Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Thanks, Trina, for being so open and honest. I understand that the " can recover " thing can be pretty startling and bell-ringing. When my husband and I left his office for the first time, we both said, " Well, he is either the best snake-oil salesman around, or he is really on to something. " I am still not convinced which. I do believe in the auto-immunity thing, though. What I liked most about Dr. and his office staff is how open and honest they are about the protocol. When I looked into Dr. Goldberg in California, all I got was the run-around. No offense to those who have seen Dr. Goldberg. If I had had the money, I would have gone there too. But when I or anyone else asked about his protocol, all we got was, " It is so specific to each child, you just have to go see him to find out. " And " if your doctor wishes to use the protocol, he/she can pay (big bucks, I'm sure) to go to a workshop which will explain the protocol. " On the otherhand, when I called Dr. 's office, they said, " It is specific to each child, but he generally uses... " They then explained every drug and what each is used for. Quite a difference. I understand that Dr. has been working with Dr. Rao and several other doctors to start trying his protocol as well. Not an endorsement of Dr. . Just my 2 cents. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 What did Dr. Holmes do for your hands? My little guys eczema on his feet, well, his big toe is so horrible. I put more stuff on his feet but I seem to be going round and round in circles. They itch so bad he scrapes his feet on the ground til they are bloody and he kicks his feet in his sleep to scratch them. I will try anything (within reason). Thanks Liz. On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> wrote: > Hello all, > > No it was not the money; in fact he was cheap by comparison. My insurance > actually covered his visit. (really though that SHOULD be a reason to > question.ha!) Remember I said my NT child took the valtrex? Didn't help him > but did make him sick and anxious/dizzy. I had also heard of two other AU > kids that actually got much worse behaviorally on his protocol. I asked him > why his protocol didn't even help them and how he was so sure he could > recover my child. Of course he said " Those kids were different " . Hmmm. Okay, > either I'm the luckiest person on the planet and I seem to have this kid > that two doctors now proclaim to be able to fix or something is fishy. (And > it isn't the cod liver oil..) But not to put to negative a point on things I > would gladly reconsider if someone who has used Dr. will come out > and say their child was recovered or at least functioning at grade level > after doing his protocol. I want to believe him. Heck thanks to Dr.Amy > Holmes my eczema on my hands is gone because she gave me such hope. You > asked for an opinion, I'm just telling you to be careful. There is a lot of > money available and I'll admit I too am desperate for answers and would pay > anything to have my child " recovered " . It's to powerful a statement to throw > around. > > Trina > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 What did Dr. Holmes do for your hands? My little guys eczema on his feet, well, his big toe is so horrible. I put more stuff on his feet but I seem to be going round and round in circles. They itch so bad he scrapes his feet on the ground til they are bloody and he kicks his feet in his sleep to scratch them. I will try anything (within reason). Thanks Liz. On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> wrote: > Hello all, > > No it was not the money; in fact he was cheap by comparison. My insurance > actually covered his visit. (really though that SHOULD be a reason to > question.ha!) Remember I said my NT child took the valtrex? Didn't help him > but did make him sick and anxious/dizzy. I had also heard of two other AU > kids that actually got much worse behaviorally on his protocol. I asked him > why his protocol didn't even help them and how he was so sure he could > recover my child. Of course he said " Those kids were different " . Hmmm. Okay, > either I'm the luckiest person on the planet and I seem to have this kid > that two doctors now proclaim to be able to fix or something is fishy. (And > it isn't the cod liver oil..) But not to put to negative a point on things I > would gladly reconsider if someone who has used Dr. will come out > and say their child was recovered or at least functioning at grade level > after doing his protocol. I want to believe him. Heck thanks to Dr.Amy > Holmes my eczema on my hands is gone because she gave me such hope. You > asked for an opinion, I'm just telling you to be careful. There is a lot of > money available and I'll admit I too am desperate for answers and would pay > anything to have my child " recovered " . It's to powerful a statement to throw > around. > > Trina > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 In a message dated 9/10/2004 12:24:28 PM Central Standard Time, whcmccain@... writes: <<When I looked into Dr. Goldberg in California, all I got was the run-around..