Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 Hi Dolly The convention is going to be in california..USA.How about swimming over???????? Love Dora Dora Weber Nucleus Volunteer Advocate dora_weber@... Bilateral N22-96 N24C-01 Cochlear Otosclerosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 What implant and processor is the first CI recipient using now? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 So Kay,Your posting hit a note with me as during the past 4 years of post-MI and statin challenged years I was unable to change an overhead light in the kitchen or get down on the floor to glue up a loose oak floor board. My primary MD trivialized these things and claimed not to be result of these drugs. The statin-stumbles (leg drop) was credited to drinking too much even though I have but one light beer a day.The good news is that after reading the posts on this website including yours that the peripheral nerve damage from the statin gets resolved but is dependent on how much you took on daily basis and for how long. The bad news is that resolution, at least in my opinion, takes much longer than how long the drug was consumed.I won't claim that taking a ton of fish oil and CoQ-10 speeds the healing process but only comment that I take same daily. My brain fog has cleared somewhat and feeling and coordination now returned to fingers and toes. Energy continues to be a problem although now I and mow entire 1/2 htr. yard without needing to take break.Hang in there as will get better although slower than you may wish.and regards,T/ CELEBRATIONtoday for the first time this year i was able to work for one hour pulling weeds....time to celebrate... the neighbors came out and clapped lol....some were shoulder high ' [weeds not neighbors ]...now I am hurting but tis a honest hard earned hurt.....Kay Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 KayI think it does get better. 13 weeks for me off the poison now, and the fog has lifted. Having trouble with my ring finger similar to . Cognitive skills haven't improved much, and my oldest son is concerned about my driving!Wish I could write creatively as I was in the middle of writing my 3rd book last September when I was really struck down with the number/word thingy.Such a shame as I have been told that it would make a brilliant TV series - by my dear friend who is a film director.She rings me constantly asking if I have written anymore - alas I have to say no - I find it impossible.God what we have all lost makes me so angry!!!Toe Newman <yallethane@...> wrote: So Kay,Your posting hit a note with me as during the past 4 years of post-MI and statin challenged years I was unable to change an overhead light in the kitchen or get down on the floor to glue up a loose oak floor board. My primary MD trivialized these things and claimed not to be result of these drugs. The statin-stumbles (leg drop) was credited to drinking too much even though I have but one light beer a day.The good news is that after reading the posts on this website including yours that the peripheral nerve damage from the statin gets resolved but is dependent on how much you took on daily basis and for how long. The bad news is that resolution, at least in my opinion, takes much longer than how long the drug was consumed.I won't claim that taking a ton of fish oil and CoQ-10 speeds the healing process but only comment that I take same daily. My brain fog has cleared somewhat and feeling and coordination now returned to fingers and toes. Energy continues to be a problem although now I and mow entire 1/2 htr. yard without needing to take break.Hang in there as will get better although slower than you may wish.and regards,T/ CELEBRATIONtoday for the first time this year i was able to work for one hour pulling weeds....time to celebrate... the neighbors came out and clapped lol....some were shoulder high ' [weeds not neighbors ]...now I am hurting but tis a honest hard earned hurt.....Kay Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Yay for Kay!! along with Kay's celebration I want to also announce that yesterday my mother's doctor finally told us that he would stop prescribing Lipitor to my mother due to all of the side effects that she has been suffering from over the last 2 years. Yay for now!!! Unfortunately, my mother could not stop taking it on her own because thanks to lipitor, she had become dependent on my brother, who is her caregiver, to remember to take her pills and he couldn't stop giving it to her because he was instructed by the doctors to " follow their orders. " So I have been trying for the last 2 years to convince the doctors that the drug was causing MOST of her problems (congestive heart failure, memory loss, muscle wasting) which she never had BEFORE taking the poisonous drug called Lipitor. Anyway, the battle is not over because as soon as her cholesterol numbers go up, I know they are going to talk statins again so I will need to arm myself with more information to shoot at them. Thanks to all for being here to learn from and to give support in our fight. phine. > CELEBRATION > > > today for the first time this year i was able to work for one hour pulling weeds....time to celebrate... the neighbors came out and clapped lol....some were shoulder high ' [weeds not neighbors ]...now I am hurting but tis a honest hard earned hurt.....Kay > > > > > --------------------------------- > > Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 phine, the situation you describe is nothing short of criminal! For your mother to be forced to take the poison that caused her to require a caregiver in the first place is beyond outrageous! If there was ever a story that needed to be told, it is this one. I believe that if you could convince a member of the news media to run her story, that it sufficiently alarming that it might get picked up and broadcast far beyond your local area. Most of the TV stations have a tip line, and those of any size also have a designated reporter for health issues. Ditto newspapers. But I'd blanket all until one of them realizes the importance of this story and goes with it. It just might lead to saving your poor mother's life. jlkinkona <josephine@...