Re: Re: in regards to the new future Cochlear Nucleus 5 system-just be patient

[Guest guest]

Ruth and Margo,

The release on the new system may be premature, but its done and humans

are just like cats, curious about everything. It cannot be helped. Its not

inappropriate. If anything, take Cochlear to task for releasing this

information early. Just my 2 cents.

*---* *---* *---* *---* *---*

Don't sweat it. Take a cold shower.

& Dreamer Doll ke7nwn

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[Guest guest]

Hi , Thank you for the reminder as I did forget that this is a global

community and that some of the forum members live in areas where the Nucleus

5 is released. Last January, a potential CI candidate going through surgery

told me about the new system, and it was exciting to hear. My objections

aren't about the knowledge of a new system coming. However I am concerned

about all of the speculation of details regarding the system based on

photos. I don't see this as constructive, but rather as having the

potential of altering people's decisions about current surgeries, which in

the case of children isn't a good option when we have no idea when this

system will be released. As someone else mentioned on another forum, this

has also increased calls from the curious and concerned to audiologists and

Cochlear offices, which takes away from services they are trying to provide

with limited resources. Pictures on a financial report out of Australia do

not tell me what the true capabilities of this new system are nor how the

processor/remote will operate as pictures often don't tell the whole story,

and have a tendency to be misleading.

If instead if the residents in Nucleus 5 " non released " countries are

patient, they will be informed about everything as soon as the system is

released in their country, without having to be stressed or concerned about

it ahead of time.

Just my opinion, Ruth

From: [mailto: ] On Behalf Of

david walton

Sent: Thursday, August 13, 2009 5:57 PM

Subject: Re: in regards to the new future Cochlear Nucleus 5

system-just be patient

In the respect that FDA approval is still awaited for the US, I suppose the

subject is only presently of theoretical interest on your side of the pond.

The release can hardly be called premature though, as I sit here in the UK

looking at a printed brochure, giving full descriptions and pictures, which

will have been sent out throughout europe.

Given the communications of the " global village " , what one knows, all know!

>

> Ruth and Margo,

> The release on the new system may be premature, but its done and humans

> are just like cats, curious about everything. It cannot be helped. Its not

> inappropriate. If anything, take Cochlear to task for releasing this

> information early. Just my 2 cents.

>

> *---* *---* *---* *---* *---*

> Don't sweat it. Take a cold shower.

> & Dreamer Doll ke7nwn

> E-mail-

> rclark0276@...

> Home Page-

> http://webpages.charter.net/dog_guide/

>

[Guest guest]

Ruth,

How can you expect people not to speculate? Just ask a cat not to go

snooping around in places it shouldnt be. LOL

As to contacting Cochlear or clinics to get more information that is not

available, well, simple solution. Dont release any information at all until

they are better prepared to field the floods of questions.

My guess is that Cochlear does anticipate this scenario when they

release limited information. Its got to be part of the job to field

questions even when answers are not readily available. Why should we be

concerned about this? Cochlear did release the document after all.

*---* *---* *---* *---* *---*

" Imagination is more important than knowledge. "

--Albert Einstein

& Dreamer Doll ke7nwn

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rclark0276@...

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[Guest guest]

, I would hope that people are smarter than my cat. Don't forget that

curiosity killed the cat.

Cochlear released very general information about a coming product, not

specifics about it. We know the processor will be smaller than the Freedom,

but we don't know how much smaller. We know that it will operate via a

remote and that only one remote will be necessary for bilateral recipients

to operate two processors, but we don't know how that remote operates, nor

do we know if the processor is dependent on the remote for functionality. I

don't know how much more information is out, but not much. The forums are

trying to turn those generalities and observations of pictures into

specifics and facts with their speculation. Recipients in countries that

have given approval for Nucleus 5 have actual facts and specifics of the

systems available to them ( in UK speaks of having a Nucleus 5 flyer).

In these countries potential recipients and current recipients can use these

facts constructively to determine implantation manufacturer or upgrade

choice. When a product hasn't been released by the FDA all the speculation

in the world isn't go to change the fact that the Nucleus 5 system remains a

theoretical potential in the USA and could have to undergo changes prior to

release to meet FDA approval.

Unfortunately because this is a global product and has to be systematically

approved by various health regulatory agencies in the respective countries.

Cochlear doesn't have the option of a single release time. We don't have

the right to expect the UK to abide by USA regulations and time tables, nor

to restrict a company from fulfilling orders in a country that is ready for

sale. If you and others want to sleuth the web and find out what is

happening globally, treat it as a potential, not an absolute. People,

yourself included are getting stressed over what they think is or isn't

going to be a feature in the new system. It is wasted energy, and for some

people this speculation may cause them to wait, when they should act now, as

in the case of a child. Even if it means choosing Freedom system instead of

the Nucleus 5 system, or even choosing a different manufacturer that has

features that meet their current needs, children need to proceed as soon as

possible with the implant to avoid further delays in speech and language

acquisition, which can't be recovered. Remember that regardless of system

chosen, the end results in terms of hearing are very similar.

