Guest guest Posted June 18, 2003 Report Share Posted June 18, 2003 From another list: Kendal , M.D. Neurotology Neuro-Sensory Enhancement Center of Austin 6838 Bee Caves Rd., Ste. 300 Austin, Texas 78746 512-338-0863 <A HREF= " http://www.neca.us/ " >http://www.neca.us/</A> Email: KENDAL@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2003 Report Share Posted June 18, 2003 From another list: Kendal , M.D. Neurotology Neuro-Sensory Enhancement Center of Austin 6838 Bee Caves Rd., Ste. 300 Austin, Texas 78746 512-338-0863 <A HREF= " http://www.neca.us/ " >http://www.neca.us/</A> Email: KENDAL@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 Thank you and Gaylen for responding with the info. I just got off the phone with Dr. s office and the wait time right now is about a month long (not bad compared to some other offices/doctors). I was advised to make my appoinment a couple of months prior to arriving in Austin. Thank you, Hope In a message dated 6/18/03 11:55:17 PM Eastern Daylight Time, Googahly@... writes: > From another list: > Kendal , M.D. > Neurotology > Neuro-Sensory Enhancement Center of Austin > 6838 Bee Caves Rd., Ste. 300 > Austin, Texas 78746 > 512-338-0863 > <A HREF= " http://www.neca.us/ " >http://www.neca.us/</A> > > Email: KENDAL@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 Thank you and Gaylen for responding with the info. I just got off the phone with Dr. s office and the wait time right now is about a month long (not bad compared to some other offices/doctors). I was advised to make my appoinment a couple of months prior to arriving in Austin. Thank you, Hope In a message dated 6/18/03 11:55:17 PM Eastern Daylight Time, Googahly@... writes: > From another list: > Kendal , M.D. > Neurotology > Neuro-Sensory Enhancement Center of Austin > 6838 Bee Caves Rd., Ste. 300 > Austin, Texas 78746 > 512-338-0863 > <A HREF= " http://www.neca.us/ " >http://www.neca.us/</A> > > Email: KENDAL@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 The endolymphatic hydrops seem to be a common problem for children with autism. It causes the hypersensitive hearing in a subset of our children. It tends to be children from European origins. The Inner-ear tests pinpoint the problem and measure progress through-out the treatment. Exert from Dr. 's Dallas presentation: Why study balance? . Balance is a primary requirement of the nervous system . Balance is all reflex (automated) . Balance is relatively easy to measure . Effectively measures all primary sensory systems . Consistent across all age populations He uses a computer system called the SENSORY-VIEW . Sensory-View is a patented technology combining various diagnostic methods used to define the brain's input from the sensory organs and record the brains reflex response to specific sensory challenges . Tests the Vestibulo-Spinal Reflex . Tests Vestibulo-Ocular Reflex . Tests " ImPACT " Processing . Tests OAE, Audiometrics and Acoustic Reflex Diagnostic Evaluation of the " Sensory Systems " . OAE / Audiometrics (Cochlea and Vestibular Organ) . Tympanometry / Acoustic Reflexes (CN VII and VIII) . Platform Posturography (Proprioception/Visual/Vestibular) . ENG and VAT Testing (VOR) . Motor Control Testing / Reflex Testing (VSR) Underlying Problem . Fluctuating Vestibular Fluid dynamics causing fluctuating function . (Endolymphatic Hydrops) . Incomplete Myelination of Sensory Nerves . (poor discrimination and abnormal reflexes) . Worsening of these problems seen in immune regulation issues (allergies), illness, growth, injury, poor sleep patterns, hormonal flux, infection, heavy metal exposure or stress) . Instability never allows visual or vestibular integration What a mouth full. I hope this helps. >From: BLESSINGSX10@... >angeladay@... >Subject: Re: DR. >Date: Tue, 25 Nov 2003 11:32:53 -0500 (EST) > >, >I just read your post on the TX site, and was wondering how the DR >treated this issue ? What did he use, and how did he know what was wrong? >I know that I cannot compare what is going on with my son as what >was going on with your son's ears. >My son yells a lot, and seems to dislike a lot of noise, we have done >AIT to no avail. Thanks Allie > > > We just saw Dr. this morning. My son has been seeing Dr. > > for about 8 months now. I cannot say enough good things about > > him. He has really helped with my son's sensory issues and has > > resolved, specifically, an endolymphatic hydrops problem. That is > > where the endolympathic sac becomes clogged and causes irregular flow > > of the fluid from the ear to the brain. My son's hearing has improved > > tremendously. His balance and speech have also improved. His stems > > are way down. > > > > > _________________________________________________________________ Need a shot of Hank or Patsy Cline? The classic country stars are always singing on MSN Radio Plus. Try one month free! http://join.msn.com/?page=offers/premiumradio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 The endolymphatic hydrops seem to be a common problem for children with autism. It causes the hypersensitive hearing in a subset of our children. It tends to be children from European origins. The Inner-ear tests pinpoint the problem and measure progress through-out the treatment. Exert from Dr. 