Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Nadine, Half way is a great accomplishment. Congratulations on the 112 pound loss and all the NSVs. I hope to follow in your footsteps soon. anrhwork <nadine4@...> wrote: Greetings to all,It was a year ago today I did the best thing ever...I had Dr. A perform the lapband surgery on me. I cannot believe its been a year! And what a year it has been, so many changes, so many ups & downs and including downs on the scale. ;)Sure there were things I had to give up like being out of breathe walking from here to there, pain with every step, embarrassment of not having the seat belts in other's car's fit me, feeling tired all of the time, breathing heavy, buying clothes (what a hassle) and did I mention pain...I cannot get over how my whole body hurt all the time but I just got "used to it".Though I am around 1/2 way through my journey, I cannot tell you how much better I feel. I am doing things I never thought possible such as being able to do the ellipitcal for an hour, going to a personal trainer and impressing him, walking faster so now my friends have to catch up to me, being able to stand at 5 hour concert and enjoying every minute of it!I have had some great NSV along the way and they are just as important as the pounds lost. I love now that I can clean my house to top to bottom in a few hours before I would have to break it up into smaller tasks over several days. I love that I am wearing the same size I did in high school though I weigh 35lbs more than in hs. I love running into people I haven't seen in a long time and see the expressions on their faces and their kind words. I love clothes shopping again and what a great feeling to be picky about clothes, not having to get something just because it fits. I love that seat belt on the plane fits. I love life!For those who are thinking about or about to get this surgery please know you are doing the best thing ever for yourself. Try not to be afraid, Dr. A and his team are world class and I feel very fortunate I can call him my doctor. I travel over 3000 miles to get a fill from him because I do not trust anyone else my band.I have posted some pictures.THANK YOU to the Dr. A team for giving me my life back! And thank you to this board; I may not post often but I always find inspiration here.NadineDOB 3/24/07372(346)/260/size 6 Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi Nadine I love that name! I am sorry and sad to hear you are ill. Support is so important and you just found a great place to ask questions and tell us all about your days. Good ones, bad ones etc. Friends here are funny and supportive. When I write late at night I have too many typo's and call Ellen Elly and all kinds of nutty stuff, but as I know the group still loves me., as I love them Plenty of interesting people, from all over the world and country. Different ages etc. Tell us more about you. Your hobby's where you live. Your support system. If and only if you have the strength. Someday's, I can only read. My typo's show that maybe I should..ha ha hha Ok lots of laughs as I like to be silly Have had Stills and remissions since 1972 Your new friend Liz in NJ 2 kids hubby Golden Retriever 3 cats 5 birds in an aviary(12 feet by 7 feet by 3 feet) **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi Nadine I love that name! I am sorry and sad to hear you are ill. Support is so important and you just found a great place to ask questions and tell us all about your days. Good ones, bad ones etc. Friends here are funny and supportive. When I write late at night I have too many typo's and call Ellen Elly and all kinds of nutty stuff, but as I know the group still loves me., as I love them Plenty of interesting people, from all over the world and country. Different ages etc. Tell us more about you. Your hobby's where you live. Your support system. If and only if you have the strength. Someday's, I can only read. My typo's show that maybe I should..ha ha hha Ok lots of laughs as I like to be silly Have had Stills and remissions since 1972 Your new friend Liz in NJ 2 kids hubby Golden Retriever 3 cats 5 birds in an aviary(12 feet by 7 feet by 3 feet) **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi Nadine I love that name! I am sorry and sad to hear you are ill. Support is so important and you just found a great place to ask questions and tell us all about your days. Good ones, bad ones etc. Friends here are funny and supportive. When I write late at night I have too many typo's and call Ellen Elly and all kinds of nutty stuff, but as I know the group still loves me., as I love them Plenty of interesting people, from all over the world and country. Different ages etc. Tell us more about you. Your hobby's where you live. Your support system. If and only if you have the strength. Someday's, I can only read. My typo's show that maybe I