> wrote: Yay for Kay!!along with Kay's celebration I want to also announce that yesterday my mother's doctor finally told us that he would stop prescribingLipitor to my mother due to all of the side effects that she has beensuffering from over the last 2 years. Yay for now!!!Unfortunately, my mother could not stop taking it on her own becausethanks to lipitor, she had become dependent on my brother, who is hercaregiver, to remember to take her pills and he couldn't stop givingit to her because he was instructed by the doctors to "follow theirorders." So I have been trying for the last 2 years to convince thedoctors that the drug was causing MOST of her problems (congestiveheart failure, memory loss, muscle wasting) which she never had BEFOREtaking the poisonous drug called Lipitor. Anyway, the battle is notover because as soon as her cholesterol numbers go up, I know they aregoing to talk statins again so I will need to arm myself with moreinformation to shoot at them. Thanks to all for being here to learnfrom and to give support in our fight. phine. > CELEBRATION> > > today for the first time this year i was able to work for one hourpulling weeds....time to celebrate... the neighbors came out andclapped lol....some were shoulder high ' [weeds not neighbors ]...nowI am hurting but tis a honest hard earned hurt.....Kay> > > > > ---------------------------------> > Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now!>----- Fight back spam! Download the Blue Frog. http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 phine, Excellent! Use the words " Criminal " and " Statin Poisoning " and " Statin Impaired " becuase these words are accurate. If everyone was like you, this whole statin thing would blow up in the face of the physicians. We ALL need to be more outspoken at the doctors office. Bobby > > > > OK phine, Here is something to arm yourself with when you go > > back to the doctor. LDL protein carries cholesterol from the liver > > to various sites in the body so that cholesterol can do its job and > > make repairs and maintain health. Increasing LDL, along with CoQ10 > > treatment is a wise choice to reverse the damage done. Bobby > > > > --- In Lipitor , " jlkinkona " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 phine, it's great to hear you stood up to your mother's doctor in reminding him that CoQ10 is vital and that statins deplete it, even if he didn't want to hear it. Or maybe you weren't so much reminding him as you were informing him! How many of us here are all too aware from our own experiences that there are two kinds of doctors: one respects the patient and is willing to listen, even if the patient is disagreeing with him; the second already knows everything and makes it clear that he does not need to be told how to do his job. What a shame that most fall into the second category. Doctors who need reminding that trying to shove down our throats a dangerous "remedy" based on a very questionable premise does constitute malpractice may hate the messenger, but so be it.. With the bad doctors, any respect the implied threat might earn us will certainly be given grudgingly, but at least he's been reminded that it isn't his job to dictate. After that, if we can, we need to be looking for a new doctor. I know sometimes that's easier said than done. But in the meantime, the pill-pusher has been put on notice that there are limits, regardless of any and all incentives he may have to whip out the prescription pad! Good for you for getting that doctor's attention! jlkinkona <josephine@...> wrote: Thanks Bobby for that reminder about LDL. Great point. I told mymother's doctor that it was criminal for doctors to prescribe statinswithout requiring CoQ10 when they know very well that statins depletethe heart of CoQ10 and elderly people already have low CoQ10 levels.He wasn't too happy to hear that. I think that if we start tellingdoctors about the criminal acts that they are doing to their patients,they will back off and stop forcing people to take statins (jmo). phine.>> OK phine, Here is something to arm yourself with when you go > back to the doctor. LDL protein carries cholesterol from the liver > to various sites in the body so that cholesterol can do its job and > make repairs and maintain health. Increasing LDL, along with CoQ10 > treatment is a wise choice to reverse the damage done. Bobby > > --- In Lipitor , "jlkinkona" ----- Fight back spam! Download the Blue Frog. http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Isn't it ironic that we feel compelled to fight so hard when we're at our weakest physically?! Maybe the pharmaceutical industry is counting on the effects of the products they pump out to shut us up? After all, who has the energy to spare when we've been so sickened by their chemical garbage? Not to mention what their poisons have done to our cognitive abilities. All the more reason to fight on to expose the fraud for what it is! Could they be so malevolent as to want survivors to be too dopey to spread the word about what we've been through? Yes! If they're actually willing to sacrifice children in their greed for ill-gained profits, there is no doubt that in their view we're all be expandable. Having experienced for two full years the horrible zombie state that statin poisoning can put one in, I now realize how fortunate I am that I have recovered at least some of my lost mental faculties, even as so much of the physical toll remains. This group, and others in which survivors have banded together, may be one of Big Pharma's worst nightmares. We must make the most of it!pamela sharp <pamela.sharp@...> wrote: Life has always been about Language - and professionals (particularly in the health field) have always been very keen to attach labels - especially when those labels reduce or demean the situation in question. That's why Statin Survivor/Statin Poisoner/Statin Intolerant are definetely the labels we should be attaching for our purpose.I had a child at 15yrs old that was taken for adoption without my consent when I was just 16yrs old in 1970. I am a Natural Mother not a Birth Mother - as the latter label is rude, degrading and demean's my status. I fought for many years, Social workers and Health Professionals for an Inquiry into illegal adoption practices in the UK and many other countries. We had to change our language then - and it is very important that we do now.Keep up the good work, phine, Bobby,Bill, Linden Ed, , Kay and all you fighters. Pamela Carlisle <nancarlswbell (DOT) net> wrote: phine, it's great to hear you stood up to your mother's doctor in reminding him