new to group

[Guest guest]

Hello group,

i am robert and i live in new jersey. My son is 11 ans was born

with a severe to profound hearing loss. We got him hearing aids as a

baby and he was put in to total communication programs. He has

learned speech and has done ok in a deaf program that is contained in

a mainstreem school system. About 2 years ago he lost whatever

hearing he had in his left ear. He got by wearing his one hearing aid

and was doing ok. Just last week he suddenly lost all the hearing in

his right ear and we are devastated. He just started to cry...and he

suddenly was immersed in total silence. I have been so depressed and

find myself crying in my car every day as i drive to and from work.

Last week, i met with a cochlear surgeon at the University Hospital

in Newark. I met the audiologist there as well..we did testing and

they said they would love to implant him. I went home and have been

reading non-stop about everything i can lay my eyes on. I now have an

appointment with childrens hospital in philadelphia to see what they

have to offer. This appt is on Dec.30. Im trying to do all this and

battle this feeling of depression i feel building inside me. He keeps

telling me he hates his life now. He tells me he cant even hear his

voice anymore. He used to have such a lovely voice...but his words

are becoming less and less clear..its almost like he is slipping away

through my fingers. I explained the cochlear to him and he wants it.

So this is my story, i found this group just a few minutes ago, i

turn to all the members for support, hope, comfort. Every time i see

my son i feel his pain, i pain every second of every day, maybe i am

weak..i dont know...but i want to do everything possible to help

him.......anyway..thanks for letting me join.

robert