Anesthesia

[Guest guest]

My daughter has had multiple surgeries and she only cries when she wakes up but in the beginning it was pneumonia and vomiting. But now that she is 8 we have made day procedures exactly that and we go home in the same day now.Stacie Subject: Re: anesthesiaTo: Texas-Autism-Advocacy Date: Friday, August 7, 2009, 5:33 PM

>

> Has anyone had any experience with anesthesia for their kids and its effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a medical procedure done and needs to be on general anesthesia. Please advise. Thanks

>

> Rajesh

>

Our 4.5 year old son just had a minor surgery that required general anesthesia. He did well, no nausea or vomiting, or any difficulty waking up. We don't have a history of difficulties from anesthesia either. The only thing he didn't care for was the IV in his hand. He couldn't pull it out only because his other arm was broken. He did like to lick on the IV so they ended up putting an ACE type bandgage all over his hand.

[Guest guest]

My daughter has had multiple surgeries and she only cries when she wakes up but in the beginning it was pneumonia and vomiting. But now that she is 8 we have made day procedures exactly that and we go home in the same day now.Stacie Subject: Re: anesthesiaTo: Texas-Autism-Advocacy Date: Friday, August 7, 2009, 5:33 PM

>

> Has anyone had any experience with anesthesia for their kids and its effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a medical procedure done and needs to be on general anesthesia. Please advise. Thanks

>

> Rajesh

>

Our 4.5 year old son just had a minor surgery that required general anesthesia. He did well, no nausea or vomiting, or any difficulty waking up. We don't have a history of difficulties from anesthesia either. The only thing he didn't care for was the IV in his hand. He couldn't pull it out only because his other arm was broken. He did like to lick on the IV so they ended up putting an ACE type bandgage all over his hand.

[Guest guest]

My daughter has had multiple surgeries and she only cries when she wakes up but in the beginning it was pneumonia and vomiting. But now that she is 8 we have made day procedures exactly that and we go home in the same day now.Stacie Subject: Re: anesthesiaTo: Texas-Autism-Advocacy Date: Friday, August 7, 2009, 5:33 PM

>

> Has anyone had any experience with anesthesia for their kids and its effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a medical procedure done and needs to be on general anesthesia. Please advise. Thanks

>

> Rajesh

>

Our 4.5 year old son just had a minor surgery that required general anesthesia. He did well, no nausea or vomiting, or any difficulty waking up. We don't have a history of difficulties from anesthesia either. The only thing he didn't care for was the IV in his hand. He couldn't pull it out only because his other arm was broken. He did like to lick on the IV so they ended up putting an ACE type bandgage all over his hand.

[Guest guest]

Most of the time it is safe. But the rare occassion does cause neurologlogy impartments. You may want to have itt checkout. She amybe allergic to the combination of medictions used as well.

From: pinky6988 <PINKY6988yahoo (DOT) com>Subject: [Texas-Autism- Advocacy] Re: anesthesiaTo: Texas-Autism- Advocacy@ yahoogroups. comDate: Friday, August 7, 2009, 5:33 PM

>> Has anyone had any experience with anesthesia for their kids and its effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a medical procedure done and needs to be on general anesthesia. Please advise. Thanks> > Rajesh>Our 4.5 year old son just had a minor surgery that required general anesthesia. He did well, no nausea or vomiting, or any difficulty waking up. We don't have a history of difficulties from anesthesia either. The only thing he didn't care for was the IV in his hand. He couldn't pull it out only because his other arm was broken. He did like to lick on the IV so they ended up putting an ACE type bandgage all over his hand.

[Guest guest]

Most of the time it is safe. But the rare occassion does cause neurologlogy impartments. You may want to have itt checkout. She amybe allergic to the combination of medictions used as well.