should..ha ha hha Ok lots of laughs as I like to be silly Have had Stills and remissions since 1972 Your new friend Liz in NJ 2 kids hubby Golden Retriever 3 cats 5 birds in an aviary(12 feet by 7 feet by 3 feet) **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Lucky for me in 1972 and age 16, I had the luxury to wait this all out. Feel awful and only take 16 aspirin a day for 3 years. In time( 8 months) I improved. I was also lucky to have a real systemic illness with painful joints, but...I did not get too much joint damage. Everyone is a bit different. I only tell you this to ask your doctor, what is best for you. What do you need. Some people had joint damage very quickly. I had a very high sed rate...I do not know why some people get damaged joints very badly and others mildly. I am more like Lupus....but am Stills..My first flare was 10 times worse than the others. Even little ones disrupts ones life. It all stinks. Ok have a nice day. Get all the info you can to discuss with your doctor. Think up some good questions for him/her Hugs Liz **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Lucky for me in 1972 and age 16, I had the luxury to wait this all out. Feel awful and only take 16 aspirin a day for 3 years. In time( 8 months) I improved. I was also lucky to have a real systemic illness with painful joints, but...I did not get too much joint damage. Everyone is a bit different. I only tell you this to ask your doctor, what is best for you. What do you need. Some people had joint damage very quickly. I had a very high sed rate...I do not know why some people get damaged joints very badly and others mildly. I am more like Lupus....but am Stills..My first flare was 10 times worse than the others. Even little ones disrupts ones life. It all stinks. Ok have a nice day. Get all the info you can to discuss with your doctor. Think up some good questions for him/her Hugs Liz **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Lucky for me in 1972 and age 16, I had the luxury to wait this all out. Feel awful and only take 16 aspirin a day for 3 years. In time( 8 months) I improved. I was also lucky to have a real systemic illness with painful joints, but...I did not get too much joint damage. Everyone is a bit different. I only tell you this to ask your doctor, what is best for you. What do you need. Some people had joint damage very quickly. I had a very high sed rate...I do not know why some people get damaged joints very badly and others mildly. I am more like Lupus....but am Stills..My first flare was 10 times worse than the others. Even little ones disrupts ones life. It all stinks. Ok have a nice day. Get all the info you can to discuss with your doctor. Think up some good questions for him/her Hugs Liz **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi Nadine and welcome to the Stills family.You will find the support you need and many new friends.As for meds, everyone is on his or her own cocktail of meds that works for them.Although we all have Stills, we are all different as far as how our bodies respond to meds.Having steroids to start with is the usual route taken by our docs,they want to get rid of the swollen and enflamed joints and work from there.It sounds like you have a doc that knows Stills, so I'm hoping you will feel better soon. Remember to rest when possible and try not to do too much in one day,you don't want another flare. Elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi Nadine and welcome to the Stills family.You will find the support you need and many new friends.As for meds, everyone is on his or her own cocktail of meds that works for them.Although we all have Stills, we are all different as far as how our bodies respond to meds.Having steroids to start with is the usual route taken by our docs,they want to get rid of the swollen and enflamed joints and work from there.It sounds like you have a doc that knows Stills, so I'm hoping you will feel better soon. Remember to rest when possible and try not to do too much in one day,you don't want another flare. Elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 thank you all for your warm welcome in the still´s family!it is good to have support of people who know what i am talking of,as every doctor keeps telling me how rare SD is in adults. and right now i am in this period where i realize that i might have to change my life a little bit,which is very hard for me as a young woman.i know that i might really need a lot of rest,especially when i go down with cortisone. i am 27 and am a very sporty person who loves to go kite-surfing and rock- climbing and all that stuff that i might not be able to do within the next months,but still hope that i will be able to do it ever again!besides that i am an art historian who works for a museum of contemporary art in austria.i really love my job (have had it for 3 months now) and