<snip>..But when I or anyone else asked about his protocol, all we got was, " It is so specific to each child, you just have to go see him to find out. " >> It is specific to each child but Dr. Goldberg generally uses... Valtrex, Famvir, Kutapressin to treat viral problems -- almost every kid he sees is on one of the first two for at least while and he adds the kutapressin (except for recently when it was temporarily unavailable) in tough viral cases Diflucan, Nizoral, Lamisil and in a few cases Amph. B (can't recall spelling) to treat fungal problems -- he insists on an ongoing anti-yeast treatment for every child that shows low natural killer cells and viral involvement because he insists that yeast is or can become an issue with low nk cells regardless of test results SSRIs -- Paxil, Zoloft, Celexa, Prozac in low dose to " jump start " and/or increase activity in the temporal lobe where he has found most of the damage/problems from viral problems occurs (found this with SPECT scans) Special diet to reduce over-reactive immune systems that activate the immune system and lower its response to true pathogens (he lists this recommended diet on his website www.neuroimmunedr.com) In some cases, he uses... Ery-Ped to treat strep problems IM-IG for reduced immune activity Seacure, iron supplements and various low-dose multi-vitamins to address nutritional problems SNRIs - Effexor, Welbutrin; and Tenex -- in cases of hyperactivity/focus problems that remain after all of the above are addressed He also runs a battery of tests on immune function that he also lists on his website at first and then regularly (every 4 months or so) and insists on a CBC with lipid panel and comprehensive metobolic panel at least every six weeks to monitor drug safety and overall progress. He also tends to obsess on EOS counts as they're related to dietary problems. I have been surprised in following many kids on his protocol at how different many of their treatments are so he does individualize it quite a bit. I'm sure there are some other things he uses that I am not aware of but these are the main things. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 In a message dated 9/10/2004 12:24:28 PM Central Standard Time, whcmccain@... writes: <<When I looked into Dr. Goldberg in California, all I got was the run-around..<snip>..But when I or anyone else asked about his protocol, all we got was, " It is so specific to each child, you just have to go see him to find out. " >> It is specific to each child but Dr. Goldberg generally uses... Valtrex, Famvir, Kutapressin to treat viral problems -- almost every kid he sees is on one of the first two for at least while and he adds the kutapressin (except for recently when it was temporarily unavailable) in tough viral cases Diflucan, Nizoral, Lamisil and in a few cases Amph. B (can't recall spelling) to treat fungal problems -- he insists on an ongoing anti-yeast treatment for every child that shows low natural killer cells and viral involvement because he insists that yeast is or can become an issue with low nk cells regardless of test results SSRIs -- Paxil, Zoloft, Celexa, Prozac in low dose to " jump start " and/or increase activity in the temporal lobe where he has found most of the damage/problems from viral problems occurs (found this with SPECT scans) Special diet to reduce over-reactive immune systems that activate the immune system and lower its response to true pathogens (he lists this recommended diet on his website www.neuroimmunedr.com) In some cases, he uses... Ery-Ped to treat strep problems IM-IG for reduced immune activity Seacure, iron supplements and various low-dose multi-vitamins to address nutritional problems SNRIs - Effexor, Welbutrin; and Tenex -- in cases of hyperactivity/focus problems that remain after all of the above are addressed He also runs a battery of tests on immune function that he also lists on his website at first and then regularly (every 4 months or so) and insists on a CBC with lipid panel and comprehensive metobolic panel at least every six weeks to monitor drug safety and overall progress. He also tends to obsess on EOS counts as they're related to dietary problems. I have been surprised in following many kids on his protocol at how different many of their treatments are so he does individualize it quite a bit. I'm sure there are some other things he uses that I am not aware of but these are the main things. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 I saw that someone already posted an answer to " what is Dr. 's number " and I have a slightly different number so here it is too: 512-338-9857, probably just another extension... 512-338-9840. 6836 Bee Caves Road, Suite 300, Austin, Texas 78746 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hello all, Actually my eczema is brought on by anxiety. The more worried I am the worse it gets. Just having a doctor finally tell me that there was a clear road to recovery for my child completely cleared up my eczema! I tried every RX I could get and nothing worked. I had some luck strangely enough with the night cream by Merle Norman cosmetics; it's pink goo kind of like thick Vaseline. If I put on my hands at night covered with a sock that would provide some relief. My hands would actually bleed around the edges of my fingers and it was very painful. The anxiety issue was missed by my dermatologist and I never would have believed it had I not seen it clear up in 24 hours after that appointment with Dr.Holmes. You might look into stress relief for your little one too. Best of luck! Trina Re: Dr. What did Dr. Holmes do for your hands? My little guys eczema on his feet, well, his big toe is so horrible. I put more stuff on his feet but I seem to be going round and round in circles. They itch so bad he scrapes his feet on the ground til they are bloody and he kicks his feet in his sleep to scratch them. I will try anything (within reason). Thanks Liz. On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> wrote: > Hello all, > > No it was not the money; in fact he was cheap by comparison. My insurance > actually covered his visit. (really though that SHOULD be a reason to > question.ha!) Remember I said my NT child took the valtrex? Didn't help him > but did make him sick and anxious/dizzy. I had also heard of two other AU > kids that actually got much worse behaviorally on his protocol. I asked him > why his protocol didn't even help them and how he was so sure he could > recover my child. Of course he said " Those kids were different " . Hmmm. Okay, > either I'm the luckiest person on the planet and I seem to have this kid > that two doctors now proclaim to be able to fix or something is fishy. (And > it isn't the cod liver oil..) But not to put to negative a point