From: pinky6988 <PINKY6988yahoo (DOT) com>Subject: [Texas-Autism- Advocacy] Re: anesthesiaTo: Texas-Autism- Advocacy@ yahoogroups. comDate: Friday, August 7, 2009, 5:33 PM

>> Has anyone had any experience with anesthesia for their kids and its effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a medical procedure done and needs to be on general anesthesia. Please advise. Thanks> > Rajesh>Our 4.5 year old son just had a minor surgery that required general anesthesia. He did well, no nausea or vomiting, or any difficulty waking up. We don't have a history of difficulties from anesthesia either. The only thing he didn't care for was the IV in his hand. He couldn't pull it out only because his other arm was broken. He did like to lick on the IV so they ended up putting an ACE type bandgage all over his hand.

[Guest guest]

Rajesh:

There has been many postings on the forums concerning children reacting in very serious ways to nitrous oxide. So, it is advised that parents of children with autism request to have anesthesia that does not have nitrous oxide. Usually dentists use the nitrous oxide. My boy had a really bad reaction as well.

Love and prayers,

Heidi N

Has anyone had any experience with anesthesia for their kids and its effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a medical procedure done and needs to be on general anesthesia. Please advise. ThanksRajesh

[Guest guest]

Rajesh:

There has been many postings on the forums concerning children reacting in very serious ways to nitrous oxide. So, it is advised that parents of children with autism request to have anesthesia that does not have nitrous oxide. Usually dentists use the nitrous oxide. My boy had a really bad reaction as well.

Love and prayers,

Heidi N

Has anyone had any experience with anesthesia for their kids and its effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a medical procedure done and needs to be on general anesthesia. Please advise. ThanksRajesh

[Guest guest]

Rajesh:

There has been many postings on the forums concerning children reacting in very serious ways to nitrous oxide. So, it is advised that parents of children with autism request to have anesthesia that does not have nitrous oxide. Usually dentists use the nitrous oxide. My boy had a really bad reaction as well.

Love and prayers,

Heidi N

Has anyone had any experience with anesthesia for their kids and its effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a medical procedure done and needs to be on general anesthesia. Please advise. ThanksRajesh

[Guest guest]

Our son had anesthesia when he got ear tubes at 10 months and

again when his tonsils were taken out at age 5 without any major problems.

Biggest problem we had was he was MAD at me because I’d given him to the

nurse. I’d have someone else hand your son off if you will be the

caregiver afterwards.

Tonya

From:

Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of j_sethupathi

Sent: Friday, August 07, 2009 5:21 PM

To: Texas-Autism-Advocacy

Subject: anesthesia

Has anyone had any experience with anesthesia

for their kids and its effects on kids who are on the spectrum ? My son (3.5

yrs old) needs to have a medical procedure done and needs to be on general

anesthesia. Please advise. Thanks

Rajesh

[Guest guest]

Our son had anesthesia when he got ear tubes at 10 months and

again when his tonsils were taken out at age 5 without any major problems.

Biggest problem we had was he was MAD at me because I’d given him to the

nurse. I’d have someone else hand your son off if you will be the

caregiver afterwards.

Tonya

From:

Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of j_sethupathi

Sent: Friday, August 07, 2009 5:21 PM

To: Texas-Autism-Advocacy

Subject: anesthesia

Has anyone had any experience with anesthesia

for their kids and its effects on kids who are on the spectrum ? My son (3.5

yrs old) needs to have a medical procedure done and needs to be on general

anesthesia. Please advise. Thanks

Rajesh

[Guest guest]

Our son had anesthesia when he got ear tubes at 10 months and

again when his tonsils were taken out at age 5 without any major problems.

Biggest problem we had was he was MAD at me because I’d given him to the

nurse. I’d have someone else hand your son off if you will be the

caregiver afterwards.

Tonya

From:

Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of j_sethupathi

Sent: Friday, August 07, 2009 5:21 PM

To: Texas-Autism-Advocacy

Subject: anesthesia

Has anyone had any experience with anesthesia

for their kids and its effects on kids who are on the spectrum ? My son (3.5

yrs old) needs to have a medical procedure done and needs to be on general

anesthesia. Please advise. Thanks

Rajesh

[Guest guest]

I forgot the IV problem!! We warned the nurses in advance

and they put a WHOLE LOT of tape on our son’s. Of course he

immediately wanted it off so we kept “sending” the nurse for

scissors and would pick off minute pieces in the meantime. It helped that

they used that tape that has the tiny squares that tear every direction.