's Dallas presentation: Why study balance? . Balance is a primary requirement of the nervous system . Balance is all reflex (automated) . Balance is relatively easy to measure . Effectively measures all primary sensory systems . Consistent across all age populations He uses a computer system called the SENSORY-VIEW . Sensory-View is a patented technology combining various diagnostic methods used to define the brain's input from the sensory organs and record the brains reflex response to specific sensory challenges . Tests the Vestibulo-Spinal Reflex . Tests Vestibulo-Ocular Reflex . Tests " ImPACT " Processing . Tests OAE, Audiometrics and Acoustic Reflex Diagnostic Evaluation of the " Sensory Systems " . OAE / Audiometrics (Cochlea and Vestibular Organ) . Tympanometry / Acoustic Reflexes (CN VII and VIII) . Platform Posturography (Proprioception/Visual/Vestibular) . ENG and VAT Testing (VOR) . Motor Control Testing / Reflex Testing (VSR) Underlying Problem . Fluctuating Vestibular Fluid dynamics causing fluctuating function . (Endolymphatic Hydrops) . Incomplete Myelination of Sensory Nerves . (poor discrimination and abnormal reflexes) . Worsening of these problems seen in immune regulation issues (allergies), illness, growth, injury, poor sleep patterns, hormonal flux, infection, heavy metal exposure or stress) . Instability never allows visual or vestibular integration What a mouth full. I hope this helps. >From: BLESSINGSX10@... >angeladay@... >Subject: Re: DR. >Date: Tue, 25 Nov 2003 11:32:53 -0500 (EST) > >, >I just read your post on the TX site, and was wondering how the DR >treated this issue ? What did he use, and how did he know what was wrong? >I know that I cannot compare what is going on with my son as what >was going on with your son's ears. >My son yells a lot, and seems to dislike a lot of noise, we have done >AIT to no avail. Thanks Allie > > > We just saw Dr. this morning. My son has been seeing Dr. > > for about 8 months now. I cannot say enough good things about > > him. He has really helped with my son's sensory issues and has > > resolved, specifically, an endolymphatic hydrops problem. That is > > where the endolympathic sac becomes clogged and causes irregular flow > > of the fluid from the ear to the brain. My son's hearing has improved > > tremendously. His balance and speech have also improved. His stems > > are way down. > > > > > _________________________________________________________________ Need a shot of Hank or Patsy Cline? The classic country stars are always singing on MSN Radio Plus. Try one month free! http://join.msn.com/?page=offers/premiumradio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Hello all, I too went to see Dr. . I have not started his protocol because I'm not sure what I think of him. He told me he could " cure " my son in 6 months. He said he didn't look classically autistic and he thought his issues where something else. I guess I'm just skeptical about any doctor that tells me they can cure my son. Dr. Holmes told me this too about 2 weeks before she quit practice. I also know of 2 kids that had very bad reactions behaviorally with Dr. 's protocol and had to stop. I guess I'm still on the fence because my kid has very sensitive hearing and big sensory issues so I am looking for a new angle. Sometimes though I just get tired of all the tests and the blood work and the new latest and greatest and just want to stop and enjoy the kid I have. It's different when they are 3 or 4 or 5 I couldn't get him to enough specialists. Now it just makes me cynical and I wonder what the motivation really is to tell people you can cure their son. He's making money no doubt, and he got very defensive when I questioned his methods and asked him about the two kids I knew who had not been helped. Perhaps I need to talk to more happy parents? Trina Dr. In a message dated 11/25/03 11:42:56 AM Central Standard Time, angeladay@... writes: > >My son's thyroid and growth hormone where very low,so we started > medication for > both. They are now within normal ranges. The NK-cells are within normal > ranges, too. > Just to clarify -- were the NK cells within normal range to begin with or at first low and now in normal range? Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Hello all, I too went to see Dr. . I have not started his protocol because I'm not sure what I think of him. He told me he could " cure " my son in 6 months. He said he didn't look classically autistic and he thought his issues where something else. I guess I'm just skeptical about any doctor that tells me they can cure my son. Dr. Holmes told me this too about 2 weeks before she quit practice. I also know of 2 kids that had very bad reactions behaviorally with Dr. 's protocol and had to stop. I guess I'm still on the fence because my kid has very sensitive hearing and big sensory issues so I am looking for a new angle. Sometimes though I just get tired of all the tests and the blood work and the new latest and greatest and just want to stop and enjoy the kid I have. It's different when they are 3 or 4 or 5 I couldn't get him to enough specialists. Now it just makes me cynical and I wonder what the motivation really is to tell people you can cure their son. He's making money no doubt, and he got very defensive when I questioned his methods and asked him about the two kids I knew who had not been helped. Perhaps I need to talk to more happy parents? Trina Dr. In a message dated 11/25/03 11:42:56 AM Central Standard Time, angeladay@... writes: > >My son's thyroid and growth hormone where very low,so we started > medication for > both. They are now within normal ranges. The NK-cells are within normal > ranges, too. > Just to clarify -- were the NK cells within normal range to begin with or at first low and now in normal range? Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Hello all, I too went to see Dr. . I have not started his protocol because I'm not sure what I think of him. He told me he could " cure " my son in 6 months. He said he didn't look classically autistic and he thought his issues where something else. I guess I'm just skeptical about any doctor that tells me they can cure my son. Dr. Holmes told me this too about 2 weeks before she quit practice. I also know of 2 kids that had very bad reactions behaviorally with Dr. 's protocol and had to stop. I guess I'm still on the fence because my kid has very sensitive hearing and big sensory issues so I am looking for a new angle. Sometimes though I just get tired of all the tests and the blood work and the new latest and greatest and just want to stop and enjoy the kid I have. It's different when they are 3 or 4 or 5 I couldn't get him to enough specialists. Now it just makes me cynical and I wonder what the motivation really is to tell people you can cure their son. He's making money no doubt, and he got very defensive when I questioned his methods and asked him about the two kids I knew who had not been helped. Perhaps I need to talk to more happy parents? Trina Dr. In a message dated 11/25/03 11:42:56 AM Central Standard Time, angeladay@... writes: > >My son's thyroid and growth hormone where very low,so we started > medication for > both. They are now within normal ranges. The NK-cells are within normal > ranges, too. > Just to clarify -- were the NK cells within normal range to begin with or at first low and now in normal range? Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Trina, I think most of us pretty much agree that autism is not caused by any ONE thing. Therefore, some kids will have miracles with chelation or some other treatment, while the rest of us slog along seeing just minor improvements. For our daughter, GFCF was an amazing improvement -- she is still autistic, just much better. I have heard that Dr. has had amazing results with some kids, not so much with others. This is the same thing I have heard about chelation results, gfcf diet, DMG, B6, and other biomedical interventions people recommend for autism, some of which we have tried. It is very hard, no matter how much testing you do, to figure out what will work best for your child until you try it. Your child could be loaded with viral issues -- but that may not be what is causing the autistic behaviors. Your child could test for mercury -- but that may not be what is causing the autism, either. Getting either issue cleared up would probably help their overal health, anyway, so that is a motivation, in addition to the possible improvement of the autism. We are currently seeing Dr. Rao in Dallas, and plan to try his approach for, perhaps, a year and see if there is improvement. If not, we will probably then go to Dr. for a separate approach. I admit that we are blessed with insurance that covers almost everything, at least in part, so we can consider these approaches. I heard Dr. speak and had a chance to speak with him, and I had the distinct impression that he really does care about his work, so