Another one bites the dust

[Guest guest]

It sometimes amazes and shocks me how long some people have had the symptoms

of Achalasia with no treatment. Just reading about the years of suffering...

It makes me so thankful thatI got it taken care of early when I was still

young. It has now been a month exactly since my myotomy, and life is good.

Good luck to all who are still suffering! I will pray for you!

[Guest guest]

Hang in there! There is hope with the surgery! You're lucky the docs didn't

send you to a shrink because they thought you were bulemic (like they did

me). I thought I was crazy for a long time but it's the achalasia that was

making me sick. Your son sounds like an angel - you are very lucky to have

him to help you through this. Warmest regards, Elena

[Guest guest]

Nanny...

What a beautiful letter, three cheers to your son and

his support!! My husband did the same for me in the

middle of the night and as we all know support is a

remedy we cannot live without.

Good luck to you.

Cheryl

--- nanny_og@... wrote:

>

>

>

> Yes you have another sufferer to add to the growing

> list. For years I

> suffered from severe heartburn and reflux, so when

> the swallowing

> problem began I assumed that it was caused by

> scarring from the acid

> narrowing the oesophagus, and thus decided it was

> something I had to

> suffer.

>

> When I found that I was being woken up by the last

> food eaten,

> reappearing down my nose in my sleep I went to the

> doc. Unfortunately

> I

> had recently suffered from RSI and been prescribed

> some

> anti-inflamatory

> tablets, I say unfortunately because apparently

> these tablets can have

> the effect of relaxing the stomach sphincter, and so

> symptoms were put

> down to this, and was advised to discontinue the

> tablets. When the

> nose

> thing continued I once again supposed it was

> something I had to put up

> with. Until last year [as this is being typed on

> New Years Even, by

> the

> time you get this t'will probably have become the

> year before last!! -

> my doesn't time fly] To get back to my point, I was

> on holiday in the

> Canary Islands, and the day we were due to return it

> was exceedingly

> hot, and I was handed an ice cold beer, which I

> promptly 'glugged'

> down,

> or should I say attempted to glug down, because what

> actually happened

> was that I was struck with an agonising pain, felt

> like someone had

> grabbed hold of the bottom of my gullet and wrenched

> it downwards, and

> the beer promptly poured down my nose. 'This is not

> right' I thought

> to

> myself, especially as later I found that I could not

> even swallow my

> own

> saliva!! never mind attempt to eat the meal on the

> plane [was this a

> blessing in disguise??].

>

> At the earliest opportunity I went to my GP

> explained what had

> happened

> and his immediate diagnoses was 'oesophagitis' for

> which he prescribed

> some pills. Then he realised that I had mentioned

> that I had been

> having problems swallowing for some time - several

> years in fact, so

> he

> also referred me to a specialist. LEt me tell you

> this was last

> September [1999] and it was only a few weeks ago

> that anyone mentioned

> Achalasia to me.

>

> Anyway, here we are, having had an endoscopy

> examination, a barium

> swallow, and most dreadful of all, and I say this

> with no

> reservations,

> [it was more painful, distressing, uncomfortable and

> humiliating than

> giving birth] the dreaded manometry procedure

> finally awaiting

> confirmation on Jan 3rd, that I indeed have

> Achalasia - you see until

> the specialists says so, then I don't!! lol

>

> The actually vomiting type symptoms have only become

> apparent in the

> past few months [apart from the overnight up the

> nose occurrences

> which

> have been happening for much longer] although I

> have, like others,

> found

> that voluntarily 'giving it up' just before bed, as

> it were, aids a

> better nights sleep. There are occasions when

> whilst eating that I

> begin to feel bloated half way through the meal and

> it is apparent

> that

> nothing is going anywhere, and on these occasions I

> have been known to

> 'lose' what is hanging around, before finishing the

> meal. [now I know

> what bulimics feel like]

>

> Unlike others I do not seem to have experienced a

> rapid sudden weight

> loss, although friends have commented that I have

> lost some weight,

> and,

> as I am overweight anyway I consider this to be the

> silver lining we

> are

> always being told about. What is more, as currently

> I can cope with

> my

> symptoms, I am secretly hoping that the british

> Health Service

> continues

> in its usual fashion and that it might be quite some

> time before

> treatment is offered, thus giving me an opportunity

> to loose some

> more.