On the tape, regular bandages blister our son’s

skin. (It does mine too!) We used paper tape to avoid blistering.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of pinky6988

Sent: Friday, August 07, 2009 5:33 PM

To: Texas-Autism-Advocacy

Subject: Re: anesthesia

>

> Has anyone had any experience with anesthesia for their kids and its

effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a

medical procedure done and needs to be on general anesthesia. Please advise.

Thanks

>

> Rajesh

>

Our 4.5 year old son just had a minor surgery that required general anesthesia.

He did well, no nausea or vomiting, or any difficulty waking up. We don't have

a history of difficulties from anesthesia either. The only thing he didn't care

for was the IV in his hand. He couldn't pull it out only because his other arm

was broken. He did like to lick on the IV so they ended up putting an ACE type

bandgage all over his hand.

[Guest guest]

I forgot the IV problem!! We warned the nurses in advance

and they put a WHOLE LOT of tape on our son’s. Of course he

immediately wanted it off so we kept “sending” the nurse for

scissors and would pick off minute pieces in the meantime. It helped that

they used that tape that has the tiny squares that tear every direction.

On the tape, regular bandages blister our son’s

skin. (It does mine too!) We used paper tape to avoid blistering.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of pinky6988

Sent: Friday, August 07, 2009 5:33 PM

To: Texas-Autism-Advocacy

Subject: Re: anesthesia

>

> Has anyone had any experience with anesthesia for their kids and its

effects on kids who are on the spectrum ? My son (3.5 yrs old) needs to have a

medical procedure done and needs to be on general anesthesia. Please advise.

Thanks

>

> Rajesh

>

Our 4.5 year old son just had a minor surgery that required general anesthesia.

He did well, no nausea or vomiting, or any difficulty waking up. We don't have

a history of difficulties from anesthesia either. The only thing he didn't care

for was the IV in his hand. He couldn't pull it out only because his other arm

was broken. He did like to lick on the IV so they ended up putting an ACE type

bandgage all over his hand.

[Guest guest]

I have had a similar effect AFTER my most recent and second sinus surgery. I

awoke from the anesthesia having a really severe asthma attack. Although I was

coughing, the nurses thought it was due to taking out the breathing tube out of

my throat however as I started to come to I somehow gasped, " I think I'm having

a asthma attack. " Right away they placed me on a breathing machine (which cost

$1000! Hospitals, seriously...) and as usual after awhile I was fine.

Now its important to note that during my first sinus surgery (prior to the

described one), when I awoke I threw up A LOT. So when I met with the

anesthesiologist for my second surgery I mentioned this to him and he said he

would place something in the anesthesia to help me not feel nausea. Well I

certainly did not feel nausea afterwards yet the asthma was not triggered when

this drug was absent after my first surgery. I do not know what that drug was,

but maybe it will help to find out if something such as that was added to your

anesthesia.

Hopefully this gives you some sort of help! :-)

Mal

>

> Hi All,

>

> I had an endoscopy under general anesthesia yesterday. It was a short

> procedure and I woke up coughing. The surgeon said that as soon as the

> anesthesia hit my veins I started coughing badly. I believe that I had

> a reaction to one of the ingredients because that is how my asthma

> attacks present. I have allergies to pets, dust mites and mold. I also

> have varying sensitivities to MSG, sulfites, mint, perfumes, etc. I

> have been desensitized to ASA and have maintained it so that I won't

> react to the NSAID related drugs. My reactions are almost always

> explosive coughing, sneezing, and tearing.

>

> I am talking to several doctors about this of course and hopefully we

> will find a solution. You all have been very helpful in suggesting

> possibilities to mention.

>

> The surgeon wants me to go to a puminologist to strengthen my lungs

> before he will operate. I agreed to but I doubt the puminologist can

> cure my asthma. The operation is to repair my sphincter muscle and the

> hernia that is causing the acid reflux which I blame for my inflamed

> lungs and sinus.

>

> It's a tough spot. I've never reacted to anesthesia before but I was

> always jacked up on prednisone.

>

> Have you been through this?