I can remember being in a CI support meeting hearing a manufacturer talk

about a coming product and they actually had demonstration models for us to

see. The product was being released in Europe, and the presenter lead me

to believe that the product would be release immediately in the USA, it was

just awaiting FDA approval. It was two years later before that product

became a reality in the USA. Hopefully the Nucleus 5 won't take that long,

but there is no set timetable, just hopes of potential timetables.

When the Freedom came out N24 recipients were the first in line to receive

the Freedom processor after the Freedom system recipients, but we had to

wait. I have no idea how it will work with the Nucleus 5 as the N24

recipients now will have two generations of implants ahead of them and N22

recipients have 3 generations ahead of them. All of us are in line for the

upgrade, but we don't know where on the timetable of releases we are. Many

people are getting hyper excited about something that we might have to wait

considerable time to receive.

Ruth

From: [mailto: ] On Behalf Of

Sent: Thursday, August 13, 2009 7:45 PM

Subject: Re: Re: in regards to the new future Cochlear Nucleus 5

system-just be patient

Ruth,

How can you expect people not to speculate? Just ask a cat not to go

snooping around in places it shouldnt be. LOL

As to contacting Cochlear or clinics to get more information that is not

available, well, simple solution. Dont release any information at all until

they are better prepared to field the floods of questions.

My guess is that Cochlear does anticipate this scenario when they

release limited information. Its got to be part of the job to field

questions even when answers are not readily available. Why should we be

concerned about this? Cochlear did release the document after all.

[Guest guest]

Ruth,

I'm sorry to hear about your cat.

I dont see anyone stating facts here about the Nuke 5 system. Mist of

us know its got a ways to go before its officially released. And many if us

are more than curious. Certainly we cannot glean facts from those photos.

But is it so wrong to consider what it is we are looking at?

*---* *---* *---* *---* *---*

I was trying to daydream, but my mind kept wandering.

& Dreamer Doll ke7nwn

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rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

[Guest guest]

Hi , Nothing wrong with looking at it. Glad to know that you aren't

stressed about the remote and its appearance of being inaccessible to the

deaf/blind. Glad to know that people aren't stressed about the remote being

available for only bilateral and not unilateral because the pictures mention

only bilateral. Glad to know that you aren't stressed about the appearance

of the lack of controls on the processor as the pictures really don't show

that, assuming that the processor is a wash for the deaf/blind. I am glad

to hear that people aren't putting off potential hearing by delaying their

or their children's surgery minimizing their ability to develop maximum

speech and language ability because after all it is going to be released in

September, ops September is almost here and now it is the end of the year,

ops maybe next spring. I am glad to know that everyone on the forum is

knowledgeable that " facts " can't be gleamed from the pictures, which is why

all audiologists and Cochlear are spending time listening to concerns and

explaining that they don't know.

Enjoy the pictures and speculation, Ruth

From: [mailto: ] On Behalf Of

Sent: Thursday, August 13, 2009 9:57 PM

Subject: Re: Re: in regards to the new future Cochlear Nucleus 5

system-just be patient

Ruth,

I'm sorry to hear about your cat.

I dont see anyone stating facts here about the Nuke 5 system. Mist of

us know its got a ways to go before its officially released. And many if us

are more than curious. Certainly we cannot glean facts from those photos.

But is it so wrong to consider what it is we are looking at?

*---* *---* *---* *---* *---*

I was trying to daydream, but my mind kept wandering.

& Dreamer Doll ke7nwn

E-mail-

rclark0276@... <mailto:rclark0276%40charter.net>

Home Page-

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[Guest guest]

Don't get mad. Get GLAD.-- GLAD

*---* *---* *---* *---* *---*

Support bacteria. They're the only culture some people have.

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

[Guest guest]

Assuming this is directed to me as we have been going back and forth: Not

mad, just concerned and protective of the potential victims of this

speculation. Ruth

From: [mailto: ] On Behalf Of

Sent: Friday, August 14, 2009 11:11 AM

Subject: Re: Re: in regards to the new future Cochlear Nucleus 5

system-just be patient

Don't get mad. Get GLAD.-- GLAD

*---* *---* *---* *---* *---*

Support bacteria. They're the only culture some people have.

& Dreamer Doll ke7nwn

E-mail-

rclark0276@... <mailto:rclark0276%40charter.net>

Home Page-

http://webpages.charter.net/dog_guide/

[Guest guest]

Victims? Now that is a stretch. Go and chastise Cochlear for releasing

just enough information to whet people's imaginations to the extreme. Good

Lordy!

*---* *---* *---* *---* *---*

" It's pretty hard to tell what does bring happiness; poverty and wealth have

both failed. "

-- Kin Hubbard

& Dreamer Doll ke7nwn

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rclark0276@...

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