it's probably hard for him to be casual and non-defensive about it. Our approach with Maggie on therapeutic and biomedical issues is, " Can it help? If not, can it harm? If it can harm, what are the risks, and how do those compare with the possible benefits? " We weigh all these with how much we think it can help. I sort of expect that the doctors we speak to will strongly advocate their approach because most of them have devoted years to it and are quite passionate it about it -- so I can't judge an approach by how much a doctor defends it, or not. We all really have to do our own research, pray hard, and do what seems best for our child based on what we believe at that time. Blessings to you in this decision. K Dr. > > In a message dated 11/25/03 11:42:56 AM Central Standard Time, > angeladay@... writes: > > > > >My son's thyroid and growth hormone where very low,so we started > > medication for > > both. They are now within normal ranges. The NK-cells are within normal > > ranges, too. > > > > Just to clarify -- were the NK cells within normal range to begin with or at > > first low and now in normal range? > Gaylen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Trina, I think most of us pretty much agree that autism is not caused by any ONE thing. Therefore, some kids will have miracles with chelation or some other treatment, while the rest of us slog along seeing just minor improvements. For our daughter, GFCF was an amazing improvement -- she is still autistic, just much better. I have heard that Dr. has had amazing results with some kids, not so much with others. This is the same thing I have heard about chelation results, gfcf diet, DMG, B6, and other biomedical interventions people recommend for autism, some of which we have tried. It is very hard, no matter how much testing you do, to figure out what will work best for your child until you try it. Your child could be loaded with viral issues -- but that may not be what is causing the autistic behaviors. Your child could test for mercury -- but that may not be what is causing the autism, either. Getting either issue cleared up would probably help their overal health, anyway, so that is a motivation, in addition to the possible improvement of the autism. We are currently seeing Dr. Rao in Dallas, and plan to try his approach for, perhaps, a year and see if there is improvement. If not, we will probably then go to Dr. for a separate approach. I admit that we are blessed with insurance that covers almost everything, at least in part, so we can consider these approaches. I heard Dr. speak and had a chance to speak with him, and I had the distinct impression that he really does care about his work, so it's probably hard for him to be casual and non-defensive about it. Our approach with Maggie on therapeutic and biomedical issues is, " Can it help? If not, can it harm? If it can harm, what are the risks, and how do those compare with the possible benefits? " We weigh all these with how much we think it can help. I sort of expect that the doctors we speak to will strongly advocate their approach because most of them have devoted years to it and are quite passionate it about it -- so I can't judge an approach by how much a doctor defends it, or not. We all really have to do our own research, pray hard, and do what seems best for our child based on what we believe at that time. Blessings to you in this decision. K Dr. > > In a message dated 11/25/03 11:42:56 AM Central Standard Time, > angeladay@... writes: > > > > >My son's thyroid and growth hormone where very low,so we started > > medication for > > both. They are now within normal ranges. The NK-cells are within normal > > ranges, too. > > > > Just to clarify -- were the NK cells within normal range to begin with or at > > first low and now in normal range? > Gaylen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 A very good post Trina......I would say talk to as many parents as you can - and especially the doctor. If he is defensive - then maybe that is reason for concern. I don't know why a sincere person would be defensive. That seems odd. I have jumped on the bandwagon so many times - only to fall off flat on my face. This Dr. Volpe in Houston is my example of someone who I believe so far - is truly sincere. I e-mail and ask him and his office questions - and he has always responded honestly. That is what I look for nowdays. If they can't take the time with me before I spend all this money - then I don't have warm fuzzy feelings about spending all that money on them.. I would question " cure " --- ask him if he can give you a money back guarantee in writing for that cure!!!!!! _____ From: and Trina Sherman [mailto:sherman.c@...] Sent: Thursday, November 27, 2003 5:08 AM Autism Treatment Subject: RE: Dr. Hello all, I too went to see Dr. . I have not started his protocol because I'm not sure what I think of him. He told me he could " cure " my son in 6 months. He said he didn't look classically autistic and he thought his issues where something else. I guess I'm just skeptical about any doctor that tells me they can cure my son. Dr. Holmes told me this too about 2 weeks before she quit practice. I also know of 2 kids that had very bad reactions behaviorally with Dr. 