>

> thanks,

>

> Pam

>

[Guest guest]

I have had a similar effect AFTER my most recent and second sinus surgery. I

awoke from the anesthesia having a really severe asthma attack. Although I was

coughing, the nurses thought it was due to taking out the breathing tube out of

my throat however as I started to come to I somehow gasped, " I think I'm having

a asthma attack. " Right away they placed me on a breathing machine (which cost

$1000! Hospitals, seriously...) and as usual after awhile I was fine.

Now its important to note that during my first sinus surgery (prior to the

described one), when I awoke I threw up A LOT. So when I met with the

anesthesiologist for my second surgery I mentioned this to him and he said he

would place something in the anesthesia to help me not feel nausea. Well I

certainly did not feel nausea afterwards yet the asthma was not triggered when

this drug was absent after my first surgery. I do not know what that drug was,

but maybe it will help to find out if something such as that was added to your

anesthesia.

Hopefully this gives you some sort of help! :-)

Mal

>

> Hi All,

>

> I had an endoscopy under general anesthesia yesterday. It was a short

> procedure and I woke up coughing. The surgeon said that as soon as the

> anesthesia hit my veins I started coughing badly. I believe that I had

> a reaction to one of the ingredients because that is how my asthma

> attacks present. I have allergies to pets, dust mites and mold. I also

> have varying sensitivities to MSG, sulfites, mint, perfumes, etc. I

> have been desensitized to ASA and have maintained it so that I won't

> react to the NSAID related drugs. My reactions are almost always

> explosive coughing, sneezing, and tearing.

>

> I am talking to several doctors about this of course and hopefully we

> will find a solution. You all have been very helpful in suggesting

> possibilities to mention.

>

> The surgeon wants me to go to a puminologist to strengthen my lungs

> before he will operate. I agreed to but I doubt the puminologist can

> cure my asthma. The operation is to repair my sphincter muscle and the

> hernia that is causing the acid reflux which I blame for my inflamed

> lungs and sinus.

>

> It's a tough spot. I've never reacted to anesthesia before but I was

> always jacked up on prednisone.

>

> Have you been through this?

>

> thanks,

>

> Pam

>

[Guest guest]

I have had a similar effect AFTER my most recent and second sinus surgery. I

awoke from the anesthesia having a really severe asthma attack. Although I was

coughing, the nurses thought it was due to taking out the breathing tube out of

my throat however as I started to come to I somehow gasped, " I think I'm having

a asthma attack. " Right away they placed me on a breathing machine (which cost

$1000! Hospitals, seriously...) and as usual after awhile I was fine.

Now its important to note that during my first sinus surgery (prior to the

described one), when I awoke I threw up A LOT. So when I met with the

anesthesiologist for my second surgery I mentioned this to him and he said he

would place something in the anesthesia to help me not feel nausea. Well I

certainly did not feel nausea afterwards yet the asthma was not triggered when

this drug was absent after my first surgery. I do not know what that drug was,

but maybe it will help to find out if something such as that was added to your

anesthesia.

Hopefully this gives you some sort of help! :-)

Mal

>

> Hi All,

>

> I had an endoscopy under general anesthesia yesterday. It was a short

> procedure and I woke up coughing. The surgeon said that as soon as the

> anesthesia hit my veins I started coughing badly. I believe that I had

> a reaction to one of the ingredients because that is how my asthma

> attacks present. I have allergies to pets, dust mites and mold. I also

> have varying sensitivities to MSG, sulfites, mint, perfumes, etc. I

> have been desensitized to ASA and have maintained it so that I won't

> react to the NSAID related drugs. My reactions are almost always

> explosive coughing, sneezing, and tearing.

>

> I am talking to several doctors about this of course and hopefully we

> will find a solution. You all have been very helpful in suggesting

> possibilities to mention.

>

> The surgeon wants me to go to a puminologist to strengthen my lungs

> before he will operate. I agreed to but I doubt the puminologist can

> cure my asthma. The operation is to repair my sphincter muscle and the

> hernia that is causing the acid reflux which I blame for my inflamed

> lungs and sinus.

