Optimizing what hearing you have left

[Guest guest]

Hi a,

Seems to me your husband, and others around you could help you with

the little bit of hearing you have left. There are a LOT of good hints

on how to optimize what hearing you have on the website. At least I HOPE

they are on the website. www..com

One thing is for the speaker to face you, not have bright lights

behind them, and not have facial hair. All this makes it easier for you

to lipread.

If you don't understand them, and ask for a repeat and if you don't

understand THAT, then a rephrasing of what they said is next. Because

sometimes it's ONE word that keeps you from understanding what is going

on. And if anyone EVER says, " never mind " or " It's not important " you

have my permission to smack them upside the head. Because if it was

important enough for them to say in the first place, it's important

enough for you to hear or try to understand. YOU are the judge of what

is important and not. And often it is NOT important. But YOU are the

judge.

You need to be pro-active about your hearing loss. Tell those around

you what you need to understand. Talking to you with their backs turned

is like talking to a wall. They NEED to understand it. They need to

know it is frustrating for YOU as well as for them. And if they roll

their eyes and carry on, well you can roll your eyes just as well.

I was working a job once and had to ask a guy to repeat himself 3

times (this was prior to my implant). He was chewing gum, and kept

turning his head away from me when asking a question. so I asked him to

please turn to face me and repeat himself so I could read his lips. He

says, " What are you, DEAF? " So I said, " Yes, I am " Then he wanted to

know why I was keeping a job from a " normal " person. So I looked him

straight in the eye and said, " I realize it's a HUGE burden on you to

have to repeat yourself so I can answer your question " and then I yelled,

" BUT I HAVE TO LIVE WITH THIS " Don't mess with the militant deaf! LOL

4 other people in the store broke out in applause. LOL

But do be an advocate for yourself. Getting depressed, and going

off and crying, while to be expected once in a while, is not going to

solve the problem of how to understand those around you before you get

your implant. And for that matter, after, because when the processor is

off, you won't hear anything in that ear. SO read the hints, print them

out and give them to the ever lovin' hubby, and work on this together.

It's not easy on any of you, but don't take all the burdens on yourself.

Good luck with the tests.

Hi , no it doesn't sound crazy. I lost the hearing in my right ear

when I was 33 or 34 years old and now I am 39. I know exactly how you

fell. I see my husband and kids talk and my husband & his mom talk and I

feel so left out. I leave the room and start crying. There are times

when I feel left out and just want to be alone. The hearing in my left

ear was slowing going until recently, this past year has been the worse,

it went down dramatically. In Aug. '09 my Doctor did a special type of

hearing test and it showed that the 8th cranial nerve is severely

damaged. When I went and saw him back on Jan. 13, '10, he did the reg.

hearing test and it showed that the hearing in my left ear is down to 97%

gone. He then told my husband that we are going to run tests to see if

the Cochlear Implant will work for me. The 1st test is being done on

Feb. 19. '10. I also have Bilateral Sensenoreal Hearing Loss. A couple

of years ago my Doctor

told us that hearing aids wouldn't help bcause the way I was losing my

hearing we would have to buy a stronger one each year.

I hope everything goes well for you with your surgery and I will keep you

in my thoughts and prayers. I will also check out the website you sent.

Sincerely,

a

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