on things I > would gladly reconsider if someone who has used Dr. will come out > and say their child was recovered or at least functioning at grade level > after doing his protocol. I want to believe him. Heck thanks to Dr.Amy > Holmes my eczema on my hands is gone because she gave me such hope. You > asked for an opinion, I'm just telling you to be careful. There is a lot of > money available and I'll admit I too am desperate for answers and would pay > anything to have my child " recovered " . It's to powerful a statement to throw > around. > > Trina > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Interesting about the anxiety. I wish that was an easy problem solved for my little guy. Shoot, I was hoping for some kind of miracle cream for his little feet. I have started loading on the Aquaphor and vitamin E at night and having him sleep with his socks on, that seems to be working somewhat. Oh well, thanks for your input. Liz On 9/13/04 6:09 PM, " and Trina Sherman " <csherman7@...> wrote: > Hello all, > Actually my eczema is brought on by anxiety. The more worried I am the worse > it gets. Just having a doctor finally tell me that there was a clear road to > recovery for my child completely cleared up my eczema! I tried every RX I > could get and nothing worked. I had some luck strangely enough with the > night cream by Merle Norman cosmetics; it's pink goo kind of like thick > Vaseline. If I put on my hands at night covered with a sock that would > provide some relief. My hands would actually bleed around the edges of my > fingers and it was very painful. The anxiety issue was missed by my > dermatologist and I never would have believed it had I not seen it clear up > in 24 hours after that appointment with Dr.Holmes. You might look into > stress relief for your little one too. Best of luck! Trina > > Re: Dr. > > What did Dr. Holmes do for your hands? My little guys eczema on his feet, > well, his big toe is so horrible. I put more stuff on his feet but I seem > to be going round and round in circles. They itch so bad he scrapes his > feet on the ground til they are bloody and he kicks his feet in his sleep > to scratch them. I will try anything (within reason). Thanks Liz. > > > > On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> > wrote: > >> Hello all, >> >> No it was not the money; in fact he was cheap by comparison. My insurance >> actually covered his visit. (really though that SHOULD be a reason to >> question.ha!) Remember I said my NT child took the valtrex? Didn't help > him >> but did make him sick and anxious/dizzy. I had also heard of two other AU >> kids that actually got much worse behaviorally on his protocol. I asked > him >> why his protocol didn't even help them and how he was so sure he could >> recover my child. Of course he said " Those kids were different " . Hmmm. > Okay, >> either I'm the luckiest person on the planet and I seem to have this kid >> that two doctors now proclaim to be able to fix or something is fishy. > (And >> it isn't the cod liver oil..) But not to put to negative a point on things > I >> would gladly reconsider if someone who has used Dr. will come out >> and say their child was recovered or at least functioning at grade level >> after doing his protocol. I want to believe him. Heck thanks to Dr.Amy >> Holmes my eczema on my hands is gone because she gave me such hope. You >> asked for an opinion, I'm just telling you to be careful. There is a lot > of >> money available and I'll admit I too am desperate for answers and would > pay >> anything to have my child " recovered " . It's to powerful a statement to > throw >> around. >> >> Trina >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Liz, You might want to try the diaper rash oinment from Louisana, Boudreaux Butt Cream. My guy had red swollen marks around his neck and we tried everything else and this worked. Sounds crazy but it did wonders for relieving the eczema there. I know the neck is the wrong end but I was at the point that I was willing to try anything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi Liz-- Eczema in kids can be very different from adult on-set eczema, from which I suffered for about 14 years. After trying dermatologists, allergists, and regular docs, I say homeopaths are the way to go. Western allergists are little better than voodoo practioners when it comes to things like eczema. The ones that I saw all had the general opinion of " Well, you're not dying from it so what are you complaining about? " My guess would be that's it's somehow tied to allergic reactions to something in the environment: food, mold, animal etc. Many many many children in the spectrum have terrible allergy problems. Try http://www.homeopathic.org/ to find a local practioner. When my son on the spectrum was a baby, he began to get earaches every other week from about 5 months old. After 4 months of unsuccessfully trying antibiotics (which my insurance plan wasn't paying for at the time!), I went to my friendly local homeopath who determined it was an allergies to much of the mainstays of his diet (yam, peas, and oatmeal, (precursors of things to come as he is now GFCF)). He gave him extract of chamomile, I took him off the foods, and we didn't have another ear infection for over a year. Re: Dr. > > What did Dr. Holmes do for your hands? My little guys eczema on his feet, > well, his big toe is so horrible. I put more stuff on his feet but I seem > to be going round and round in circles. They itch so bad he scrapes his > feet on the ground til they are bloody and he kicks his feet in his sleep > to scratch them. I will try anything (within reason). Thanks Liz. > > > > On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> > wrote: > >> Hello all, >> >> No it was not the money; in fact he was cheap by comparison. My insurance >> actually covered his visit. (really though that SHOULD be a reason to >> question.ha!) Remember I said my NT child took the