>

> It's a tough spot. I've never reacted to anesthesia before but I was

> always jacked up on prednisone.

>

> Have you been through this?

>

> thanks,

>

> Pam

>

[Guest guest]

I have had a similar effect AFTER my most recent and second sinus surgery. I

awoke from the anesthesia having a really severe asthma attack. Although I was

coughing, the nurses thought it was due to taking out the breathing tube out of

my throat however as I started to come to I somehow gasped, " I think I'm having

a asthma attack. " Right away they placed me on a breathing machine (which cost

$1000! Hospitals, seriously...) and as usual after awhile I was fine.

Now its important to note that during my first sinus surgery (prior to the

described one), when I awoke I threw up A LOT. So when I met with the

anesthesiologist for my second surgery I mentioned this to him and he said he

would place something in the anesthesia to help me not feel nausea. Well I

certainly did not feel nausea afterwards yet the asthma was not triggered when

this drug was absent after my first surgery. I do not know what that drug was,

but maybe it will help to find out if something such as that was added to your

anesthesia.

Hopefully this gives you some sort of help! :-)

Mal

>

> Hi All,

>

> I had an endoscopy under general anesthesia yesterday. It was a short

> procedure and I woke up coughing. The surgeon said that as soon as the

> anesthesia hit my veins I started coughing badly. I believe that I had

> a reaction to one of the ingredients because that is how my asthma

> attacks present. I have allergies to pets, dust mites and mold. I also

> have varying sensitivities to MSG, sulfites, mint, perfumes, etc. I

> have been desensitized to ASA and have maintained it so that I won't

> react to the NSAID related drugs. My reactions are almost always

> explosive coughing, sneezing, and tearing.

>

> I am talking to several doctors about this of course and hopefully we

> will find a solution. You all have been very helpful in suggesting

> possibilities to mention.

>

> The surgeon wants me to go to a puminologist to strengthen my lungs

> before he will operate. I agreed to but I doubt the puminologist can

> cure my asthma. The operation is to repair my sphincter muscle and the

> hernia that is causing the acid reflux which I blame for my inflamed

> lungs and sinus.

>

> It's a tough spot. I've never reacted to anesthesia before but I was

> always jacked up on prednisone.

>

> Have you been through this?

>

> thanks,

>

> Pam

>

[Guest guest]

Thanks Mal,

I spoke to the Fellow of my surgeon. She read the article written by

Dr. son. In it was described ASA desensitization as well as the

correlation between GERD and Samter's. It even mentioned the surgery we

are considering. They are requiring that I get recommendations from an

allergist and a pulminologist to guide the anesthesiologists in

preventing my reaction to whatever they gave me. They will not listen

to me, her, or even Dr. son's article. So, I have to go and

explain everything to them, hope they will read the articles and write a

recommend protocol for me to be able to get through the anesthesia. I

suspect that I need to take a burst of prednisone but let's see what the

experts say (and charge me). The doctor explained why aciphex stopped

working, she had a word for it, but it is common that drugs will stop

working, then you double them, then you switch and on and on. This is

why I am hoping for a mechanical solution.

Thanks again,

Pam

malsyopal wrote:

> I have had a similar effect AFTER my most recent and second sinus surgery. I

awoke from the anesthesia having a really severe asthma attack. Although I was

coughing, the nurses thought it was due to taking out the breathing tube out of

my throat however as I started to come to I somehow gasped, " I think I'm having

a asthma attack. " Right away they placed me on a breathing machine (which cost

$1000! Hospitals, seriously...) and as usual after awhile I was fine.

>

> Now its important to note that during my first sinus surgery (prior to the

described one), when I awoke I threw up A LOT. So when I met with the

anesthesiologist for my second surgery I mentioned this to him and he said he

would place something in the anesthesia to help me not feel nausea. Well I

certainly did not feel nausea afterwards yet the asthma was not triggered when

this drug was absent after my first surgery. I do not know what that drug was,

but maybe it will help to find out if something such as that was added to your

anesthesia.

