Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 SAY WHAT?????....giggles..... ________________________________ From: " lkozlik@... " <lkozlik@...> Sent: Saturday, June 6, 2009 11:49:01 AM Subject: Re: CI Criteria , Turtle mocha? That's funny. LOL. As for playing the " Say What " game, that's an idea. It's incredibly easy to annoy people by asking them to repeat themselves time and time again. LOL. I only have one question for you: What if it turns out that has the patience of a saint? Me thinks you will need to come up with another alternative. <grin> , who is hoping did not hear what she just told . LOL. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 , You may want to turn the volume of your CI up just a little. LOL. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 - I'm so happy that you've found a doc who is a real doc - one who LISTENS and administers health care according to his training AND by what his patients tell him. They are few and far between. <hugs> Jackie **************Stay connected and tighten your budget with a great mobile device for under $50. Take a Peek! (http://pr.atwola.com/promoclk/100122638x1221845911x1201401556/aol?redir=http://\ www.getpeek.com/aol) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Yup...that might do the trick. Actually, due to the LVAS, now that we know that caused my hearing loss, the backpressure of fluid in my right ear (where the LVAS is much more pronounced than in my left) killed/damaged the hair cells in my right ear. Thus, hearing aids did not help - it just made distorted sounds that much louder. So the only solution to by pass the hair cells was this wonderful invention that came into being when I was in my early 20's. So I had to ( - see this...) very patiently wait until the criteria lessened enough so that I could obtain this miracle for my very own self. Now I must get back to doing my chores. [but this is way more fun] ________________________________ From: " lkozlik@... " <lkozlik@...> Sent: Saturday, June 6, 2009 12:00:59 PM Subject: Re: CI Criteria , You may want to turn the volume of your CI up just a little. LOL. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 , My hearing loss affected me in the same way. Eventually hearing aids only made sounds more distorted and unrecognizable. I went so far as to try digital aids in 1995, but they made speech even more difficult for me to understand, so I went back to using analogs. My hearing loss was caused by low birth weight (I weighed 2 pounds), ototoxic drugs given to me while in the neonatal ICU, infant and childhood ear infections, antibiotics given to me for ear infections and years of untreated allergies. I was unaware of all this until I was evaluated for my first CI. My CI surgeon helped answer alot of questions as to what caused my hearing loss. The only thing I remember clearly in regards to my hearing loss was seeing ENTs and audis my entire life. I also remember ENTs asking me why I didn't having hearing aids, but I was too young at the time to explain why. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Hi , Even though my new CI is less than two months old going bilateral has already made a huge difference in my attitude and how well I hear. Jim > > > > And, now that I'm caught up with reading all the emails...I believe one of the things my CI team considered was the fact that I had difficulty hearing in noise. That was one of the things I brought up at my appointments. ..how I couldn't participate /hear in social settings, meetings at work, and conferences I had to attend to maintain my continuing education credits for work. > > > > So there you haven it. [feeling lonely from lack of friends....aside from ....hey , thanks for the vote of confidence. Here's a mocha for you...what flavor would you like??? Hmmmm????... ] > > > > > > > > > > > > ____________ _________ _________ __ > > From: Kinsella <jmkinsella55@ ...> > > groups (DOT) com > > Sent: Friday, June 5, 2009 5:24:20 PM > > Subject: Re: CI Criteria > > > > > > > > > > > > Oh, geez, , I thought you knew me! LOL I am " off label " , if that is what you want to call me. Actually, my surgeon and audiologist call me and my sister " atypical " CI candidate, meaning that we did not meet the criteria, but they felt the CI would help us and that we would be good candidates. > > > > I do not believe the manufacturer' s had any say...it was strictly the audiologist' s recommendation, and the physician's attempt to get insurance approval. In my case, right ear understood 20% single words, 70% in my left ear. My sister was totally deaf in her left ear, and had 100% understanding of words in her right ear with her hearing aid. I got the Cochlear Freedom, she got the Med El Opus (I think that is what they were implanting last September). > > > > Does that answer your question??? Why are you wondering about this?? > > > > And, , can I be your friend now??? Hmmm??? LOL > > > > > > ____________ _________ _________ __ > > From: " lkozlik@ com " <lkozlik@ com> > > groups (DOT) com > > Sent: Thursday, June 4, 2009 6:50:44 PM > > Subject: CI Criteria > > > > Hi everyone, > > > > If someone is deemed a CI candidate " off label " (meaning that they do not fit the standard criteria for candidacy of 60% or less in the better ear and 40% or less in the poorer ear), do any of the CI companies have a final say in determining who is a candidate? > > > > In other words, if an audi declared someone a candidate, but they did not fit the " standard " criteria, could any of the 3 implant companies refuse to provide a CI? > > > > I'm just asking this question for curiosity's sake. I do not know anyone who has been implanted " off label. " > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Jackie, I couldn't agree more. I don't mean to bring my bipolar into this, but I can draw a parallel to what you stated in your previous post. My psychiatrist says I have a " severe " and " difficult to treat " case of bipolar due to my rapid cycling, voices, delusions and paranoia. Research indicates that people who rapid cycle are treatment refractive, but fortunately, my psychiatrist doesn't subscribe to this idea. He believes in trying to get me as stable as possible according to my own symptoms as opposed to what the field of psychiatry expects overall. I'm glad he has this perspective because I no longer feel like yet another psychiatrist is giving up on me just because I'm not your " typical " client with bipolar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Jackie, You can say that again. My last psychiatrist was one of the worst I've ever had. Every time I came into his office and said I was rapid cycling or manic he told me to schedule an appointment