as i have a limited contract (till the end of the year) i am scared to flare again and be out of office for a couple weeks. of course i know that health comes first, but i still hope that my contract goes on for another year. so from what i get i have to hope for my RD to get me on the right mix of medication.i have to wait and see what happens when i get back to a low cortisone dose i guess.do you think reducing cortisone every week for 5 mg is too quick? and what i am also curious about is if any of you has experience with dietary supplements,vitamins,perhaps even homeopathics to support the body? i know that it is necessary to take " heavy " medication for SD,but i always try to find alternative ways to just support my body the best i can. great day to all of you! nadine -- Mag. Nadine Müller Charlottendorfgasse 29 8010 Graz Tel.: 0650/28 25 093 249 Spiele für nur 1 Preis. Die GMX Spieleflatrate schon ab 9,90 Euro. Neu: Asterix bei den Olympischen Spielen: http://flat.games.gmx.de Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 thank you all for your warm welcome in the still´s family!it is good to have support of people who know what i am talking of,as every doctor keeps telling me how rare SD is in adults. and right now i am in this period where i realize that i might have to change my life a little bit,which is very hard for me as a young woman.i know that i might really need a lot of rest,especially when i go down with cortisone. i am 27 and am a very sporty person who loves to go kite-surfing and rock- climbing and all that stuff that i might not be able to do within the next months,but still hope that i will be able to do it ever again!besides that i am an art historian who works for a museum of contemporary art in austria.i really love my job (have had it for 3 months now) and as i have a limited contract (till the end of the year) i am scared to flare again and be out of office for a couple weeks. of course i know that health comes first, but i still hope that my contract goes on for another year. so from what i get i have to hope for my RD to get me on the right mix of medication.i have to wait and see what happens when i get back to a low cortisone dose i guess.do you think reducing cortisone every week for 5 mg is too quick? and what i am also curious about is if any of you has experience with dietary supplements,vitamins,perhaps even homeopathics to support the body? i know that it is necessary to take " heavy " medication for SD,but i always try to find alternative ways to just support my body the best i can. great day to all of you! nadine -- Mag. Nadine Müller Charlottendorfgasse 29 8010 Graz Tel.: 0650/28 25 093 249 Spiele für nur 1 Preis. Die GMX Spieleflatrate schon ab 9,90 Euro. Neu: Asterix bei den Olympischen Spielen: http://flat.games.gmx.de Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Sehr geehrte Magister Nadine Mueller, Herzliche willkomen zu dieze Still's unterstuetzungs Gruppe. Ich denke dass Sie werden viel interessante Emphelungen hier finden fuer ihre Reumakrankheit. Beste gruessen, Dr. econ. USG Cort M. s --- " Nadine Müller " wrote: > thank you all for your warm welcome in the still´s > family!it is good to have support of people who know > what i am talking of,as every doctor keeps telling > me how rare SD is in adults. > and right now i am in this period where i realize > that i might have to change my life a little > bit,which is very hard for me as a young woman.i > know that i might really need a lot of > rest,especially when i go down with cortisone. > i am 27 and am a very sporty person who loves to go > kite-surfing and rock- climbing and all that stuff > that i might not be able to do within the next > months,but still hope that i will be able to do it > ever again!besides that i am an art historian who > works for a museum of contemporary art in austria.i > really love my job (have had it for 3 months now) > and as i have a limited contract (till the end of > the year) i am scared to flare again and be out of > office for a couple weeks. of course i know that > health comes first, but i still hope that my > contract goes on for another year. > so from what i get i have to hope for my RD to get > me on the right mix of medication.i have to wait and > see what happens when i get back to a low cortisone > dose i guess.do you think reducing cortisone every > week for 5 mg is too quick? > and what i am also curious about is if any of you > has experience with dietary > supplements,vitamins,perhaps even homeopathics to > support the body? > i know that it is necessary to take " heavy " > medication for SD,but i always try to find > alternative ways to just support my body the best i > can. > great day to all of you! > nadine > > -- > Mag. Nadine Müller > Charlottendorfgasse 29 > 8010 Graz > Tel.: 0650/28 25 093 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.