valtrex? Didn't help > him >> but did make him sick and anxious/dizzy. I had also heard of two other AU >> kids that actually got much worse behaviorally on his protocol. I asked > him >> why his protocol didn't even help them and how he was so sure he could >> recover my child. Of course he said " Those kids were different " . Hmmm. > Okay, >> either I'm the luckiest person on the planet and I seem to have this kid >> that two doctors now proclaim to be able to fix or something is fishy. > (And >> it isn't the cod liver oil..) But not to put to negative a point on things > I >> would gladly reconsider if someone who has used Dr. will come out >> and say their child was recovered or at least functioning at grade level >> after doing his protocol. I want to believe him. Heck thanks to Dr.Amy >> Holmes my eczema on my hands is gone because she gave me such hope. You >> asked for an opinion, I'm just telling you to be careful. There is a lot > of >> money available and I'll admit I too am desperate for answers and would > pay >> anything to have my child " recovered " . It's to powerful a statement to > throw >> around. >> >> Trina >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Thanks . Mason is allergic too. I have had him both skin and blood tested. The blood test came back and said he was basically allergic to EVERYTHING but eggs. The skin test was a little more sensitive and showed allergies to carrots, nuts, wheat and a few others but not dairy or eggs. One morning I made him an egg for breakfast and the hours that followed were horrible with a rash from head to toe, asthma, and then prednisone. So I am skeptical of allergy testing. But I am having a hard time finding his offending foods. I must be missing something. He is my " caveman " . He eats meats of all kinds, fruits and veggies (which I have to be careful). Sometimes I think it is flaring because of what is in the environment not a food. But I really don't know. Allergies can be as complicated as autism. Liz. On 9/13/04 7:58 PM, " Singleton " <cmtssingleton@...> wrote: > Hi Liz-- > Eczema in kids can be very different from adult on-set eczema, from which I > suffered for about 14 years. After trying dermatologists, allergists, and > regular docs, I say homeopaths are the way to go. Western allergists are > little better than voodoo practioners when it comes to things like eczema. > The ones that I saw all had the general opinion of " Well, you're not dying > from it so what are you complaining about? " > > My guess would be that's it's somehow tied to allergic reactions to > something in the environment: food, mold, animal etc. Many many many > children in the spectrum have terrible allergy problems. > Try http://www.homeopathic.org/ to find a local practioner. > > When my son on the spectrum was a baby, he began to get earaches every other > week from about 5 months old. After 4 months of unsuccessfully trying > antibiotics (which my insurance plan wasn't paying for at the time!), I went > to my friendly local homeopath who determined it was an allergies to much of > the mainstays of his diet (yam, peas, and oatmeal, (precursors of things to > come as he is now GFCF)). He gave him extract of chamomile, I took him off > the foods, and we didn't have another ear infection for over a year. > > > Re: Dr. >> >> What did Dr. Holmes do for your hands? My little guys eczema on his feet, >> well, his big toe is so horrible. I put more stuff on his feet but I seem >> to be going round and round in circles. They itch so bad he scrapes his >> feet on the ground til they are bloody and he kicks his feet in his sleep >> to scratch them. I will try anything (within reason). Thanks Liz. >> >> >> >> On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> >> wrote: >> >>> Hello all, >>> >>> No it was not the money; in fact he was cheap by comparison. My insurance >>> actually covered his visit. (really though that SHOULD be a reason to >>> question.ha!) Remember I said my NT child took the valtrex? Didn't help >> him >>> but did make him sick and anxious/dizzy. I had also heard of two other AU >>> kids that actually got much worse behaviorally on his protocol. I asked >> him >>> why his protocol didn't even help them and how he was so sure he could >>> recover my child. Of course he said " Those kids were different " . Hmmm. >> Okay, >>> either I'm the luckiest person on the planet and I seem to have this kid >>> that two doctors now proclaim to be able to fix or something is fishy. >> (And >>> it isn't the cod liver oil..) But not to put to negative a point on > things >> I >>> would gladly reconsider if someone who has used Dr. will come out >>> and say their child was recovered or at least functioning at grade level >>> after doing his protocol. I want to believe him. Heck thanks to Dr.Amy >>> Holmes my eczema on my hands is gone because she gave me such hope. You >>> asked for an opinion, I'm just telling you to be careful. There is a lot >> of >>> money available and I'll admit I too am desperate for answers and would >> pay >>> anything to have my child " recovered " . It's to powerful a statement to >> throw >>> around. >>> >>> Trina >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Thanks, Hmmm " Butt Cream " . Couldn't they have come up with a better name??? Big smiles. Liz. On 9/13/04 7:02 PM, " " <lroger9@...> wrote: > Liz, > You might want to try the diaper rash oinment from Louisana, Boudreaux Butt > Cream. My guy had red swollen marks around his neck and we tried everything > else and this worked. Sounds crazy but it did wonders for relieving the > eczema there. I know the neck is the wrong end but I was at the point that I > was willing to try anything. > > > > > > > Texas Autism Advocacy > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > SeekingJoyinDisability - Prayer support for those touched by Disability: > SeekingJoyinDisability/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 The Rash on the neck was caused by homeopathic remedies and it got worse and never better with their remedies. When we go in for the HOBOT treatment tomorrow I will ask Dr. about the allergist that he was talking about. Maybe we can find someone to help us as I have had bad luck with allergist and homeopaths. Re: Dr. > Thanks, Hmmm " Butt Cream " . Couldn't they have come up with a better name??? > Big smiles. Liz. > > > On 9/13/04 7:02 PM, " " <lroger9@...