Re: My son's CI was just activated...

[Guest guest]

It may be that your son's audie mapped him very conservatively so that there

was very little for him to react negatively to. This is a god question to ask

your audie. Get all the information you can every time you go.

n a message dated 10/23/2006 10:30:23 PM Eastern Standard Time,

wvepperson@... writes:

Need some advice from experienced CI users. I have a 6 year old son

who had his CI activated today (10-23-06). He had had hearing aids up

to the point of implanting. Based on what we had seen in videos, we

were expecting quite a shock when he was activated. For lack of a

better word, he acted " unimpressed. " He is acting like he doesn't

hear speech at all; just certain sounds. Is this normal? Was your

experiences much the same?

His next mapping is on the 31st.

Any comments would be greatly appreciated.

Thanks in advance,

Everett

[Guest guest]

Hi Everett and congratulations on your son's activation!

When my daughter was activated almost a year ago, she didn't have a

" profound " reaction either. She was only 2-1/2 at the time, but since

she had been hearing all along with her hearing aids, and since our

teams starts out very conservatively, she didn't seem to notice a

difference at first. She did throw a livid fit when she " went live " and

that was very frustrating, but by day three after activation, she was

back to her normal self and wore her CI during all waking hours. We

started seeing results I would say within a couple of weeks. Again,

nothing profound, but small signs every day. The best advice I can give

you is to ask a lot of questions of your audie and give it time. When

do return for another mapping? I predict that after the next mapping,

you too will start to see some subtle differences that seem huge to you

too!

Good luck and keep us posted!

W.

________________________________

From: [mailto: ] On Behalf

Of Everett Epperson

Sent: Monday, October 23, 2006 8:11 PM

Subject: My son's CI was just activated...

Need some advice from experienced CI users. I have a 6 year old son

who had his CI activated today (10-23-06). He had had hearing aids up

to the point of implanting. Based on what we had seen in videos, we

were expecting quite a shock when he was activated. For lack of a

better word, he acted " unimpressed. " He is acting like he doesn't

hear speech at all; just certain sounds. Is this normal? Was your

experiences much the same?

His next mapping is on the 31st.

Any comments would be greatly appreciated.

Thanks in advance,

Everett

[Guest guest]

Everett

I am a post lingual deafened adult and my activation

was such that I hear and understood voices

immediately. Having said that I believe from what

other people have told me that audiologist are very

conservative when mapping children and that children

often don't have the immediate results some adults

have because of this conservative mapping.

When you go to see you son's audie laster this month

ask her if she is mapping him very conservatively.

Connie

--- Everett Epperson <wvepperson@...> wrote:

> Need some advice from experienced CI users. I have

> a 6 year old son

> who had his CI activated today (10-23-06). He had

> had hearing aids up

> to the point of implanting. Based on what we had

> seen in videos, we

> were expecting quite a shock when he was activated.

> For lack of a

> better word, he acted " unimpressed. " He is acting

> like he doesn't

> hear speech at all; just certain sounds. Is this

> normal? Was your

> experiences much the same?

>

> His next mapping is on the 31st.

>

> Any comments would be greatly appreciated.

>

> Thanks in advance,

>

> Everett

>

>

>

" The Miracle at Ohio State "

aka Nucleus Freedom

Implanted 10/04/2005

Activated 11/1/2005

Surgery: Ohio State University

Surgeon: Dr. Bradley Welling

http://internalmedicine.osu.edu/article.cfm?ID=2021

[Guest guest]

The same thing happened when my son (was 2, now 3.5) was switched-on,

although he became more used to the CI over time and was a little

unsettled initially - I like you was expecting him to jump out of his

skin but I was assured that responses vary.

Anyway he's fine today and loving all the benefits (as are we)!

JM (London)

[Guest guest]

Hi Everett,

Wondering if I could ask you a few Questions? I also have a son that is 8 years

old

and has worn hearing aids since age1. He did great with them, so has very good

speach.

but his hearing has dropped in the left ear and we took him for testing and he

is a candidate

for a CI. Did your son hear with aids? And how was his speech? We have been told

that a CI

would really benifit him. And he wants so much to be able to hear the other

kids.

Thanks so much, April

-------------- Original message --------------

From: " Everett Epperson " <wvepperson@...>

Need some advice from experienced CI users. I have a 6 year old son

who had his CI activated today (10-23-06). He had had hearing aids up

to the point of implanting. Based on what we had seen in videos, we

were expecting quite a shock when he was activated. For lack of a

better word, he acted " unimpressed. " He is acting like he doesn't

hear speech at all; just certain sounds. Is this normal? Was your

experiences much the same?

His next mapping is on the 31st.