that CoQ10 is vital and that statins deplete it, even if he didn't want to hear it. Or maybe you weren't so much reminding him as you were informing him! How many of us here are all too aware from our own experiences that there are two kinds of doctors: one respects the patient and is willing to listen, even if the patient is disagreeing with him; the second already knows everything and makes it clear that he does not need to be told how to do his job. What a shame that most fall into the second category. Doctors who need reminding that trying to shove down our throats a dangerous "remedy" based on a very questionable premise does constitute malpractice may hate the messenger, but so be it.. With the bad doctors, any respect the implied threat might earn us will certainly be given grudgingly, but at least he's been reminded that it isn't his job to dictate. After that, if we can, we need to be looking for a new doctor. I know sometimes that's easier said than done. But in the meantime, the pill-pusher has been put on notice that there are limits, regardless of any and all incentives he may have to whip out the prescription pad! Good for you for getting that doctor's attention! jlkinkona <josephinepoidogs> wrote: Thanks Bobby for that reminder about LDL. Great point. I told mymother's doctor that it was criminal for doctors to prescribe statinswithout requiring CoQ10 when they know very well that statins depletethe heart of CoQ10 and elderly people already have low CoQ10 levels.He wasn't too happy to hear that. I think that if we start tellingdoctors about the criminal acts that they are doing to their patients,they will back off and stop forcing people to take statins (jmo). phine.>> OK phine, Here is something to arm yourself with when you go > back to the doctor. LDL protein carries cholesterol from the liver > to various sites in the body so that cholesterol can do its job and > make repairs and maintain health. Increasing LDL, along with CoQ10 > treatment is a wise choice to reverse the damage done. Bobby > > --- In Lipitor , "jlkinkona" ----- Fight back spam! Download the Blue Frog. http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D ----- Fight back spam! Download the Blue Frog. http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 , 100% agreed. Bobby > > > > OK phine, Here is something to arm yourself with when you go > > back to the doctor. LDL protein carries cholesterol from the liver > > to various sites in the body so that cholesterol can do its job and > > make repairs and maintain health. Increasing LDL, along with CoQ10 > > treatment is a wise choice to reverse the damage done. Bobby > > > > --- In Lipitor , " jlkinkona " > > > > > > > ----- Fight back spam! Download the Blue Frog. http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D > > > > > > > > -----Fight back spam! Download the Blue Frog.http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Hi , I forgot to tell you in your previous post about my mom that she had a stroke in April 2006. After her stroke her doctor at that time put her on lipitor and told us that our mother could not be left alone and that is how my brother became her caregiver and he felt pressured to follow the doctor's instructions or be held liable if my mom had another stroke or heart attack. I think that that is how the lawyer wrote it up in my mom's legal stuff. Of course my brother could have still stopped giving the lipitor but was too afraid to take that step. So I am glad that he let me take my mom to see the doctor this time and I hope to continue to take her to the doctor appts in the future. phine > > phine, it's great to hear you stood up to your mother's doctor in reminding him that CoQ10 is vital and that statins deplete it, even if he didn't want to hear it. Or maybe you weren't so much reminding him as you were informing him! > > How many of us here are all too aware from our own experiences that there are two kinds of doctors: one respects the patient and is willing to listen, even if the patient is disagreeing with him; the second already knows everything and makes it clear that he does not need to be told how to do his job. What a shame that most fall into the second category. > > Doctors who need reminding that trying to shove down our throats a dangerous " remedy " based on a very questionable premise does constitute malpractice may hate the messenger, but so be it.. With the bad doctors, any respect the implied threat might earn us will certainly be given grudgingly, but at least he's been reminded that it isn't his job to dictate. After that, if we can, we need to be looking for a new doctor. I know sometimes that's easier said than done. But in the meantime, the pill-pusher has been put on notice that there are limits, regardless of any and all incentives he may have to whip out the prescription pad! > > Good for you for getting that doctor's attention! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 I want so desperately to do something that will help put an end to the damage big pharma is doing. I just want to save lives. Bobby > > > > OK phine, Here is something to arm yourself with when you go > > back to the doctor. LDL protein carries cholesterol from the liver > > to various sites in the body so that cholesterol can do its job and > > make repairs and maintain health. Increasing LDL, along with CoQ10 > > treatment is a wise choice to reverse the damage done. Bobby > > > > --- In Lipitor , " jlkinkona " > > > > > > > ----- Fight back spam! Download the Blue Frog. http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D > > > > > > > > -----Fight back spam! Download the Blue Frog.http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Bobby, Well said. Yes! Using the " criminal " word really helped. He kept repeating after that that he would stop the prescription. We have to use those BUZZ words to get the doctor to " hear " us. Plus not only is the doctor " hearing " us but so are the staff. Thanks. phine > > phine, Excellent! Use the words " Criminal " and " Statin > Poisoning " and " Statin Impaired " becuase these words are accurate. > If everyone was like you, this whole statin thing would blow up in > the face of the physicians. We ALL need to be more outspoken at the > doctors office. > > Bobby > Quote Link to comment Share on other sites More sharing options...
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