> wrote: > > > Liz, > > You might want to try the diaper rash oinment from Louisana, Boudreaux Butt > > Cream. My guy had red swollen marks around his neck and we tried everything > > else and this worked. Sounds crazy but it did wonders for relieving the > > eczema there. I know the neck is the wrong end but I was at the point that I > > was willing to try anything. > > > > > > > > > > > > > > Texas Autism Advocacy > > > > > > Unlocking Autism > > www.UnlockingAutism.org > > > > Autism-Awareness-Action > > Worldwide internet group for parents who have a > > child with AUTISM. > > > > SeekingJoyinDisability - Prayer support for those touched by Disability: > > SeekingJoyinDisability/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 The Rash on the neck was caused by homeopathic remedies and it got worse and never better with their remedies. When we go in for the HOBOT treatment tomorrow I will ask Dr. about the allergist that he was talking about. Maybe we can find someone to help us as I have had bad luck with allergist and homeopaths. Re: Dr. > Thanks, Hmmm " Butt Cream " . Couldn't they have come up with a better name??? > Big smiles. Liz. > > > On 9/13/04 7:02 PM, " " <lroger9@...> wrote: > > > Liz, > > You might want to try the diaper rash oinment from Louisana, Boudreaux Butt > > Cream. My guy had red swollen marks around his neck and we tried everything > > else and this worked. Sounds crazy but it did wonders for relieving the > > eczema there. I know the neck is the wrong end but I was at the point that I > > was willing to try anything. > > > > > > > > > > > > > > Texas Autism Advocacy > > > > > > Unlocking Autism > > www.UnlockingAutism.org > > > > Autism-Awareness-Action > > Worldwide internet group for parents who have a > > child with AUTISM. > > > > SeekingJoyinDisability - Prayer support for those touched by Disability: > > SeekingJoyinDisability/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Liz it's so funny that you call him your " caveman " , because putting someone on a " caveman " diet is supposedly the best way to track down a food allergy. Sometimes it's an allergy to environmental thing AND a food thing. If you can avoid the offending food then your body won't be so overwhelmed by the environmental problem. Personally I've had really good luck with both homeopathy and NAET, an alternative allergy elimination technique that has helped Karl eat more foods without reacting. There is even a book called " Tracking down the hidden food allergy " which details the elimination diet process. I'd be happy to lend it to you if you can't find it. Basically you put him on a diet of meat--any but bacon, sausage, hot dogs or luncheon meats veggies--any but corn (which is really a grain) fruits--any but citrus breads--only those with no wheat, rye or corn sunflower or safflower oil, honey, peanut butter (all natural) and nuts. beverages: pineapple or grape or apple juices and/or water Now for my son this wouldn't have worked because he's allergic to nuts and many, many many fruits AND he won't hardly touch veggies. Now the more severe version of the elimnation diet called the caveman diet allows: meats: any but beef, chicken, pork veggies: any but corn, irish potato and legumes fruits: any but apples and citrus safflower or sunflower oil honey water to drink nuts: cashews, english walnuts, pecans, almonds, and brazil nuts. You basically get him on the diet for a couple of weeks or until he is symptom free, and then start adding back one food at a time. Keep a record of symptoms 3 days before the diet. Seven days (or more) while he's on the diet and his symptoms improve, and then 7 days (or more) while adding a food. The book isn't long, but it's good. Re: Dr. >> >> What did Dr. Holmes do for your hands? My little guys eczema on his feet, >> well, his big toe is so horrible. I put more stuff on his feet but I seem >> to be going round and round in circles. They itch so bad he scrapes his >> feet on the ground til they are bloody and he kicks his feet in his sleep >> to scratch them. I will try anything (within reason). Thanks Liz. >> >> >> >> On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> >> wrote: >> >>> Hello all, >>> >>> No it was not the money; in fact he was cheap by comparison. My insurance >>> actually covered his visit. (really though that SHOULD be a reason to >>> question.ha!) Remember I said my NT child took the valtrex? Didn't help >> him >>> but did make him sick and anxious/dizzy. I had also heard of two other AU >>> kids that actually got much worse behaviorally on his protocol. I asked >> him >>> why his protocol didn't even help them and how he was so sure he could >>> recover my child. Of course he said " Those kids were different " . Hmmm. >> Okay, >>> either I'm the luckiest person on the planet and I seem to have this kid >>> that two doctors now proclaim to be able to fix or something is fishy. >> (And >>> it isn't the cod liver oil..) But not to put to negative a point on > things >> I >>> would gladly reconsider if someone who has used Dr. will come out >>> and say their child was recovered or at least functioning at grade level >>> after doing his protocol. I want to believe him. Heck thanks to Dr.Amy >>> Holmes my eczema on my hands is gone because she gave me such hope. You >>> asked for an opinion, I'm just telling you to be careful. There is a lot >> of >>> money available and I'll admit I too am desperate for answers and would >> pay >>> anything to have my child " recovered " . It's to powerful a