Any comments would be greatly appreciated.

Thanks in advance,

Everett

[Guest guest]

Hi April and Everett,

Did you know there is another group that is specifically for

parents of children with cochlear implants? It is called cicircle

andyou join the same way you joined this group.

My son has two cochlear implants. He got his first at age 4 and

second at age 8 (he will be 10 in January.) It's an absolutely

miraculous technology that has opened up his world in ways I never

imagined. (His speech is now very clear to the point some people

don't believe he is deaf. Before the implant he had no consonants in

his speech and could not understand spoken language. Now he doesn't

even need to read lips.)

Take care,

Lydia

>

> Hi Everett,

> Wondering if I could ask you a few Questions? I also have a son that

is 8 years old

> and has worn hearing aids since age1. He did great with them, so has

very good speach.

> but his hearing has dropped in the left ear and we took him for

testing and he is a candidate

> for a CI. Did your son hear with aids? And how was his speech? We

have been told that a CI

> would really benifit him. And he wants so much to be able to hear

the other kids.

> Thanks so much, April

>

>

> -------------- Original message --------------

> From: " Everett Epperson " <wvepperson@...>

> Need some advice from experienced CI users. I have a 6 year old son

> who had his CI activated today (10-23-06). He had had hearing aids up

> to the point of implanting. Based on what we had seen in videos, we

> were expecting quite a shock when he was activated. For lack of a

> better word, he acted " unimpressed. " He is acting like he doesn't

> hear speech at all; just certain sounds. Is this normal? Was your

> experiences much the same?

>

> His next mapping is on the 31st.

>

> Any comments would be greatly appreciated.

>

> Thanks in advance,

>

> Everett

>

>

>

>

>

[Guest guest]

Yes, my son wore aids. He had them since he was 2. During the months

of June through August of this year, he suddenly lost most of his

hearing going from moderate to profound. He has had his cochear on

for 1 day and is now starting to recognize his name again; and one

of the most important words, " stop. "

I will keep you updated...

Everett

>

> Hi Everett,

> Wondering if I could ask you a few Questions? I also have a son

that is 8 years old

> and has worn hearing aids since age1. He did great with them, so

has very good speach.

> but his hearing has dropped in the left ear and we took him for

testing and he is a candidate

> for a CI. Did your son hear with aids? And how was his speech? We

have been told that a CI

> would really benifit him. And he wants so much to be able to hear

the other kids.

> Thanks so much, April

>

>

> -------------- Original message --------------

> From: " Everett Epperson " <wvepperson@...>

> Need some advice from experienced CI users. I have a 6 year old

son

> who had his CI activated today (10-23-06). He had had hearing aids

up

> to the point of implanting. Based on what we had seen in videos,

we

> were expecting quite a shock when he was activated. For lack of a

> better word, he acted " unimpressed. " He is acting like he doesn't

> hear speech at all; just certain sounds. Is this normal? Was your

> experiences much the same?

>

> His next mapping is on the 31st.

>

> Any comments would be greatly appreciated.

>

> Thanks in advance,

>

> Everett

>

>

>

>

>

[Guest guest]

Ou 4 yr old son was activated Sept 11th and it was hard to tell when he was

hearing till we realized that he would act silly/hyper whenever he heard the

sounds. He didn't respond to sounds till the next mapping which was a week

later and that's when he noticed some. It got better with each mapping we went

to. He is now doing real god at attending to sounds and is even able to repeat

some sounds without even looking at us and us even trying.

We went to get his pic taken and he heard and repeated the raspberry & 'booboo'

sounds the photogragher was making. Another time during therapy, he actualy

said the 'oh' sound whereas he always had difficulty doing with his hearing aid.

the teacher had tried with him facing her but he couldn't do it and then she did

it behind him by the microphone and he did it. It was awesome.

Give it time and more mappings.

Sheree

>

> It may be that your son's audie mapped him very conservatively so that there

> was very little for him to react negatively to. This is a god question to ask

> your audie. Get all the information you can every time you go.

>

>

> n a message dated 10/23/2006 10:30:23 PM Eastern Standard Time,

> wvepperson@... writes:

> Need some advice from experienced CI users. I have a 6 year old son

> who had his CI activated today (10-23-06). He had had hearing aids up

> to the point of implanting. Based on what we had seen in videos, we

> were expecting quite a shock when he was activated. For lack of a

> better word, he acted " unimpressed. " He is acting like he doesn't

> hear speech at all; just certain sounds. Is this normal? Was your

> experiences much the same?

>

> His next mapping is on the 31st.

>

> Any comments would be greatly appreciated.

>

> Thanks in advance,

>

> Everett

>

>

>