Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 Steve! WONDERFUL!!!!! It took me three days to understand speech with my CI, but that was a long time ago. Implanted December 1988, Activated January 1989 Legally blind most of my life Totally deaf for part of my life Nan Rosen _www.rosetwig.com_ (http://www.rosetwig.com/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 Steve, Congratulations on your activation! The world is a noisy place, isn't it? <smile> I hope you'll let us know what happens at your mapping tomorrow. Good luck! Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 Wonderful activation, Steve! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 Steve, Congratulations! Great news. Enjoy your adventure! Dale --- steve stevens <bbb1340@...> wrote: > Hello, ALL, > > My FREEDOM was activated today at 1:45. > > By 2:00, I could make out what my audie was saying > with head turned away so NO lip reading!!!!! It was > more emotional that I would have imagined. I was > overwhelmed when I walked outside. I go back in > tomorrow for more tuning. > > I can hear the keys on my laptop click as I type > this. > > Thanks for all the info. > > Steve > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 How exciting! I have heard so many people talk about how emotional their activations were. I am scheduled to have mine done around 3pm on Monday August 22nd. When you hear the new sounds, is it overwhelming? Kathi Sampson > Hello, ALL, > > My FREEDOM was activated today at 1:45. > > By 2:00, I could make out what my audie was saying > with head turned away so NO lip reading!!!!! It was > more emotional that I would have imagined. I was > overwhelmed when I walked outside. I go back in > tomorrow for more tuning. > > I can hear the keys on my laptop click as I type this. > > Thanks for all the info. > > Steve > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 Hi Kathi! Everyone reacts in their own way on hook up day. For me, I was not a crier on my hook up day. I was stunned speechless during my activation and my youngest sister, who got the honor of taking me to my hook up day, did the crying. All throughout my CI Candidacy, I thought the implant motto was high hopes, no expectations. It's actually high hopes, low expectations. Anyway, I had no expectations on my hook up day. My sister had all she could handle with me, in the waiting room, because I was still convinced that it was not going to work for me. I was thrilled when I heard that first beep and all the beeps when my audie set my T's and C's levels. I shot out of my chair with the first beep. It had been years since I actually heard a beep! Yes, I was overwhelmed! My sister said she never saw my eyes so wide. When my processor was turned on, I heard my audie say say a 3 syllable sentence. I turned to him and asked if he just said, " Can you hear me now? " He had! I didn't hear it clearly; but I knew this was going to be workable! It was then I let out a big whoop and hugged my sister who was still crying. It took 3 more months before speech discrimination started kicking in for me; but it was AWESOME to be able to hear the environmental sounds and my family's voices as they spoke even though I could not understand what they were saying without lipreading. Good luck to you with the rest of you recovery and your hook up day! It's not far away now! Patti Surgery Day 11/25/02 (What A Day!) Hook Up Day BWP 1/2/03 (A Happy Day!) 3G 1/31/03 (An Even Happier Day!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Steve, You are in for a great ride now. Start a journal if you have not already. congrats and keep us all posted on your journey back to sound :-) Cheers, Evel Nucleus Advocate n24c 05/05/04 > Hello, ALL, > > My FREEDOM was activated today at 1:45. > > By 2:00, I could make out what my audie was saying > with head turned away so NO lip reading!!!!! It was > more emotional that I would have imagined. I was > overwhelmed when I walked outside. I go back in > tomorrow for more tuning. > > I can hear the keys on my laptop click as I type this. > > Thanks for all the info. > > Steve > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 Hi: This forum has been so helpful to me in just accepting my hearing loss. So, a huge thank you! And now my news......I am finally activated. And everything sounds like a staticky male computer voice! I know it'll take some time to get used to. It's strange to me how some sounds are so loud, and some sounds are so soft. I know - have patience! I can even tell that I've made some progress in just the 5 hours I've had my CI. Rhona 4/3/07 Surgery 5/8/07 Activated Univ of Miami Dr. Balkany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 Wow Rhona, I'm so excited for you!!! This must be such an overwhelming day for you, I'm sure! Every time someone posts about their activation day, my heart starts beating faster and I get so excited for them, just knowing that my surgery should be coming up pretty soon and imagining how I would feel myself on that day! I'm pretty new here, so sorry for this question, but how did you lose your hearing? Or have you been hearing-impaired your whole life? I had perfect hearing my whole life, but as a result of Autoimmune Inner Ear Disease, which I was diagnosed with at the end of November, I am now completely deaf! I've been deaf now since about the middle of January, and let me tell you, what a nightmare this has been!! But every time I come here and hear people share their stories about how great their CI's are, I am filled with so much hope that this might work for me too! I really hope you do well with your CI, and I will be following your story closely to hear how things go for you. Please keep sharing as much as you can because I would really like to know what to expect after my surgery. Good luck, Rhona, and I wish you all the best! > > Hi: > > This forum has been so helpful to me in just accepting my hearing loss. So, > a huge thank you! > > And now my news......I am finally activated. And everything sounds like a > staticky male computer voice! I know it'll take some time to get used to. > It's strange to me how some sounds are so loud, and some sounds are so soft. > > I know - have patience! I can even tell that I've made some progress in > just the 5 hours I've had my CI. > > Rhona > 4/3/07 Surgery > 5/8/07 Activated > Univ of Miami > Dr. Balkany > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2007 Report Share Posted May 9, 2007 Hi : I'm so sorry to hear about your hearing loss with Autoimmune Inner Ear Disease. I can somewhat understand what a difficult time it must be for you! My hearing loss was gradual, starting with tinnitus in my early 20's and then getting progressively worse in my 30's with hearing loss and tinnitus. (I'm 43.) I used HA (hearing aid) for both ears since 2004 though I only heard sounds in my left ear and could not understand the words. The hearing in my right ear would vary and go up and down, ranging from (in my own description) " ok " to practically deaf " . Today, I have severe to profound hearing loss in both ears, but no diagnosis as to why I had the loss. As far as I know, my hearing loss is not genetic. My CI surgery was not bad at all. I even had a small complication and had to stay overnight as a precaution. Dr. Balkany (my surgeon and head of the dept at Univ of Miami) were: " the first month will not be very different " (I had the surgery but they wait about one month for activation), " the second month will be frustrating and you'll question why you ever did this " (he is exactly right!) but by the third month, maybe a little longer, you'll be through the roof because you have more hearing than most people that have this surgery and your brain remembers how to hear. Because of this, you should do very well. " SO, I know Dr. Balkany is an expert in his field and trust that he absolutely knows what is going on. I'm just trying to be patient with the process, which will be a good learning experience for me as I am not a patient person. I hope this answers some questions for you. I did not even know about this group prior to surgery and it has been so helpful to me. Not only do I feel more knowledgeable about understanding my CI, but I also feel SO much more accepting about my hearing loss. Email me privately if you need. Rhona 4/3/07 Surgery 5/8/07 Activated Univ of Miami Dr. Balkany Quote Link to comment Share on other sites More sharing options...
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