statement to >> throw >>> around. >>> >>> Trina >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Liz it's so funny that you call him your " caveman " , because putting someone on a " caveman " diet is supposedly the best way to track down a food allergy. Sometimes it's an allergy to environmental thing AND a food thing. If you can avoid the offending food then your body won't be so overwhelmed by the environmental problem. Personally I've had really good luck with both homeopathy and NAET, an alternative allergy elimination technique that has helped Karl eat more foods without reacting. There is even a book called " Tracking down the hidden food allergy " which details the elimination diet process. I'd be happy to lend it to you if you can't find it. Basically you put him on a diet of meat--any but bacon, sausage, hot dogs or luncheon meats veggies--any but corn (which is really a grain) fruits--any but citrus breads--only those with no wheat, rye or corn sunflower or safflower oil, honey, peanut butter (all natural) and nuts. beverages: pineapple or grape or apple juices and/or water Now for my son this wouldn't have worked because he's allergic to nuts and many, many many fruits AND he won't hardly touch veggies. Now the more severe version of the elimnation diet called the caveman diet allows: meats: any but beef, chicken, pork veggies: any but corn, irish potato and legumes fruits: any but apples and citrus safflower or sunflower oil honey water to drink nuts: cashews, english walnuts, pecans, almonds, and brazil nuts. You basically get him on the diet for a couple of weeks or until he is symptom free, and then start adding back one food at a time. Keep a record of symptoms 3 days before the diet. Seven days (or more) while he's on the diet and his symptoms improve, and then 7 days (or more) while adding a food. The book isn't long, but it's good. Re: Dr. >> >> What did Dr. Holmes do for your hands? My little guys eczema on his feet, >> well, his big toe is so horrible. I put more stuff on his feet but I seem >> to be going round and round in circles. They itch so bad he scrapes his >> feet on the ground til they are bloody and he kicks his feet in his sleep >> to scratch them. I will try anything (within reason). Thanks Liz. >> >> >> >> On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> >> wrote: >> >>> Hello all, >>> >>> No it was not the money; in fact he was cheap by comparison. My insurance >>> actually covered his visit. (really though that SHOULD be a reason to >>> question.ha!) Remember I said my NT child took the valtrex? Didn't help >> him >>> but did make him sick and anxious/dizzy. I had also heard of two other AU >>> kids that actually got much worse behaviorally on his protocol. I asked >> him >>> why his protocol didn't even help them and how he was so sure he could >>> recover my child. Of course he said " Those kids were different " . Hmmm. >> Okay, >>> either I'm the luckiest person on the planet and I seem to have this kid >>> that two doctors now proclaim to be able to fix or something is fishy. >> (And >>> it isn't the cod liver oil..) But not to put to negative a point on > things >> I >>> would gladly reconsider if someone who has used Dr. will come out >>> and say their child was recovered or at least functioning at grade level >>> after doing his protocol. I want to believe him. Heck thanks to Dr.Amy >>> Holmes my eczema on my hands is gone because she gave me such hope. You >>> asked for an opinion, I'm just telling you to be careful. There is a lot >> of >>> money available and I'll admit I too am desperate for answers and would >> pay >>> anything to have my child " recovered " . It's to powerful a statement to >> throw >>> around. >>> >>> Trina >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 I can vouch for the Boudreaux's Butt Paste....with 3 kids, I have used LOTS of creams, and this one is the best! It seems to provide instant relief, too. I recently moved to Houston from New Jersey and couldn't find it up there (I stashed up when I visited my parents in Louisiana). Thankfully we can find it here! My Yankee friends were quite amused by the name! e Re: Dr. Thanks, Hmmm " Butt Cream " . Couldn't they have come up with a better name??? Big smiles. Liz. On 9/13/04 7:02 PM, " " <lroger9@...<mailto:lroger9@...>> wrote: > Liz, > You might want to try the diaper rash oinment from Louisana, Boudreaux Butt > Cream. My guy had red swollen marks around his neck and we tried everything > else and this worked. Sounds crazy but it did wonders for relieving the > eczema there. I know the neck is the wrong end but I was at the point that I > was willing to try anything. > > > > > > > Texas Autism Advocacy > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > SeekingJoyinDisability - Prayer support for those touched by Disability: > SeekingJoyinDisability/<http://health.group\ s./group/SeekingJoyinDisability/> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Thanks . I think I will go buy it today. My little guy is so broken out and so itchy. Bless his heart he is such a sweetie and so good natured, he must think this is how life is, ITCHY. Ragweed is high, and my allergies are a mess so I do believe I am battling not just food but environmental stuff. Its funny because my older son is far more allergic to food and environment than Mason but Ian responds by getting a stuffy nose and then stuffed ears- no skin inflammation at all. Mason on the other hand breaks out on his skin and becomes wheezy. Go figure. Liz On 9/13/04 8:52 PM, " Singleton " <cmtssingleton@...