>

> Hopefully this gives you some sort of help! :-)

>

> Mal

>

>

>

>> Hi All,

>>

>> I had an endoscopy under general anesthesia yesterday. It was a short

>> procedure and I woke up coughing. The surgeon said that as soon as the

>> anesthesia hit my veins I started coughing badly. I believe that I had

>> a reaction to one of the ingredients because that is how my asthma

>> attacks present. I have allergies to pets, dust mites and mold. I also

>> have varying sensitivities to MSG, sulfites, mint, perfumes, etc. I

>> have been desensitized to ASA and have maintained it so that I won't

>> react to the NSAID related drugs. My reactions are almost always

>> explosive coughing, sneezing, and tearing.

>>

>> I am talking to several doctors about this of course and hopefully we

>> will find a solution. You all have been very helpful in suggesting

>> possibilities to mention.

>>

>> The surgeon wants me to go to a puminologist to strengthen my lungs

>> before he will operate. I agreed to but I doubt the puminologist can

>> cure my asthma. The operation is to repair my sphincter muscle and the

>> hernia that is causing the acid reflux which I blame for my inflamed

>> lungs and sinus.

>>

>> It's a tough spot. I've never reacted to anesthesia before but I was

>> always jacked up on prednisone.

>>

>> Have you been through this?

>>

>> thanks,

>>

>> Pam

>>

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Can anyone tell me what kind of anesthesia Dr. A uses? Does he intubate?

Spinal?

TIA!

[Guest guest]

Both - you have a spinal for the duration of the surgery, in addition to the general. The spinal really helps reduce post-op pain.Margo margo.nelson@...

On Fri, May 28, 2010 at 11:52 AM, ellsworthlegal <ellsworthlegal@...> wrote:

 

Can anyone tell me what kind of anesthesia Dr. A uses? Does he intubate? Spinal?

TIA!

[Guest guest]

Spinal but you're OUT.

>

> Can anyone tell me what kind of anesthesia Dr. A uses? Does he intubate?

Spinal?

>

> TIA!

>

[Guest guest]

I had a spinal and I don't remember a thing. I had no headache or any other

post anesthesia issues.

Deborah

>

> Can anyone tell me what kind of anesthesia Dr. A uses? Does he intubate?

Spinal?

>

> TIA!

>

[Guest guest]

i had am epidural b/c i am allergic 2 morphine

----------

Sent from AT & T Wireless using

- Re: Anesthesia

Spinal but you're OUT.

>

> Can anyone tell me what kind of anesthesia Dr. A uses? Does he intubate?

Spinal?

>

> TIA!

>

[Guest guest]

For the lapband I dont think he does a spinal? I think I was just intubated.

>

> Can anyone tell me what kind of anesthesia Dr. A uses? Does he intubate?

Spinal?

>

> TIA!

>

[Guest guest]

Any patient that must fast all night, then all day the next day prior to

late afternoon anesthesia may benefit from IV for fluids prior to the

procedure. It would help so much with anesthesia recovery....Although, I

know its hard for little ones to be hooked up to IV.....Tough call...But,

Ive seen this happen with my daughter multiple times. The more dehydrated

she is prior to anesthesia, the more difficult her recovery....Food for

thought. Every one is different I know, but thats what I have seen with

my own child over the last decade.

HRH

> ,

>

> Awww...you are so sweet. Can you believe it's number 6 already? Crazy! One

> pm is

> around the same time we had for Bex last cast- one or 1:30...and he didn't

> go

> until 3:30! I asked and they said next time to call before coming that

> morning

> and ask if the OR is running on time. That's never happened to us before,

> it was

> an extreme circumstance with a complicated surgery that day...but still.

> It is

> not fun to see your kiddo hungry and not be able to give them milk! I say

> demand

> popcicles at least. I hope Isaiah gets moved up. We go 2 weeks after you

> and I

> am really dying to hear good news. Bex went up a half shoe size. Is Isaiah

> growing taller in this one?

>  Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City

> Shriners,

> currently down from 62 degrees to 19.7 in cast)

>

>

>

>

>

> ________________________________

> From: <missikay10@...>

> infantile scoliosis treatment

> Sent: Fri, July 23, 2010 5:45:50 PM

> Subject: Re: New here

>

>  

> Heidi,

> Have I told you lately how great you are in responding and giving great

> advice?

