it will take work. Unless you shave your head, no one will see any bump on the skull. Motorcycle riding is fine, you can put a helmet on with little trouble. Swimming is fine too...without the processor. Oh and the stupid questions are the ones not asked. *---* *---* *---* *---* *---* Quoting one is plagiarism; quoting many is research. & Dreamer Doll ke7nwn E-mail- rclark0276@... Home Page- http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 I felt the same way you did, . I was very worried about losing my residual hearing. But the gain from the CI will be so much more than what you lose, even in the worst case. Recovery time from the surgery is about 1-2 weeks. I have had two CI procedures (bilateral) and each one took about 3 months to get a good level of speech hearing, although I certainly got a big boost in sound earlier than that. The only limitation would probably be having an MRI in the future. Other than that, you'd want to be careful to wear a helmet while biking or motorcycling and not doing anything that involves banging your head around. Swimming is fine, but you need to take off your external processor (same as for showering). I have a little bump on my head where my internal piece is but it's not even noticeable enough for my hair stylist to notice. You do wear an external processor, which looks like a hearing aid with a little headpiece attached to it. Good luck in your research! Quote Link to comment Share on other sites More sharing options...
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