with him in 3 months. There was also a time when I called for an emergency appointment because I was experiencing a dangerous side effect from a med. He never returned my call and when I got a hold of his receptionist, the earliest I could see him was 3 months later. I reported him to my state's medical board as well as my insurers. All I can say is thank goodness I'm now working with a wonderful psychiatrist who listens and takes my treatment seriously. I'd love for my previous psychiatrist to spend a week in his client's shoes when they aren't given the proper meds to see how he likes it. Failing to treat or listen to your clients/patients is wrong and something I think warrants the revocation of one's medical license. The only good thing I can say about my experience is that I will never allow a doctor, psychiatrist or anyone else to treat me that way again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 , I can be patient too, and while thinks she is, well, she never did her chores today, while I did and have my treadmill back. LOL And yuh know, having a CI is perfect for the treadmill. I can listen to my music without hearing a peep out of the treadmill. Better still, I wont hear myself gasping and begging for mercy! LOL And what do you know, Jackie is offering to drive this time, and we can afford to give her a double chocolate chip frappachino with whipped cream. What a meeting, with everytone having a CI. Say what? Can you hear me now? LOL *---* *---* *---* *---* *---* People who think they know it all are really irritating to those of us who do. & Dreamer Doll ke7nwn E-mail- rclark0276@... Home Page- http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 , That will be another $50 charge for Coke spilled on my keyboard. LOL. I think it would be great if Jackie could take the wheel, but if truth be told, I'd lactually like to drive because I can get us wherever we're going in 5 minutes. LOL. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Hello True. Bilaterial made huge difference for me too! ________________________________ From: jimak38 <j1meaves@...> Sent: Sunday, 7 June 2009 2:34:58 Subject: Re: CI Criteria Hi , Even though my new CI is less than two months old going bilateral has already made a huge difference in my attitude and how well I hear. Jim > > > > And, now that I'm caught up with reading all the emails...I believe one of the things my CI team considered was the fact that I had difficulty hearing in noise. That was one of the things I brought up at my appointments. ..how I couldn't participate /hear in social settings, meetings at work, and conferences I had to attend to maintain my continuing education credits for work. > > > > So there you haven it. [feeling lonely from lack of friends....aside from ....hey , thanks for the vote of confidence. Here's a mocha for you...what flavor would you like??? Hmmmm????... ] > > > > > > > > > > > > ____________ _________ _________ __ > > From: Kinsella <jmkinsella55@ ...> > > groups (DOT) com > > Sent: Friday, June 5, 2009 5:24:20 PM > > Subject: Re: CI Criteria > > > > > > > > > > > > Oh, geez, , I thought you knew me! LOL I am " off label " , if that is what you want to call me. Actually, my surgeon and audiologist call me and my sister " atypical " CI candidate, meaning that we did not meet the criteria, but they felt the CI would help us and that we would be good candidates. > > > > I do not believe the manufacturer' s had any say...it was strictly the audiologist' s recommendation, and the physician's attempt to get insurance approval. In my case, right ear understood 20% single words, 70% in my left ear. My sister was totally deaf in her left ear, and had 100% understanding of words in her right ear with her hearing aid. I got the Cochlear Freedom, she got the Med El Opus (I think that is what they were implanting last September). > > > > Does that answer your question??? Why are you wondering about this?? > > > > And, , can I be your friend now??? Hmmm??? LOL > > > > > > ____________ _________ _________ __ > > From: " lkozlik@ com " <lkozlik@ com> > > groups (DOT) com > > Sent: Thursday, June 4, 2009 6:50:44 PM > > Subject: CI Criteria > > > > Hi everyone, > > > > If someone is deemed a CI candidate " off label " (meaning that they do not fit the standard criteria for candidacy of 60% or less in the better ear and 40% or less in the poorer ear), do any of the CI companies have a final say in determining who is a candidate? > > > > In other words, if an audi declared someone a candidate, but they did not fit the " standard " criteria, could any of the 3 implant companies refuse to provide a CI? > > > > I'm just asking this question for curiosity's sake. I do not know anyone who has been implanted " off label. " > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 Ooooops. , will you take payments over 10 years? LOL Ok you drive since time is so short. Jackie has been to the Pacific Nortwest so she can navigate. It really would be a blast to meet you all. I went to a convention in Seattle back in 2001 or 2002. Cant remember if it was HLA or, shoot, whatever the other one was. LOL Conventions are fun but tiring too. *---* *---* *---* *---* *---* " Never argue with an idiot; they'll drag you down to their level and beat you with experience. " --Anonymous & Dreamer Doll ke7nwn E-mail- rclark0276@... Home Page- http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 , A $50 payment spread over 10 years? Are you strapped for cash? LOL. It would be great if we could organize a get together with everyone on . As far as conventions are concerned, I've been to an American Association of the Deafblind convention and it was an exciting and rewarding opportunity. I'll never forger any of the wonderful people I met. It's hard to believe that I still communicate with several of them even after 13 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 No , actually I would like to put that money towards a new ham radio. I wish to chat with people all over the planet. Would you waive that payment please, dear ? LOL I never did an AADB convention tho could have gone to one a few years back. Would be so fun to check out the latest technology all in one place. *---* *---* *---* *---* *---* How is it possible to have a civil war? & Dreamer Doll ke7nwn E-mail- rclark0276@... Home Page- http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2009 Report Share Posted June 7, 2009 begged and pleaded: " Would you waive that payment please, dear ? " , For you my friend, certainly. <smile> , who is also thinking about getting a HAM license this summer Quote Link to comment Share on other sites More sharing options...
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