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Wow, Dora, that was quite an activation audience! Do you have a written

transcript detailing your event? I'd like to read it.

activation

>

> Hi

> I had to smile when I read your post telling how many you had asked to

come to your activation.

>

> I had a housefull..my husband,a Lions rep,my audiologist,two Cochlear

Americas audiologists,two camera men from Channel 5 and 2 camera men from

Channel 11..local tV stations and the public relations rep at the CI

Clinic.It was quite a morning!!

>

> Dora Weber

> Nucleus Volunteer Advocate

> dora_weber@...

>

> Bilateral

> N22-96

> N24C-01

> Cochlear Otosclerosis

>

>

>

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Dora,

That arrangement would be fine. <smile>

I'll contact you privately re: your book. Thanks!

Implanted: 12/22/04

Activation date: 1/18/05 (19 days and counting!)

Deafblind/Postlingual

BTE hearing aid user 19 years

Severe-profound hearing loss 9 1/2 years

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Dora,

That would work great. You send the video to me and then I will forward to

. Will need your adress, .

Activation

>

> Hi lisa

> How would it be if sends you the Video after she is done with

it?Then you could send it to someone if anyone else wants to see it.

>

> You can purchase my book on ....

> www.BookHouseFulfillment.com or directly from me.You will save

money if ordered from me and i will autograph the book.If you are interested

Email me privately,ok?

> Thanks

> Love Dora

>

> Dora Weber

> Nucleus Volunteer Advocate

> dora_weber@...

>

> Bilateral

> N22-96

> N24C-01

> Cochlear Otosclerosis

>

>

>

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Hi ,

I'll send my addy to you privately. Thanks!!

Implanted: 12/22/04

Activation date: 1/18/05 (19 days and counting!)

Deafblind/Postlingual

BTE hearing aid user 19 years

Severe-profound hearing loss 9 1/2 years

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, I just saw Doowra's

message ry. Are you planning to join bookshare ever because at some oint " i

want to get dora's books and have them tcanned in to the web site.

> Activation

>Hi lisa

>LOL!!That was very funny!Some were hanging from the ceiling!!!LOL

>Nope...the 3 Audiologists,Myron and the Lion's Rep and me were in the sound

treated room..the camera men and the pub relations gal were in the controls

room.The camera men took turns coming into the room and taking pictures...they

both were there,right in front of me,when my processor was turned on.It was a

riot!!How my audiologist was able to give me a good map is a miracle!!

>I did write about this in my new book..I sure wish you had access to it..isn't

there someone who could read it to you after your activation?Maybe could use it

as a practice book?

>Love Dora

>Dora Weber

>Nucleus Volunteer Advocate

>dora_weber@...

>Bilateral

>N22-96

>N24C-01

>Cochlear Otosclerosis

>

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  • 3 weeks later...

Hi Dora, This is Judy, you email me about your two books. I just want to

tell you I don't know how to use this computer to well. I just started using it

in Nov. to talk to a friend with a C I. I couldn't hear with the relay and

never got one before. The first time she called I didn't know what was

happening. My husband was trying to help me get ifo on CI and we found the

bulletin

board and for some reason I'm getting some peoples mail. I need a CI but am

having a lot of trouble with the Ins and finding out how much this whole thing

is going to cost me. I need to know if I can pay what the ins doesn't. I don't

know what is happening but sense I went to have a test on my ears they are

getting worse all most by the day it is scaring the day lights out of me. I'm

sorry I got your letter, I hope maybe you will keep in touch with me by

email. Its really nice to talk to people that have gone through this. Its

pretty

scary. thanks Judy

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  • 7 months later...

I went yesterday to be activated & I can hear some but basically

everything sounds muffled & @ times overwhelming noisy. I'm supposed

to go without my HA to train my brain to get used to the CI. I know I

have been told by so many people not to expect much in the beginning.

I chose the behind the ear device as I have the behind the ear HA.

However, the weight of the battery bothers my ear & now I'm wondering

if I chose the right type.

I brought up getting away from having to read lips eventually to my

audiologist & she told me that I may always have to read lips. This

was very discouraging to hear.....

My husband is very encouraging & says things will get better.....

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I had a horrible activation 5 years ago but I was less prepared for the wide

realm of possibilities. The only thing I was first able to hear were beeps

and squeaks and white noise. No speech comprehension at all! Environmental

sounds came to me first. I relied heavily on speech reading and using the

residual hearing I had in my unimplanted ear the first few months. Everyone on

the

forum kept telling me things would get better so I had no choice but to

believe them...and boy did they ever!!

Yes, it is true that many people continue to need to read lips with their

implant. The audies and surgeons always let us know that before we get an

implant. But no matter what you will experience improvement at whatever pace

your

brain will allow. Celebrate each day! Find one new sound! One tiny step at a

time!!

In a message dated 8/23/2005 8:15:06 AM Eastern Standard Time,

pksampson@... writes:

I brought up getting away from having to read lips eventually to my

audiologist & she told me that I may always have to read lips. This

was very discouraging to hear.....

My husband is very encouraging & says things will get

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  • 1 year later...
Guest guest

Just another observation, on some very high frequency sound, it sounded like

" white noise " then going away...

On 7/28/07, johngo57 <johngo57@...> wrote:

>

> Metal doors can ring a bit when closing them and I do hear a slight

> echo depending on the room I am in. Nothing you said strike me as

> being out of place.

>

>

> > >

> > > Jerome,

> > >

> > > It may take a little time before you're able to understand speech.

> > >

> > > When my first CI was activated, everything sounded extremely high

> pitched

> > > and metallic. It took 2 weeks before I was able to start

> understanding

> > > speech.

> > >

> > > Hang in there! The sound quality of what you hear will improve at

> your

> > > next mapping.

> > >

> > >

> > >

> > > Left ear: Nucleus 24 Contour Advance with Freedom BTE

> > > Implanted: 12/22/04 Activated: 1/18/05

> > >

> > > Right ear: Nucleus Freedom

> > > Implanted: 2/1/06 Activated: 3/1/06

> > >

> > >

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