>

> Oh yes, and I have just today found out that I am

> one of the really

> lucky ones, not only do I have a rare illness, but

> apparently I have a

> rare version of this rare illness as occasionally

> the entire gullet

> goes

> into spontaneous and simultaneous spasm, which

> believe you me is so

> incredibly painful that words fail me. The irony is

> that if there is

> someone/something which directs our life, whoever it

> is is having a

> laugh at my expense as I was also a rarity at birth,

> having been born

> with an exomphalus [ie inside out] and not only

> breech, but curled up

> -weighed a bare 2lbs, 3 ounces - so exiting bottom

> first, [thus inside

> out and back to front]

>

> Finally I would like to take this opportunity to say

> something in

> praise

> of my teenage son, like all teenagers, and

> especially teenage boys,

> he

> is the proverbial pain in the rear, tidying up,

> clearing up, being

> helpful are not part of their vocabulary, but as far

> as this illness

> is

> concerned he has been and continues to be

> amazing!!!!. If he hears me

> being ill in the night he is there like a flash,

> holding something

> beneath my mouth, he empties it, he fetches flannel

> and towel to wipe

> face and hands, he changes bed linen if I was asleep

> and, well you

> know,

> and he fetches mouth rinse, then settles me back

> down. If it occurs

> whilst eating, same thing, he grabs something and

> shoves it beneath

> mouth, and clears up, then, to my amazement,

> finishes his dinner

> without

> turning a hair!! So Adam my son, this is for you,

> thank you with all

> my

> heart.

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Dear ,

Congratulations!! It's wonderful to hear that your surgery has made

such a difference to your life already Take it easy, don't take too

many food risks just yet - it takes about 6 weeks for the surgical

wounds to fully recover, and then some time for your stomach to

stretch and become used to " normal " sized meals again!! But most of

all - enjoy being able to go out and eat with your friends and family

- and being young with not a care in the world!!

Jeanne

[Guest guest]

Another one makes four, drops from My NSG. due to Positives without

drinking.

[Guest guest]

At 12:51 AM 12/2/2006, you wrote:

>

>

>

> > We've all gotten some bunk stuff over the years. I am so cautious

> > now! On linden blossom abs: just want a survey of what dilution y'all

> > use for it. I dilute it down to 5%. It really blossoms out, but since

> > I haven't found any source that says what the proper dilution is (re:

> > Arctander, who doesn't cover it at all) just wondering what everyone

> > else is doing.

> >

>Hi Anya,

>

>I just got my first Linden blossom abs from Eden Botanicals last week. I

>was thrilled to find NP talking about it just around that time. Germany

>has lots of Linden trees, and my memory of the wonderful scent was far

>off from the absolute. Knowing Eden Botanicals as a reputable company, I

>started to try to find that scent I remembered. I'm not a pro, and after

>scraping just the tiniest bit from the top into a 1 dram vial, I soon

>gave up on a mathematical approach. This tiny scrape could be compared

>to maybe one or two drops, and it took 1 dram of alcohol for me to

>recognize Linden flowers. It is still strong, and it didn't have much

>time to develop.

>

>I am going to see how it works in combinations in this dillution, as

>well as dillute some of this down further.

>

>New at Linden abolute, and glad this topic came up at such a perfect

>time.

ne, you've learned one of the secrets of raw materials: they

often need to be diluted way down to open up and release the parent

materials true scent. You should invest in a little digital scale

that reads down to .01gram. Wonderful, necessary tool.

Let's play a game: anyone can chime in with their surprise reaction

when they diluted down an absolute or concrete and found the true

beauty there. What raw material smelled like gunk, but then you

diluted it and the true " ......... " scent revealed itself?

Anya McCoy

Anya's Garden of Natural Perfume http://anyasgarden.com

Artisan Natural Perfumers Guild http://artisannaturalperfumers.org

Natural Perfumers Chat Group

/

[Guest guest]

On Dec 2, 2006, at 7:00 AM, Anya wrote:

>

> >New at Linden abolute, and glad this topic came up at such a perfect

> >time.

>

> ne, you've learned one of the secrets of raw materials: they

> often need to be diluted way down to open up and release the parent

> materials true scent. You should invest in a little digital scale

> that reads down to .01gram. Wonderful, necessary tool.

>

> Let's play a game: anyone can chime in with their surprise reaction

> when they diluted down an absolute or concrete and found the true

> beauty there. What raw material smelled like gunk, but then you

> diluted it and the true " ......... " scent revealed itself?

Alfred chimes in with...osmanthus!

Alfred

in San Francisco

[Guest guest]

> >

> > >New at Linden abolute, and glad this topic came up at such a perfect

> > >time.

> >

> > ne, you've learned one of the secrets of raw materials: they

> > often need to be diluted way down to open up and release the parent

> > materials true scent. You should invest in a little digital scale

> > that reads down to .01gram. Wonderful, necessary tool.

> >

> > Let's play a game: anyone can chime in with their surprise reaction

> > when they diluted down an absolute or concrete and found the true

> > beauty there. What raw material smelled like gunk, but then you

> > diluted it and the true " ......... " scent revealed itself?

>

>

> Alfred chimes in with...osmanthus!

>

>

> Alfred

> in San Francisco

Ruth in Ireland with cepes absolute!

Ruth

http://www.whitewitch.ie