> wrote: > Liz it's so funny that you call him your " caveman " , because putting > someone on a " caveman " diet is supposedly the best way to track down > a food allergy. Sometimes it's an allergy to environmental thing AND a food > thing. > If you can avoid the offending food then your body won't > be so overwhelmed by the environmental problem. Personally I've > had really good luck with both homeopathy and NAET, an alternative allergy > elimination technique that has helped Karl eat more foods without > reacting. > > There is even a book called " Tracking down the hidden > food allergy " which details the elimination diet process. > I'd be happy to lend it to > you if you can't find it. Basically you put him on a diet of > > meat--any but bacon, sausage, hot dogs or luncheon meats > veggies--any but corn (which is really a grain) > fruits--any but citrus > breads--only those with no wheat, rye or corn > sunflower or safflower oil, honey, peanut butter (all natural) > and nuts. > beverages: pineapple or grape or apple juices and/or water > > Now for my son this wouldn't have worked because he's allergic > to nuts and many, many many fruits AND he won't hardly touch veggies. > > Now the more severe version of the elimnation diet called > the caveman diet allows: > meats: any but beef, chicken, pork > veggies: any but corn, irish potato and legumes > fruits: any but apples and citrus > safflower or sunflower oil > honey > water to drink > nuts: cashews, english walnuts, pecans, almonds, and brazil nuts. > > You basically get him on the diet for a couple of weeks or > until he is symptom free, and then start adding back one food > at a time. Keep a record of symptoms 3 days before the diet. > Seven days (or more) while he's on the diet and his symptoms > improve, and then 7 days (or more) while adding a food. > > The book isn't long, but it's good. > > > Re: Dr. >>> >>> What did Dr. Holmes do for your hands? My little guys eczema on his > feet, >>> well, his big toe is so horrible. I put more stuff on his feet but I > seem >>> to be going round and round in circles. They itch so bad he scrapes his >>> feet on the ground til they are bloody and he kicks his feet in his > sleep >>> to scratch them. I will try anything (within reason). Thanks Liz. >>> >>> >>> >>> On 9/10/04 10:26 AM, " and Trina Sherman " <csherman7@...> >>> wrote: >>> >>>> Hello all, >>>> >>>> No it was not the money; in fact he was cheap by comparison. My > insurance >>>> actually covered his visit. (really though that SHOULD be a reason to >>>> question.ha!) Remember I said my NT child took the valtrex? Didn't help >>> him >>>> but did make him sick and anxious/dizzy. I had also heard of two other > AU >>>> kids that actually got much worse behaviorally on his protocol. I asked >>> him >>>> why his protocol didn't even help them and how he was so sure he could >>>> recover my child. Of course he said " Those kids were different " . Hmmm. >>> Okay, >>>> either I'm the luckiest person on the planet and I seem to have this kid >>>> that two doctors now proclaim to be able to fix or something is fishy. >>> (And >>>> it isn't the cod liver oil..) But not to put to negative a point on >> things >>> I >>>> would gladly reconsider if someone who has used Dr. will come > out >>>> and say their child was recovered or at least functioning at grade level >>>> after doing his protocol. I want to believe him. Heck thanks to Dr.Amy >>>> Holmes my eczema on my hands is gone because she gave me such hope. You >>>> asked for an opinion, I'm just telling you to be careful. There is a lot >>> of >>>> money available and I'll admit I too am desperate for answers and would >>> pay >>>> anything to have my child " recovered " . It's to powerful a statement to >>> throw >>>> around. >>>> >>>> Trina >>>> >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 HAVE YOU TRIED EMU OIL? MY AUNT SWARES BY IT AND I USED IT ON MY 7 YEAR OLD WHEN HE HAD A BAD CASE OF STREPP. IT SMELLS KINDA LIKE EUCALYPTUS AND WORKS PRETTY GOOD. BEST OF ALL IT DOESN'T BURN AS LONG AS YOU KEEP IT OUT OF THE EYES. On Fri, 10 Sep 2004 11:40:04 -0500 Troy Scillian <tscillian@...> writes: > What did Dr. Holmes do for your hands? My little guys eczema on his > feet, > well, his big toe is so horrible. I put more stuff on his feet but > I seem > to be going round and round in circles. They itch so bad he scrapes > his > feet on the ground til they are bloody and he kicks his feet in his > sleep > to scratch them. I will try anything (within reason). Thanks Liz. > > > > On 9/10/04 10:26 AM, " and Trina Sherman " > <csherman7@...> > wrote: > > > Hello all, > > > > No it was not the money; in fact he was cheap by comparison. My > insurance > > actually covered his visit. (really though that SHOULD be a reason > to > > question.ha!) Remember I said my NT child took the valtrex? Didn't > help him > > but did make him sick and anxious/dizzy. I had also heard of two > other AU > > kids that actually got much worse behaviorally on his protocol. I > asked him > > why his protocol didn't even help them and how he was so sure he > could > > recover my child. Of course he said " Those kids were different " . > Hmmm. Okay, > > either I'm the luckiest person on the planet and I seem to have > this kid > > that two doctors now proclaim to be able to fix or something is > fishy. (And > > it isn't the cod liver oil..) But not to put to negative a point > on things I > > would gladly reconsider if someone who has used Dr. will > come out > > and say their child was recovered or at least functioning at grade > level > > after doing his protocol. I want to believe him. Heck thanks to > Dr.Amy > > Holmes my eczema on my hands is gone because she gave me such > hope. You > > asked for an opinion, I'm just telling you to be careful. There is > a lot of > > money available and I'll admit I too am desperate for answers and > would pay > > anything to have my child " recovered " . It's to powerful a > statement to throw > > around. > > > > Trina > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 To get his entire book ONE ANSWER TO CANCER free, on line. http://www.drkelley.com/CANLIVER55.html [Please delete previous message.