's protocol and had to stop. I guess I'm still on the fence because my kid has very sensitive hearing and big sensory issues so I am looking for a new angle. Sometimes though I just get tired of all the tests and the blood work and the new latest and greatest and just want to stop and enjoy the kid I have. It's different when they are 3 or 4 or 5 I couldn't get him to enough specialists. Now it just makes me cynical and I wonder what the motivation really is to tell people you can cure their son. He's making money no doubt, and he got very defensive when I questioned his methods and asked him about the two kids I knew who had not been helped. Perhaps I need to talk to more happy parents? Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Great post K - thank you for sharing! _____ From: Louis & [mailto:koiner@...] Sent: Thursday, November 27, 2003 8:36 AM Autism Treatment Subject: Re: Dr. Trina, I think most of us pretty much agree that autism is not caused by any ONE thing. Therefore, some kids will have miracles with chelation or some other treatment, while the rest of us slog along seeing just minor improvements. For our daughter, GFCF was an amazing improvement -- she is still autistic, just much better. I have heard that Dr. has had amazing results with some kids, not so much with others. This is the same thing I have heard about chelation results, gfcf diet, DMG, B6, and other biomedical interventions people recommend for autism, some of which we have tried. It is very hard, no matter how much testing you do, to figure out what will work best for your child until you try it. Your child could be loaded with viral issues -- but that may not be what is causing the autistic behaviors. Your child could test for mercury -- but that may not be what is causing the autism, either. Getting either issue cleared up would probably help their overal health, anyway, so that is a motivation, in addition to the possible improvement of the autism. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Great post K - thank you for sharing! _____ From: Louis & [mailto:koiner@...] Sent: Thursday, November 27, 2003 8:36 AM Autism Treatment Subject: Re: Dr. Trina, I think most of us pretty much agree that autism is not caused by any ONE thing. Therefore, some kids will have miracles with chelation or some other treatment, while the rest of us slog along seeing just minor improvements. For our daughter, GFCF was an amazing improvement -- she is still autistic, just much better. I have heard that Dr. has had amazing results with some kids, not so much with others. This is the same thing I have heard about chelation results, gfcf diet, DMG, B6, and other biomedical interventions people recommend for autism, some of which we have tried. It is very hard, no matter how much testing you do, to figure out what will work best for your child until you try it. Your child could be loaded with viral issues -- but that may not be what is causing the autistic behaviors. Your child could test for mercury -- but that may not be what is causing the autism, either. Getting either issue cleared up would probably help their overal health, anyway, so that is a motivation, in addition to the possible improvement of the autism. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Hi all, My son has been a patient of Dr. s for about 6 months now. He has never used the word " cure " with me, but is very optimistic about what results he says he would like to see. His goal is for my son to be age appropriate after 1 1/2 years of treatment. Sounds close to " cure " but is not exactly the same thing. Of course, it is close enough for me. He also said that he can make no guarantee except that he will not do anything to harm my son. He also said that in his opinion it is worth a shot. I agree. His treatment is very unobtrusive. Very few blood tests. No infusions of anything. No annoying diets. And my son is currently on 4 different medications -- as opposed to the 17 (more/less) different meds/supplements my DAN doctor recommended. I became interested in the viral connection when I first saw Dr. Goldberg from California at a conference. Dr. Goldberg often uses the word " cure. " I too was very skeptical at first. (Well, I guess I still am.) But Dr. Goldberg said something then that I have said many times myself. He said that if these kids were normal once, then there was NO reason why they couldn't be again. My son developed normally until he was 2 1/2 and then very slowly started to lose skills. I only know this because I have video tape which shows my very normal son coloring pictures -- not under duress like now -- and using a fork, playing with toys, etc. Then just about 2 months later, he is whiny and unhappy and very, very detached. He lost all interest in toys and to this day cannot use a fork to eat.