> BTW Isaiah gets cast #6 on fri july 30th...and not til 1pm! It will be a

> rough

> day for sure. Just wanted to give you kuddos on your responses!

>

> Xoxo,

>

>

> NIck Guthe <nickguthe@...> wrote:

>

>>Hi , welcome to CAST!

>>

>>36 degrees, is that in a lying down X-ray? Standing is more accurate,

>> and will

>>likely be higher. 36 is already pretty high. My advice is also not to

>> wait to

>>apply to Shriners. Chicago is a terrific center for this method, many

>> families

>>love it there! I am sure some will respond soon. Watch and wait or wait

>> and see

>

>>is the wrong approach to take, unfortunately, and is the norm to hear

>> from most

>

>>doctors. The very best chance for correction and avoiding multiple spinal

>>surgeries down the line is a properly applied series of casts done on the

>>derotational, 3 dimensional table, as Chicago does. A regular Risser cast

>> will

>>not have the same chance at correction, that is likely the kind your

>> current

>>doctor referred to (?)

>>

>>The best time to begin tretment is under age 2 and under 50-60 degrees.

>> Truly

>>the sooner, the better, these casts correct along with your child's

>> natural

>>growth spurts, and you do not want to miss one, as that can allow the

>> condition

>

>>to progress fast. Even weeks and certainly months can make a huge

>> differerence

>>in the length of treatment needed. The surgeries are not easy at all, are

>> much

>>more invasive, and can have many complications.

>>

>>Mehta or EDF casting is the only potential cure, and it is gentle and

>>non-surgical. At the least, it will postpone surgery for as long as

>> possible,

>>while bracing often does not even hold the curve in progressive cases.

>> If you

>>opt for bracing, the window of correction with proper casting can be

>> lost, in

>>some cases making surgery necessary very young, as young as 2 or 3, every

>> 6

>>months or sooner. It has more than a 100 percent complication rate.

>>

>>Parents of children with low muscle tone will know more about that, but

>> they are

>>

>>here for sure, you can also search for it in older posts on this group.

>> Casting

>

>>is hard at first, but very do-able!

>>

>>Congratulations on adopting Kiya, you are in the right place to do the

>> very best

>>

>>thing for your precious child!

>> Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City

>> Shriners,

>>currently down from 62 degrees to 19.7 in cast)

>>

>>

>>

>>

>>

>>________________________________

>>From: cjustl <cjustl@...>

>>infantile scoliosis treatment

>>Sent: Fri, July 23, 2010 12:15:28 PM

>>Subject: New here

>>

>> 

>>Hi!

>>

>>We are VERY new to this world of scoliosis. My daughter, Kiya, will be 20

>> months

>>

>>old next week. She was diagnosed with moderate scoliosis in June of this

>> year.

>>She has had an MRI that came back normal (thank goodness). We are seeing

>> a

>>doctor here in Madison, WI and he is telling us to repeat xrays in 3

>> months and

>

>>decide from there. He mentioned the Boston brace and possibly body

>> casting but

>>didn't give a lot of detail. My daughter's curve is currently at 36%.

>>

>>

>>After much research on my own, I read about Mehta casting. I don't even

>> know if

>

>>my daughter would qualify for this type of cast. We are looking into

>> applying at

>>

>>Shriner's hospital in Chicago.

>>

>>We adopted my daughter from Ethiopia last year. She came home at just

>> under 6

>>months of age with very low muscle tone. She is yet to walk independently

>> but is

>>

>>getting close. We have her in PT and are looking to qualify for Early

>>intervention in our state. We worry about not doing anything and it

>> getting a

>>lot worse and we worry that casting will hold her back devleopment wise.

>> So much

>>

>>to decide....

>>

>>We are hoping to gain insight, info and support as we navigate this

>> process for

>

>>our daughter.

>>

>>Thanks in advance for any advice, info, etc. Anyone been to Shriner's in

>>Chicago? Advice as we start that process?

>>

>>

>>mom, to Kiya, 20 months

>>

>>

>>

>>

>>

>>

>

>

>

>