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Hello, I would like to know how can I get Dr 's pancreatin enzyme and all the formulas A, Ca+, etc. I don't think I could find the college heath stores on the website? Sincerely, jervin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 I sent one to this address and it bouned back to me as undeliverable.... Laurie Mom to Grace > timothy_johnson@h... > > I think we should share some of our angst with Dr. from ABC. > This is the only email address I could find. > > Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Hi , We drive by car 10 -12 hrs.(depending on how many potty stops we have!) to San . Moriah is much easier now with only expansions, but Dr. still comes by to check on her afterwards. We usually see him beforehand as well even if it is just to say hi and peek at her xrays. Last time was her first expansion and he scrubbed in for a few minutes even though he was between cases. He's always willing to answer my questions and hear what I'm thinking. He also makes frequent appearances to the play room on the hall where all the Veptr kids recover. He takes the time to say hello to each kid and even let his picture be taken. A truly sweet man who cares. I hope to see him this time unless he is out of town. Can't help but be a little biased towards him!! :0) His office team is equally great. They don't mind emails and phone calls from me if I have questions, even the technical stuff I suppose parents don't usually ask?! Shellie monique garcia <moniquetiagarcia@...> wrote: Hey Shellie, how are you going? Apparantly, so I was told by Dr Angus Gray, that there is only one surgeon in the whole of Australia who can perform the VEPTR HYBRID, and that is Angus Gray! I was thrilled when I learnt this! He is good friends with Dr Bob as well! It's very promising for things out here in Australia. Take care, Love Shellie Grant <shelliegrant@...> wrote: Yeah!!! Great job at getting that going!! Jaclyne, can't wait to hear what he says about Mina and what kind of plan you guys come up with to help her. I am so glad the Veptr went international. I will have to hug Dr. C when I see him in 3 weeks. I know we would be no where without him and Dr. Melvin inventing the thing. Someone hug Dr. in SLC (if he'll let you) for coming up with the Hybrid!!!! Shellie jaclyneroze <jroze@...> wrote: Hi Shellie Thanks for your advice. has contacted Dr. Gray for us for which I am forever grateful. We are currently waiting for a response. He also performs the VEPTR Hybrid which is wonderful news for us and other Australian parents who don't need to travel overseas for their childrens' treatment. I hope in ten years I can help guide along other mothers as you all are helping me. Mothers are great! Jaclyne > > > > I just wanted to ditto what Carmell said...generally speaking > casting is for idiopathic cases and not congenital. > > > > > > Noelle (12-2-01) > > Ian (8-15-04) > > Re: Re: Hemivertebrae, Fused Ribs, > Klippel Feil? > > > > > > Hi Jaclyne, > > > > <<Fortunately, has made it possible for > > the serial casting to be done in Australia, so that is > > one possible problem solved.>> > > > > has done such good things in a relatively > > short amount of time. Big congrats to her and all her > > hard work. > > > > I'm assuming you realize casting is not going to help > > Mina. Mina's problems are structural malformations. > > You can't " fix " something with external brace or cast > > that wasn't formed correctly in the first place. I'm > > not trying to discourage you (or anyone). I would > > hate for a parent to have expectations that are not > > possible to reach. > > > > I hope you find great success with whatever treatment > > you choose. > > > > Carmell > > > > Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, > GERD, and Braydon 11, VACTERL-congenital scoliosis (fusion surgery > 5/96), VEPTR patient #137 (implant 8/01), Thoracic Insufficiency > Syndrome (TIS), rib anomalies, missing coccyx, fatty filum/TC > (released 4/99 & 12/06), anal stenosis, chronic constipation, > horseshoe (cross-fused) kidney, dbl ureter in left kidney, > ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), > neurogenic bladder, dysplastic right leg w/right clubfoot with 8 toes > (repaired 2/96, 3/96, 1/97, 3/04), tibial torsion, 4cm length > discrepancy-wears 3cm lift, pes cavus, SUA, GERD, Gastroparesis, etc. > http://carmellb-ivil.tripod.com/myfamily/ > > > > Congenital scoliosis support group > > CongenitalScoliosisSupport/ > > > > __________________________________________________________ > > Have a burning question? > > Go to www.Answers. and get answers from real people who > know. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 I didn't hear her and not to excuse her-but sometimes people do a lot of laughing when they are very uncomfortable. maurinetexjur2000 <pcarltex@...> wrote: Someone should have put Dr. in her place, she kept laughing like a hyena throughout her testimony. Did she think that the proceeding was funny? Given that has been seriously injured and her family is sitting there in the audience, I did not find it laughable and thought that she was disrespectful. Just goes to show you the decorum of respondent's experts. Shameful. Choose the right car based on your needs. Check out Autos new Car Finder tool. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 Yeah, I got a mother-in-law like that...makes me want to snap her neck with all that stupid inappropriate laughing.... > Someone should have put Dr. in her place, she kept laughing > like a hyena throughout her testimony. Did she think that the > proceeding was funny? Given that has been seriously injured > and her family is sitting there in the audience, I did not find it > laughable and thought that she was disrespectful. Just goes to show > you the decorum of respondent's experts. Shameful. > > > > > > > --------------------------------- > Choose the right car based on your needs. Check out Autos new Car Finder tool. > Quote Link to comment Share on other sites More sharing options...
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