(He is 9.) I certainly understand the feeling of being tired of chasing the cure. After seeing 3 DAN doctors, spending thousands of dollars, Secetrin infusions, etc., and seeing my son continue to regress, I too am skeptical. But I also enjoy seeing a doctor who is optimistic. We have just seen too many neurologists who were so negative. For me, this theory makes a lot of since where my son is concerned. I also like the fact that Dr. has 1) a theory about what might be causing autism (many others have a theory about what might help), and 2) developed a protocol for that theory (instead of just doing 18 things at once which we think might help). His protocol might not accomplish anything. However, it will have given me a year and a half of hope and, I think, that is worth my money. Best to all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Hi all, My son has been a patient of Dr. s for about 6 months now. He has never used the word " cure " with me, but is very optimistic about what results he says he would like to see. His goal is for my son to be age appropriate after 1 1/2 years of treatment. Sounds close to " cure " but is not exactly the same thing. Of course, it is close enough for me. He also said that he can make no guarantee except that he will not do anything to harm my son. He also said that in his opinion it is worth a shot. I agree. His treatment is very unobtrusive. Very few blood tests. No infusions of anything. No annoying diets. And my son is currently on 4 different medications -- as opposed to the 17 (more/less) different meds/supplements my DAN doctor recommended. I became interested in the viral connection when I first saw Dr. Goldberg from California at a conference. Dr. Goldberg often uses the word " cure. " I too was very skeptical at first. (Well, I guess I still am.) But Dr. Goldberg said something then that I have said many times myself. He said that if these kids were normal once, then there was NO reason why they couldn't be again. My son developed normally until he was 2 1/2 and then very slowly started to lose skills. I only know this because I have video tape which shows my very normal son coloring pictures -- not under duress like now -- and using a fork, playing with toys, etc. Then just about 2 months later, he is whiny and unhappy and very, very detached. He lost all interest in toys and to this day cannot use a fork to eat.(He is 9.) I certainly understand the feeling of being tired of chasing the cure. After seeing 3 DAN doctors, spending thousands of dollars, Secetrin infusions, etc., and seeing my son continue to regress, I too am skeptical. But I also enjoy seeing a doctor who is optimistic. We have just seen too many neurologists who were so negative. For me, this theory makes a lot of since where my son is concerned. I also like the fact that Dr. has 1) a theory about what might be causing autism (many others have a theory about what might help), and 2) developed a protocol for that theory (instead of just doing 18 things at once which we think might help). His protocol might not accomplish anything. However, it will have given me a year and a half of hope and, I think, that is worth my money. Best to all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Hi Liz, I talked to them in January before we moved and they were both doing well. I am trying to remember the conversation so please forgive me if I am wrong. I think Dr. V had been working on a study in California and both Dr. ' were opening a practice in New Braunfels,TX. Dessie was working with adults/families for counseling and I believe Dr. was still doing pediatrics/developmental pediatrician. The past 6 months, we have lost some of the local doctors that my son would see so we have been frustrated with that. Feel free to correct me if I am wrong. Theresa, SA > Thank you. Yes I do know Dr. . What a kind gentle sweet man. Do you > know how he is doing? Thanks for your information. This email group has > so much knowledge! Liz. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Thanks for the update. Dr. is like the energizer bunny! He must be close to 80. Liz. Oh, why has San lost so many Drs? On 3/24/04 8:05 PM, " Theresa Madore " <autismzone@...> wrote: > Hi Liz, > > I talked to them in January before we moved and they were both doing > well. I am trying to remember the conversation so please forgive me > if I am wrong. I think Dr. V had been working on a study in > California and both Dr. ' were opening a practice in New > Braunfels,TX. Dessie was working with adults/families for > counseling and I believe Dr. was still doing > pediatrics/developmental pediatrician. > > The past 6 months, we have lost some of the local doctors that my > son would see so we have been frustrated with that. > > Feel free to correct me if I am wrong. > > Theresa, SA > > > >> > Thank you. Yes I do know Dr. . What a kind gentle sweet > man. Do you >> > know how he is doing? Thanks for your information. This email > group has >> > so much knowledge! Liz. > > > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > SeekingJoyinDisability - Prayer support for those touched by Disability: > SeekingJoyinDisability/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 > I am wondering if anyone here is or was a patient of Dr. in Nevada. If so, can you tell me his general current treatment protocol, and whether you have benefited/improved after being under his care? I was. From 1985 until 1998. I'm out of touch so I don't know what he is doing now but I've only found two people who got any significant help and that was from ampligen. I couldn't afford it so that wasn't an option. Even if it works, it might as well be on the Moon. The major benefit I obtained was validation from being a Cheney/ patient but got no symptom relief from any therapy that was offered. I know a couple of other ex Dr patients who decided to take a holiday from expensive tests until some affordable treatment appears. I can put you in touch. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 , Its my understanding that it wasnt Dr. J. that learned serial corrective plaster casting from Miss Mehta, it was his dad. Apparently, his dad was an orthopaedic surgeon, too. is being seen by Dr. J. . (Her story is on www.infantilescoliosis.org ) Unfortunately, Bridgette (her mom) is having computer problems and unable to get on the group. Would you like to talk to her by phone? If so, I will forward her #. Bridgette is always willing to chat with other moms. She has been a great advocate for this cause. Also, Crista has had success in getting appt's quicker by doing a telephone application. Try that for a faster appt. talk soon, HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 >Have read posts from parents who have indicated that he was/is more tolerant of parental input than Dr. Goldberg. < I have already posted about our group regarding Dr. 's treatment. I hope you join with us Cornelia. Yes, Dr. has thus far been very respectful of us parents/grandparents. He stated to me that he believes many of us know more than the doctors. He is a great person really. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 >Have read posts from parents who have indicated that he was/is more tolerant of parental input than Dr. Goldberg. < I have already posted about our group regarding Dr. 's treatment. I hope you join with us Cornelia. Yes, Dr. has thus far been very respectful of us parents/grandparents. He stated to me that he believes many of us know more than the doctors. He is a great person really. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 , Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 , Can you send me your email again, you can send it to me privately. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 : I was fortunate in that my orthopedic was willing to refer me so we got into see him within two weeks of my orthos call to the Hospital. I would try calling and asking for their help (Shriner's). The numbers can be found on the Shriner's website. I will also ask on Monday if they can advise and let you kow. > (or anyone who can help) > > I'm glad you got such good results from your first cast. All the > more reason for me to persist..... > > Can you tell me how to get a hold of Dr. ? My son Colton (8 > months) has a 27 degree thoracolumbar curve that does not seem to be > getting any bigger, but his RV is going up( 21 to 25 in six weeks). > My doc here in NY says to do nothing; come back in December, but I > would like another opinion. Although not sure we need to be a > patient of Dr. at this point, I would like him to view > COlton's xrays and give another opinion on the " wait nd see " . > > Does he respond to emails or phone messages? > > Any help is greatly appreciated. Quote Link to comment Share on other sites More sharing options...
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